I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: 7piglets on March 26, 2008, 11:21:59 AM

Title: Totally PO'ed
Post by: 7piglets on March 26, 2008, 11:21:59 AM
I was one week (One Ekg and stress test) away from getting on kidney list and now I get a call today that my cancer has returned and in mylung...
It is bad enough I have cancer lets add some salt in the wound and tell me BTW now you cant get on kidney list until you are cancer free for 2+yrs..however, if you were on list we would just put you in inactive status but still get your time in ...
arghhhhhhhhhh :banghead;
Title: Re: Totally PO'ed
Post by: kellyt on March 26, 2008, 11:36:24 AM
That's horrible.  I am so sorry!

I was placed on Status 7 on Dec 5th and "activated" on Feb. 13th.  They placed me on Status 7 first because I had just begun my transplant testing in Oct 2007.  Did they say they were going to put you on under Status 7 or just that "if you were already on the list" they could put you on Status 7?

Again, I'm so sorry!
Title: Re: Totally PO'ed
Post by: 7piglets on March 26, 2008, 11:42:06 AM
they said I can't get on the list...IF I was on list then they would put me on inactive status (Is that what Status 7 is ?)
Title: Re: Totally PO'ed
Post by: okarol on March 26, 2008, 12:09:10 PM
I am so sorry to hear this about the cancer. What will they do to treat it?
I believe you still accrue wait time if you're on dialysis, listed or not.
A candidate listed as Status 7 is temporarily inactive. Candidates who are considered to be temporarily unsuitable transplant candidates are listed as Status 7, temporarily inactive.
 :grouphug;
Title: Re: Totally PO'ed
Post by: Deanne on March 26, 2008, 12:27:52 PM
I am so sorry!  :grouphug;
Title: Re: Totally PO'ed
Post by: paddbear0000 on March 26, 2008, 12:34:29 PM
I'm so sorry!  :big hug: :big hug: :big hug:
Title: Re: Totally PO'ed
Post by: KR Cincy on March 26, 2008, 12:45:27 PM
I lost both my kidneys to cancer last year so I know firsthand what a bitch it can be. I'm being screened regularly in case it comes back...if it does, it'll probably be on my lungs...so you know I'm pulling for you with the biopsy! It's helped me to talk to a apecialized cancer counselor...she works for a local agency and it doesn't cost me anything, but she has been a big help during some pretty dark times. With all those chillun' around, not sure when ou'd have time to go, but I'd certainly encourage it.

Good luck and keep us updated. My cancer keeps me off the list for 5 years, so I'm hoping you can beat this and get on that list!
Title: Re: Totally PO'ed
Post by: twirl on March 26, 2008, 12:48:53 PM
I am so sad.
you have a couple of adorable boys
I will pray for you and God Bless
Title: Re: Totally PO'ed
Post by: kellyt on March 26, 2008, 12:52:19 PM
I am so sorry to hear this about the cancer. What will they do to treat it?
I believe you still accrue wait time if you're on dialysis, listed or not.
A candidate listed as Status 7 is temporarily inactive. Candidates who are considered to be temporarily unsuitable transplant candidates are listed as Status 7, temporarily inactive.
 :grouphug;


That is really good to know!  I met a 76-year-old man at my transplant evaluation back in Oct.  He was and still is on dialysis.  He was just placed on the list as Status 7, but I wonder if he knows he's been accruing time since he started dialysis?  Are you 100% sure on that, cause I would love to tell him if he doesn't know!

It's amazing how much I learn here on IHD, tell my new friend and then he confirms with his coordinator.   Why can't our coordinators and/or transplant team inform us about all this during the evaluation?  It's no wonder there are so many of us out there who have no idea about our disease and/or treatment!  It's frustrating!!
Thanks Okarol!
Title: Re: Totally PO'ed
Post by: paris on March 26, 2008, 12:53:14 PM
Wow, you just can't catch a break right now. I am so sorry for everything you a dealing with.  It really is too much for one person.  I'll keep saying lots of prayers for you and your family.  :grouphug;
Title: Re: Totally PO'ed
Post by: KT0930 on March 26, 2008, 12:58:20 PM
So sorry to hear this.  :grouphug;
Title: Re: Totally PO'ed
Post by: KICKSTART on March 26, 2008, 01:03:08 PM
 :cuddle; so sorry to hear this, thinking of you.
Title: Re: Totally PO'ed
Post by: lola on March 26, 2008, 01:08:44 PM
 :cuddle;
Title: Re: Totally PO'ed
Post by: angellady07 on March 26, 2008, 01:10:31 PM
Sorry to hear this. Sending prayers your way.  :cuddle;
Title: Re: Totally PO'ed
Post by: willieandwinnie on March 26, 2008, 01:18:07 PM
7piglets, I am so sorry. Please know you are in my thoughts and prayers.  :cuddle;
Title: Re: Totally PO'ed
Post by: Ang on March 26, 2008, 03:36:10 PM
7piglets  keep :boxing;

in  australia  you  accrue  time  from  when  you  start  dialysis,don't  know  what  its  like  other  places
Title: Re: Totally PO'ed
Post by: kidney4traci on March 26, 2008, 03:45:28 PM
I am sorry to hear the troubles you have been through.  I missed your intro and just went and read it.  It sounds like you are due a good turn of events.  Pray it gets better for you.  I don't have cancer, but I know the woes of dialysis and the transplant list. 
Title: Re: Totally PO'ed
Post by: del on March 26, 2008, 04:09:56 PM
So sorry  :cuddle;
Title: Re: Totally PO'ed
Post by: annabanana on March 26, 2008, 04:37:53 PM
That's so sad. What a giant let-down. My thoughts are with you.
Title: Re: Totally PO'ed
Post by: Romona on March 26, 2008, 08:26:52 PM
 :grouphug;
Title: Re: Totally PO'ed
Post by: Phillip_20 on March 26, 2008, 08:58:27 PM
Wow... I'm SO sorry to hear that. You are in my thoughts and prayers :grouphug;
Title: Re: Totally PO'ed
Post by: Mimi on March 26, 2008, 10:00:38 PM
My goodness that just sucks.  How are they going to treat the cancer in the lung?
Please know that you are in my heart and prayers.

Love, Mimi
Title: Re: Totally PO'ed
Post by: skyedogrocks on March 27, 2008, 11:27:55 AM
Oh I am so sorry to hear this.  I will say extra prayers for you, you deserve to have good news come your way.   :big hug:
Title: Re: Totally PO'ed
Post by: Psim on March 27, 2008, 11:56:22 AM
Thinking of you, sending hopes and prayers.
Title: Re: Totally PO'ed
Post by: Slywalker on March 28, 2008, 04:59:23 AM
Sorry to hear the news 7piglets.  Some days it is hard to catch a break!!!  I do wish you good luck fighting the cancer.  that in itself is a tough thing to get through.

Hang in there.

Sandyb   :grouphug;


 :bunny:
Title: Re: Totally PO'ed
Post by: petey on March 28, 2008, 05:45:41 AM
   :grouphug; thinking about you, 7piglets! 
Title: Re: Totally PO'ed
Post by: Ken Shelmerdine on March 28, 2008, 08:18:11 AM
So Sorry  :grouphug;
Title: Re: Totally PO'ed
Post by: rose1999 on March 28, 2008, 09:12:50 AM
Sorry to hear your news and really wishing very hard that the cancer is cured and you are back on that list real soon. Sending love to you and your family - those boys are really cute  :grouphug;