I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: kitkatz on April 09, 2008, 08:56:52 PM
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Do not wake me from my nap. I tend to get very bi*** when I am awakened.
Now add yours.
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Don't move my food and then not put it back! I can't reach behind me you know! >:(
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Don't rush me. It takes a few minutes for me to unpack and get everything set up.
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Don't talk to me... I just want to try and sleep and be left alone.
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Do not just shoot drugs into my lines without telling me what it is.
Do not put my BP cuff in the crook of my arm so I can't bend it.
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Don't promise me you'll get me some ice or move my machine so I can see it, then walk away and not do it for another half hour, forcing me to flag down someone that's already doing something else.
Adam
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1. Don't blast your TV. Just because you love "American Idol" doesn't mean I want to hear it. Schmuck.
2. Don't throw your garbage at me. When you go for two points, hit me in the head and then laugh I may stand up and use my lines to strangle you. Don't test me. I'll do it. Loser.
3. Don't scream your political beliefs. You believe the Confederacy should have won the Civil War and that slavery should be an everyday activity but I DON'T WANT TO HEAR ABOUT IT. Racist fool (and true story.)
4. Don't judge me. If I want to watch "Battlestar Galactica" or all the Star Trek movies in a row, that's really none of your business. The fact that you watch porn on your little DVD player doesn't impress anyone. In fact, I think that's the clinical manager coming to talk to you about it...again. Stop touching yourself and mind your own business.
5. Don't ignore your hygiene. Take a shower and do a load of laundry once and while so you don't smell like an anchovies ass. Nobody should have to endure that aroma your lazy ass has created. Dialysis isn't an excuse to be disgusting. p*cktard.
If I was only supposed to write one, my apologies.
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and don't tell me I am bringing in too much food when I have a sandwhich, a fruit and 10 cheetos (yes, I count them)
do not ask me, "Is that a coke?" If you can't recognize a coke bottle, what the hell are you doing being a nurse?
and do not inform me that I need to learn not to go to the restroom for over 4 hours, it only adds to my time
and when the tv's are broken for a month, do not reply,"we offer a service here, suck it up".
and do not tell me you do not have an ice machine in this unit, ice is my life
and do not tell me not to pull off my blood pressure cuff when it hurts like holy hell and I asked for help twice
and do not ask me with a laugh in your voice, "you still play hand held games"
and I could go on and on but I'll stop....
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By all means go on and on.
Here is one more.
Please, oh please make sure the machine is turned towards me and tell me what is wrong with it when it beeps. This is my life that is in that machine that is beeping all of the time.!
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When you know I have vision problems, and I ask what my blood pressure is, don't turn the machine to me because I can't see it. Just answer my question. WHAT IS MY BLOOD PRESSRUE?!
:rant;
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Do not, after being a dialysis nurse for 18 years, take everyone's blood pressure just as the nephrologist is coming in the room and say, "I wonder why everyone's blood pressure has suddenly gone up?"
Do not turn out the lights over me just because I have shut my eyes for 13 seconds. I don't want to have to wait a half hour calling to nurses for the lights to be turned back on before I can start reading again.
Do not, if you are a patient next to me, insist that I have to sit in the dark doing nothing and bored out of my mind for four hours when I'm not sleepy just because you would prefer the lights off while you sleep. Learn to sleep with the lights on.
Do not take my blood sugar reading just before starting dialysis and, if it is high, act as though this is some sort of grand medical emergency requiring immediate intervention. As an extremely type 1 diabetic, my blood sugars have ranged from 2 to 22 every day of my life despite intensive control, and I am in no mood to be blamed or treated as a criminal for a condition which cannot be regulated no matter what I do.
Do not, if you are a patient sitting next to me or the visitors of such a patient, prattle on for hours in a loud voice repeating as Gospel truth every idiotic myth about renal disease and dialysis you might have heard on the television news or read in 'Reader's Digest.'
Do not lecture me on the benefits of exercise for dialysis patients when my hemoglobin is being kept in the profoundly anemic range and I have to conserve every ounce of energy just to be able to get through the day.
Do not set the temperature on the machine colder to keep my blood pressure up when I am already covering myself with blankets.
Do not decide to hold the EPO dosage for two or three weeks without first telling me and checking my medical history, which abundantly proves that doing so will cause my hemoglobin to drop to 80.
Finally, if I am holding a textbook open in my lap and underlining passages while writing comments in the margins, I probably don't want to talk with you for the sixteenth time about why your husband is ignoring you, when your son's teachers will finally recognize he is a genius, or whether I think you have gained weight or not.
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While making notes in my chart, do not ask me three times if I am diabetic. If I wasn't the first time you asked, I'm not now, 30 seconds later, either!
Don't give me cups and cups of water or saline to bring my BP up, and then wonder why I'm leaving heavier than I came in!
Don't tell me my lab values are "a little lower"; TELL ME NUMBERS!
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Why does the dietician come around with lab values and tell you your phosphorous is high: then the nurse comes around and tells you the same thing:then the doc comes around and says it too? I GOT it the first time! Am I five?
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I don't have any. All my tech's and nurse's have been great lately...Boxman
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For Boxman >>>>>>> :Kit n Stik; :Kit n Stik;
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Don't give me a lab report with stars and smiley faces - or unhappy faces. Just give me the numbers and not the kindergarten version.
No I don't need to know what food are on the phosphorous list - I know what they are. I know what I eat, I know how it will effect my labs.
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I'm not on dialysis yet, so I have nothing to add, but I just wanted to coment on something stauffenberg said:
As an extremely type 1 diabetic, my blood sugars have ranged from 2 to 22 every day of my life despite intensive control, and I am in no mood to be blamed or treated as a criminal for a condition which cannot be regulated no matter what I do.
I'm so glad to know I'm not the only one who deals with this! :cuddle;
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p*cktard.
Nice touch... :2thumbsup;
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I dont go in clinic i'm PD but have to attend for check ups , so would like to add mine to the list .
I got up at 5am to get here on time , so at least tell me why clinic is running over 2 hours late , then the doctor turns up with a large mug of coffee , is he sadistic or what ?
Please dont talk to me like im a 5 year old
Believe me when i tell you something !
Dont call me non-compliant because i wont take certain drugs , drugs that make me very sick and feel like s**t
Dont blame me when you cant get blood out of my veins and call me an awkward so and so because of it ..maybe they are trying to tell you something ?
Try and remember WHO i am !
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I don't care if it's Valentine's Day or not, but I wish the nurses would not bring chocolate to the dialysis center and enthuse with each other about how heavenly it tastes, right there in front of the patients. The same goes for pizzas.
Some comments other people have made remind me of the quip I have heard: "Just because I have just lost my appendix, why does everyone in the hospital assume I have lost my mind as well?" We do not need or want to be condescended to because we are sick. I have even read a manual prepared for patients considering PD which follows the word 'stomach' with '(belly)' as if some of us are not likely to be smart enough to know what a stomach is! I have news for those who prepared that manual: there are some patients reading it who are smart enough to know that even 'stomach' is not the correct term, since it should be 'peritoneal cavity' or 'peritoneum.'
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I have even read a manual prepared for patients considering PD which follows the word 'stomach' with '(belly)' as if some of us are not likely to be smart enough to know what a stomach is! I have news for those who prepared that manual: there are some patients reading it who are smart enough to know that even 'stomach' is not the correct term, since it should be 'peritoneal cavity' or 'peritoneum.'
If you're not smart enough to know where in the body the term "stomach" is referring to, you probably are not smart enough to be doing dialysis at home with no supervision, anyway!
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Do not tell me that all the information I get off of the internet is wrong! I've got a college education. I've got enough brains to figure out if the site I'm on is reliable or not.
Do not tell me I ask too many questions! If you can't answer them, it's your problem. Your ignorance is not my fault!
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I don't have any. All my tech's and nurse's have been great lately...Boxman
right on...same here.....besides i TELL them....whats up....not the other way
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When you are coming in to pick up your mom, DON'T stand talking to me at the end of my chair because you don't want to invade her privacy when she is finishing up...grrrrrrrrrrrrrr :Kit n Stik;
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When you are coming in to pick up your mom, DON'T stand talking to me at the end of my chair because you don't want to invade her privacy when she is finishing up...grrrrrrrrrrrrrr :Kit n Stik;
that is so true
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I only have one, and it is directed at one tech.... I'll call him Wayne, cause thats his name...... >:(
DO NOT throw my glove in my lap when it is time for me to hold my sites, cause next time you do so I will throw it back and I'll add a few four letter words with it! :sir ken;
The rest of my techs and nurses are the best.... love them all! :cuddle;
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if i'm sleeping don't wake me, unless the building is on fire or i'm bleeding to death. only the doctor can because he comes specifically to see me, everyone else works in the building, they can wait till i'm awake.
labs are done on monday, results are in on wednesday. if they are all so fired important why should i have to wait two weeks to get the results. yes, i realize i'm not the only one who has lab work, but come on now the results print out is a computer program, really how long does it take to push a few buttons. i'm not 5, i don't need (or want) the kindergarten version. i can read and understand the same print out the doctor gets (for reallies)
and if i have a problem, don't send the social worker to talk me out of it (unless you want an irritated mad raging bull) just get the problem fixed (i'm really not a nice lady, it's all your imagination and i can prove it if you really want)
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if i'm sleeping don't wake me, unless the building is on fire or i'm bleeding to death. only the doctor can because he comes specifically to see me, everyone else works in the building, they can wait till i'm awake.
labs are done on monday, results are in on wednesday. if they are all so fired important why should i have to wait two weeks to get the results. yes, i realize i'm not the only one who has lab work, but come on now the results print out is a computer program, really how long does it take to push a few buttons. i'm not 5, i don't need (or want) the kindergarten version. i can read and understand the same print out the doctor gets (for reallies)
and if i have a problem, don't send the social worker to talk me out of it (unless you want an irritated mad raging bull) just get the problem fixed (i'm really not a nice lady, it's all your imagination and i can prove it if you really want)
This damn smiley face crap seems to be a universal dialysis clinic approach in the United States the more I read on here. I hated those darn stickers, they are useless. Why can't they get it thru their thick skulls!
I guess I would have to :Kit n Stik; into them to give me actual lab results.
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I guess I would have to :Kit n Stik; into them to give me actual lab results.
it's really not all that difficult, i simply ask the nurse for the print out on wensdays when i arrive. it's much more complete than the kindergarten version the dietitian trys to give me a week or more later. i just smile at her and say "i've seen them" and she keeps walking.
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I guess I would have to :Kit n Stik; into them to give me actual lab results.
it's really not all that difficult, i simply ask the nurse for the print out on wensdays when i arrive. it's much more complete than the kindergarten version the dietitian trys to give me a week or more later. i just smile at her and say "i've seen them" and she keeps walking.
My center was not like that dimwit one and dimwit two (social worker and dietician) would never give me a print out of my results. I only got a weeks worth of true results post trasplant from the center because the transplant center requested them for comparison values. Those darn smiley face stickers irritate the heck out of me still when I think of the center.
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What the...? smiley faces??? sheesh. I just ask for the printout or the numbers and they read it off the computer to me. No fuss no issue.
We get a dietician visit once a year (ugh what a chore.. tell me about your average meals in a day.. blah blah blah.. yeah miss I drink 3 litres of coke and eat chocolate cake all day what do YOU think. If my labs are off tell me I should eat more of X or less of Y.. don't make me repeat the same crap over and over... oh and by the way my labs ARE fine because *I* take an active interest in my body and the results on a monthly basis and if something's a bit up I'll adjust accordingly).. blah
Of course they did send this CUTE student dietician the other day... now she can come back anyday hubbay hubba ;)
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Richard made me think of this...
Why with a disease where diet is SO important , would I have only seen a dietitian once in a year and a half?? Would you not think that they would offer classes or even a handout of a healthy recipe once a year or something??? :rant;
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Richard made me think of this...
Why with a disease where diet is SO important , would I have only seen a dietitian once in a year and a half?? Would you not think that they would offer classes or even a handout of a healthy recipe once a year or something??? :rant;
we have a dietitian and a social worker on staff at my center. i don't always see them wandering around talking to people every session but if i need one of them all i have to do is ask.
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All i have to do is holler and I get the dietician or the social worker anytime. I am lucky I sit right up front and they are walking back an dforth a lot.
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I see my dietitian and social worker once a month, but I can call them anytime I need them.
Adam
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you guys are lucky, we do see thw social worker once a week , she will walk around and ask how things are going... dietitian... once , last May
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you guys are lucky, we do see thw social worker once a week , she will walk around and ask how things are going... dietitian... once , last May
That's crazy...
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Kim, have you asked to see the dietician? I did a student social work placement in a big Toronto hospital and the dietician was a huge part of the team. Last week when I saw the new renal management team here, again the dietician was one of the folks I met. Ask the social worker how come your dietician is so missing in action? I personally like it when I see the SW and the dietician only when I want them but when I need them, I want them to be available.
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WoW I should totally post this on my door at my unit!! This is great we should print theses and give them out to the staff!!
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:bunny:
missing my Lucky Bunny since last May RIP Lucky!
Reading these postings makes me sick! You are the damn customer and client.
This crap should Not be taking place.
Too many staff members have the attitude that WE are there for their benefit.
As for the gross, dirty, noisy patient next to you, the staff should say something to him or her.
The staff gets paid to show you every due consideration.
Managers need to insure that patients come first!
The nurse is supposed to be your #1 ADVOCATE not the advocate of the clinic or hospital.
........bdpoe/ Florida
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Oh man, this list was great. Most of the hospital staff has no idea what it is like to be a patient.
My list of things not to do to me while on PD:
* DON'T just start trying to yank out my PD tube to inspect it. ASK first. I don't want your grimy doctor hands on it spreading germs and it is rude to unbutton someone's pants without asking first.
* When my phosphorus is bad, understand that I get lectured about it 700 times. I know what foods are bad to eat. Also, don't lecture me about my bad phosphorus last month until you see the new labs from this month!!
* Do not treat me like a child. I know I look like I'm 12 but I'm actually 30.
* Do not treat me like a criminal when my labs are bad. I make every attempt to take care of myself but sometimes my body does not cooperate.
* Doctors: when you have bad news for someone, do not make the nurse deliver the news for you!
* Do not make important health decisions without consulting me first. Do not schedule surgery without telling me then leave a message about it on my answering machine!
* I'm on time to my appointments. Be on time to yours! Do not leave me waiting for 3 hours every month.
* Don't hug me, don't shake my hands unless you've washed yours first.
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Things not to do to me on Hemo:
* When I tell you I have gained actual fatty weight, do not attempt to pull off this extra weight as water.
* Show me what you are doing. My treatment should not be a secret.
* If I freak out in fear before my hemo treatment, it is not because I am a baby: it is because I think the techs/nurses might kill me.
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Things not to do to me in the Hospital:
* Don't give me a cup of pills without telling me what each one is, their side effects, and why I must take them.
* Read my chart! There is quite a bit of information on there. It'll keep you from lecturing me about blood sugar when I am not a diabetic!
* Quit giving me milk and yogurt!
* Do not put people with horrible contagious diseases next to me! No, I hadn't had the chickenpox yet, thanks!
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I'm sure there is more. The hospital always pisses me off! At least right now I have an excellent PD nurse that always takes good care of me. :waving;
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I think I've got a few...
Please don't lecture me about anything kidney/dialysis related. You've been working here 2 years while I've been living it for nearly 10, as well as living with someone who's worked in the field for nearly the same amount of time. I'm sure I could train new workers at this point.
Please, if you're a fat nurse/doctor or reek of cigarette smoke as you hover over me, don't lecture me about how I need to improve my lifestyle, or how I'm "killing myself" by skipping a treatment now and then.
Please change the policy about not being able to use the restroom during treatments. When the techs, nurses, or doctors are willing to come out on the floor, put those flimsy, see-through screens around themselves and sit on a port-a-potty, then so will I. Until then, take me off the machine for five lousy minutes so I can go use the restroom like a civilized person.
I understand that the bleach water that has the clamps in it has to go somewhere, and I'm resigned that that place is near my chair, but PLEASE do not toss the clamps into it so that I continuously get bleach splashed on me.
Please, when I eat my lunch each day during treatments, come up and ask me "Did you take your binders?".
Speaking of lunch, can we please take down (or at least move it out to the lobby or something) that awful poster that's right next to the scale that shows people toes and other body parts rotting off. Every time I weigh in, I have to see that thing just before I eat!
If I want to be taken off early, do NOT try to talk me out of it, or try to compromise with me. I TOLD you I want to be taken off, it wasn't an invitation for a debate.
If you're using that sling thing to put someone in a chair across from me, when he/she is in the chair, don't just push the sling so that it rolls across the aisle and runs into my chair. The same holds true for garbage cans and wheelchairs.
If you're wheeling someone out, and have to stop in order to take care of something else, do NOT place them so close to me that I could kiss them if I wanted to.
And lastly, DO NOT SQUEEZE THE CHARMIN!!
No, wait...forget that last one.
~Jason E.
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Speaking of lunch, can we please take down (or at least move it out to the lobby or something) that awful poster that's right next to the scale that shows people toes and other body parts rotting off.
Hahaha, I agree. There is a horrible poster in my dialysis unit of infected catheters. I really could do without seeing that. :puke;
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:banghead; a policy not to get off to go to the bathroom where did you get dialysis in Hell >:D
at least if I beg enough, I am blessed to go to the bathroom
I'd get off early every treatment due to waste products on the floor, chair and my jeans if we had that policy
and I bitch about a 30 minute wait after asking to go to the potty
it must be a pitiful day in dialysis if you have direaha
we should start a new thread--- things to do while you are trying and sweating and praying not to have an "accident" :o
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Don't jump to conclusions and assume I'm going to hurt myself or others and make me end my treatment early because I'm upset. During one of my emotional breakdowns I had in-centre, They were assuming that, and they made me leave with and hour and a half left in my treatment. Just before that, the patient next to me requested to get off the machine early because he thought I was "dangerous". I later set things right with the patient and we continued to be friends, but the staff had me labeled as emotionally unstable the rest of the time I was there. I kept expecting for them to make me do dialysis in a straight jacket". :Kit n Stik; "Assumption is the mother of all f***ups" (line from the movie "Under Siege 2").
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"Assumption is the mother of all f***ups" (line from the movie "Under Siege 2").
That is a classic line/quote that is very useful.
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You guys are hilarious.
Mine is simple.
1. Yes, i do consider asking for Tylenol a medical emergency. Dont take your sweet time. I have a headache. :Kit n Stik;
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You guys are hilarious.
Mine is simple.
1. Yes, i do consider asking for Tylenol a medical emergency. Dont take your sweet time. I have a headache. :Kit n Stik;
Hahaha, I agree. After my first transplant, I had a horrible cyclosporine induced headache and I could not get anyone to bring me something for it. I finally sat on the floor in the hallway until they helped me. I found that sitting on the floor in the hospital and crying gets you morphine very quickly.
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Wow, I couldnt agree with all of you more!
I do the nXstage 6 days a week.
Here's a little list of my things not to do to me while I'm dialyzing at home. Now, mind you, the following may have only been done once (some more --) but once is enough! haha.
- Please do not invite people over while I'm on the machine - even if they don't come in my dialysis room. I'm nosey as all hell and hate to feel like I'm missing out on fun.
- Please do not cut thru the dialysis room to get to our balcony and leave the dogs in the room with me barking up a storm cuz they want to go outside with you.
- Pleaseeeee do not hand me the phone while I'm on the machine. More than likely I'd rather not talk .. to anyone.
- Please do not say "geesh its like a sauna in here" everytime you walk in the room. Yes, I need my portable space heater with a remote.. even in the middle of summer!
- Please understand that afterwards I may have a hot flash and then need my air conditioner on - I'm not indecisive. Ok, I am.. but I'm also an unpredictable dialysis patient. ;)
For the people living downstairs (my neighbors slash landlords):
- Please dont point out and say something everytime I get a delivery. Yes. He's here again with 22 boxes. He's been coming every 2 weeks for 3 and a half years now.. do we still have to point it out each time?
- Please let him pull up as close as he can to the front porch. Those boxes are heavy and he then has to carry them up 18 stairs. It wont hurt your halfdead grass to have a car parked on it for a half hour every 2 weeks.
- When we're all sitting outside enjoying the sun with your children's friends over - please do not bring up my colonoscopy .. or yours .. or the fact that I don't pee.
- Please do not ask me why I dont fall asleep every night (morning) til 7am. I'm an insomniac.. and I can't help it. You should know this by now.
Ohhh. one more for the neighbor.
- Please do not walk your dog during the delivery, especially if he was just out an hour prior to the delivery. We all know you're just trying to be nosey!
And another - Please do not ask me to hurry up when I'm outside with my dogs because you want to bring your precious little dog out to do his business. Our yard is huge and theres enough room for all of us to be out at the same time and not disrupt one another. (Thats not dialysis related, but its been bothering me hahaha)
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I have one....
At the end of treatment when I'm being taped up...PLEASE, don't wrap the tape all the way around my arm. I have to rip that crap off the next morning. NOT FUN! ! !
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Not to strap my arm to a board to keep it straight for the needle, not to hold me down, not to give me Valium the calm me down. Just before having the Needle. :oops; That happened when I first went on hemo at the age of ten. Still gets those flash back if the nurse misses the vein, are the needle clots. I want to know the nurse that is going to put me on, not ask if i am ready for the needle. JUST DO IT. plus quickly!.If the nurse does happen to miss, do not ask if he/she can try again. Just get on with it. You would think after nearly 36 years of having needles you would get used to them. :-\
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Nine years of having hemodialysis needles stuck into me and I know if I stop to think about it I would have a really bad panic attack, so I throw the needle idea to the back of the brain in a small compartment and do not let it out!
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Not to strap my arm to a board to keep it straight for the needle, not to hold me down, not to give me Valium the calm me down. Just before having the Needle. :oops; That happened when I first went on hemo at the age of ten. Still gets those flash back if the nurse misses the vein, are the needle clots. I want to know the nurse that is going to put me on, not ask if i am ready for the needle. JUST DO IT. plus quickly!.If the nurse does happen to miss, do not ask if he/she can try again. Just get on with it. You would think after nearly 36 years of having needles you would get used to them. :-\
Do you have a fistula? If so, have you looked into having buttonholes done?
I am very needlephobic and I have buttonholes and barely feel the needles when I stick myself. It takes about two weeks to setup the buttonholes and then you really don't feel the needles go in anymore.
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Do NOT act like you know everything, just because you work dialysis. I am the one living with this disease 24 hours a day and often I am the one who has been at dialysis longer than you have worked at it!
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Do NOT act like you know everything, just because you work dialysis. I am the one living with this disease 24 hours a day and often I am the one who has been at dialysis longer than you have worked at it!
Geez...sorry :'(
Just trying to make a suggestion...from one patient to another.
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Hey Terry, I don't think Kit was saying that to you. I could be wrong but I think she was talking to any one of a number of dialysis nurses.
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here's mine as a non-patient.
Don't give my wife syringes and a cup of water when she going to be stuck in a chair and bored while I'm out of the room
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Do NOT act like you know everything, just because you work dialysis. I am the one living with this disease 24 hours a day and often I am the one who has been at dialysis longer than you have worked at it!
Geez...sorry :'(
Just trying to make a suggestion...from one patient to another.
Kitkatz is posting to the thread "Things not to do to me while I am at My dialysis center." - not to you personally.
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Yes, I was posting to the thread not you personally.
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I have known about the buttonhole for years now :thx; But the unit does not use it or have the needles for it :-\ they would have to have a nurse on the unit every time I was there who knew how to do buttonhole :-\ Plus I have one slight problem my fistula is only about 3 inches long now :'( They can only get one needle in. If two, to much recirculation. Then worse dialysis than i am getting now :puke; It is a pretty new fistula. had it put in May 1980 ;D
(To The Nurses) Don't just walk into the waiting room say who's next. I stand up, the nurse says "sorry can not do you kev" Then have to wait another half hour to get on! :rant; :rant; :rant; :rant;
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if you are a trainee don't attempt to needle my arm, ask somone else to do it. i am not a guinea pig.
STOP asking me about my aranesp, i have informed the last 15 nurses that i take it on my own at home.
When i say "i am about to cramp up stop the machine" dont argue with me, i dont care if you've stopped pulling or not, it dosent make a difference. i dont care if theres 30 mins left. i just want the pain to stop. so dont argue with me and for the record... F**K YOU!
dont comment on the amount of calories in my snack and dont ever touch my snack. i have very few pleasures left in my miserable life candy is one of them.
dont act surprised when i only need to hold my acess for 2 mins after treatment im 25 not 98 everything dosent work according to the books and all people are different
stop asking me about the goddamn transplant list, i'll be on it when i get on it
:rant;