I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Centers => Dialysis: Doctors => Topic started by: carla13 on August 14, 2008, 12:38:12 AM
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Hi,
I don't mind if no-one reads this. just writing it will make me feel better!
I had a neckline put in about two and a half weeks ago, andwhen I woke up from the operation WTF??!! the neckline wasn't exiting from my right shoulder (as it had when I had one almost twenty years ago) but from the inside of my right breast!! :urcrazy;
I'm so p****d off I could scream! Did the surgeon not think about me being a woman and the complications of wearing a bra with such a stupid exit site? Did he not stop to consider that every time I go to bed if I roll on my side it's hideously uncomfortable??!! I have clamp shapes pressed into my skin and my skin is so irritated I can't sleep. Plus when I go for dialysis I have to remove my undergarments so the nurses can get to the line!
The surgeon conveniently went on holiday immediately after doing this to me, but he's back next week. Now I want to give him hell for doing this to me and also to ensure he doesn't do it to any more women he operates on, but he's the guy who will be responsible for deciding if I can have a PD catheter put back in.
So, the question is: Do I give him what for and risk that my 'attitude' will sway his judgement on re-inserting my catheter?
OR: Grit my teeth and be charming to him so that i get what I want?
Don't you hate it that life decisions often are dependent so much on other people??
:banghead;
xx
carla
xx
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hey carla,
i dumdfounded and don't know what to say.
is this position a regular thing?
no where else to go?
usually if you give somebody what for it rarely achieves much but makes you feel better cause you got to :boxing; for a short while.
weigh up the pros and cons then let him have it where it hurts :yahoo;
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Hey Ang!
Thanks for that! :thx; Unfortunately i can't go anywhere else as No other hospital in my area does this procedure as far as I know, but that might be an option worth looking into!
xx
carla
xx
EDITED: Removed color prompt - Sluff/Admin
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wow that's unbelieveable... is it because (maybe) you had the previous line to your shoulder and somehow they couldn't go there again? don't they use the left side??? Without trying to sound crude how could they not notice it was your breast they were going into/through? I understand it's hard enough for ladies with chest catheters (and for once I'm happy to be a man in this regard)... I can't imagine how it is for you... I hope you can somehow get some recourse... maybe it fixed so it isn't there....
(gentle) hugs for you xox :cuddle;
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Carla, I just had mine removed, it was in since April and it was a similar thing. They run it under the skin quite a ways to help prevent infection directly into the body and the positioning is very weird. I eventually got used to tucking the tube bits into my bra and towards my side so it wouldn't look like I had a ginormous right nipple. Sort of like a marshmallow. The clamp marks are tough. I used to have the nurse put a bit of gauze under them as part of the dressing. I also eventually stopped wrapping the pigtails (tubes hanging down) with anything so they took up less room in the cup of the bra. The worst though was the rash I got from the continuous dressing. Hopefully it'll go away soon.
Hang in there Carla. :cuddle;
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Such an invasive procedure you would think they would let you know before they do something like this.
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you should have been informed ahead of time
maybe there could have been some other choice
sorry about this
get better
cheryl
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Thanks everyone!
Monrein, I think the gauze is an excellent idea, unfortunately i have 'kidney brain' at the moment, otherwise I might have thought of this by myself! D'oh!
Thanks for gentle hugs and thoughts! It's amazing how healing it can be just knowing that someone in the world understands! Feel a lot calmer about it all now and will have a 'gentle' word with the surgeon next week (I'll be very calm - honest!) and suggest that this position of the line in a female patient isn't the best idea...
And then ask him to put my PD catheter in! knowing my luck he'll exit it out of my ear - or worse!!!!! :oops;
xx
carla
xx
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The same thing happened to me. When I woke up and it was coming out from under my armpit I threw a royal fit. I called the surgeon and HE ANSWERED. I was screaming into the phone "Why did you place this thing so it was coming out under my arm for God's SAKE"! He was quite and then he calmly said "To save your life".
Oh, well, talk to ya later......... AHHHHHHH What do you say to that?
If you can get away with it go braless....
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Cheers Rerun!
Unfortunately being bra - less is not an option! I have to remove it for my haemo, but that's the ONLY time lol!
Saving your life huh? God that's brilliant! There's no good comeback to that is there?
I'm not going to kick off at the surgeon, just inform him that maybe that wasn't the best placing of a line he's ever done...
xx
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Yes, I would ask "gently" why in the world he put it there? Mine was an emergency but above my right breast and the da_ _ tubes still have to be tucked and look gross. Might possibly be able to have it out in next 2 weeks if fistula keeps working.
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Yeah the lines are gross, but I'd done PD before that so was resigned to looking like a freak! ;D
I'll keep my fingers crossed for your fistula working G-ma! Wouldn't it be great to never see another tube as long as we lived!! Ha ha!!
xx
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Carla, I would not get angry or mad with the doc(even though I would be fuming inside0 but I would tell him how uncomfortable it is because of where it exits. I would very "delicately" explain why it is a bad spot for a woman. I am not on dialysis (hubby is) but I would not be very happy having to remove my bra in a dialysis unit. It's bad enough to even have to be there!!
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thanks carla...yes we will pray for each other to be tubeless... :bandance;
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Carla this sounds awful and I feel for you. I hope you will tell the Surgeon that this isn't the best place for the tube and ask why it had to be there but stay calm (as you say you will be relying on him in the future). One thing I did wonder is would a nursing bra be any help, the sort where you can open one cup rather than take the whole thing off? Just an idea which may or may not be a good one! Sending you a gentle hug too :cuddle;
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Carla, I agree - someone should have let you know where they were going to put the catheter. That had to be one heck of a shock to wake up to. I hope you find a way to be comfortable with it. Maybe you can have the techs put up the portable curtains, to help with your dignity.
Before I went for my fistula surgery, I was told being I was right handed that more than likely, my fistula would be placed in my left arm. When I woke up, sure enough it was in my right arm. Seems the blood flow was much better there, but it was hard learning to favor the left arm till it healed. Reason I mention this is because I can relate a little to the shock you must have felt.
As I said, I hope you can find a way to be comfortable with your new catheter, good luck to you :thumbup;
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Carla, will it work to wear a camisole top under a blouse, then just unbutton blouse and slip the tubes out of your bra for hook up? That's what I did and then I could just pull the blouse back over the tubes area if I still felt too uncovered. Now I still wear the cami but slip my fistula arm out of the sleeve but stay pretty well covered up.
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Hi Monrein,
Unfortunately the lines are quite low, so this wouldn't work. At the moment, I have a button up shirt on which allows the tubes to be connected and I can do up the buttons and maintain a shred of dignity! But there's no way it could be done with any kind of underwear on... :(
Thanks for your suggestion though!
I saw my PD nurse today and she's trying to push for me to get my catheter put back in as soon as possible! So I'm praying it will be sooner rather thatn later! (She actually said the first week in September - Yippee! but I'm not counting on that being the case I know the NHS too well, it probably means September 2010!!!!)
xx
carla
xx
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What a drag Carla. I hope you'll be sorted soon and back to what works for you.
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I can't offer any wise words, just this :grouphug;
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When I had my catheter in I gave up wearing a bra.
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When I had my catheter in I gave up wearing a bra.
Is that why you won't go shirtless????
:shy;
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:rofl; :rofl; :rofl; :rofl; I do go braless on the weekends though. Shirtless just in front of hubby. I do not want to scare the world!
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maybe it's the child of the 60's that i am or the thespian in me (can't tell how many times i've changed back stage without a dressing room) but i'd be so angry i wouldn't care about dignity or a bra, i'd just open my shirt and hook up and if anyone complained i'd refer that person to the doctor for an explanation! the doctor may have a very logical explanation, the point being he should have explained! do ask him when he returns, you might be surprised. even though you are angry you seem to be handling things well. at some point you will laugh about this. good luck and hang in there.
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HI Grammalady!
I'm not a prude, as an ex(it's hard enough to get acting jobs over here without being ill as well!) full time actor, I've got no problems changing in fornt of people, I've developed lots of strategies to keep certain areas concealed!!
I thnk what makes me angry is that the doctor obviously hasn't thought of the implications of the placement of the catheter in a female patient. It is this attitude of surgeons that concerns me most (I know BTW they aren't all like that!) It's a lack of forethought that makes me feel like a piece of meat on a slab rather than a thinking feeling person, and a lack of concern and care for the after effects onthe patient. We are just meant to put up and shut about things like this. Even my PD nurse told me not to talk to him about it until he'd put my PD catheter back in!
Why??!! Is he going to do something awful to me on the table while I'm under, because I queried his work??!! Is he going to refuse to replace my line because I dared to tell him he was wrong?
Scary!!
It's very difficult because we are so much at the mercy of these people, who are after all just human like you and me and are fallible, and prone to failings like arrogance, stubborness incompetence and some times downright supidity!!
There 'nother rant over! Phew ! I'm exhausted!! ;)
xx
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HI just letting you know that you are not on your own, when i had my first vascath inserted i was not even asleep and could feel them cutting me and everything but that is another story, my first vascth excited just above my right breast and was a pain in the but, the second vascath site was just above my left breast, and it looked funny to me when i tucked the pipes into my now to big bra, as i have lost so much weight since being on dialysis. My third vascath hangs under my right arm pit, it annoys the crap out of my arm and my boob. I have to be very careful when the nurses change the dressings as the dressing tends to take layers of my skin with it, then they put chlorhexheidine on it to clean the area and it makes the red area where the skin has just been ripped from sting. I have now a sock ... a little piece of very soft material with elastic around both ends that is delicately put over the tubes to stop them sticking into me.
I also understand about not being able to wear a bra whilst having "Hookup" the thing that i find the worst is when it is a male nurse, yes i know he is just doing his job, but it is so confronting having to flash everything to a stranger, I went to the second hand shop and bought a bikini top .. a halter neck one i wear this under my shirt or jumper or singlet and then i can gently remove tubes and my breast stay mainly covered.
I am sending to you a very gentle hug and i know that you will get through this and look back and think shit i did it keep smiling Purple :flower;
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I have a rant! I have been trying to talk to my transplant coordinator for a couple weeks now. She never phones me back, and is always away from her desk. I just find it maddening that when you want to talk to them about transplant they just ignore u! :Kit n Stik;
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we must have the same coordinator