The Pain is Out Of Control

[Wattle]

Hey Paul,

I also have PKD and am on PD. Pain comes and goes with me. But if I have a cyst burst.... ggggrrrrrrrrrr that really is NASTY! I need STRONG pain meds or a hospital stay with morphine. I would look into other reasons also. Have you had a scan to check for kidney or Gall stones? Do you have liver cysts? (very common with PKD)

I would also recommend looking for a new Neph. Pain should not be ignored. There are other options available. Being able to pee when you start dialysis is a great advantage. Try to keep them in while you are still peeing. Drinking is worth it!

[twirl]

paul.karen
OMG, I have pkd and have felt and said the exact same things you did
and I passed the disease to my children
but my twin and older sister did not get pkd
I think my pain did get less as I have been on dialysis
but the pain is still there and it is horrible
I can feel my cycsts and sometimes it feels like when I was pregnant and the baby moved
paul.karen - I am saddened to tell you that your urine out put will decrease as you are on dialysis     please enjoy peeing while you can
                 I miss it      I had to get off and go pee pee about two hours in my treatement ( for the first 2 years)    those were the good ole days
you are very special to me and I do not want you to be in pain     addictive--- so what     at least you are not in pain

[paul.karen]

Well thank you all for your GOOD wishes.
My Doctor is out of town.  His mother died and he went to India for two weeks.  But his assistant did give me a perscription for percocet to hold me over until he gets back.

I have had no scans for gallbladder stones or to look for cysts on my liver?  At least they haven't told me thats what they were looking for.  All i know for sure is the tech who scanned my kidneys said she had never seen so many cysts before.  That was a couple years ago.

The pain is very manageable now.  So i feel much better.
Thx again for all your input.
Twirl thx :-)

[pelagia]

good news! 

[thegrammalady]

it's good you have found some releif