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Author Topic: IHD poster  (Read 2573 times)
devon
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« on: September 12, 2008, 11:21:24 AM »

I put up an IHD poster on the bulletin board at the dialysis center last week.  This week it was no longer there.  I assume they don't appreciate "just anyone" putting stuff on the board. LOL. 

I printed another one and will put it up again today.  Plus, I will ask the Director of Nursing about it before I do.  My feeling is that I, as a patient, have an absolute right to post something I feel will directly benefit other patients.  But, before I play that trump card, I'll be polite and "inquire".  HeeHee.  THEN I'll put it up again and again and again.

I wonder, though, what might be going through the mind of the person who removed the poster.  Were they put off by the "I Hate Dialysis" approach?  Perhaps they need some insight into what WE (the patients) think about it!?

(See? I am "directing" my anger!) LOL (Warning! Stand Back!)

-Devon
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Lori1851
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This is me Lori , Dustin's mom

« Reply #1 on: September 12, 2008, 11:22:52 AM »

Lol Devon your such a rebel hehehehehhe

Lori/Indiana :cheer:
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David13
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« Reply #2 on: September 12, 2008, 11:33:15 AM »

Good for you!  There shouldn't be a problem with making other patients aware of a resource that is available to them, particularly when you personally have nothing to gain by it.

It almost sounds as though they are afraid of their patients becoming well informed.  It probably makes things easier for them if they do not have patients asking too many questions.   ::)
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
flip
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« Reply #3 on: September 12, 2008, 12:12:27 PM »

I usually catch a lot of grief when I wear my IHD tee shirt.
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Adam_W
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« Reply #4 on: September 12, 2008, 01:02:20 PM »

People's main response when I tell them about IHD or they see my IHD shirt, etc. is "ha ha, that's funny" They seem to see the "I Hate Dialysis" as nothing more than a joke. So whenever I can I tell them what IHD REALLY is, and they usually take it more seriously after that. I remember reading an introduction about a year ago (I can't remember who it was 'cause they haven't posted much since), and she said she found out about IHD from her nephrologist. It turned out she had the same nephrologist as me, and he found out about IHD when I happened to wear my IHD shirt to an appointment. So once people get past the "humour", they tend to spread the word about us.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Sunny
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Sunny

« Reply #5 on: September 12, 2008, 03:28:16 PM »

They probably don't want the poster because they don't know it's about a WEB site. They simply are looking at it as a statement of opinion which may create negativity among patients.
You go gettem Devon. Anger directed appropriately will help to diffuse it.
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Sunny, 49 year old female
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boxman55
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« Reply #6 on: September 12, 2008, 04:01:24 PM »

Maybe just maybe a patient took it home to check us out...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
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« Reply #7 on: September 12, 2008, 05:34:55 PM »

Thanks Devon for your thoughtfulness.  :bow; It could be possible that a patient took it. Keep posting them, someone will benefit by this board.
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TynyWonder
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Calvin

« Reply #8 on: September 12, 2008, 09:49:29 PM »

When I was on dialysis in Alabama, I asked if I could put a poster up and they told me I could and I think I just left one in the lobby and put one on a billboard.   However, I told a couple of patients here in TN about this website and like others have said, they LOL too.    :-\

~Tammy~
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
devon
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« Reply #9 on: September 13, 2008, 02:41:37 PM »

well, I HAD the poster printed but in my haste to get out of the office and on my way, I forgot to take it along. 

BUT, here's what I am going to do... since its possible that someone took it for reference, I will put up several at one time and put a "take one" sign above them!

We need more people to know about IHD for THEIR sake more than our own.  People NEED IHD, I believe.

-Devon
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #10 on: October 02, 2009, 12:29:04 PM »

I want to print out some IHD stuff to take to a kidney foundation thing.  How do I find a poster to print out?
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Restorer
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WWW
« Reply #11 on: October 02, 2009, 01:57:27 PM »

That's the only problem with this forum - the name. It can cause a quick gut reaction that makes dialysis workers want to take it down. Even if they look closer and see it's a forum/support group, they still might think it's all griping and negativity against dialysis. You really need to come here and read the posts to find out how helpful and useful the site really is.
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
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In da House.

« Reply #12 on: October 02, 2009, 03:16:37 PM »

They (the staff) would HATE dialysis too if they had to do it ! I only got told the other day , dont believe anything you read on the net ! If only they knew !!!
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #13 on: October 04, 2009, 01:17:43 AM »

I found the poster - it was a case of not seeing the forest for the trees.  As for the name, everyone laughs when they read it.  They always 'get it' if they're working in the field or a ckd patient.  I took some copies of the poster in to the kidney foundation day I went to and gave them to the movers and shakers - so maybe there'll be a few more NZ'ers on here soon.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
MomInDialysis
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« Reply #14 on: October 07, 2009, 12:28:10 PM »

The name of this website is what drew me to it.  I have taken the poster and cut it up a bit to create business cards to pass out at dialysis with my Mom on Saturdays.  It is a great site and has taught me so much in a cram course.  Thanks to all of you specialists.  You are all WONDERFUL.
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Just Checkin - Debe
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