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Author Topic: Terrible YouTube video series - what should be done? Anything?  (Read 32914 times)
LightLizard
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« Reply #25 on: February 08, 2009, 10:02:10 AM »
well, i complained twice to the 'feedback and suggestions' forum. it's almost impossible to find a definite address to reach youtube administration, and it doesn't look like they really read their foums much. i think the forums are just to attract users so they can expose them to more advertising.
my comments were simply trolled by some idiot. perhaps it would be best to inundate the man responsible for this bogus nonsense in the first place. mercola? :Kit n Stik;
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Stacy Without An E
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God's Action Figure

WWW
« Reply #26 on: February 09, 2009, 03:51:49 PM »
I'm really proud of the IHD community.  Through these posts we've not only learned of this charlatan, we also have his phone number, website and the true reason for this video: to sell useless supplements.

This individual has no idea who he's dealing with. 
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Stacy Without An E

1st Kidney Transplant: May 1983
2nd Kidney Transplant: January 1996
3rd Kidney Transplant: Any day now.

The Adventures of Stacy Without An E
stacywithoutane.blogspot.com

Dialysis.  Two needles.  One machine.  No compassion.
monrein
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Might as well smile
« Reply #27 on: February 09, 2009, 04:11:37 PM »
I keep leaving comments too.  Signed griffgail.    :Kit n Stik;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kidney4traci
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« Reply #28 on: February 09, 2009, 10:24:14 PM »
I emailed him.  Hope it helps...
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
twirl
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« Reply #29 on: March 12, 2009, 01:44:21 PM »
I cannot watch past the middle of the first one
my kidneys are too weak to hear that shit skyte ( thanks for the new spelling Adam W )
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dialysisbiller
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« Reply #30 on: April 19, 2009, 07:13:18 PM »
are either of them medical professionals? If not, youtube could be held liable for that crap.

you cannot give medical advice without some sort of disclaimer like pharmaceutical companies due in their TV ads 'consult your doctor' etc etc..... jeez! i only made it through half and through like the rest of you 'where on earth did this woman work??' (kept praying she wasn't going to spill out Davita) :)
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MandaMe1986
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« Reply #31 on: April 21, 2009, 01:39:08 AM »
I think the worse part about those videos is that people are going to goggle the dangers of dialysis and those videos are going to pop up.  Not knowing a thing about kidney failure or dialysis and believe every word.  And I mean I have had kidney problems for years now but dialysis is still a pretty scary subject to me. I would have been scared to death if I would have watched those videos when I first got sick at 15.  They really shouldn't be able to give false information like that.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
angellady07
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« Reply #32 on: April 22, 2009, 08:06:08 PM »
Pure ignorance. They know nothing about the " people"  on dialysis. I'll certainly post my comments.
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Zach
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« Reply #33 on: April 22, 2009, 08:17:45 PM »
There's a lot of ignorance going around about kidney health.

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
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