|
iketchum
|
 |
« on: October 27, 2009, 04:38:15 PM » |
|
I am back from Pittsburg. Met the team and saw the hospital.They took 16 vials of blood and said the results would be in two weeks. They saw no reason not to put me on the list, just have to find out what flavor kidney I will need. They do not think I qualify for a pancreas so that is on the back burner for now. So, after running all the way out there and back in two days I still am not on the list.
|
|
|
|
|
Logged
|
|
|
|
|
pamster42000
|
|
« Reply #1 on: October 27, 2009, 05:01:08 PM » |
|
This is the time where you need patience. There is alot invovled for transplant team to do , have to make sure everything is right. You are one step closer to getting a kidney! The journey has begun........I wish only the best for you.
How did your wife handle being on a plane ? The part I don't like is the take-off. Seems to just take my breathe away.
|
|
|
|
|
Logged
|
|
|
|
|
Lillupie
|
|
« Reply #2 on: October 27, 2009, 05:02:11 PM » |
|
How far are you from your transplant center? Wait did we chat on here one evening with a few other people? Are you from Maine?
Lisa
|
|
|
|
|
Logged
|
Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"
It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!
dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
|
|
|
|
kitkatz
|
|
« Reply #3 on: October 27, 2009, 05:06:38 PM » |
|
Take a patience pill and call the coordinator in a week. Good luck!
|
|
|
|
|
Logged
|
 lifenotonthelist.com Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5 Remember your present situation is not your final destination. Take it one day, one hour, one minute, one second at a time. "If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1 |
|
|
|
Slywalker
|
|
« Reply #4 on: October 27, 2009, 05:57:23 PM » |
|
Bill- I had a live donor and I still was in a hurry up and wait mode for about nine months (yeah, almost like having a baby). Test, tests and more tests. Hang in there - and start calling the coordinator on a weekly basis to get updates.  |
|
|
|
|
Logged
|
|
|
|
|
looneytunes
|
|
« Reply #5 on: October 27, 2009, 08:03:28 PM » |
|
Bill: That's a great big first step! Congrats! Glad to hear it.  |
|
|
|
|
Logged
|
"The key to being patient is having something to do in the meantime" AU
|
|
|
|
lizabee
|
|
« Reply #6 on: October 28, 2009, 01:08:11 PM » |
|
I have a living donor also, but I had to wait to get on the list and now have waited 2 years on it even though I have someone to donate to me
|
|
|
|
|
Logged
|
|
|
|
|
tyefly
|
|
« Reply #7 on: October 28, 2009, 01:18:46 PM » |
|
Why do you have to wait for two years......
|
|
|
|
|
Logged
|
IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
|
|
|
|
Slywalker
|
|
« Reply #8 on: October 28, 2009, 05:34:18 PM » |
|
How come the long wait? The time I spent waiting was getting all the tests completed for me and my donor.
|
|
|
|
|
Logged
|
|
|
|
|
iketchum
|
|
« Reply #9 on: October 28, 2009, 05:37:59 PM » |
|
They took 16 vials of blood again and are doing the final tests to get the right kidney match for me. I do not know why it has taken them so long to get all the information they need. I have been with the VA for 16 years for all my treatments, I would have thought they had all the info they need.
|
|
|
|
|
Logged
|
|
|
|
|
Slywalker
|
|
« Reply #10 on: October 28, 2009, 05:53:22 PM » |
|
Silly boy - There is never enough information - just never enough. My biggest problem with the 16 vials of blood is that I am very "bad stick" and getting that many vials is a challenge only for the very experienced. ha ha. Fortunately I think I only had produce the 16 tubes maybe a total of 3 times.
Are you on the waiting list yet?
|
|
|
|
|
Logged
|
|
|
|
|
iketchum
|
|
« Reply #11 on: October 29, 2009, 05:05:04 PM » |
|
As soon as the test results come back they will know what flavor kidney I need and will add me to the list.
|
|
|
|
|
Logged
|
|
|
|
|
paris
|
|
« Reply #12 on: November 09, 2009, 03:13:40 PM » |
|
Bill, any news yet? The waiting game is so hard to play  |
|
|
|
|
Logged
|
It's not what you gather, but what you scatter that tells what kind of life you have lived. |
|
|
|
I Hate Dialysis Message Board
Author
