I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: okarol on March 03, 2008, 09:16:40 PM

Title: discontinuing kidney dialysis
Post by: okarol on March 03, 2008, 09:16:40 PM
I came across this on the internet, thought it was interesting:

discontinuing kidney dialysis
by Patsy23, Dec 05, 2007 12:00AM
My 78-yr old mother, a Type 1 diabetic for 62 years, decided to quit her kidney dialysis after much consideration.  After a heart attack, her kidneys finally failed, and she was on dialysis for approx 2 years before she decided to quit.  She never felt any better after the dialysis treatments, in fact she felt worse on those days, and she also gained other symptoms such as sharp body pains and fainting spells.  It has been 13 months now since her last dialysis treatment, her creatinine remains around 3.3, and she has many of the symptoms of end stage renal failure, but she keeps on going!  Everything we read on the Internet says most people pass away within weeks/months of discontinuing dialysis, so we don't know what to expect.  She doesn't want to continue feeling lousy all the time, and her doctors keep increasing her medications - to help with nausea, tiredness, recent drastic vision loss, etc.  Do you know of many cases where someone lives for over a year with minimal kidney function?  Her doctors aren't any help explaining what's happening to her, and I live 6 states away!

http://www.medhelp.org/perl6/diabetes/messages/1883.html
Title: Re: discontinuing kidney dialysis
Post by: Joe Paul on March 04, 2008, 01:06:40 AM
Now that would be miserable!
Title: Re: discontinuing kidney dialysis
Post by: boxman55 on March 04, 2008, 05:53:17 AM
I guess with her creatinine at 3.3 she has some kidney function but didn't she stop treatment for a reason? that reason being to pass. Instead she is going through hell...don't get it...Boxman
Title: Re: discontinuing kidney dialysis
Post by: okarol on March 04, 2008, 10:42:22 AM
Reminded me of Art Buchwald, he quit dialysis and was in hospice care, but lasted a lot longer than anyone expected. http://ihatedialysis.com/forum/index.php?topic=2044.0
Title: Re: discontinuing kidney dialysis
Post by: stauffenberg on March 04, 2008, 11:00:30 AM
Although of course they cannot admit to this practice openly, most hospices will give the patient a bolus of morphine, ostensibly for 'pain control,' to end the misery in cases such as this. 

Failing that, you can always take the patient to Switzerland, where the physicians who work for the organization 'Dignitas' will help her die quickly and painlessly.  This service, which costs only a nominal fee, is available to any patient in endstage misery regardless of nationality, and is perfectly legal in an enlightened country like Switzerland.  Dignitas has an internet site where you can contact them, explain the situation, and arrange for the service, which unfortunately can only be performed in Switzerland.
Title: Re: discontinuing kidney dialysis
Post by: boxman55 on March 04, 2008, 01:36:11 PM
Can you do a little sight seeing first.  ;D ...Boxman
Title: Re: discontinuing kidney dialysis
Post by: petey on March 04, 2008, 01:40:33 PM
Can you do a little sight seeing first. ;D ...Boxman


 :rofl; :rofl; :rofl;  Would skiing be an option, too, before the "procedure"?  (Well, heck, it would have to be "before" the procedure, now wouldn't it?  That was a dumb thing for me to say.  :banghead;)
Title: Re: discontinuing kidney dialysis
Post by: stauffenberg on March 04, 2008, 07:34:26 PM
The way I ski, I wouldn't need the procedure afterward.
Title: Re: discontinuing kidney dialysis
Post by: rose1999 on March 04, 2008, 10:50:28 PM
The way I ski, I wouldn't need the procedure afterward.

 :rofl; :rofl; :rofl;
Title: Re: discontinuing kidney dialysis
Post by: petey on March 05, 2008, 12:23:02 AM
The way I ski, I wouldn't need the procedure afterward.

 :rofl; :rofl;  Good one, Stauffenberg!
Title: Re: discontinuing kidney dialysis
Post by: KT0930 on March 05, 2008, 09:31:38 AM
The way I ski, I wouldn't need the procedure afterward.

OMG!! Stauffenberg has a sense of humor?? Who knew?  :o
Title: Re: discontinuing kidney dialysis
Post by: petey on March 05, 2008, 10:31:18 AM
The way I ski, I wouldn't need the procedure afterward.

OMG!! Stauffenberg has a sense of humor?? Who knew? :o

KT -- when I read that post, I had to look twice -- no, three times -- until it finally sunk in that it really was from Stauffenberg.  He does have a sense of humor!!  :bandance;

Stauffenberg -- that's a side of you I've never seen here, but, I like it -- oh, I like it!!!  :thumbup;   How about showing that side of yourself more often?  It's quite becoming on you.
Title: Re: discontinuing kidney dialysis
Post by: kidney4traci on March 05, 2008, 11:04:25 AM
A post from you Stauffenberg that aatually made me laugh!  Wow, who knew you had it in ya!  Want to go skiing???   :rofl;jk!  Good to see another side of you!
Title: Re: discontinuing kidney dialysis
Post by: rose1999 on March 05, 2008, 11:44:56 AM
See Stauffenberg make us ladies laugh and we're putty in your hands. :2thumbsup;
Title: Re: discontinuing kidney dialysis
Post by: BigSteve on March 05, 2008, 12:52:58 PM
C'mon now,  take it easy on Stauffenberg or he will never be humorous again!
Title: Re: discontinuing kidney dialysis
Post by: Ohio Buckeye on March 05, 2008, 01:00:25 PM
Wow, that is something, Stauffenberg made me laugh too. 
Title: Re: discontinuing kidney dialysis
Post by: petey on March 05, 2008, 02:00:06 PM
We love you, Stauffenberg!!   :grouphug;
Title: Re: discontinuing kidney dialysis
Post by: BobT1939 on March 08, 2008, 11:02:58 AM
Stauffy, the most erudite poster on IHD, possessed of the blackest life attitude has a sense of humor? An amazing turn of events. Perhaps a posting Pulitzer is in the offing?/bobt
Title: Re: discontinuing kidney dialysis
Post by: RichardMEL on March 14, 2008, 08:44:14 AM
Having seen this humurous post from Staufenberg I *KNOW* my transplant call is right around the corner!! There's nothing else left in life to see so it HAS to be now!!! :D

Title: Re: discontinuing kidney dialysis
Post by: KICKSTART on March 14, 2008, 12:04:20 PM
Oh i am so glad it isnt only me that thought stauffenberg was a serious person  and just gave us the  factual stuff !!
Title: Re: discontinuing kidney dialysis
Post by: kitkatz on March 14, 2008, 12:39:38 PM
The way I ski, I wouldn't need the procedure afterward.

A tree, ooops a tree!
Title: Re: discontinuing kidney dialysis
Post by: Ken Shelmerdine on March 14, 2008, 03:42:57 PM
C'mon Stauph where are you on this, you've shown your human side, now respond further.  Stauph Stauph  Stauph Stauph Stauph Stauph Stauph Stauph Stauph Stauph Stauph Stauph Stauph Stauph Stauph

Actually it was Stauphenburg that turned the 'Any More Brits out There on Dialysis' thread into the Kingdom thread that it became when because he had spent some of his life in Britain he asked if he could become an honorary Brit. The rest as they say is history. Check it out on page one.
Title: Re: discontinuing kidney dialysis
Post by: okarol on March 14, 2008, 04:49:32 PM
Ha! The brits got a "Stauf Infection" Hehehehe  :rofl;
Title: Re: discontinuing kidney dialysis
Post by: kidney4traci on March 14, 2008, 07:58:56 PM
Ah, good one Karol! :rofl;
Title: Re: discontinuing kidney dialysis
Post by: KT0930 on March 15, 2008, 02:49:16 PM
Ha! The brits got a "Stauf Infection" Hehehehe  :rofl;

 :rofl; :rofl; :rofl; :rofl;
Title: Re: discontinuing kidney dialysis
Post by: meadowlandsnj on March 15, 2008, 03:09:11 PM
The way I ski, I wouldn't need the procedure afterward.

Stauffenberg made a funny!  I knew you had something else to say than that doom and gloom stuff.  Do it more.  Humor is what makes us more human.  You have such a style of writing that I think if you let it out you'd be very funny in a Monty Pythonesque, British, dark wit  kind of humor. 

Wow
Donna 
Title: Re: discontinuing kidney dialysis
Post by: Ken Shelmerdine on March 17, 2008, 11:05:47 AM
He just won't take the bait will he?
Title: Re: discontinuing kidney dialysis
Post by: rose1999 on March 17, 2008, 01:15:59 PM
I think he'll sneak up on us when we aren't expecting it  :2thumbsup; But despite the fact he often seems to look on the negative side, I think he makes some valid and valuable points and raises issues that need to be raised.  I still love it when he's funny though.  :clap;
Title: Re: discontinuing kidney dialysis
Post by: Ken Shelmerdine on March 18, 2008, 09:30:24 AM
I think he'll sneak up on us when we aren't expecting it  :2thumbsup; But despite the fact he often seems to look on the negative side, I think he makes some valid and valuable points and raises issues that need to be raised.  I still love it when he's funny though.  :clap;

That's true Rose but he's only been funny once!