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Dialysis: General Discussion
The Renal Network Patient Leadership Committee
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Topic: The Renal Network Patient Leadership Committee (Read 1657 times)
paddbear0000
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Dogs & IHDer's are always glad to see you!
The Renal Network Patient Leadership Committee
«
on:
September 04, 2009, 06:36:51 PM »
Is anyone here on or been on The Renal Network Patient Leadership Committee? My social worker nominated me to be on it, but she didn't have a hole lot of information to give me about it. I'd kind of like to know whhat I've gotten myself into!
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @
www.cafepress.com/RetroDogDesigns
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...or sponsor me at
http://walk.kidney.org/goto/janetschnittger
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Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf
www.caringbridge.org/visit/janetschnittger
Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
okarol
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Photo is Jenna - after Disneyland - 1988
Re: The Renal Network Patient Leadership Committee
«
Reply #1 on:
September 04, 2009, 06:50:14 PM »
You can go to their website at rsnhope.org and read about their different programs.
I volunteer at their offices often, and this year will be on the committee that puts on the Renal Teen Prom (In Jan. 2010)
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
paddbear0000
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Dogs & IHDer's are always glad to see you!
Re: The Renal Network Patient Leadership Committee
«
Reply #2 on:
September 04, 2009, 07:12:02 PM »
I don't think it's the same thing. The application I had said "The Renal Network, Inc." over top of a cluster of 4 states and was in blue. My SW did say it was in clusters of states, if that makes any sense. The one I applied for covers Illinois, Indiana, Kentucky and Ohio.
Logged
********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @
www.cafepress.com/RetroDogDesigns
!!
...or sponsor me at
http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf
www.caringbridge.org/visit/janetschnittger
Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
okarol
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Photo is Jenna - after Disneyland - 1988
Re: The Renal Network Patient Leadership Committee
«
Reply #3 on:
September 04, 2009, 08:35:18 PM »
Sorry, I messed up.
The Renal Network, Inc., is a not-for-profit organization which monitors quality of dialysis care in the states of Indiana, Kentucky, and Ohio (Network 9), and in Illinois (Network 10). The Renal Network is the contractor with the Centers for Medicare and Medicaid Services (CMS) for End-stage Renal Disease (ESRD) Networks 9/10.
History
On July 1,1988, Tri-State Renal Network began the contract for ESRD Network 9 under the national reorganization of the network systems. At that time, the former networks 22 (northern Ohio), 16 (Indiana), and 17 (Kentucky and southern Ohio) were combined into one. On August 1, 1996, Tri-State was awarded the contract for Network 10, and the name was changed to The Renal Network, Inc.
OVERVIEW
The Patient Leadership Committee (PLC) is a dynamic group of patients and professionals that help the Network respond to patient needs and seek ways to improve patient/staff relationships. The PLC represents a cross section of patient treatment modalities from across the Network. This committee provides an approach to patient-related issues and concerns that involve continuously seeking better ways to do things --- ways that lead to more informed patients and better treatment results. This committee acts as an advisory group to the Network's Patient Services Department.
GOALS
• Develop informational and educational resources related to renal disease
• Identify and address needs and concerns of renal patients
• Provide information and feedback to the Patient Services Department
MEMBERSHIP on the PLC requires:
• A staggered three year term of office with the option of serving additional terms
• Attend three meetings a year; two unexcused absences within a year result in termination
• Ability to travel � meetings are held in different locations within the states of Illinois , Indiana , Kentucky , and Ohio (travel expenses are reimbursed)
• Experience with renal issues
• Willingness to work on educational projects and activities
CATEGORIES OF MEMBERSHIP
• Patients (maximum 12), 18 years of age or older
• Family members/caregivers (maximum 3)
• Professionals (maximum
• Members at large (maximum 2)
more info:
http://www.therenalnetwork.org
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
paddbear0000
Elite Member
Offline
Gender:
Posts: 2384
Dogs & IHDer's are always glad to see you!
Re: The Renal Network Patient Leadership Committee
«
Reply #4 on:
September 05, 2009, 07:38:15 PM »
Thanks Karol!
Quote from: okarol on September 04, 2009, 08:35:18 PM
• Professionals (maximum
BTW, that made me laugh. That smiley needs new code!
Logged
********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @
www.cafepress.com/RetroDogDesigns
!!
...or sponsor me at
http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf
www.caringbridge.org/visit/janetschnittger
Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
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