I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: monrein on May 07, 2008, 05:46:52 PM
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My renal nurse called today to say that I'm scheduled to have an Uldall-Cook line inserted into my jugular so I can start dialysis before my fistula is ready. I'm a little disappointed about this extra step but I'm hoping to feel a little better. I feel so exhausted now that I think I'm ready. A little sad that this is starting all over again but there it is. We're also being scheduled to begin the cross-matching with my four potential donors.
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Why this instead of a chest catheter?
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Hi, monrein. I've had a line like that, a couple of times now. They inserted while I was awake...and oh, the interesting conversation! My surgeon even said, "Uh oh, I've never seen that before!" hehehe...but it wasn't too bad. And there was hardly a scar when those catheters were removed.
Good luck with your procedure!
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My understanding is that the Uldall-Cook catheter reduces the risk of infection and the possibility of damage to the subclavian vein. It is designed specifically for the internal jugular and is threaded under the skin and emerges through this subcutaneous tunnel on the anterior chest wall. It was developed by a doctor (Robert Uldall) at The Toronto Western Hospital. I've just started looking up things about it on the net so don't know much about it except that my team prefers it to the subclavian. I believe this catheter is also used a lot for nocturnal home hemo.
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Best of luck, monrein. When is it scheduled for?
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Good luck to you! Let us know when this is going to happen. We'll be neck cath buddies. I just had my consultation today.
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Good luck :cuddle;
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Good luck with your procedure,,and even More good luck with your possible Donors :)
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It's tentatively scheduled for next Wednesday.
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Sincerely hope all goes well for you :)
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hopefully you won't have to have it in to long and you will start feeling better soon.
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:grouphug; good luck, keep us informed on how things go.
EDITED:Fixed smiley tag error-kitkatz,moderator
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Jugular lines are used when the patient has to be prepared for dialysis quickly but where there is no intention for this temporary line to be used long-term. They are very simple to insert and remove, and can safely be left in place for about 10 days before being removed and replaced. The problem with them is that they can damage the jugular if used for too long, and they are prone to clots and infections.
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monrein, I'll pray that everything goes well. :cuddle;
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Thank you all for your good wishes and concerns. I'll keep you posted.
Stuaffenberg, I am really hoping all will go well for me. Thank you for the time you took to respond to my post BUT must you always make your pronouncements in such alarmist (and sometimes misinformed I think) tones. What you say is true for some jugular lines. The Uldall-Cook is not from what I have been told as temporary as ten days. It is described as a "permanent" catheter (although I fully agree that the term is somewhat misleading). (See Hemodialysis Guidelines at www.nephrology.utoronto.ca). In future, in relation to your posts concerning my medical issues, would you be so kind as to refer me to your sources and quit your editorializing and authoritarian know-it-all dispensing of medical information. I don't find it helpful and when I raise the points you pronounce on to my medical team they want to know where you get this stuff.
I believe the term half-baked has been thrown around. And NO I do not trust everything my team tells me. I ask of them the same as I have asked of you....point me to the literature.
I am nervous enough about all that is about to happen and I am aware of the risks. Thank you for reading. :banghead; :banghead; :banghead;
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You seem to have caught a bad case of xxxxxx Disease, whose main symptom is that you direct personal criticisms at people posting messages, which is strictly forbidden in any polite, civilized discussion and also on this message board. Given the time you have spent in academia, I would expect you to appreciate that while the content of messages can and should be challenged, posters have no business in making inferences or criticisms about the people posting messages. I never have done that, and I expect you to extend me and everyone else on the message board the same courtesy.
EDITED: Removed member name from post - Sluff/Admin
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Monrein, my Dad has had a catheter in his neck for a year now, I don't know what sort it is but it sounds just like you have described, going into the jugular and coming out in the chest. Of course it could all go wrong tomorrow but I hope that knowing he has had one for a year will give you some confidence. :cuddle;
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Hope everything goes well and you start to feel better soon. A word of advice : depend more on what the doctor's and the literature say than what individual people tell you. People have their opinions about things. I have heard of those lines and that they are supposed to work well. The doc who created them also had a lot to do with nocturnal dialysis. So glad rose that your dad's neck line has lasted so long. Hubby had a line so about 6 months not sure what type it was but it came out in his chest.
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Good luck monrein! I hope everything goes smoothly. :cuddle; :cuddle; :cuddle;
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Stauffenberg, would you be so kind as to tell me what I have inferred about you personally or criticized about you personally. I don't know you personally and I am challenging the content and tone of your post not your person. If you have specific information for me concerning the Uldall-Cook catheter I welcome it. I am not a doctor and when I raise with my medical team some of the information that you so confidently post they have asked me "where did you find these half-baked ideas?"
I apologize if I hurt your feelings, that was not my intent and I am generally considered a courteous person. My challenge to your post remains as originally stated.
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You seem to have caught a bad case of xxxxx Disease, whose main symptom is that you direct personal criticisms at people posting messages, which is strictly forbidden in any polite, civilized discussion and also on this message board. Given the time you have spent in academia, I would expect you to appreciate that while the content of messages can and should be challenged, posters have no business in making inferences or criticisms about the people posting messages. I never have done that, and I expect you to extend me and everyone else on the message board the same courtesy.
She is just asking you to cite your sources. An intelligent argument always has sources. ;)
EDITED: Removed members name from quote - Sluff/Admin
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Best of luck Monrein
Anything like that is unnerving,I will be thinking about you :)
Kim
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Monrein, as an expert on analyzing French literature, you should be able to tell even in English that the comment, "would you be so kind as to ... quit your editorializing and authoritarian know-it-all dispersing of medical information" amounts to a PERSONAL criticism. 'Authoritarin'? 'Know-it-All'? Those are supposed to be something other than personal insults?
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Good luck :grouphug;
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My partner had a permcath and the fistula was done at the same time they inserted the cathater into his belly. He was on the permcath for six months and didn't have any problems with it at all. Best of luck to you.
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monrein
good luck with it all, hope it makes you feel better soon
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No personal attacks will be tolerated.
Sluff/Admin
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Good Luck monrein.
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Please do not let another patient get you worried about having lines in. I have now been using Tesio lines here in the UK, in my neck for nearly 8 years now.
You do not need luck monrein everything will be OK :cuddle;
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Monrein, good luck with your catheter. Just for your information, I had the exact same catheter placed in February. I was awake during the procedure and everything went perfectly. The doctor who put it in was a resident and it was his first time placing one. My surgeon is a professor at a teaching hospital and he guided the resident step by step. My surgeon removed the catheter this Monday. During hemo, I did have a few times when this catheter did clot, but they have something they put into the cath to clear it when it clots, so no worries. Personal message me if you have any questions or just want to talk about it.
Hang in there! :grouphug; Mikey
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Best of luck, Monrein. I hope the operation goes smoothly, that you get to overhear amazing surgeon-chat and your fistula matures beautifully and soon.
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Much good luck to you, Monrein. I'll be thinking about you and also about the tests for the potential donors! Yes!
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good luck and I wil think about you........and your "isn't that a big hose" remark...... :rofl; :rofl; on that fireman and his hose.....make me laugh..
only the best for you
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My mom's neph was going to put a catheter in her neck if she had to start dialysis before the transplant....I am hoping those cross matches go well!! Good luck to you and I hope the procedure is quick and painless. I can understand you being nervous, anybody else would be...bug hugs to you!
Beth
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Thanks everyone. The new line is working really well now and I'm up to 4 hours at a 400 pump speed. I appreciate the good wishes. (And Twirl...you know that comment was specifically designed to give you a laugh)
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I'm glad it went well for you.
-Devon
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glad all went well monrein, hope your feeling better
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Glad things are much better. :grouphug;
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Way to go, Monrein.
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Glad it is going well for you and hope you feel better real soon.