horror stories

[d-man]

so I'm pretty young and I can't stop doing the things I like to do, skate, surf, snowboard, gymnastics, hard work (run chainsaw etc) and just about anything physically hard. So fare (8 months in) the only problem's I have is dehydration and I'll get nashua to a little bit but I get better after about 2-12 hrs unless I get dialysis first then I'm just fine.
so I want to hear form anyone that can't just stop doing things and if anyone has done anything that did make problems and who do you listen to about your fistula, for me the surgeon says do what ever you wont really have  many problems, the nephrologist is about the same, the techs are different with every one and the nurses are wishy-washy and wont really say anything one way or the other.
I have heard lots of things that are "bad" but I have not heard from anyone that can tell me this is what happened bad to me because of this action.



Edited: Fixed subject line error - okarol/admin

[Phraxis]

You were likely pretty strong when you fell with kidney failure so now you have to stay that way. Doctors and surgeons "fix things" and nurses tend to provide care, i.e. help with your well being. Allot the stuff you mentioned is pretty random providing much opportunity for injury creating complications. I offer the advice on picking some of the things you really enjoy with consideration to random injury possibilities, infection etc and let the others be replaced.

One point, is to listen to your body and give yourself time to rest and recover -- that infinite strength and ability to rebound can be affected by dialysis.

Lastly, we all changes sometimes gradually and sometimes more suddenly. Coping is a critical skill to evolve. (for my part, I replaced climbing with managing money which required working 80 hours a week, and then I woke up in a hospital and will never work that hard again. It was sudden and dramatic  but i sure will not be returning to that schedule, for anything) Life is about change. Keep asking questions.

Just for the record, when I asked my Neph about exercise, he said as much as I could tolerate. And when I shared the completion of a 5 km run, he said "do you think you could do 10?" Obvoiously he was the right Neph for me.

Good luck and safe journey.




Edited: Fixed subject line error - okarol/admin

[billybags]

It must be awful, being young and wanting to do all the things you young ones do. Do things in moderation, but be safe, choose things you really like to do. Remember we dialysis to live, not live to dialysis.Go for it but be very very careful.