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Author Topic: Quotes from IHD members in newsletter  (Read 2509 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: October 23, 2008, 04:10:11 PM »
Original thread here http://ihatedialysis.com/forum/index.php?topic=9529.0  What do you wish your family understood about kidney disease?
Column below from the Fall 2008 Live & Give Newsletter - see the full issue here http://rsnhope.rtrk.com/?scid=590674
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #1 on: October 23, 2008, 04:45:34 PM »
Nice job, Okarol.  Thanks for sharing our thoughts.  You are such a great advocate for us  :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sluff
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« Reply #2 on: October 23, 2008, 06:11:36 PM »
Thanks Karol.
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Slywalker
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« Reply #3 on: October 24, 2008, 09:50:08 AM »
Very nice Karol -  :clap;

Thanks

Sandyb
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Zach
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"Still crazy after all these years."
« Reply #4 on: October 24, 2008, 11:41:13 AM »
Did RSN pay IHD a royalty fee?
 :cuddle;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #5 on: October 24, 2008, 11:45:16 AM »
Quote from: Zach on October 24, 2008, 11:41:13 AM
Did RSN pay IHD a royalty fee?
 :cuddle;

Fee? Shoot! Next time I will call you in for negotiations Zach!  :P
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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