I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: karen547 on September 12, 2008, 02:29:49 PM

Title: this might be a fun topic
Post by: karen547 on September 12, 2008, 02:29:49 PM
This may be interesting. What is/was your after dialysis ritual? I mean what do you like doing right after treatment when you get home, etc?
I know on days like today, when it's cold and rainy, I love a cup of coffee or hot chocolate! I am drinking cocoa now as I write this! I kind of had a bummer of a treatment, I started to clot, and also had a headache. so glad to be home and it's friday!
Title: Re: this might be a fun topic
Post by: peleroja on September 12, 2008, 03:59:33 PM
Hey, what about us PD people?
Title: Re: this might be a fun topic
Post by: kitkatz on September 12, 2008, 04:00:50 PM
Lay it on us you PD people!

After hemo dialysis, I go home and sleep for an hour before I get up and go to work now.  It used to be I would eat dinner and then go on computer.
Title: Re: this might be a fun topic
Post by: kevno on September 12, 2008, 04:07:51 PM
When I get home Sleep! Still have some of that pethidine in me. For the pain in my leg while on dialysis. Then after about 4 hours of sleep. Put The TV on. That's my boring time after dialysis. When on CAPD after the exchange BACK TO WORK :-\
Title: Re: this might be a fun topic
Post by: twirl on September 12, 2008, 04:14:56 PM
before dialysis I cuss and it is ok b/c at that hour I am the only one up and my pets don't care if I cuss
I get on IHD and complain about screwalysis
then I reread an old post where members are telling me to go to Dialysis

pre dailysis  on  IHD
after D      on IHD
IHD is a ritual
Title: Re: this might be a fun topic
Post by: thegrammalady on September 12, 2008, 04:29:32 PM
i leave the house at 4:30am and get home around 10:30 to 11am, so i usually eat. today i spent time on the computer then took a nap around 2. fairly typical day.
Title: Re: this might be a fun topic
Post by: ReneeP on September 12, 2008, 05:14:53 PM
I think I'm liking my PD cycler more and more. 

After my 10 hour treatment I wake up and get my daughter ready for school and myself for the day....

Glad it's while I sleep and isn't causing excruciating cramps or anything.   I think the cycler doesn't pinch at the end of the drain as much as the manual method either.

The only thing is I have to go to bed at 8 pm with my daughter to get up in time to get everyone off to work and school.  I'm getting off the subject aren't I

After treatments...   Off to the day, get to unhook from "THE MACHINE"   LOL

Renee   

Oh, to Karen who said "cold and rainy, I love a cup of coffee or hot chocolate! I am drinking cocoa now as I write this! I kind of had a bummer of a treatment"    Uggggg.  coffee.   :Kit n Stik;     I miss coffee, at least Lots and lots of coffee.      :bandance;
Title: Re: this might be a fun topic
Post by: twirl on September 12, 2008, 05:25:43 PM
ReneeP
do you do the cycler every night
do you stick yourself
can you swim
do you need to have assistance or can you do it alone
Title: Re: this might be a fun topic
Post by: ReneeP on September 12, 2008, 05:42:46 PM
ReneeP
do you do the cycler every night
do you stick yourself
can you swim
do you need to have assistance or can you do it alone


Twirl,

The cycler is every night.  Something that takes getting used to.   I don't stick myself for dialysis because I have the catheter in my abdomen which has the straight alleyway to my Peritoneal cavity.  BUT, I am a type I Insulin dependant diabetic so I guess you can say Yes, I stick myself quite often just subcutaneously not intovein...

I cannot swim in the ocean, or reservoirs things like that.  But if the pool is chlorinated well, I can.  Just depends on the communicable germs and bacteria.   Mind you my catheter is in great shape as well as my entry site.

And I can do it alone.  If there are any problems the machine stops working and an alarm sounds to let me know.  If I sleep through it somehow, I suppose I would just do manual pd the next day since the machine stopped and I didn't get treatment.   My husband is a truck driver and is on the road, away from home alot.   Plus I have a 5 year old daughter.  I am very mobile, being able to unhook and temp. stop treatment also if necessary.  The only problem/issue I've had where it didn't is where my damn cat bit through my drain hose and instead of draining into the toilet, I basically pee'd all over my carpet.   ::)
Title: Re: this might be a fun topic
Post by: cherpep on September 12, 2008, 08:45:54 PM
I do dialysis at home in the evening, after work, after dinner, after dinner cleanup.  So, by the time I am finished, I am exhausted and a bit dizzy.  So, I stumble over the recliner and snooze for about an hour until I get my bearings back, then I stumble upstairs to get about 3 hours sleep before getting up for work and starting all over again.  That pretty much sums up my life these days.
Title: Re: this might be a fun topic
Post by: draven on September 13, 2008, 12:39:12 AM
I come off dialysis usually at about 3:30. and i normaly am starving coming off the machine. so i sometimes get mcdonalds  :angel; (grilled chicken foldover & cup of Ice). i then log on to I Hate Dialysis and see what u guys are up to. and then take a nap.
Title: Re: this might be a fun topic
Post by: Ang on September 13, 2008, 02:50:20 AM
usually  have  tea,end  up crashing  on  the  couch  for  an  hour  so,  then  insomnia  sets  in  till  2/3  am  then  at  7  am  my  daughter   taps  me  on  the  head  till  i  wake  and  we  do  it  all  again
Title: Re: this might be a fun topic
Post by: monrein on September 13, 2008, 04:51:08 AM
My husband usually picks me up after D, although sometimes I come home by subway.  I retreat into myself for a couple hours by checking in with everyone here.  Then I have dinner and read or watch TV.  I try not to nap at all during the day so I can sleep at night.
Title: Re: this might be a fun topic
Post by: devon on September 13, 2008, 02:36:58 PM
good topic!

I drive the 20 miles home and usually stop along the way to get something for my kid to eat and a little something for me.  He likes Arby's and that's on the way home.  I love their Ar-B-Q for 99 cents.  Just enough for me. That and a glass of water and I am good to go.

thinking about the trip home and where to stop for food dominates my thoughts in the last hour and helps things move along as I watch the clock!

-Devon
Title: Re: this might be a fun topic
Post by: boxman55 on September 13, 2008, 04:34:44 PM
When I get done I have to wait for the paratransit bus and depending on how many people have to be dropped off before me I will get home about 45 minutes later when I live maybe 8 or 9 minutes away. I will make something to eat and drink a sprite then if it is nice hang out outside...Boxman
Title: Re: this might be a fun topic
Post by: flip on September 13, 2008, 04:44:29 PM
Devon....I like the Ar-B-Q too but they have almost 1100 mg. sodium so I swore off when I started dialysis.

I usually run errands when I get off...grocery store, liquor store, etc. I usually put the top down and crank up the oldies. I feel pretty good by the time I get home.
Title: Re: this might be a fun topic
Post by: Wallyz on September 13, 2008, 04:56:10 PM
I used to go to a coffee shop and get decof after I dialyzed in center.  Now, I help my wife get off to work, then get on the computer until the kids get up, then get them ready for school.
Title: Re: this might be a fun topic
Post by: Bajanne on September 13, 2008, 06:16:15 PM
During my first year or so on dialysis my after-dialysis programme was - CRASH ON THE COUCH!!  Now I just find something to eat as soon as I can, and then my day just continues as in pre-dialysis days.
Title: Re: this might be a fun topic
Post by: RichardMEL on September 14, 2008, 08:37:09 AM
I do afternoon shift so usually i get home just around 6 - depending on when I finish and sometimes I feel so drained I have to lie down for a nap for an hour or two... Celeste usually comes and sits on my chest which is a comfort until the weight gets too much then I push her off and get up lol.. other times I feel quite OK and I might just get food (hunger after dialysis seems to be a common thread!) and just relax in front of TV or whatever.. unless I'm going out to dinner or something with the family.

I try not to drink too much... since the next session is 2-3 days away...
Title: Re: this might be a fun topic
Post by: Mr.N on September 14, 2008, 09:20:28 AM
 I usually get home from the clinic around 6 pm. I feed my dogs, and since I'm slightly dehydrated from dialysis I rehydrate myself   :beer1; with a (small) vodka and cranberry juice. Needless to say, it's quite relaxing;  I eat, watch TV or visit pointless websites  ;D, then go to bed a couple hours later.
Title: Re: this might be a fun topic
Post by: Jay72 on September 15, 2008, 09:06:28 AM
I don't very often have a nap because if I do I would never sleep at night.  But by the time I am off and have my machine cleaned and such usually the kids are home within 30 minutes so I just do the regular stuff that needs doing with 9 yr old twin boys, so if you can imagine there isn't much time for rest.
Title: Re: this might be a fun topic
Post by: Stacy Without An E on September 16, 2008, 04:20:45 PM
After every Dialysis treatment I ritualistically:

--- Say goodbye to Angelic Blond Babe Patient Who Looks Like Loni Anderson.  Every time she gives me a look like I crapped on her cat.

--- Use my post-Dialysis diziness to make the bike ride home more thrilling and exciting.

--- When I arrive home, throw off all my clothes, curl up in the corner and weep uncontrollably.

--- Make giant bowl of salted and buttered popcorn, plop in front of the TV and watch Winona Ryder movies wishing I were her hubby.

--- Wake up next morning with popcorn kernels stuck in certain parts of my anatomy and butter drool on my chin.

--- Progress to center and repeat the above until depression evaporates.
Title: Re: this might be a fun topic
Post by: monrein on September 16, 2008, 04:45:49 PM
 :rofl;  I might adopt some of your rituals with only a few gender-adjusted variations.
Title: Re: this might be a fun topic
Post by: Bajanne on September 17, 2008, 06:59:00 AM
Stacy and Monrein, you crack me up! :rofl; :rofl; :rofl;