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Savemeimdtba
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« on: June 16, 2009, 11:43:27 AM » |
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So, I went for my monthly check up with the Dr. and he was astounded with my lab results. He says according to the results he got from two weeks ago - if they are correct, I would not need dialysis. We're going on the assumption that they are not correct so we're having them redone in 2 weeks to see what they say.. He said if they do turn out to be accurate then it would be a miracle. Other than my clearance being extremely high and my kt/v being 4.7 - everything else looks very good (except low potassium and iron).
So... I don't know what to hope for here? I'd love to not have to do dialysis but I also don't want to go back to feeling like crap all the time, you know? I'm not sure I've ever felt this well in my life. On the other hand, it'd be nice to not have to do dialysis and work torwards a transplant WITHOUT having to do dialysis.
I guess it's something that I will worry about when/if I get there - so, could you guys send some good vibes my way? Health is always something we strive for.. and this would certainly be a blessing.
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-Kristi-
12/2008 - Began Hemodialysis
03/2009 - Began P.D.
"You gotta swim, swim for your life, swim for the music that saves you when you're not so sure you'll survive"
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staceyand joe92
Jr. Member
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Gender: 
Posts: 99
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« Reply #1 on: June 16, 2009, 11:46:16 AM » |
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sending good vibes!  |
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PKD
in center dialysis 3/week 3 hours for 16 months
11/2008 transplant list (active)
6 living donors denied
12/2009 Kidney Transplant
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paul.karen
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« Reply #2 on: June 16, 2009, 12:33:12 PM » |
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  Miracles can and do happen :-) Good vibes coming your way............
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Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
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monrein
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« Reply #3 on: June 16, 2009, 01:11:47 PM » |
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Here's hoping for that miracle.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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Romona
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« Reply #4 on: June 16, 2009, 01:17:33 PM » |
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 I hope that the labs are right and you stay stable and feel well for a long time.
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rose1999
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« Reply #5 on: June 16, 2009, 02:08:11 PM » |
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You have my positive thoughts  |
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paris
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« Reply #6 on: June 16, 2009, 02:45:09 PM » |
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The nephs told me it would be 6 months until dialysis, and it is three years later. Miracle in my life. Good luck with the next labs. I hope they come back good. |
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 It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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jbeany
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« Reply #7 on: June 16, 2009, 03:12:11 PM » |
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 Hope the first results were right! Maybe you could be one of the lucky patients who don't need it 3 times a week? Go only once or twice, just to give your kidneys a bit of help?
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« Last Edit: June 16, 2009, 03:14:00 PM by jbeany »
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality. |
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willieandwinnie
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« Reply #8 on: June 16, 2009, 03:37:03 PM » |
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 Kristi. I'll say some big prayers for you. That would be a miracle and miracles do happen..... 
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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Savemeimdtba
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« Reply #9 on: June 16, 2009, 06:09:04 PM » |
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Thanks guys, it is appreciated  |
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-Kristi-
12/2008 - Began Hemodialysis
03/2009 - Began P.D.
"You gotta swim, swim for your life, swim for the music that saves you when you're not so sure you'll survive"
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Hanify
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« Reply #10 on: June 16, 2009, 09:39:43 PM » |
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There was a situation here this year of a miracle person - so it does happen. One of my renal nurses told me they have a patient who had been doing dialysis for years who's kidney just up and started working again. Sending every positive thought and prayer your way hon!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
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Sunny
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« Reply #11 on: June 16, 2009, 09:54:53 PM » |
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I hope your next labs are good and things continue to go well for you. Maybe your kidneys will keep working for you for many more years. Don't let that prevent you from getting on the transplant list, though, if you are at the point where you qualify. I have been on the transplant list for 5 years and they have been telling me my kidneys would fail and I'd need dialysis for 8 years now. Sometimes you just never know.
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Sunny, 49 year old female
pre-dialysis with GoodPastures
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RichardMEL
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« Reply #12 on: June 16, 2009, 10:03:51 PM » |
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I add my well wishes to everyone else.. and yes some of my nurses have heard of the odd miracle too. you could be an IHD first!!! I think it is sensible to re-do them to make sure.. the thing is all about how you feel now... and if you do stop dialysis to obviously keep a very close watch in your labs and how they go. Like I'd do labs every 2-3 days and just watch and see how you go. I'm sure the neph would monitor this all very closely in this unusual situation. Fingers crossed for awesomeness!!! |
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions  27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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Joe Paul
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« Reply #13 on: June 16, 2009, 10:44:43 PM » |
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Ill join the well wishers too, good luck  |
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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Jean
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« Reply #14 on: June 16, 2009, 11:38:10 PM » |
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Many many prayers and good wishes for you. I just love miracles, don't you???
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One day at a time, thats all I can do.
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kristina
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« Reply #15 on: June 17, 2009, 02:11:06 AM » |
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I keep my fingers crossed for you!
Good luck wishes from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
He was completion and fulfillment in itself, like a meteor which follows its own path.
- Robert Schumann -
... Oportet Vivere ...
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willowtreewren
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« Reply #16 on: June 17, 2009, 08:05:04 AM » |
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Hoping for another wonderful report for you! Aleta
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011. |
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Savemeimdtba
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« Reply #17 on: July 28, 2009, 03:14:35 PM » |
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I went to the Dr. on Friday and labs still look good (but not AS good as last month) - we have lessened dialysis a bit so I can sleep more at night and we'll see how it goes! He says he doesn't want to stop dialysis because it usually makes things worse and people end up back on it again anyways. But, I'm feeling good and I guess that's all that matters!
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-Kristi-
12/2008 - Began Hemodialysis
03/2009 - Began P.D.
"You gotta swim, swim for your life, swim for the music that saves you when you're not so sure you'll survive"
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