I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: kitkatz on May 05, 2008, 07:53:18 PM
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I am having low blood pressure halfway through dialysis. The doc comes by and raises my dry weight and I put on a few pounds. They never think that maybe I need some medication adjusted and changed. I even cramped tonight and the tech is hollering at me about fluid gain and my dry weight. Well shit do you not know I do work at this stuff? I feel like they are trying to kill me.
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PM me Kitkatz and I'll give you a remedy. I won't post it on here because it won't work for everyone.
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Thats one thing that really annoys me ..WHY wont they listen to you !! I would love to put all these people through what we go through in a week and then ask their opinions !!
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flip I'd like to know the remedy--- you must have some remedy , you do not go over your fluid
kitkatz, they should never yell at you, and cramping hurts like holy hell.
let the freakin' tech go on fluid restriction and see how real thirst feels
and getting low blood pressure during dialysis is no picnic
please complain about being yelled at, you are a highly educated person and screw them
I always tell them I treat you with respect and I expect the same consideration from you, Bitch ( but I do not say bitch)
you enjoy your students and have a most wonderful day
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Kit,
Sorry you are having this problem. Why not get out your big stick and
give them a nice crack upside the head? :Kit n Stik;
No one should be yelling or talking down to you at the center, the next time
it happens I would politely remind them of this.
I would insist to have a discussion with the charge nurse, if that does not
work go rite to your neph and insist on a review of your meds, I bet you
do need to get something adjusted.
Good luck,
Anne
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:grouphug;
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You should never be belittled, I would go over that techs head :boxing; Hell you probably have more experience then the Tech does.
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You deserve better treatment. I am sorry this is happening. :grouphug;
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I am just really afraid something is wrong and no one wants to look at it. The doc will not change any blood pressure meds and that is the problem. This morning I feel like I have fluid on me. If I cramped last night I should not have fluid on me, right? I am calling my primary care physician to see if I can get an appointment. Now remember I am dealing with Kaiser.
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Please do what you can to get to the bottom of this. We love you Kit and want only the best for you. :grouphug;
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kitkatz, Do you take your blood pressure medication on dialysis days? When Len was doing dialysis we withheld 2 of his blood pressure pills on dialysis days and that seemed to helped. I hope you get this figured out. I'd be using your :Kit n Stik; if I were you and there is NO excuse for them yelling at you. What do they think that is accomplishing? I'd be telling all of them to kiss my :sir ken; Keep us updated. :cuddle;
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I am just really afraid something is wrong and no one wants to look at it. The doc will not change any blood pressure meds and that is the problem. This morning I feel like I have fluid on me. If I cramped last night I should not have fluid on me, right? I am calling my primary care physician to see if I can get an appointment. Now remember I am dealing with Kaiser.
LL was having the same problem a few days ago...too much fluid and cramping at the same time. We never did figure it out so I can't tell you anythng about that but in regards them yelling at you, ummm....I'd be reminding them that they're not paid to abuse you. And then I'd talk to the person in charge.
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If I cramped last night I should not have fluid on me, right?
What is your weight gain between treatments?
Cramping can also be caused by setting the dialysis machine at too low a conductivity.
I have found that if the conductivity is less than 13.7 I'll cramp near the end of treatment. And if the conductivity is above 14.0 I'll be thirsty just a few hours after treatment.
Dialysis machines need to be checked with a manual conductivity meter prior to each treatment to assure a correct reading. Yes, machines do falter now and then.
8)
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If I cramped last night I should not have fluid on me, right?
What is your weight gain between treatments?
Cramping can also be caused by setting the dialysis machine at too low a conductivity.
I have found that if the conductivity is less than 13.7 I'll cramp near the end of treatment. And if the conductivity is above 14.0 I'll be thirsty just a few hours after treatment.
Dialysis machines need to be checked with a manual conductivity meter prior to each treatment to assure a correct reading. Yes, machines do falter now and then.
Damn Zach, I didn't know that. When Len was doing dialysis I always tested the conductivity and was suppose to call techs if the conductivity was over 14. Len's machine seemed to always read 13.8 - 13.9 the whole time we had it and he always cramped about 45 minutes from the end. I would turn the UF off for 10 minutes and then would finish treatment and he would be alright. Just my :twocents;
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If I cramped last night I should not have fluid on me, right?
What is your weight gain between treatments?
Cramping can also be caused by setting the dialysis machine at too low a conductivity.
I have found that if the conductivity is less than 13.7 I'll cramp near the end of treatment. And if the conductivity is above 14.0 I'll be thirsty just a few hours after treatment.
Dialysis machines need to be checked with a manual conductivity meter prior to each treatment to assure a correct reading. Yes, machines do falter now and then.
8)
We're never heard of conductivity. Is this just on certain machines?
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Have you got a meter at home to check your bp? What is it running when you are off the machine?
Hope you get this fixed soon - and tell the darn tech to stuff it!
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We're never heard of conductivity. Is this just on certain machines?
Yes, I believe it is on all hemodialysis machines. On many machines there is also a sodium variance adjustment for cramping--which usually needs a Doctor's order to change the settings.
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Ah, that would explain. LL is on PD so this doesn't apply to him. Thanks Zach.
Hope you get this solved soon kitkatz.
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I have found that if the conductivity is less than 13.7 I'll cramp near the end of treatment. And if the conductivity is above 14.0 I'll be thirsty just a few hours after treatment.
Dialysis machines need to be checked with a manual conductivity meter prior to each treatment to assure a correct reading. Yes, machines do falter now and then.
The conductivity on your machine will vary from machine manufacturer to manufacturer and bath to bath. For instance a Fresenius machine (H or K) on a 4000 series 2K bath (standard bath at most clinics) with a setting of 140 Base Na+ and 35 Bicarbonate has an ideal conductivity of 13.5 but anywhere between 13.0 to 14.0 could be seen and be acceptable (.5 +or-). The 140 Base Na+ and 35 Bicarbonate are both perscribed by your Neph or clinics Medical Director. The Equipment/Machine Technician (Biomed person) should be checking and calibrating the conductivity during the machines scheduled preventive maintenance and if your dialyzing at a Fresenius clinic the tech that hooks you up should be verifying with a handheld meter that the conductivity on the screen is in fact the correct reading before hooking you up. Also on the Fresenius K machines there are Sodium settings (SVS) that your Neph can perscribed and UF profiling that can be done so your machine pulls off more or less fluid during different times of the treatment that may help with cramping as well. Unfortunately I only know the Fresenius machines and can't help with suggestions for any others that may be in use.
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I'm on a Fresenius 5008. On Uf profiling so the machine take more fluid off at the beginning of dialysis. I have a doctors prescription for my sodium to be set at 138 (UK) 13.8 (US).
Anyway Kit forget about that. Tell them what YOU want kit. Wheres that kit I used to know! Take no SH*T of them. You know your own body and what makes you fell ill or not as much ill. I know you have gone through a lot, plus still a lot to go through. All patients have on this site. You need that fire back, don't just roll over and let the unit do what they want with you.
In your words :Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik; and I know how much thats hurts :cuddle;
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I have not felt good for a week and last night I was just plain feeling crappy. I came off a half and hour early. Funny thing is I feel better today. I am thinking about trying a four day a week dialysis regime. I have asked about nocturnal but so far I have been told no nocturnal dialysis is being offered in the Inland Empire. Home hemo is still holding me off because of scheduling problems. Sometime I just get so frustrated.
I know I need to watch my fluids. I now I shouldn't be cramping. I know I should not come off early. I am about ready to go back to my old unit and screw these people at the new unit.
*Grumble grumble grumble*
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:Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik; i'll help you bonk heads.
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So here is my dilemma
I take blood pressure pills in the morning Monday.
I go to work
I go to dialysis- blood pressure is kind of high when I get there 150/85
Halfway through treatment blood pressure drops to 70/"".
They turn me off or down and I do not take off all of the fluid gain.
So off I go with 1 kilo still on me.
I do my usual.
Take my blood pressure pills as ususal. Do my thing.
Go to work Tuesday.
Do my thing.
Wednesday- I take the blood pressure pills
Go to work.
Come back to dialysis with 3 kilos on plus the kilo I already had on.
4 kilos over.
Start dialysis, blood pressure crashes halfway through treatment, turn me off or down.
Get off dialysis two kilos over now.
Repeat, rinse, repeat.
Now they want two blood pressure pills in morning and two in the evening.
If my blood pressure is dropping when I sleep, why would I take two pills right before bedtime?
Especially after alow blood pressure run at dialysis.
God help me. I really think they are trying to kill me!
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maybe your dry weight isn't correct and you really don't have that much fluid on.
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I have gained thirty pounds because of this crazy blood pressure thing over eight months. I am not eating anymore than usual either.
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hmmmmmmm??????
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I feel your pain when those doctors don't listen to you.
My nephrologist told my family when I was suffered so much with the liver, well, things happend. Oh, by the way, you may need a liver transplant!!!
Feel very bless to still be here everyday. Take care kitkatz and hope things eventually will work out for you.
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Try to take off more fluid at the begining of your tx. Also does your unit use critline to monitor blood volume?
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Done it. I am on a profile 2 that takes off more at the beginning than at the end. I am also on sodium. See I AM trying to work things out. It is just so damn frustrating to be told well, that is the meds you are on and I know there are others out there I could try.
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I'm glad you have gotten some resolution to your troubles. Let us know how it works.
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Dang, Kit. How much can they throw at you? You're right though, taking bp meds at night sounds odd to me. Especially with you dropping when on the machine at the clinic. That's so not good!
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Kit - the same thing was happening with Rob, his blood pressure would be about 150/80 ish and then go wicked low during a treatment. He decided on his own to cut down on his BP meds. Lo and behold his pressure wouldn't bottom out during a treatment once he cut some of them out. He also wouldn't take his BP meds on the night of a treatment, always in the morning. His Neph told him to do that, due to the fact that his pressure was stabilized after treatment. Once he had a few good weeks of BP, he told his Neph who was impressed (but also ticked that he did this on his own) and let him keep it that way.
Good Luck, I hope you get the right answers soon! :cuddle;
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When I first started dialysis, I was taking Norvasc (10mg) and Labetalol (100mg. x 2). Now I only take 5 mg. Norvasc and my BP stays constant througout the treatment.
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It's a start Kit :clap;
But don't just stop there! You know your own body and the way YOU feel. Doctors can never understand that. It as to be Hammered into them :Kit n Stik;
You are starting to sound like that OLD grumpy kit i used to know!
:Kit n Stik;
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I am working on doing what is right for me. Today I took Cozaar and atenelol in the morning. Yesterday I took all four meds in the morning. Tomorrow I will take all four in the morning. None tonight. Then two in the morning Friday. Funny how the heart stopped pounding with the Atenelol this morning. Some stupid doctor told the pharmacy I was not taking the Atenelol and I had to ask for a new prescription from the dialysis doctor. Been off it for almost two weeks. Maybe that's why I feel ragged. I am feeling better tonight. I finally had a meal that tasted decent and I wanted to eat it. Lately I have been eating because I know I have to eat something.
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HMMM!!!! Isn't that interesting. As long as it works, Kit. Keep at it!!!!
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kitkatz, nobody knows you better then you. I hope you get this straightened out. Believe me, I know how frustrating it can be. Keep us posted. :cuddle;
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Kit Atenelol, it will slow your heart down its a beta blocker ;D Once a doctor stop it dead with me. A couple of days later it felt like my heart was being ripped out of my chest. I was on 100mg. The doc was supposed to of taken me off it slowly 75mg for a few weeks and so on until I was on 12.5mg then I stopped it.
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i had the same problem they're convinced that i am gaining weight the way i see it is if you eat late at night and your bowels dont move until after your treatment the next day then the food and waste that remains in your body is weight until you pass it out at least. the nurses dont seem to understand this the fact that it is not water or fat, but it is still weight. and trying to dialyze it off me will result in cramps.
it seems logical to me, but i dunno i could be way off here
and cramps suck