I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: pdpatty on December 25, 2007, 07:38:32 AM
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Those of us who have PKD and still have a decent urine output,can and will that over time decrease.
I don't put on too much fluid ,even over weekends,because I still produce urine. I am somewhat concerned that that may decrease someday.
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As I menitioned in a previous post My out-put has decreased over the last couple of weeks. I've gone from about 1.0 between treatments and 2.5 on weekends to 3.5 between treatments and 4.5 on weekends. O well, on to the ice-chips.
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i have been on home hemo for 8 months and mine has decreased over that time, from going every hour to once or twice a day, i have heard that if you do PD that your output will last longer than people on hemo.
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you can be guaranteed output will decrease at some point, that being in 6 months or 6 years, in most cases sooner rather thn later, but there is always an exception to the rule.
a lady at my centre puts out roughly 1 litre a day and been doing dialysis for 7 years.
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Unfortunately it's a part of life on dialysis for the urine output to go down (wow, someone who puts out 1L a day? i so wish!!).... Unfortunately there's not much you can do about it when it happens (though I have heard of some people going on tablets to increase output a little bit). I just adjusted my drinking to try and keep myself under 2.0 between treatments(man weekends are H A R D!)....
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Patty, there are many things thought to affect the progression of PKD. (Watch for metabolic acidosis - keep CO2 above 24, and keep BP low.) It is very unpredictable, and varies greatly from patient. Mike has been on dialysis (hemo - NxStage) since 2/5/07 and he still produces about a liter of urine per day, but it is almost totally clear. The kidneys are still producing urine but no longer filter much at all.
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While the natural tendency of many organs of the body is for them to repair themselves after injury, for highly vascularized organs such as the eyes and the kidneys, the tendency is the reverse, so any injury induces them to become more defective over time. The result is that of those patients who begin dialysis with some residual renal function and urine output, usually of urine containing very few toxins which healthy kidneys should clear, the urine output will decline over time.
In my case, I never had to have any fluid withdrawn on dialysis for the first five years of treatment, since my kidneys continued to be able to clear as much urine as there was surplus fluid in my body. After five years, however, the output began serioiusly to decline, and within a year it was down to zero.
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Here's another related thread http://ihatedialysis.com/forum/index.php?topic=226.0
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I have been on dialysis 15 months now (CCPD) and I still have full urine output. I just drink as much as I want. Dialysis does remove some fluid usually about 260 mls.
And by the way it's not a dumb question. Never ever worry about anything like that on this forum. If you have a question just post, we are all here to help each other any way we can. :cuddle;
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What amazes me is how little the professionals prepare us for what we have to face. Thank God for IHD! The other day I was with another patient and the vascular surgeon who was going to repair our grafts. He told the doctor that he was only urinating on mornings and asked if the doctor could give him something to increase his urine. I told him, and the doctor concurred, that this eventually happens. He had no idea that dialysis would decrease his output.
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I was putting out 1000-1500 cc a day before I had the heart cath test for transplant. Now I'm down to 100 cc a day because of that contrast dye.
PD is removing the fluid fine, but I'm having a hard time clearing those toxins. :-\