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Author Topic: Transplant Brings Two Friends Together (Our own Donnia!)  (Read 3529 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: July 21, 2008, 12:12:14 AM »
Transplant Brings Two Friends Together

Reported by: KSAN NEWS

WATCH THE VIDEO: http://conchovalleyhomepage.com/media_player.php?media_id=12871

Sunday, Jul 20, 2008 @11:24pm CST

Back in November of last year, we introduced you to San Angeloan Donnia Robles who was in need of a kidney. Well that miracle has come true for Donnia and her family. This all became reality for her on June 5th after being on the transplant list since September of 2007. A friend from high school became a donor to the organ that Donnia was in need of; Joyce Steen found a donation jar at a convenience store and gave Donnia a phone call that changed her life.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
donnia
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me and my donor Joyce
« Reply #1 on: July 21, 2008, 12:08:56 PM »
Tee Hee Hee... I knew you would stumble upon this Karol!  :)

Yep, this is me and my donor, Joyce.  What an inspiration she is.  It kinda ticks me off though that they cut some things out.  She said one of the best things about donating (besides saving my life) was to see how her kids reacted to it.  Her girls (aged 16 and 18) look at her totally different now.  BOTH of them have told her that they definately want to be organ donors.  The youngest is mad because she cant have it on her license yet :)  Wow... she  has done a great job with those girls!   :flower;

Oh, and let me just add.. PREDNISONE SUX!  I am soooo not that huge!  Well, I am now....but it is the prednisone!  I wasn't that big before transplant... not even after a weekend of overdoing it LOL   :beer1;

I can start exercising in 3 weeks though..... it will get better  :thumbup;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
paris
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« Reply #2 on: July 21, 2008, 12:20:40 PM »
Thanks for sharing!  Donnia, your friend is so incredible.  Glad you are both doing well. It was nice to see and hear you!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
angela515
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i am awesome.
« Reply #3 on: July 21, 2008, 12:33:50 PM »
You look amazing!

I too hate prednisone, and have a permanent "moon face", which when anyone looks at me thinks, her face is huge! I hate it, but it's better than not being here.  :bow;

Congrats!!!!  :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
monrein
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Might as well smile
« Reply #4 on: July 21, 2008, 02:20:58 PM »
So nice to see both of you "live and in person", prednisone or no prednisone.  Fantastic.    :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
donnia
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me and my donor Joyce
« Reply #5 on: July 21, 2008, 03:23:01 PM »
Thank you Thank you Thank you  :flower;  <----- I love that... it is soooo cute!

I felt HUGE uugghghhh!!! oh well, like Angela said.. at least I am here and peeing!!!  (and pee I DO!!!)  I am still having more output than intake!!! 

Yall are soo sweet... thank you all!
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
willieandwinnie
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« Reply #6 on: July 21, 2008, 03:32:53 PM »
:grouphug; donnia, what a touching story and Joyce is a true angel. Give her a hug for me.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
donnia
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me and my donor Joyce
« Reply #7 on: July 21, 2008, 04:12:29 PM »
I will definately do that willieandwinnie  :flower;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
kellyt
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« Reply #8 on: July 21, 2008, 05:43:15 PM »
Donnia - it's so awsome to hear your voice!  I think you look fabulous!   :flower;    Nice story!

I see my nephrologist on Thursday.  I'm going to talk to him about possibly going to another hospital.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
donnia
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me and my donor Joyce
« Reply #9 on: July 23, 2008, 04:25:54 PM »
Thanks Kelly!  I feel like a beached whale!  I really wished they wouldn't have cut so much out....    :Kit n Stik;  she said so many positive things about being a live donor  :flower;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
pelagia
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« Reply #10 on: July 23, 2008, 05:40:11 PM »
I just had a chance to watch this.  It's wonderful, Donnia.  You both look wonderful. :grouphug; to you and Joyce.   
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
MIbarra
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Stopping to smell the bluebonnets
« Reply #11 on: August 22, 2008, 08:32:36 PM »
I just saw this too! And I agree, you do look wonderful!
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Cadaver transplant April 29, 2007
Michael57
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« Reply #12 on: February 02, 2009, 02:31:19 PM »
Hi:

Yes, prednisone can have some nasty side effects. Many nephrologists now are not using the drug as part of the anti-immune regimen. I, after taking it for almost eight years, began weaning off it under my doctor's supervision and now take none at all.

This route is not for everyone, but perhaps worth exploring with your nephrologist. (Other meds like CellCept can also cause weight gain.)

Good luck
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pelagia
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« Reply #13 on: February 04, 2009, 03:54:02 AM »
Quote from: Michael57 on February 02, 2009, 02:31:19 PM
Hi:

Yes, prednisone can have some nasty side effects. Many nephrologists now are not using the drug as part of the anti-immune regimen. I, after taking it for almost eight years, began weaning off it under my doctor's supervision and now take none at all.

This route is not for everyone, but perhaps worth exploring with your nephrologist. (Other meds like CellCept can also cause weight gain.)

Good luck

Just this morning on another thread I was looking for someone who weaned completely off of prednisone after some time on a standard regime.  I would like to know more about this.  If you have any additional info, or would be willing to pm me the name of your transplant center, I would appreciate it.

P.S. you should go to the new members section and give us an intro if you haven't already.  thanks!
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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