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Dialysis: General Discussion
I start tomorrow
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Topic: I start tomorrow (Read 3185 times)
Pam
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I start tomorrow
«
on:
May 04, 2009, 05:13:12 PM »
I went to the center today. Fillled out the paper work and got my schedule. M W F. So tomorrow is my first treatment at 6:45 am. Only problem with that is I'm a night owl! It's a 30 min drive and I've never set an alarm for 5 am.
I forgot to ask about cell phones but they do have wireless internet.
so that's a plus. I can take juice and crackers in case I have an issue with BS. They gave me a very nice big tote bag and blanket. The nurse admitted it's cold. I will take my own though this one is pretty thin. I will get my Prakrit and zemplar during treatment and since My Neph is the director I don't have to go to his office anymore. That will save me 3 co-pays. Thanks to all of you, I think it will be OK.
Pam
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jbeany
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Cattitude
Re: I start tomorrow
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Reply #1 on:
May 04, 2009, 05:20:26 PM »
Hang in there, Pam. The first few runs are the worst - it takes a bit for your dry weight to get set, and for your body to get used to the changes.
I'm a night owl, too, and when I started back to in-center, the only opening was 6 am. I get up at 4:30 now. I thought I'd despise it, but it's not as bad as I thought. I don't like getting up to an alarm at any time of the day, so I guess it doesn't matter if it's 4 am or 10 am. Now that I'm adjusted to going to bed earlier, it's actually nice to have the rest of the day when I'm done MWF at 11. I do seem to get a lot more done the rest of the week, too, since I'm usually up by 8 am now.
I see a lot more daylight now, too, and I think it helps my mood.
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
MandaMe1986
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Re: I start tomorrow
«
Reply #2 on:
May 04, 2009, 05:48:43 PM »
Good luck Pam. Let us know how it goes.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.
Matthew 5:3-9
paris
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Re: I start tomorrow
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Reply #3 on:
May 04, 2009, 05:50:24 PM »
We'll be thinking of you tomorrow. Hope the treatment goes as well as possible. Let us know how you do.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kellyt
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Re: I start tomorrow
«
Reply #4 on:
May 04, 2009, 06:01:00 PM »
I hope it goes smoothly for you tomorrow. Maybe it's a good thing you're a night owl. Maybe you will be able to sleep through most of your treatment, but maybe not until you are comfortable with the staff and stuff. Good Luck!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
Ang
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Re: I start tomorrow
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Reply #5 on:
May 04, 2009, 06:56:49 PM »
good luck
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live life to the full and you won't die wondering
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
Re: I start tomorrow
«
Reply #6 on:
May 04, 2009, 07:13:29 PM »
Good Luck!
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma
• Don't Knock on Death's door; Ring the bell and run away. Death hates that.
• I'm not a complete Idiot -- some parts are missing.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: I start tomorrow
«
Reply #7 on:
May 04, 2009, 07:39:25 PM »
You are going to your first dialysis with your IHD family right there with you.
I trust everything goes well. Please give us all the details of your first big D!
I am M W F as well, but my official time is noon.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
angellady07
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Re: I start tomorrow
«
Reply #8 on:
May 04, 2009, 08:14:06 PM »
Pam I'm sending positive thoughts your way. The first day can be a little scary. Remember you aren't alone. Taking your own blanket is a good idea. My temperature setting is 37.5 which is the max and I'm still cold. You might want to take a pillow. It makes the recliner a little more comfy. Keep us posted.
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Rerun
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Going through life tied to a chair!
Re: I start tomorrow
«
Reply #9 on:
May 04, 2009, 10:59:59 PM »
Best of luck.... they are usually pretty nice the first day!
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Pam
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Re: I start tomorrow
«
Reply #10 on:
May 05, 2009, 08:02:27 PM »
Thank you everyone for the well wishes! The first day is over and I'm glad to say it was a smooth one. I got a big glass of ice and a password to use the internet. I was very tired getting up that early but didn't fall to sleep. Too many people to talk to. I was expecting noise and comotion but it was very quiet. Each section has 4 chairs and none of them were full. Didn't have to use headphones for the tvs and you still didn't hear anyone elses.
They used small needles and I didn't feel a thing. I was surprised that when I removed the bandage at home there was no blood. They told me that as soon as they use bigger needles they will start button holes. I go back tomorrow and Fri and then next week start MWF .I did have a headache and felt wobbly for a while but nothing that a good nap didn' take care of.
So if you are just sarting Dialysis my advice is to read this site and dodn't be afraid. I think the fear it's self is the worst thing.
am
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kellyt
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Re: I start tomorrow
«
Reply #11 on:
May 05, 2009, 08:25:16 PM »
Yea! I'm so glad it was a noneventful session. Hopefully you will have many more good days than bad! I'm glad your 1st day is over!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
monrein
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Might as well smile
Re: I start tomorrow
«
Reply #12 on:
May 06, 2009, 06:45:38 AM »
Hope the noneventfulness continues for you Pam.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
David13
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A meow massages the heart.
Re: I start tomorrow
«
Reply #13 on:
May 06, 2009, 06:48:26 AM »
Great to hear, Pam!
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
Stoday
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Re: I start tomorrow
«
Reply #14 on:
May 06, 2009, 07:13:57 AM »
I expect to start later this year, so it was very helpful to hear how you got on.
Very
pleased to hear that it all went well.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
MandaMe1986
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Re: I start tomorrow
«
Reply #15 on:
May 06, 2009, 11:44:05 AM »
I am happy to hear it went so smooth. I hope it continues.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.
Matthew 5:3-9
angellady07
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Re: I start tomorrow
«
Reply #16 on:
May 06, 2009, 11:47:21 AM »
Pam, I'm so glad everything went well. Take care.
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Rerun
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Going through life tied to a chair!
Re: I start tomorrow
«
Reply #17 on:
May 06, 2009, 11:56:06 AM »
Sounds like you have a great center. I hope your success continues. But, remember on those bad days you have us to talk to.
Glad you feel okay.
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: I start tomorrow
«
Reply #18 on:
May 07, 2009, 11:08:58 AM »
I totally agree with Rerun. My first sessions were quite okay as well. Just prepare yourself for the ones that are not so good.
Your centre sounds great. Internet!!!!!!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
Pam
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Re: I start tomorrow
«
Reply #19 on:
May 07, 2009, 01:00:36 PM »
Well the second day was pretty much like the first except for the headache. Never do I want one of them again!!. The nurse said that tomorrow they would run without taking off any fluid. I know I'm not retaining water at all. I can still see and feel all of the bones in my feet , legs and ankles. I weigh myself as soon as I get up every am and today I weigh 3 lbs less trhan I did on Mon.
I' so glad they have internet. But I need a new notebook. My laptop is a 15 in sscreen and is to heavy and slippery to operate one han handed. So any one that can recomend something let me know.
Pam
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willowtreewren
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My two beautifull granddaughters
Re: I start tomorrow
«
Reply #20 on:
May 07, 2009, 01:42:06 PM »
You will probably feel better if they don't take off extra fluid. You must still have some functioning. I always had to fight about taking off too much fluid from my husband.
It might take them a while to get your dry weight right. Speak up. You know your body better than they do!
Here's for continued success.
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
Maxridex
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Re: I start tomorrow
«
Reply #21 on:
May 08, 2009, 05:57:36 AM »
Good luck
Let us know your journey of dialysis.
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'' Never give up '' & '' You will never walk alone ! ''
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dkerr
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It is what it is . . .
Re: I start tomorrow
«
Reply #22 on:
May 08, 2009, 02:19:25 PM »
There's a guy at my center who is on his cell phone for nearly the whole 4 hours.
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Lucinda
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Life is great!
Re: I start tomorrow
«
Reply #23 on:
May 10, 2009, 06:49:05 PM »
I use to get horrendous headaches because they were trying to take off fluid that wasnt there. Now when the first sign of one appearsI give myself Saline and the headache disappears.
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