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Author Topic: high phosphorous  (Read 3616 times)
trojan ska
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« on: November 10, 2008, 09:05:16 AM »
Hi everyone

I am pre-dialysis

I wanted to start a new post to ask a question regarding my latest labs. It looks like my creatinine jumped from 5.2 to 5.8 in the last month. sodium is 141, potassium is 4.0, phosphorous SerPl Qn is 6.4 (HIGH)

My Nephrologist cannot see me until Dec 1st. I figure if he is fine with waiting that long so am I.

My question is whether anyone is familiar with high phosphorous and what I can do to help. It looks like tums or phoslo is given as a phosphate binder to help prevent the body from absorbing phosphorous. Also some sort of calcium supplement.

I want to be proactive before this appointment and help myself. I have left his nurse a message about possibly getting the phoslo. What type of calcium should I buy? Does anyone have any advice?

Thank you

Scott





EDITED: Moved to general discussion - Sluff/Admin
« Last Edit: November 10, 2008, 05:26:38 PM by Sluff » Logged
“Just can't live that negative way...make way for the positive day!”  -Robert Nesta Marley

creatinine 5.0 GFR 14 potassium 4.2 sodium 140
cellcept 1000mg, prednisone 5mg, aranesp 100 mcg/month, felodipine 5 mg/3 per day, labetelol 200 mg/3 per day
monrein
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« Reply #1 on: November 10, 2008, 09:29:15 AM »
I take calcium carbonate (500mg) tablets, usually one with each meal, but two if it's a bigger meal or has more higher phos. foods.  We don't seem to deal with phoslo or renagel here.  I don't know anyone who takes those but I know that many on this forum do.
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LightLizard
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« Reply #2 on: November 10, 2008, 09:48:35 AM »
i take one tums tablet with every meal, plus one fosrenol tablet.
everyone is just different enough to make the doctors crazy.
 :sir ken;
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Rerun
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« Reply #3 on: November 10, 2008, 10:04:45 AM »
Maybe you need to cut down on high phosphrous foods.  Dairy (milk, cheese, ice cream), pancakes, biscutes, nuts (peanut butter), Pepsi/Coke ... etc.


I would start there before taking pills until you have to.
       
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rookiegirl
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« Reply #4 on: November 10, 2008, 03:13:56 PM »
I'm with Rerun.  I would cut back on high phosphorus foods.  Your level is high.  My Neph and PD Clinic wants me below 5.5.  I'm currently around 4.3.

I take 2 Tums Smoothies 750 mg tablets at each meal.  This has been working really well for me.
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jbeany
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« Reply #5 on: November 10, 2008, 10:11:40 PM »
The problem with just taking the Tums without talking to your doc about it is that Tums is really high in calcium, and suddenly raising your calcium level can hurt you worse than the high phos will.  Best to make sure you know what your level of calcium is before you start self medicating.  Until the appointment, cut back on high phos foods.  Dairy and nuts are the biggest ones.  Eat chicken or turkey instead of red meat, cut down on cheese and yogurt, and skip the peanut butter.  Once you get the okay from your doc, you can go back to a less restrictive diet combined with binders.
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trojan ska
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« Reply #6 on: November 11, 2008, 04:09:32 AM »
My calcium is 7.9 so it's low right now.

My nephrologist recommended tums.

Hopefully it helps.

Thanks for all the feedback everyone.
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“Just can't live that negative way...make way for the positive day!”  -Robert Nesta Marley

creatinine 5.0 GFR 14 potassium 4.2 sodium 140
cellcept 1000mg, prednisone 5mg, aranesp 100 mcg/month, felodipine 5 mg/3 per day, labetelol 200 mg/3 per day
Lori1851
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« Reply #7 on: November 11, 2008, 11:45:09 AM »
My son use to take the Fosrenol chewables but then switched I think to a pill form. Ask your dietician for a low phosphorous diet. I think carbonated drinks have alot in them along with alot of foods like potatoes. You can soak your potatoes overnight and that will help.
You can also Google HIgh Phosphorous foods.

Lori/Indiana
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thegrammalady
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« Reply #8 on: November 11, 2008, 12:39:47 PM »
just remember that no matter phos binder you use, if you put food in your mouth take your meds too. it doesn't really help to eat dinner at 6 and take your binders then at 8:30 have pie without binders.  i have binders everywhere, in my purse, in the car, in my jacket pocket at my daughters house. you never know when you will be away from home and somebody decides its time to eat.
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Zach
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« Reply #9 on: November 11, 2008, 12:52:51 PM »
Quote from: thegrammalady on November 11, 2008, 12:39:47 PM

just remember that no matter phos binder you use, if you put food in your mouth take your meds too. it doesn't really help to eat dinner at 6 and take your binders then at 8:30 have pie without binders.  i have binders everywhere, in my purse, in the car, in my jacket pocket at my daughters house. you never know when you will be away from home and somebody decides its time to eat.


Excellent point!

8)
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502Blues
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« Reply #10 on: November 15, 2008, 03:58:10 PM »
I take Renegel 800mg tablets, 4 with each meal, and i eat a normal amount of high phosphorous foods and my levels stay within normal range
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RightSide
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« Reply #11 on: November 16, 2008, 03:11:22 PM »
When taking phosphorus binders like Tums, it's important to take them no later than 10 minutes after you start eating.  The reason is that phosphorus absorption actually begins rather quickly, in the duodenum, even before the food enters the intestines.

I take my Tums binder just before I start eating my first mouthful of food.
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trojan ska
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« Reply #12 on: November 24, 2008, 07:19:16 AM »
Thanks for all the feedback once again.
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“Just can't live that negative way...make way for the positive day!”  -Robert Nesta Marley

creatinine 5.0 GFR 14 potassium 4.2 sodium 140
cellcept 1000mg, prednisone 5mg, aranesp 100 mcg/month, felodipine 5 mg/3 per day, labetelol 200 mg/3 per day
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