I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: devon on September 12, 2008, 11:21:24 AM
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I put up an IHD poster on the bulletin board at the dialysis center last week. This week it was no longer there. I assume they don't appreciate "just anyone" putting stuff on the board. LOL.
I printed another one and will put it up again today. Plus, I will ask the Director of Nursing about it before I do. My feeling is that I, as a patient, have an absolute right to post something I feel will directly benefit other patients. But, before I play that trump card, I'll be polite and "inquire". HeeHee. THEN I'll put it up again and again and again.
I wonder, though, what might be going through the mind of the person who removed the poster. Were they put off by the "I Hate Dialysis" approach? Perhaps they need some insight into what WE (the patients) think about it!?
(See? I am "directing" my anger!) LOL (Warning! Stand Back!)
-Devon
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Lol Devon your such a rebel hehehehehhe
Lori/Indiana :cheer:
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Good for you! There shouldn't be a problem with making other patients aware of a resource that is available to them, particularly when you personally have nothing to gain by it.
It almost sounds as though they are afraid of their patients becoming well informed. It probably makes things easier for them if they do not have patients asking too many questions. ::)
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I usually catch a lot of grief when I wear my IHD tee shirt.
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People's main response when I tell them about IHD or they see my IHD shirt, etc. is "ha ha, that's funny" They seem to see the "I Hate Dialysis" as nothing more than a joke. So whenever I can I tell them what IHD REALLY is, and they usually take it more seriously after that. I remember reading an introduction about a year ago (I can't remember who it was 'cause they haven't posted much since), and she said she found out about IHD from her nephrologist. It turned out she had the same nephrologist as me, and he found out about IHD when I happened to wear my IHD shirt to an appointment. So once people get past the "humour", they tend to spread the word about us.
Adam
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They probably don't want the poster because they don't know it's about a WEB site. They simply are looking at it as a statement of opinion which may create negativity among patients.
You go gettem Devon. Anger directed appropriately will help to diffuse it.
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Maybe just maybe a patient took it home to check us out...Boxman
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Thanks Devon for your thoughtfulness. :bow; It could be possible that a patient took it. Keep posting them, someone will benefit by this board.
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When I was on dialysis in Alabama, I asked if I could put a poster up and they told me I could and I think I just left one in the lobby and put one on a billboard. However, I told a couple of patients here in TN about this website and like others have said, they LOL too. :-\
~Tammy~
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well, I HAD the poster printed but in my haste to get out of the office and on my way, I forgot to take it along.
BUT, here's what I am going to do... since its possible that someone took it for reference, I will put up several at one time and put a "take one" sign above them!
We need more people to know about IHD for THEIR sake more than our own. People NEED IHD, I believe.
-Devon
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I want to print out some IHD stuff to take to a kidney foundation thing. How do I find a poster to print out?
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That's the only problem with this forum - the name. It can cause a quick gut reaction that makes dialysis workers want to take it down. Even if they look closer and see it's a forum/support group, they still might think it's all griping and negativity against dialysis. You really need to come here and read the posts to find out how helpful and useful the site really is.
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They (the staff) would HATE dialysis too if they had to do it ! I only got told the other day , dont believe anything you read on the net ! If only they knew !!!
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I found the poster - it was a case of not seeing the forest for the trees. As for the name, everyone laughs when they read it. They always 'get it' if they're working in the field or a ckd patient. I took some copies of the poster in to the kidney foundation day I went to and gave them to the movers and shakers - so maybe there'll be a few more NZ'ers on here soon.
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The name of this website is what drew me to it. I have taken the poster and cut it up a bit to create business cards to pass out at dialysis with my Mom on Saturdays. It is a great site and has taught me so much in a cram course. Thanks to all of you specialists. You are all WONDERFUL.