I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: devlinswife on March 07, 2008, 08:32:49 PM
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Ok so I have a ton of questions, I just found out today that I have Hepatitis C, my Dr didn't talk to me all that much about it. I am not sure if it was because we were in the dialysis unit when he told me I have it, or what. I would really like to talk to someone that is on dialysis and has Hepatitis C. I want to know how it has affected your life and are there any good websites that will explain what I have? Thanks.
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Can't help - I don't know much about Hep C. Just wanted to do this . . . . :grouphug;.
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Thank you I needed that so much, I am so afraid that I have already or will pass it on to my husband.
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So sorry. This link may provide you with some info until you can discuss it more with your doc
http://en.wikipedia.org/wiki/Hepatitis_C
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I have sent you and e-mail about Naomi Judd, a country music star that had Hep-c and was cured it tells her story I hope it helps. Best of luck
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:grouphug; devlinswife. I'm sorry to hear about the Hep C. I can't help with your questions but wanted you to know you'll be in my thoughts and prayers. Best of luck to you.
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Sorry to hear about your Hep C diagnosis. My partner was diagnosed with Hep C before his kidneys failed. The doctors figured he contracted it when he needed a blood transfusion over fifty years ago. All of his kids, ex-wife, and myself have been tested and we're all okay. So you can breathe about that part. Since Hep C is passed on from blood to blood make sure you use your own nail clippers in case you knick yourself. If you use a razor to shave your legs, be sure to put it away so that no one else can use it. Do not share a toothbrush (not that you do) and make sure if you get blood on a towel, to take it off the towel rack immediately. Just be aware if you're bleeding anywhere.
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My husband was diagnosed with HepC last Aug. The best site I've found so far is "hepcnet.net".
He has not yet started dialysis but the drs. don't seem to think it's an issue.
re: passing it on...I've been with my husband for almost 9 years, changed many a bandage,
and had unprotected sex all this time (until we found out)
and I do not have HepC.
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Same here Annabannana. Some people get real freaked out about Hep C but it's not passed on as easily as some think. Just take precautions.
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I have sent you and e-mail about Naomi Judd, a country music star that had Hep-c and was cured it tells her story I hope it helps. Best of luck
I needed to come back to this post in regards to being 'cured.' There is no cure for Hep C but treatment can put it in remission. (I think remission is the word used. If not, dormant.)
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I don't have any information for you either, except a :cuddle;.
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I found out I had hep C while they were doing screening for transplant evaluation. I propbably had it for over 20 years without realizing it. It wasn't so bad, but they said they wanted to treat for it before I got a new kidney because they do not do interferon post tx due to medication and decrease immune system. Anyway, I went on the drug for the 6 month does and my numbers dropped enough to stop the therapy and get on the transplant list. As far as side effects, I was worried, but never got sick. I did loose hair, like alot would come out in the shower and when you combed it. But that stopped before it was too terribly bad and has grown back in now. Just pray your stage is not too advanced and you don't have too bad a reaction to the interferon. Hope that helps a bit. I never did find a good web site for it, ones i did find were never as active as this one. :grouphug; Here when you need it...
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hepcnet.cet has helped A LOT . SO thanks for sending me there, and thanks for all of the support. Devlin (my hubby) just got tested today so we should know in about a week. I seriously think he has it, if not he is having a ton of sympathy symptoms. I pray I am wrong but I don't think I am. Well thanks again to everyone that has commented, I go to the Dr on the 18th so I will let you all know when I hear something new.
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Im sorry to hear that. :cuddle;
I have pm'ed you.
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devlinswife--- glad hepcnet works for you. I get a lot of info there.
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Have Hep. B since 17 and under remission after a flare 8 years ago. Get enough rest and reduce stress as much as possible.
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Amanda from OZ, I didn't get the PM
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devlinswife,
I just wanted to see how Devlin is.....have his test results come back yet?
Have you had good luck researching HepC?
A.
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Would have been on here sooner, but my minivan broke down and we had to go buy a new one, :yahoo;!! I got a mercury mountioneer :yahoo; I LOVE IT! YES we got Devlins results yesterday--HE"S NEGATIVE :bandance; :bandance; :bandance; :bandance; He still has to get tested in 6 months and a year, just because it can be dormant for a while, but I'll take negative. It does kinda put a crimp in our sex life as I have NEVER liked raincoats (and I happen to be quite the horny little devil >:D), but I am so glad he doesn't have it. Thank you everyone for your support.
EDITED: fixed smiley tag error-kitkatz,moderator
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:yahoo; great news
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Whew, this is one time when negative is good.
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It's great to hear good news! :bandance;
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devlinswife that is wonderful news. :yahoo;
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:2thumbsup; great news :2thumbsup;
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So glad about Devlin!!! I remember getting my results back and feeling so relieved! :clap;