I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: okarol on December 14, 2007, 11:13:05 AM

Title: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: okarol on December 14, 2007, 11:13:05 AM

I hope I didn't leave anything out, please let me know. Feel free to explain.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: KICKSTART on December 14, 2007, 11:25:52 AM

Hmm its seems like i am in the 'majority' here ! I wonder if they just lump us all together because they cant give us any explanation or reason as to why its happened ? Focal Glomerulosclerosis is looking mighty popular ! I wonder should we take this poll a step futher and ask what reasons they gave you when this was diagnosed ? I myself have never been given a reason for kidney failure .. one day fit and healthy , get up next morning .. i got kidney failure !! yup that fast .. no outward signs or illness , all overnight it happened !!

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: KT0930 on December 14, 2007, 11:39:02 AM

Wow, Karol, you are certainly thorough! I hope more people participate in this, I'd love to see it all in "poll" form.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: KR Cincy on December 14, 2007, 11:39:41 AM

Ummm...lemmee see...I started with PKD, but it was cancer that developed in both kidneys that caused those nice men to take them out of me. I voted for cancer because I could have kept going with the PKD for a while longer. This is a very interesting poll though...amazing how many possibilities there are.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Deanne on December 14, 2007, 12:05:28 PM

I'm FSGS. I didn't originally get an explanation, but now it turns out that it's sometimes hereditary. My nephew was diagnosed a few months ago.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Joe Paul on December 14, 2007, 12:10:53 PM

Type 1 diabetes  :thumbdown;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Psim on December 14, 2007, 01:03:55 PM

I got it from primary hyperparathyroidism. Which I guess is really uncommon. I had it, undiagnosed, for about 10 years -- there were quite a few opportunities for it to be caught before it took my kidneys out, but hey, my medical clinic mislaid my bloodwork for 5 years.  :rofl;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: stauffenberg on December 14, 2007, 02:43:11 PM

Hey, you left out Henoch-Schoenlein Purpura, the type of renal failure that killed Mozart!  It is not a statistically important cause of renal failure, but I had to mention it because I just love to say, "Henoch-Schoenlein."  "Schoenlein" is also German for "pretty little thing," a term of endearment sometimes used among lovers there, but it does not describe the horrors of that disease very well!

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: BigSky on December 14, 2007, 03:34:12 PM

IgM  mesangial proliferative glomerulonephritis

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: Zach on December 14, 2007, 04:01:49 PM

Quote from: stauffenberg on December 14, 2007, 02:43:11 PM

Hey, you left out Henoch-Schoenlein Purpura, the type of renal failure that killed Mozart!  It is not a statistically important cause of renal failure, but I had to mention it because I just love to say, "Henoch-Schoenlein."

Gee, and all this time I thought it was called, "Hammacher Schlemmer Syndrome."
 ;)

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: willieandwinnie on December 14, 2007, 04:22:32 PM

My husband had Sepsis Shock (Blood Infection) and all his organs were failing. He died on me a couple of times. His liver, heart, gallbladder, spleen, stomach all managed to recover. His kidneys did not.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: George Jung on December 14, 2007, 04:55:36 PM

Quote from: Zach on December 14, 2007, 04:01:49 PM

Quote from: stauffenberg on December 14, 2007, 02:43:11 PM

Hey, you left out Henoch-Schoenlein Purpura, the type of renal failure that killed Mozart!  It is not a statistically important cause of renal failure, but I had to mention it because I just love to say, "Henoch-Schoenlein."

Gee, and all this time I thought it was called, "Hammacher Schlemmer Syndrome."
 ;)

A catalog service?   ???

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Sunny on December 14, 2007, 05:09:34 PM

Interesting poll. Hope lots of people participate so we can see results.Goodpastures Syndrome was my downfall.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Ang on December 14, 2007, 08:19:58 PM

polycystic  bit  me  on  the  backside. :yahoo;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: brenda on December 14, 2007, 08:53:24 PM

Undiagnosed reflux for many years.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: Zach on December 14, 2007, 09:32:17 PM

Quote from: George Jung on December 14, 2007, 04:55:36 PM

Quote from: Zach on December 14, 2007, 04:01:49 PM

Quote from: stauffenberg on December 14, 2007, 02:43:11 PM

Hey, you left out Henoch-Schoenlein Purpura, the type of renal failure that killed Mozart!  It is not a statistically important cause of renal failure, but I had to mention it because I just love to say, "Henoch-Schoenlein."

Gee, and all this time I thought it was called, "Hammacher Schlemmer Syndrome."
 ;)

A catalog service?   ???

It was a joke, George.    ;)

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: Bajanne on December 14, 2007, 10:03:40 PM

I had to say 'other' because the cause of my renal failure is two of the items (and I could only click one) and especially the side effect of the medications that I was using for these conditions.
Only as I re-read the poll, that I see my third cause is also there - analgesic nephropathy/drugs
Well these are my three causes.
Should I vote three times?

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: MattyBoy100 on December 15, 2007, 09:04:56 AM

As for me, it is only believed to be Alports Syndrome as my Uncle had it too along with deafness as do I.  We're not sure though as the tissue in my biopsy was too far gone for them to be sure.  The symptoms however, all support Alports and what is interesting is that I was initially given anti - inflammotary pain killers for foot pain which may or may not have killed off any remaining kidney function I had left.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: BigSteve on December 15, 2007, 11:42:23 AM

I voted twice since one kidney was taken out because of Renal Cell Carcinoma, and the other
slowly lost function over the next seven years. I assume it was from hypertension, but BPH is mentioned
in the poll. Can anyone give me information of BPH and loss of kidney funcion?

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: donnia on December 15, 2007, 01:09:47 PM

Mine was hypertension......so they say

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Thalia on December 15, 2007, 06:34:22 PM

we always thought it was the diabetes an hypertension that caused my Mom's kidney disease..however her cardiologist..believes it  could be caused by amyloidosis for which she tested positive..apparently this is his "pet" theory...


What is Amyloidosis?

Amyloidosis is a group of diseases in which one or more organ systems in the body accumulate deposits of abnormal proteins. The name "amyloidosis" was first used more than 100 years ago but cases were described over 300 years ago. However, only within the past 20 years have physicians understood the specific make-up and structure of amyloid protein. Although amyloidosis is not cancer, it is very serious. It may be disabling or life threatening. However, growing awareness of the condition seems to be leading to substantial new research and treatment alternatives.

There are three major types of amyloidosis that are all very different from each other:

1. PRIMARY AMYLOIDOSIS is a plasma cell disorder which originates in the bone marrow and is usually treated with chemotherapy. It is the most common type of amyloidosis in the United States, with estimates of up to 2000 cases diagnosed each year, and occasionally occurs with multiple myeloma. The deposits in this type of the disease are made up of immunoglobulin light chain proteins which may be deposited in any bodily tissues or organs. The disease results when enough amyloid protein builds up in one or more organs to cause the organ(s) to malfunction. The heart, kidneys, nervous system and gastrointestinal tract are most often affected.

Normally, bone marrow makes protective antibodies, which are proteins that protect against infection and disease. After they have served their function, these antibodies are broken down and recycled in the body. With amyloidosis, cells in the bone marrow produce antibodies that cannot be broken down. These antibodies then begin to build up in the bloodstream. Ultimately, they leave the bloodstream and can deposit in the tissues or organs as amyloid.

2. SECONDARY AMYLOIDOSIS is caused by a chronic infection or inflammatory disease such as rheumatoid arthritis, familial Mediterranean fever, osteomyelitis, or granulomatous ileitis. The deposits in this type of the disease are made up of a protein called the AA protein. Medical or surgical treatment of the underlying chronic infection or inflammatory disease can slow or stop the progression of this type of amyloid.

3. FAMILIAL (or HEREDITARY) AMYLOIDOSIS is the only type of amyloidosis that is inherited. It is a rare form of the disease which is found in families of nearly every ethnic background. The deposits in this type are most commonly made up of the transthyretin protein which is manufactured in the liver. It is a mutation of such a protein that causes this form of amyloidosis.

4. OTHER TYPES OF AMYLOIDOSIS include localized amyloid, b2 micro globulin amyloid, and Alzheimer's disease. Localized types of amyloidosis are associated with hormone proteins, aging, or specific areas of the body, and have not been found to have systemic implications. The type of amyloidosis which is due to the b2 micro globulin protein may affect people who have been on dialysis for a significant length of time. In Alzheimer's disease, the amyloid protein in the brain is called the b-amyloid protein.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Sluff on December 16, 2007, 04:59:22 AM

FSGS no explanation

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: BobT1939 on December 16, 2007, 07:53:47 AM

I listed under "other". My kidney problem came from extensive chemotherapy with platinum compounds for testicular cancer administered between 1978 and 1983. Dialysis commenced December, 2007./bobt

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: mcjane on December 16, 2007, 03:25:37 PM

Zack      :clap;  Good one, funny, made me LOL.

okarol....great post, good idea.

One category missing...incompetence.

I will always believe if my husband had of had a better doctor this would have never happened to him.  He had hypertension & eventually was put on Aransep (sp) but never told why, what it was for or given any dietary instructions or even that his kidneys were failing. When he became so critically ill we had no idea he was in kidney failure.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: st789 on December 17, 2007, 03:36:19 PM

IgA nephropathy :banghead;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: paddbear0000 on December 19, 2007, 10:33:21 AM

Type 1 diabetes.  >:(

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Ken Shelmerdine on December 21, 2007, 05:24:25 AM

Polycystic Kidney Disease. A routine medical for an insurance policy revealed proteinuria and subsequent clinical tests showed PKD. It was explained that it was hereditary but no-one in my family ever showed outward symptoms of kidney disease.

After two years of marking the rate of deterioration they said that the disease was unlikely to get to the point of dialysis until very late in life but in the last few years the rate accelerated and in June 2007 creatinine reach 600 (6.0 USA Measurement)  It was then explained that my kidney function was now only 10% and now it was time for dialysis.

 I was gobsmacked, shouldn't I be feeling unwell, shouldn't I be overloaded with fluid plus all the other symptoms. They explained that even though my energy levels were good, had full fluid output,never had a kidney infection and never experienced back pain which is common in PKD, that the kidneys were failing to process blood toxins from my body and that reason alone is enough to require dialysis.

So under protest I agreed. I chose PD and had the Tencoff fitted and here I am 15 months on. I still dialyse under mild protest because I am still symptomless except for intermittent bouts of insomnia and restless legs, in fact stuff dialysis over Christmas, I'm going to stay off it for about four days. I've done it before without any ill effects and no fluid gain.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: okarol on December 28, 2007, 01:13:46 PM

When someone is given the reason for kidney failure as hypertension, isn't there an underlying cause? I know my grandparents had high blood pressure, but they were in their 70's and had life long high salt diets and weight issues, so I assumed that was the cause. I need to learn more.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: orphans_mom on January 02, 2008, 05:21:10 PM

106 degree F fever and heart attack brought on by an infection in a pic line.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: qwerty on January 02, 2008, 05:33:34 PM

I have chronic pylenonephritis so the doc's are always on the lookout.  Problem is I'm never symptomatic until it's severe enough with the first symtom being severe low back pain. By the time I'm symptomatic I usually end up hospitalized. Knock on wood I havent had to deal with what the majority of you have. Right now I'm on the caregiver end instead.  :bow;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: kimcanada on January 05, 2008, 04:26:41 PM

Geez I had mine wrote down and now I can't find it, it only has about 37 letters in the name  :-\

I will find out on Monday and post in your pole, I think this is VERY interesting!

Kimcanada

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: tamara on January 05, 2008, 04:58:05 PM

My Kidney Failure was caused by TTP at the age of 24. Here we are at the age of 33 transplanted WOOHOO   :clap;

Thrombotic thrombocytopenic purpura (TTP or Moschcowitz disease) is a rare disorder of the blood-coagulation system, causing multiple blood clots to form in blood vessels around the body.Most cases of TTP arise from deficiency or inhibition of the enzyme ADAMTS13, which is responsible for cleaving large multimers of von Willebrand factor. This leads to hemolysis and end-organ damage, and may require plasmapheresis therapy.

Signs and symptoms

Classically, the following five symptoms are indicative of this elusive disease:

Fluctuating neurological symptoms, such as bizarre behavior (That's me at least I have a reason  ;) ) , altered mental status, stroke or headaches (65%);
Kidney failure (46%);
Fever (33%);
Thrombocytopenia (low platelet count), leading to bruising or frank purpura;
Microangiopathic hemolytic anemia (anemia, jaundice and a characteristic blood film).
A patient may notice dark urine from the hemolytic anemia. Because of the many small areas of ischemia produced by clots in the microvasculature, symptoms may be diffuse and fluctuating, including the classical bruising, confusion, or headache, but also nausea and vomiting (from ischemia in the GI tract or from central nervous system involvement), chest pain from cardiac ischemia, seizures, muscle and joint pain, etc.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: boxman55 on January 05, 2008, 05:07:23 PM

Mine by type two diabetes and high blood pressure...Boxman

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: KT0930 on January 05, 2008, 07:18:20 PM

I answered early-on and never said in the thread what caused mine. I got an e. coli infection at the tender age of 10 months, and that led to hemolytic uremic syndrome - aka hemolytic uremic anemia - that was the downfall of my native kidneys, and what I put in the poll. Have lost both transplants to good ole chronic rejection.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Wattle on January 05, 2008, 11:59:19 PM

I also answered early-on and never said in the thread what caused mine.


Polycystic Kidney Disease (PKD). Inherited from my father, who had inherited it from his father. The odds are 50/50. I didn't win the lottery.  :-\

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Slywalker on January 06, 2008, 10:32:32 AM

I had to check other on the survey because no one every really gave me a firm diagnosis.  At the time they noticed my kidney failure it was just after I completed six months of chemo for breast cancer.  However, my mother died while doing dialysis (staff infection that went untreated) and we never knew what caused her kidney failure.  I went to a family reunion on her side a couple of years after her death and found some of her sisters and/or a couple of my cousins also had kidney failure.  Now one aunt is on hemodialysis and a cousin recently had a kidney transplant.   My original kidney specialist gave me a diagnosis that basically said it was hereditary.  The biopsy of my kidneys only showed scar tissue of an unknown origin.  My kidneys were also classified as "small" and the docs predicted for some reason they stopped growing when I was in my early teens.  So, my mother's kidney failure was not diagnosed until she was in her late 50's.  Mine was when I was 44.  I hold firmly to the belief that the chemo accelerated my kidney failure. 
Recently my 25 year old daughter was diagnosed with "stage 2" kidney failure.  The bad DNA has been passed on - but only on the female side of the family. 
Big mysteries.

Sandyb

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: GuyIncognito on January 07, 2008, 05:54:18 AM

I put myself down in the Other category... the Neph's say it is a disease is similar to Alports but without the cysts, It effects about 50% of the family, male and female.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: MelissaJean on January 07, 2008, 06:08:44 AM

Even though I voted 'other' (my kidney failure was due to medications from Cystic Fibrosis and anti-rejection meds from my lung transplant), it was soo interesting (and sad) to see how many causes of kidney failure there are.   Hugs to everyone  :grouphug;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: knmiller on January 08, 2008, 02:56:38 PM

I had a bad case of strep throat in college that I felt wasn't all that bad.  Unfortunately, it later turned into IgA Nephropathy...  Lesson to be learned from all of this...If you get a sore throat, get your butt to the doctor and don't sit on it.  I learned the hard way.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Loretta on January 21, 2008, 08:08:57 PM

This is a good topic.

My causes could be listed but I don't know the medical terms for what caused mine.  I lost my left kidney to blood clots in the renal vein in 1989.  I have continued to have clotting problems but what causes the problems have never been diagnosed.
I lost the other kidney  in Jan 2007 due to an alergic reaction to the antibiotic I had to take for repeated MERCA infections.
I am currently having problems with the right kidney because of scare tissue due to the treatment of cancer in the kidney.
Loretta

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: LightLizard on January 22, 2008, 09:54:27 AM

i'm still not sure what eaxactly caused my kidneys to fail.
at age two, in 1951, i developed pernicious anemia. i was given a complete blood transfusion to save my life.
in '51, there was no knowledge of hepatitis C, and so it wasn't screened back then.
i motored along for over 50 years before it took me out. perhaps it was hypertension, caused by my immune system's attempt to fight the hep C virus. maybe it was the six weeks of interferon i was given, before the gut bleed it caused almost did me in and they stopped the treatments. i would like to know, but i have a feeling that my neph is unsure, as well.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: rimbo74 on January 22, 2008, 08:55:20 PM

I know there are more than 3 Alports people out there....

the must not be checking in very much.  Guess the same goes for me.   :waving;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: okarol on January 23, 2008, 01:10:33 PM

A related thread -  "Why are you on dialysis?...in short?" --> http://ihatedialysis.com/forum/index.php?topic=1717.0     

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: bolta72 on January 23, 2008, 01:15:55 PM

So I have my interview with the transplant surgeon and he tells me my kidney failure was not caused by high blood pressure and all my other tests come back negative as far as the cause goes.  :-\

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: okarol on February 23, 2008, 01:10:48 PM

Quote from: bolta72 on January 23, 2008, 01:15:55 PM

So I have my interview with the transplant surgeon and he tells me my kidney failure was not caused by high blood pressure and all my other tests come back negative as far as the cause goes.  :-\

So they have no idea?  ???

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: vandie on February 23, 2008, 02:42:36 PM

My doctors were never able to pinpoint the cause of my kidney failure.  Perhaps an infection or a medication years ago.  The biopsy showed a lot of scarring but gave them no indication of the cause.

xoxo

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: isurvived on February 23, 2008, 02:52:35 PM

By all indications, mine was caused by unrecognized high blood pressure. Since everyone in my immediate family has high blood pressure, I am inclined to agree with the diagnosis.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: okarol on March 30, 2008, 01:22:01 PM

 :bump;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Chris on March 30, 2008, 02:01:36 PM

Well I had type 1 diabetes with high blood pressure = double whammy

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: twirl on March 30, 2008, 02:34:50 PM

PKD
grandfather
mother
me, not my twin or older sister
my daughter, Stasie (Stacy)
my daughter- Melissa and a diaprhmatic hernia at birth ( she has one working lung but she is a cheerleader and an drill team officier
my son- we do not know and he would worry too much, he doesn't want to know now
            He is on his way to play football at A&M, we are really Texas Fans, but that's what he wants (children will turn on you)
            He is going to be some kind of an engineer

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: rimbo74 on March 30, 2008, 09:54:25 PM

A&M?  You are going to let him get brain washed?  What position will he be playing?

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: devon on March 31, 2008, 11:09:26 AM

I was told mine was caused (probably) by Post Staphylococcal Infections. That is, I had a staph infection that lodged in my kidneys and worked over several months to destroy them.  I was 16 and living in Viet Nam when that happened. I was in the hospital for a couple months where I was treated with IV anti-biotics.  When I was admitted I had a body temp of 106 and was going into shock.  I don't remember much except when they put me in a bed of ice and I didn't feel anything, not even a chill because I was burning up inside.   The doc said another hour and I would have died.

Since then, I was prone to kidney infections and finally in 1998 I started my decline. My creatinine was over 2.5, then 3.0 in 2000 and now it's 5.7.  The progression has finally gotten to Stage IV and ESRD in that last year.  I should be starting dialysis in 3-4 months, as soon as the fistula heals.

-Devon

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: devon on March 31, 2008, 11:17:10 AM

OOPS!!! It was STREP not STAPH infection! DOH! 

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: annabanana on March 31, 2008, 11:33:26 AM

Randy had a kidney removed because of cancer...but now his remaining kidney is failing because of Hepatitis C, or so says the neph. He has also had HBP for years.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: neight on March 31, 2008, 09:00:39 PM

I voted Obstruction. It was really allot of things. I was born with one kidney atrophied (small and not working) and one working. When I was 5 I had an obstruction in my urethra which blew my ureters out and damaged the good kidney. Once fixed my bladder didn't know how to "hold" urine making my childhood hell. Then through the years I became a teen and drugs and alcohol became a factor along with hypertension. With no health insurance, I didn't know my kidney was failing till it was too late and straight to dialysis I went.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: paddbear0000 on April 01, 2008, 03:12:35 PM

Can we change our vote? I had chosen type 1 diabetes, but since then, my doctors have decided it was due to hospital error.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: Chris on April 01, 2008, 04:50:59 PM

Quote from: paddbear0000 on April 01, 2008, 03:12:35 PM

Can we change our vote? I had chosen type 1 diabetes, but since then, my doctors have decided it was due to hospital error.

Hospital Error? :o ::) :urcrazy;
 :Kit n Stik; :Kit n Stik; :Kit n Stik; :stauffenberg; :Kit n Stik; :Kit n Stik; :stauffenberg; :Kit n Stik; :Kit n Stik; :stauffenberg; :Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: okarol on April 01, 2008, 05:56:27 PM

Quote from: paddbear0000 on April 01, 2008, 03:12:35 PM

Can we change our vote? I had chosen type 1 diabetes, but since then, my doctors have decided it was due to hospital error.

I dunno if you can change the vote, but what was the error?

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: paddbear0000 on April 02, 2008, 08:53:20 AM

Not sure exactly. I was admitted to Johns Hopkins Hospital back in 2005 for a bronchitis like cough and vomiting up blood. They told me it was asthma (WTF?!). I was uninsured, so the next day they kicked me out. In the 24 hours I was there, I swelled up with fluid, putting on 30 pounds of water weight, and got an infection going up my entire arm from the IV. And they still kicked me out. Right after that, my kidneys statred to fail. Thinking back, I should have sued the hospital, but I had no proof by that point. I ended up with a $13,000 hospital bill and ended up declaring bankruptcy as a result.  :banghead; :banghead; :banghead;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: okarol on April 02, 2008, 10:11:17 AM

Sheesh! So sorry, that's just horrible!  >:(

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: KT0930 on April 02, 2008, 04:57:01 PM

OMG, Padda!

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Jannie on April 02, 2008, 05:30:30 PM

Bright's disease, supposedly a catch-all category.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: mysty on April 02, 2008, 07:46:23 PM

Any of these things can cause failure?  OMG.. The list is enormous!..
Kind of a wake up call to pay attention to these things to me..

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: kuronekochan on April 02, 2008, 08:53:12 PM

my kidney failure was caused directly by HIV (the virus attacks the cells in the kidney)... this "HIV-associated nephropathy" (HIVAN) is becoming more and more common...

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: Chris on April 02, 2008, 11:14:07 PM

Quote from: paddbear0000 on April 02, 2008, 08:53:20 AM

Not sure exactly. I was admitted to Johns Hopkins Hospital back in 2005 for a bronchitis like cough and vomiting up blood. They told me it was asthma (WTF?!). I was uninsured, so the next day they kicked me out. In the 24 hours I was there, I swelled up with fluid, putting on 30 pounds of water weight, and got an infection going up my entire arm from the IV. And they still kicked me out. Right after that, my kidneys statred to fail. Thinking back, I should have sued the hospital, but I had no proof by that point. I ended up with a $13,000 hospital bill and ended up declaring bankruptcy as a result.  :banghead; :banghead; :banghead;

Sorry to hear,
I guess I was lucky with my local hospital. I was uninsurred and unemployed. I was taken by ambulance to the ER due to hypoglycemic attack I awoke from and somehow called my mother's work and she called 911. No idea how I got the front door open either because I had trouble moving. Anyway, the hospital found out I had kidney failure, admitted me, started dialysis, and did the graft surgery while not rushing to kick me out. I was there for about 2 weeks andthe social worker there helped me out geting help from the National Kidney oundation, and where to get help from Social Security, and State Medicaid office. After being released I didn't have to pay for any of it, I just recieved one statement from the hospital and that was it. Seeing the doctors afterwards is another story. I am still paying off one of them.

To bad your hospital was not more helpfull especially Johns Hopkins who should know what resources are out there with all the patients they see.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: paddbear0000 on April 03, 2008, 09:23:40 AM

Everyone thinks Johns Hopkins should be some great hospital, but it's not! When I went to my transplant evaluation last month, I got into a conversation with the nurse who was taking my blood about how my kidneys failed. I told her, and she said that they recently had a patient who came to OSU to have a botched kidney transplant that Hopkins had done fixed.  :banghead; If I was on my death bed, I would refuse to go there again!

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: skuch65 on April 23, 2008, 08:15:13 PM

I had reflux of the kidneys.  Had surgery when I was 13 now i am 42.  My creatinine was stable at 2.3 until I was about 38 now it is at 3.6 slowly going up.  Starting to fill the effects of it.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: kidney4traci on April 23, 2008, 08:56:53 PM

Padd that story stinks! Sorry... 

Another Alport's here.  No hearing loss here though, except for when my husband talks (ha ha).

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: kimcanada on May 13, 2008, 06:30:28 AM

I picked Focal Glomerulosclerosis... because it was a very close choice... it is actually listed as Glomerulonephritis (Membranoprolifenative) why on earth would anyone name anything with this many letters?  Its like they never want us to repeat what we have!

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: sisterdonor on May 17, 2008, 10:41:01 AM

No one here got bit by a brown recluse spider?  I have heard a bite by one causes kidney failure.  Is that a myth?

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: monrein on May 17, 2008, 02:56:27 PM

I had an infection of the urinary tract at 8 months old and I also had undiagnosed reflux.  I was born in Jamaica and they initially misdiagnosed me with PKD and did not give me an antibiotic which may have spared my kidneys.  The infection continued so my official diagnosis is pyelonephritis.   I was also born with one kidney very much smaller than the other and I wet the bed until I was almost 12.  I started my period at 9 and it seems as if my body got all mixed up about stopping and starting things at the age-appropriate time.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: spacezombie on May 17, 2008, 03:04:29 PM

Quote from: MattyBoy100 on December 15, 2007, 09:04:56 AM

As for me, it is only believed to be Alports Syndrome as my Uncle had it too along with deafness as do I.  We're not sure though as the tissue in my biopsy was too far gone for them to be sure.  The symptoms however, all support Alports and what is interesting is that I was initially given anti - inflammotary pain killers for foot pain which may or may not have killed off any remaining kidney function I had left.

I have Alports too. Do you have complete hearing loss? When did you lose your hearing? I lost most of my hearing when I was seven but I'm still plugging along with a little bit left. It would be better with better hearing aids, but I can never afford them. ;)

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: paddbear0000 on May 17, 2008, 04:59:04 PM

Do you have health insurance (besides Medicare)? That should cover hearing aids.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: spacezombie on May 17, 2008, 06:30:08 PM

Quote from: paddbear0000 on May 17, 2008, 04:59:04 PM

Do you have health insurance (besides Medicare)? That should cover hearing aids.

Medi-cal covers hearing aids if my current aids are more than three years old, I think. I like to get digital hearing aids rather than analog but usually Medi-Cal won't cover those (this has probably changed). I will check with them after my transplant and try to get new aids. Regular insurance has never covered hearing aids for me. They are usually deemed a prosthetic and not necessary.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Yvonne on May 19, 2008, 11:41:15 PM

I have ticked John's box as cancer, But over the years he has always had high blood pressure, never treated until 5 years ago. Over the next 5 years he was treated for urine infections many times. He had an xray once and said he only had one kidney but later after a CT scan it was discovered he had a horseshoe kidney. He became incontinent in January 2007 doctor said it was his age (71) On the 31st Jan was rushed into hospital with acute renal failure, doctor said another 4 days and he would have died, never the less he was still in and out of hospital undergoing lots of test, and then in July 2007 he had major surgery to remove prostrate, one kidney and his bladder all with stage 4 cancer.

We still keep saying IF they had and IF we had, he has come through it all but with many complications.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Bryce on May 20, 2008, 02:42:58 AM

I've got Membranoproliferative glomerulonephritis type 2 (Dense Deposits Disease), it's usually a very aggressive disease  which is usually detected in childhood and as a 90% chance of coming back after a transplantation, but I was 34 before I found out I had it and 37 when my kidneys failed, so heres hoping I'm one of the 10%. Although it is a genetic disease it is not hereditary so my son should be ok.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: JasonEb on May 22, 2008, 08:41:19 PM

I got mine from Santa...I asked for a bicycle and instead he brought me membranoproliferative glomerummm....mumblemumble....itis.

Guess I shouldn't have left that flaming bag of reindeer poo on his porch earlier that year...

Oh, the doctors tell me it was from a random infection that attacked my kidneys, but I still think my Santa reason is the correct one...

~Jason E.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: kevno on May 23, 2008, 02:20:25 AM

Reflux most likely from birth totally killed one kidney. By the time I was tested was 6 years old. Tried for four years to save the one kidney but failed, on hemo at the age of ten 1977.

A doctor misstake sent to late for tests :stauffenberg; :Kit n Stik;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: smile24x7 on June 05, 2008, 09:37:30 PM

The cause of my kidney failure was the one two punch of type 2 diabetes and hypertension.   :boxing;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: cabarle on June 20, 2008, 01:04:26 PM

 :usaflag;

I was in the Navy during the first Persian Gulf War on an Ammunition Supply ship. The Navy suspects depleted Uranium is the cause of my renal failure.

All this time I thought it was the chow.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: dawson on June 25, 2008, 03:03:14 PM

I loved the Santa story :rofl; and wish I was half as creative!  Gosh, we're a witty crowd!

I have secondary FSGS probably caused by congenital absence of my left kidney.  My right kidney is enlarged.  I had a few years of UTIs before getting diagnosed at ages 28 - 31 (at 28 we knew there was a problem and almost 3 years later I was given a name of the disease , although it wasn't called FSGS at that time, at least by my doctors).   Another thought reading these - some of the side effects of FSGS are high cholesterol and high blood pressure and some of the people have listed these as causes yet not FSGS.

I'm also surprised at the poll because I thought FSGS was a small little sub-group of the whole kidney spectrum, but we seem to have a pretty strong showing.  Thanks - this was an interesting read.

Title: Explain vote
Post by: Orange County Ca on August 06, 2008, 08:51:19 AM

The Doc said my failure was idiopathic.  I am fond of explaining to others that it means the idiots don't know.

First suspicion is that it was untreated or under treated strep throat when I was a kid and I did have several bouts of it in the 50's.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: dkerr on August 11, 2008, 02:29:55 PM

PKD - my mother had it, I have it, my sister has it, my son has it, and I'm not sure about my daughter.  My nephro doesn't want me to check.  She's 31 and no sign of it yet, everything else in the world, but not this.  By the way ... nothing wrong with A&M - go Aggies! :bandance;

My daughter got her B.A. at A&M and masters at BYU.  Did well for her.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Mercurial on August 13, 2008, 11:29:14 PM

Henoch-Schönlein Purpura

Swiped from www.medicinenet.com

"Medical Author: William C. Shiel Jr., MD, FACP, FACR
Medical Editor: Dennis Lee, MD

What is Henoch-Schonlein purpura (HSP)?

Henoch-Schonlein purpura (HSP or anaphylactoid purpura) is a form of blood vessel inflammation or vasculitis. There are many different conditions that feature vasculitis. Each of the forms of vasculitis tends to involve certain characteristic blood vessels. HSP affects the small arterial vessels called capillaries in the skin and frequently the kidneys. HSP results in skin rash (most prominent over the buttocks and behind the lower extremities associated with joint inflammation (arthritis) and sometimes cramping pain in the abdomen.

What causes HSP?

HSP occurs most often in the spring and frequently follows an infection of the throat or breathing passages. HSP seems to represent an unusual reaction of the body's immune system that is in response to this infection (either bacteria or virus). Aside from infection, drugs can also trigger the condition. HSP occurs most commonly in children, but people of all age groups can be affected.

What are symptoms of HSP?

Classically, HSP causes skin rash, pain in the abdomen, and joint inflammation (arthritis). Not all features need be present for the diagnosis. The rash of skin lesions appears in gravity-dependent areas, such as the legs. The joints most frequently affected with pain and swelling are the ankles and the knees. Patients with HSP can develop fever. Inflammation of the blood vessels in the kidneys can cause blood and/or protein in the urine. Serious kidney complications are infrequent but can occur.

Symptoms usually last approximately a month. Recurrences are not frequent but do occur."

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Wayne on August 20, 2008, 08:39:36 PM

FSGS as well.  Pretty much like everyone else....I wasn't given an explanation.  They just said it wasn't hereditary...of course, they seem to be backing off a little on that now.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Lucinda on August 21, 2008, 12:29:29 AM

Mine was caused by dysplastic horseshoe kidney which is both rare and hereditary.  Whenever I am having an utrasound for something else, everyone asks if they can take a look at my horseshoe as they haven't see one before.  Nothing unusual there.  It just looks like a horseshoe with two kidney beans at each end. 

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: okarol on August 22, 2008, 09:35:10 PM

Quote from: Lucinda on August 21, 2008, 12:29:29 AM

Mine was caused by dysplastic horseshoe kidney which is both rare and hereditary.  Whenever I am having an utrasound for something else, everyone asks if they can take a look at my horseshoe as they haven't see one before.  Nothing unusual there.  It just looks like a horseshoe with two kidney beans at each end. 

Hey Lucinda - did you ever see this thread? http://ihatedialysis.com/forum/index.php?topic=8105.0

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: Krisna on September 18, 2008, 08:31:06 PM

Mine was glomerulonephritis of unknown origin!  By the time I was diagnosed I was already end stage and my Nephrologist said there wasn't any way of knowing for sure.  My doctors and surgeons now days say it was probably a Staph infection. 

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: okarol on September 19, 2008, 10:23:43 PM

Quote from: Krisna on September 18, 2008, 08:31:06 PM

Mine was glomerulonephritis of unknown origin!  By the time I was diagnosed I was already end stage and my Nephrologist said there wasn't any way of knowing for sure.  My doctors and surgeons now days say it was probably a Staph infection. 

It's amazing how many cases of ESRD have unknown causes!

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: paris on September 20, 2008, 12:06:07 PM

Do the docs just tell us that when they don't have the answer?   I keep thinking there must be some reason besides "idiopathic" --or is he just calling me an idiot?

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: kaci on September 22, 2008, 07:19:08 AM

Quote from: stauffenberg on December 14, 2007, 02:43:11 PM

Hey, you left out Henoch-Schoenlein Purpura, the type of renal failure that killed Mozart!  It is not a statistically important cause of renal failure, but I had to mention it because I just love to say, "Henoch-Schoenlein."  "Schoenlein" is also German for "pretty little thing," a term of endearment sometimes used among lovers there, but it does not describe the horrors of that disease very well!

This is what has caused DH's kidney failure.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: libran925 on September 24, 2008, 10:19:44 AM

I am amazed at all the causes of kidney failure. I knew about PKD (which I and my daughter have) and diabetes. Also high blood pressure. There hereditary stuff is discouraging, passing on a pesky disease to your child. And that child has two children of her own. So, we can only wait and see what will happen to them.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: SuzanneFord on September 28, 2008, 03:33:44 PM

Nephrogenic diabetes insipidus which isn't diabetes and should have its name changed to "George" so medical types stop trying to test my blood sugar.   It means insipid/clear urine actually, my older brother looked it up years ago, they used to test for diabetes by (grossness warning) tasting the patient's urine and if it tasted sweet the diagnosis was diabetes mellitus (type 1 or 2 I guess) and if it had no taste at all it was diabetes inspidus which is a kidney defect.  Some children are born with it and some people acquire it from lithium used as prescribed which is what happened to me.  I also didn't get decent medical care when I was in the acute phase of it which is probably why I ended up with kidney failure.  In the acute phase I was in the ICU putting out 10 liters of urine a day.  I still have polyuria to this day which also confuses any new medical types because they can't compute kidney failure patient and needs liquids constantly or will dehydrate to death.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: kidneyguy on October 01, 2008, 02:51:19 PM

mine was prune belly syndrome

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: overthepond on October 02, 2008, 01:41:24 PM

I have never been given a definitive reason but suggestions my kidneys ceased to grow when i was 11.

What makes me laugh is that in my notes it states "Familial nephropathy" which to me means inherited from my family which as i am the first that we know of makes me laugh  :rofl;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Jamesw on October 08, 2008, 08:16:18 PM

My kidney disease is officially hypertensive, however my hypertension was not discovered until my kidney function was at twenty percent, which is also when my kidney disease was discovered. I have bruised my kidneys a lot throughout my life, the last time was a couple of years before the kidney disease was discovered. My nephrologist sees this as a possible cause of the initial damage to my kidneys which would have then lead to hypertension which finally killed my kidneys. I was twenty eight when I was diagnosed with CKD, I wasn't out of shape or overweight, the only explanation for my hypertension is kidney failure, the only explanation for my kidney failure is hypertension hence the probable initial cause being physical injury.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: cosmickelly on October 12, 2008, 07:25:59 AM

I was diagnosed with diabetes (type 1) in college.  They said then that with the symptoms I was having, I had it as a child. Then, when I went to get evaluated for a transplant, they said my pancreas was pumping insulin like crazy.....so, the "official" diagnosis now is Type 2. I am now not eligible for a pancreas.

Have an AWESOME day!!

Kelly :)

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: idahospud on October 23, 2008, 03:50:07 AM

I have PKD as did my mom and her dad and so on I am the 5th genration with PKD . My doter has polups there not sing PKD yet she's only 22 I pray to god she never git's it  but i know there's a good Chan's of it  :'( I was surprised as how many different coses of CKD there are out there   Carol

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: Katey on November 08, 2008, 11:15:27 PM

I was surprised to see my disease of medullary cystic on this poll and that someone else suffers from it!!  Wow this is a great poll to get a general Idea of all things that can cause KF
 ;D

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: 502Blues on November 10, 2008, 12:12:35 PM

Alports according to what my medical chart says, I never had a kidney biopsy so how could they possibly diagnose that

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Aubrey on November 13, 2008, 08:35:57 AM

Probably high blood pressure, though this isn't definite.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Roxanne610 on November 27, 2008, 05:15:10 PM

Anti Rejection Medications is missing for transplant recipient's...  Thats a common concern in Organ transplants.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: mdpeters on December 02, 2008, 04:14:02 PM

I am assuming that high blood pressure caused my kidney disease.  I have also heard it the other way around too....that kidney disease can cause high blood pressure.  Either way, I am just unhappy and angry that this happened to me.  I cry a lot.  Apparently this did not happen overnight - it was going on for a while and I didn't know about it.  I felt fine.  I thought I was healthy, and the next thing I knew I had kidney disease!  I was not in any pain.  ( I still am not in any physical pain, but a lot of emotional pain)  The only reason why I went to the doctor was because of a dry cough that I was having that lasted for more than 2 1/2 weeks and I was feeling a bit tired...more than normal.  Couple of blood tests and a urine test later I'm sitting in the office of a kidney specialist who is telling me I have stage 4 chronic kidney disease.  I keep hoping that this is all just a bad dream that I'm going to wake up from.

Prayers for each and everyone of you.....we're all in this together and having people that really understand what you're feeling and going through is such a blessing because sometimes you really feel alone.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Falkenbach on December 07, 2008, 11:07:51 PM

I am in the "I don't know" category, as my doctors could never explain it. I've always held a suspicion about Tofranil (imipramine) that I was taking for depression at the time. I misunderstood the doctor's questions to me about side effects, so I wasn't telling her things I should have been telling her, such as urinary symptoms that I did not understand. If I'd told her, she'd have never increased the dose to the level that we did - but that depression was terribly resistant at the time, dammit, and this treatment was finally showing signs of working when all others had failed.

Tofranil is also used for treating bed wetting in children, so known for slowing the urine. I was a very small person in my early 20s (around 42 kg in weight, it was my natural weight and not an eating disorder or illness), so a high dose of this drug may well have been risky.

I have also done some reading on the internet about POSSIBLE links between adult chicken pox and problems like kidney failure. I got chicken pox at 19, just a few years before the kidney dysfunction was discovered.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: okarol on January 02, 2009, 04:30:52 PM

 :bump;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: MandaMe1986 on January 08, 2009, 11:51:09 AM

Well it is hard to say, I have been told it was a so many diffrent things.  One constent though is Lupus erythematosus.  Lupus doesn't show up in my blood test, but my last doc told me that I am a rare case.  So last I heard it was Lupus.  I have had to see a few diffrent kinds of docs and of course everyone has there own idea and no one can agree, but I am pretty sure it is Lupus cause I am now having other diffrent symptoms. but yeah thanks for this poll

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: RightSide on January 08, 2009, 09:06:46 PM

I should have explained my cause on this thread; I've already explained it elsewhere.

The cause of my kidney failure was urinary retention from Benign Prostatic Hyperplasia (BPH).  Urinary retention led to urine backing up in my ureters.  And that, in turn, led to hydronephrosis of my kidneys, which damaged my kidneys beyond their capacity to heal.

Evidently, BPH can cause urinary retention sufficient to cause kidney failure, even if the man is still able to urinate through the enlarged prostate.  Thus the man's kidneys may fail without warning (which is what happened to me).

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: sewerrat4u on January 16, 2009, 01:25:58 PM

Yellow again!  Yes I must say that the cause of my kidney failure is me...... I'm the diabetic who didn't heed all the warnings about what can happen when you don't take care of yourself. Damn if ain't true!!! I can't blame anyone , I can't have someone policing what I eat everyday!
 So what caused my kidneys to fail and have high BP, not be able to  work!, not have the energy to help around the house , (the poor wify)
 The answer  again is ME!!!! :Kit n Stik;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: TexasLonghorn on February 05, 2009, 05:22:11 PM

Fibrillary Glomerulonephritis - extremely rare, I guess that's why I got it.


http://www.unckidneycenter.org/kidneyhealthlibrary/fibrillarygn.html

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Michael57 on February 11, 2009, 10:51:41 AM

Hi:

Am quite surprised at number of people with PKD. Usually represents a much smaller portion of ESRD pateints. Good luck to all.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: deafman on February 12, 2009, 03:28:29 AM

My kidney failure was caused Mesangiocapillary glomerulonephritis.  Otherwise they really dont know!!   ??? ??? ???

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: cat on February 25, 2009, 06:08:30 AM

The doctors have no idea what caused my kidneys to fail.   :(  I had no warning.  I do not have, nor have I ever had, any of the "classic" signs of kidney disease.  I have never been sick (except for the usual childhood diseases back in the 50's).  I am not diabetic.  I have low blood pressure.  I am a little under weight, but not severely.  Then three years ago, I started feeling weak and was not able to walk more than a few feet at a time and my right hand was partially paralyzed.  It came on very suddenly.  I was diagnosed with neuropathy (in both legs and ulnar neuropathy in my right arm) and was forced to go on SS disability.  I spent a whole year going to every specialist they could think of and had every test they could come up with - and then some!  No cause for the neuropathy was ever found.  In looking over the blood tests and CT scans done even as recently as two years ago, there is no sign of possible kidney problems.  In late July 2008, I started feeling weaker.  At first, I just thought it was due to the neuropathy because that makes me feel weak and unable to walk.  On August 10th, my husband took me to the ER because he was so worried.  By that evening, I was on dialysis with a diagnosis of complete kidney failure.  The doctors had no idea what caused it.  A CT scan taken two years earlier showed that my kidneys were "normal".  It was quite a shock to go on dialysis without warning.  I had finally adjusted to life in a wheelchair and had resumed many of my former activities.  My husband and I love camping and fishing and we were going almost every other week.  Then, kidney failure!  I am now weak all the time.  I am told that I will adjust to the exhaustion I feel after dialysis.  It takes me a day to recover and then it is time for another session!  I just wish I knew what caused all my problems.

 :rant;

cat

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: purple on March 04, 2009, 06:34:43 AM

G'day sorry to be a pain in the KIDNEY ..oh that is right none of ours work properly..anyway ..the reason I have lost my kidney function is due to a combination of some of these things.. for example I have renal reflux, I also have massive kidney infections...also high blood pressure and also pelonethritis ...I know I can't spell for peannuts sorry ..so you see I should be in a different count I think ...sorry forgive my ignorance ..newbie still trying to find the light at the end of the tunnel Keep smiling  :shy;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: KevinCG316 on March 11, 2009, 11:44:19 AM

I was diagnosed with Wegener's Granulomatosis in nov of '06. My family doctor didnt realize the signs as it is very rare disease to get. He told me he knew of 1 person who had it in his 27 years of practice. The 1st hospital i was in didnt know about it either, luckily i got to University of Penn and they got the job done in time be fore it was fatal. Spent about a month and half in the hospital while they treated me. Been on Dialysis now for almost 2 and a half years and on the transplant waiting list.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: Xina54 on March 22, 2009, 11:25:05 PM

My kidney failure was caused by Lithium poisoning.


Remember - it's never too late to become who you might have been . . .

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Stacy Without An E on March 23, 2009, 12:06:19 AM

My kidney failure was caused by God's total revulsion for my existence.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: paddbear0000 on March 26, 2009, 09:38:25 AM

Oh Stacy, don't say that! That's so sad!  :cuddle;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Sunny on March 26, 2009, 02:15:15 PM

Stacy,
That's harsh, because that means we could all say it of ourselves. Why me God?
But I know how you feel.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: TiffanyJean on April 26, 2009, 01:24:23 PM

I marked 'I don't know' for Richie because the kidney biopsy showed that he had so much scar tissue that the doctors couldn't really tell. They decided that it was probably from having an "extra renal pelvis" which loosely translates to nephrons on the outside, that re-filtered everything back into the kidneys, slowly killing off the the kidney cells.

The only way we might have know was from a urine test done before his senior year of high school (2001) that showed a 1+ protein in his urine and some wonderful doctor/ nurse or whom ever didn't follow up on it. Can't say too much about it as we are in the beginning stages of the lawsuit. Needless to say it was about 7 years before he was officially diagnosed, and he is blood type O; and ironically the waiting time for an O kidney on the UNOS list is about 7 years. :rofl; funny huh!!!! We probably would have gotten a bit of a better biopsy then, and might have had at least a cadaver kidney by now!

 :rant;

It is amazing how many ways you can get kidney disease, and even more amazing is how many have no clue how it happened!! kinda nice to not be alone in that respect.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: ahqudit on April 27, 2009, 10:58:27 AM

My husband has multiple myeloma cancer witch caused his kidneys to quit

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Krisna on April 30, 2009, 04:34:33 PM

I recently ran across my medical records from when I was diagnosed.  I had obtained them years ago when both my dad and I went to Children's to get our records.  He had been there for brain tumors on 2 separate occasions when he was a kid.  The doctors did believe it was probably a Staph infection that developed from the Chicken Pox I had a year prior.  I had them during the summer and my mom let me and my sister play in the plastic wading pool in the from yard.  Back then nobody thought abt the open sores and dirty water.  So, I'm pretty much convinced that's where it started.

But the reason they failed was negligence on my Pediatrician's part.  My dad got kicked out of the clinic because he was convinced something was wrong with me.  I have recently obtained some pictures of myself from around that time and you can clearly tell something is not right with me!  I had dark circles and pain in my side.  Of course I was so young that I said it was my tummy.  I had protein in my urine an was anemic and had chronic ear infections but the pediatrician insisted there was nothing wrong with me!  My dad got into an argument with him.  The doctor said, "Come back when you become a man!"  My dad said, "I'll come back when you become a doctor!"  A few months later I was in the hospital to have tube put in my ear to help it drain.  I went into congestive heart failure and then I was transferred to Children's.  That was how I found out my kidneys were failing.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: makevalue on May 03, 2009, 07:39:21 PM

Wow.  Really insightful info here.  I am one of the many whose disease has the label of FSGS i.e. glomerulosclerosis nephritis.  When I was 3, I had a case of the measles and was told this caused it.  Never heard that reason again until last year.  But my neph won't confirm or deny of course.

Bottom line is that if childhood diseases contributed significantly to diseases like CKD and everything that goes with it, our public policy on health care would have to take notice of it.  Would to god it that would happen.   
:rant;

New to this board.  If you all know of good blogs on CKD, send them my way.

Cheers

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: sumodidit on July 27, 2009, 09:21:06 PM

Hello, I got a rare one for you. I have Light chain deposition disease. It is a rare disease where protein is accumulated in the kidneys and fills it up until the kidneys cannot perform anymore. Ever since I was diagnosed I have always been trying to find someone that has the same disease and could share some information with me. :clap;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Hanify on July 28, 2009, 10:35:31 PM

Hey Sumo - your thing must be similar to mine - I have Multiple Myeloma, and they test the results by testing my light chains.  I hadn't heard of it as a separate thing.  But the end result in my kidneys was the same.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: sumodidit on July 29, 2009, 11:51:12 AM

I think it can be associated with mylenoma Hanify, I was researching it and it does mention it. Does your illness kinda starts a domino effect to where it does this and that? Thats what I am having with my disease but if they can control what it starts I'm alright.
Buts its crazy to meet someone who might have it or something so similar because they tell me its so rare.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: kidneyless_In_PA on July 29, 2009, 12:49:18 PM

mine was from lead poison from my dad filling lead in car batteries and when my parents created me it got in me. :banghead;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: sico on August 11, 2009, 02:58:56 AM

I was told FSGS. When i had biopsy done, the tissue was badly scared. Both of my kidneys were small on the ultrasound too. One of the docs at the hospital said i could have had something wrong for 16years.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: -Lady Noir- on August 25, 2009, 08:33:14 PM

Mikes kidney failure started when he was 3 or 4 years old (Apparently..) Although we ddn't find out until he was 20!
He had strep throat when was little, and due to i being untreated, or not treated properly.. apparently that caused his kidney failure.
Chronic Glomerulonephritis.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: tweetyas on September 15, 2009, 08:37:45 AM

mines called  AME -Amineralcorticoid Excess Syndrome....I was diagnosed at 2 years old at UCLA. The Docs told me its extremely rare.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: ryosaki on September 15, 2009, 09:27:44 AM

I have alports....my family calls it our family "curse". so far all first born males in my family all have it!! that's me....my two cousins and my uncle who has already passed away. My aunt just gave birth about a month ago and lo and behold...it's a boy!! Alports is a disease that females carry it but it's the males who get affected by the symptoms. It's not just the kidneys that fail too...symptoms include deafness and blindness!!lol....can anyone top that? haha. :banghead;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Lillupie on October 14, 2009, 08:59:07 PM

I have never heard of primary hyperparathyroidism? What is it exactly.

Lisa

Quote from: Psim on December 14, 2007, 01:03:55 PM

I got it from primary hyperparathyroidism. Which I guess is really uncommon. I had it, undiagnosed, for about 10 years -- there were quite a few opportunities for it to be caught before it took my kidneys out, but hey, my medical clinic mislaid my bloodwork for 5 years.  :rofl;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: jennyc on October 29, 2009, 02:24:27 AM

Yeh, most renal patients suffer from secondary Hyper pth- it happens as a result of the renal failure and had it not been for the renal failure we never would have gotten it. Primary is where there is something physically wrong the the parathyroid gland in itself such as a tumor.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: amanda n on November 01, 2009, 06:26:01 PM

i have SLE but the cause of my kidney failure was secondary antiphosphilipid syndrome... had my doctor kept me on asprin things could have worked out very differently, hind site is always 20/20!!!

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: -Lady Noir- on November 06, 2009, 12:05:31 PM

Quote from: jennyc on October 29, 2009, 02:24:27 AM

Yeh, most renal patients suffer from secondary Hyper pth- it happens as a result of the renal failure and had it not been for the renal failure we never would have gotten it.

True!
Mike had a parathyroidectomy, which in turn actually made his already bad kidney function worse. Thems the breaks eh

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: bege on November 07, 2009, 06:22:35 PM

mine was cancer, not "normal kidney cancer, but the type that is suppose to be in the colon--adeno carcinoma.  It started as a simple kidney stone surgery, but there was a spot "that probably was scar tissue".  But lucky me it wasn't.  I was diagnosed a year ago..I will never forger laborday weekend.  Now after7 months of chemo the kidney came out. And since I was born with only one kidney, now I am on dialysis 3 days a week for 4 hours a day. 

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Lillupie on November 18, 2009, 09:57:43 AM

I cant find it, but my friend had strep throat that lead to his kidney failure.
Lisa

Quote from: okarol on December 14, 2007, 11:13:05 AM

I hope I didn't leave anything out, please let me know. Feel free to explain.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Razman on November 18, 2009, 02:05:22 PM

Quote from: Lillupie on November 18, 2009, 09:57:43 AM

I cant find it, but my friend had strep throat that lead to his kidney failure.
Lisa

   Same thing happened to me. I went to a doctor twice in 3 weeks.  He never did a throat swab and just said it was a cold.  My neph said that it what caused my kidney failure but you'll never prove it in court!



Edited: Fixed quote tag error- okarol/admin

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: okarol on November 18, 2009, 10:19:51 PM

I added strep throat

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Brianna! on November 18, 2009, 10:30:16 PM

This book called "Saving Jessica" I think it's called, Jessica is on dialysis, and her kidneys started to fail apparently because of strep throat. Mine failed because of a neurogenic baldder.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Swee_tone on November 19, 2009, 09:53:12 AM

I haven't read through this massive thread yet, but I plan too.

I have no idea how my IGAN started, i've had strep throat several times... but my wife thinks it was when I was a kid.

I had gotten really sick and started hallucinating.  At 20 years old I started peeing dark tea colour, but was too scared to get it checked out.
LESSON: check abnormal situations/ conditions out with your doctor!!!

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: fc2821 on November 22, 2009, 09:13:09 AM

   This has been a very intereresting thread, to me, to read.  Thanks to all for sharing.   I had not idea there were so many possible causes.
     My loss was due to injury.  I noticed that I was the first respondent with that cause. 
      For those who like details, here goes.  I was working, a deputy sheriff,  saw a fellow I knew to be wanted coming out of the back door of a closed business at three in the morning.  He fled, I persued.  He ran his car through a corn field and come out and ran into mine.  Another deputy close by caught him. I am on dialysis and his is in prison.  No winners.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: okarol on November 22, 2009, 03:10:28 PM

Quote from: fc2821 on November 22, 2009, 09:13:09 AM

   This has been a very intereresting thread, to me, to read.  Thanks to all for sharing.   I had not idea there were so many possible causes.
     My loss was due to injury.  I noticed that I was the first respondent with that cause. 
      For those who like details, here goes.  I was working, a deputy sheriff,  saw a fellow I knew to be wanted coming out of the back door of a closed business at three in the morning.  He fled, I persued.  He ran his car through a corn field and come out and ran into mine.  Another deputy close by caught him. I am on dialysis and his is in prison.  No winners.

I imagine it was a very severe accident. Usually when you hear of a kidney lost due to an injury the person can be ok with just one kidney. How was it that you lost both? Thank you for your service in law enforcement. I am glad they caught the guy.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: fc2821 on November 23, 2009, 07:35:00 AM

Severe injuries to my lower back.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: maglaw64 on December 30, 2009, 12:15:55 PM

They can't tell me what caused mine....might have been born with small kidneys, pregnancy might have exacerbated it (had pre-eclampsia), but that's all they can tell me..... :thumbdown;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: -Lady Noir- on December 30, 2009, 01:17:42 PM

Actually, come to think about it.. Mike was told his was because of Strep Throat.. and they told him it was glomerulonephritis. Not sure how correct that is..

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: cdwbrooklyn on December 30, 2009, 04:22:35 PM

When I was in my early 30th my doctor told me I had high blood pressure.  However, I felt I was too young to have hbp so I totally ignored him.  WHY DID I DO THAT?  Young and foolish, I decided to continue going on with life without trying to lower my BP.
So one day I woke up and everything around me was blurry.  I could not see anything.  I went to the doctor and they could not tell me what was wrong although the doctor office took so many tests.  I must have saw about 10 different doctors and not one of them decided to take my BP.  To make a long story short, I winded up in the hospital after I could not breath and fell out.  The doctors in the hospital decided to take my BP and found out it was 200/120.  Right there and than the doctor gave me some meds.  I started to get my sight back after several hours.  That's when the doctor told me I had to go on dailysis.  I was so upset.  I've tried every herbs I could afford.  It worked but I couldn't paid $150 a week to maintain the herbs.  So after 6 months and behind on my rent.  I decided to go on dailysis. It was so hard for me.  I cried for about one year hoping my kidneys will start functioning again.  After a year I became very angry whereas I pushed everyone out of my life.  Well, they stayed away for a while.  After three years on dailysis, I started to fell sorry for myself.  Then after five years felling sorry for myself and not really interacting with to many people, I was thinking about killing myself. It was time for me to see a psychologist, which changed my whole attitude.... I started to accept dailysis and reunited with my friends and family and started to live again.  Now I'm more positive and have a great career and dating.  POSITIVE THOUGHTS, POSITIVE ENERGY!   

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: sico on December 30, 2009, 08:58:31 PM

Quote from: cdwbrooklyn on December 30, 2009, 04:22:35 PM

When I was in my early 30th my doctor told me I had high blood pressure.  However, I felt I was too young to have hbp so I totally ignored him.  WHY DID I DO THAT?  Young and foolish, I decided to continue going on with life without trying to lower my BP.
So one day I woke up and everything around me was blurry.  I could not see anything.  I went to the doctor and they could not tell me what was wrong although the doctor office took so many tests.  I must have saw about 10 different doctors and not one of them decided to take my BP.  To make a long story short, I winded up in the hospital after I could not breath and fell out.  The doctors in the hospital decided to take my BP and found out it was 200/120.  Right there and than the doctor gave me some meds.  I started to get my sight back after several hours.  That's when the doctor told me I had to go on dailysis.  I was so upset.  I've tried every herbs I could afford.  It worked but I couldn't paid $150 a week to maintain the herbs.  So after 6 months and behind on my rent.  I decided to go on dailysis. It was so hard for me.  I cried for about one year hoping my kidneys will start functioning again.  After a year I became very angry whereas I pushed everyone out of my life.  Well, they stayed away for a while.  After three years on dailysis, I started to fell sorry for myself.  Then after five years felling sorry for myself and not really interacting with to many people, I was thinking about killing myself. It was time for me to see a psychologist, which changed my whole attitude.... I started to accept dailysis and reunited with my friends and family and started to live again.  Now I'm more positive and have a great career and dating.  POSITIVE THOUGHTS, POSITIVE ENERGY!   

I had the blurred vision and found out i had high bp (215/125) the same day i started dialysis. Although it took weeks for my sight to recover.
It can be hard to accept, but you can feel good on dialysis. Sure beats life with ESRF and no dialysis 'cause that don't exist.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: topazbeauty on January 04, 2010, 05:08:31 PM

I have MPGN type 1 like a few other mentioned here. Usually type 1 is caused by a secondary disease that was never treated, typically Hep C or B, but not me, just good old no known reason. They diagnosed me accidentally when I was going into middle school from a weird UA value on my physical.

At least I had some time of "normal" life before dialysis. I only had to fight with the doctors about prednison. Went on a business trip and was working 15-20 hours a day for 1.5 weeks. Started feeling bad and had my levels check and my CrCl which had been stable at around 2 for 11 years jumped to 4. Soon after it was above 6 and I started dialysis. Hopefully 23 will be the only year of it and I get a transplant soon.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Swee_tone on January 07, 2010, 10:37:04 AM

Quote from: cdwbrooklyn on December 30, 2009, 04:22:35 PM

When I was in my early 30th my doctor told me I had high blood pressure.  However, I felt I was too young to have hbp so I totally ignored him.  WHY DID I DO THAT?

So one day I woke up and everything around me was blurry.  I could not see anything.  I went to the doctor and they could not tell me what was wrong although the doctor office took so many tests.

The doctors in the hospital decided to take my BP and found out it was 200/120.

 So after 6 months and behind on my rent.  I decided to go on dailysis. It was so hard for me.  I cried for about one year hoping my kidneys will start functioning again.  After a year I became very angry whereas I pushed everyone out of my life.  Well, they stayed away for a while.  After three years on dailysis, I started to fell sorry for myself.  Then after five years felling sorry for myself and not really interacting with to many people, I was thinking about killing myself. It was time for me to see a psychologist, which changed my whole attitude.... I started to accept dailysis and reunited with my friends and family and started to live again.  Now I'm more positive and have a great career and dating.  POSITIVE THOUGHTS, POSITIVE ENERGY!   

Wow! That is an amazing story! Thanks for sharing, you really are an inspiration & a fighter! Keep positive, and thanks for helping others to stay positive.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: antoine on January 08, 2010, 12:21:16 AM

i did a biopsie and didn't found the reason,
the doctor was guessing "membranoproliferatif" but it wasn't that.
dunno hwo much is important to know the cause of kidneys failure, but when i knew i had 18/12 BP,
and didn't feel anything then legs cramps in the morning donno for how many months.
any ideas?

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: lola on January 29, 2010, 05:26:42 PM

Otto has Alports, Dani our youngest daughter who is 7 also has it......

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: joelietz on February 15, 2010, 02:34:21 PM

Wow, that's a scary case! How shocking that no doctor has provided you with an explaination! I didn't realize that kidney failure could happen that quickly!

 
------------------------------------
Do you need a medicare supplement (http://www.medicaresupplementshop.com/)?

Quote from: KICKSTART on December 14, 2007, 11:25:52 AM

Hmm its seems like i am in the 'majority' here ! I wonder if they just lump us all together because they cant give us any explanation or reason as to why its happened ? Focal Glomerulosclerosis is looking mighty popular ! I wonder should we take this poll a step futher and ask what reasons they gave you when this was diagnosed ? I myself have never been given a reason for kidney failure .. one day fit and healthy , get up next morning .. i got kidney failure !! yup that fast .. no outward signs or illness , all overnight it happened !!

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: SkyDancer on February 20, 2010, 06:03:48 PM

Mom's kidney failure was caused by a heart condition and the medication "Bextra".( Glad they took that sh*t off the market.) It was prescribed for RA.There's another woman in the clinic that had the same thing happen to her because of "Bextra".

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: clappedout on April 14, 2010, 01:20:45 AM

Undiagnosed Hypertension for years...only found out I was at stage 3 CKD after a mild heart attack caused by the hypertension

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: wolfken on April 14, 2010, 08:56:19 AM

type 1 diabetes, it went really fast, first diagnost with 20% usage the down to 5% in two months,  peritoneal for the past 13 months....Wolfken

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: AIRon on May 28, 2010, 06:09:26 PM

I voted hypertension but I think it complicated it. Come to think of it they didn't ever tell me why my kidneys failed, thats probably a question I need to ask...or maybe they did tell me and I wasn't listening as usual. Just ask my wife, I hear really good but I do not listen.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Sax-O-Trix on May 29, 2010, 04:28:16 AM

Branchio-Oto-Renal Syndrome   

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: -Lady Noir- on May 30, 2010, 02:09:11 PM

Quote from: AIRon on May 28, 2010, 06:09:26 PM

I voted hypertension but I think it complicated it. Come to think of it they didn't ever tell me why my kidneys failed, thats probably a question I need to ask...or maybe they did tell me and I wasn't listening as usual. Just ask my wife, I hear really good but I do not listen.

Haha.. i get that. Mike was told his was because of having a severe case of Strep Throat when he was very young. Although, he remained undiagnosed till he was 20. I should probably ask too, as he is rather forgetful as to what they said. Story of his life  :lol;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: mel75 on June 17, 2010, 07:05:38 PM

I was diagnosed w immune complex glumerulonephritis, I don't even know what it means, I also have HTN and they don't know if I and that because of the kidney failure or kidney failure because of HTN.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Fox_nc on July 05, 2010, 06:24:08 AM

Reflux here. I had constant UTIs as an infant.  Docs told my mother that she just wasn't changing my diaper enough (so I ran around naked for a while) When I was 5 I became very ill and was taken to the local ER of a small hospital.  They didn't know what was wrong and thought I was going to die so they rushed me to Children's Medical Center in Dallas where someone had the bright idea to check my blood pressure - wow! After some testing they found the reflux and did corrective surgery.  Mom was told everything would be ok and for me to just live my life - wrong answer!

I was really kinda suprised to see the number of reflux patients ... I'm told because of older cases like ours it is caught and corrected at much younger ages and doesn't lead to kidney failure now.  I had a friend recently whose daughter was diagnosed and had it corrected at 6 weeks old - I told her "Your Welcome" :-)

Now they say I have collasping FSGS ....

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Jie on July 05, 2010, 11:49:24 AM

PKD.

This is an interesting poll. The % nationwide in the U.S. is 30%-40% from diabetes and 6-8% from PKD. Yet here PKD is number 1 (over 15%) and diabetes are just about 10.9%. If the patients from the other countries do not screw up the results, then PKD patients are much more active than diabetes. I assume everyone here is an active patient.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: gothiclovemonkey on July 18, 2010, 07:33:19 AM

I was diagnosed with FSGS in 04, after complications having my son, i had a biopsy done, they said i have fsgs, sent my stuff off to somewhere to find out why, and they didn't give me much info about anything. I pretty much was told id have about 10 years before its even a concern, so i didn't really concern myself, until just about a year later i started feeling like crap. Then in 07, i was working and going to college, and i get a letter about my test results, saying cretin was high and i need a fistula soon. I was not told what a fistula was beforehand, so i looked it up on line, immediately began to bawl. After having the fistula things went really fast, i went from fine to really sick, and i still have about as much answers as i did then. I didn't know about dialysis really either... No one offered the PD to me, which is what i do now, which is soooo much better than the hemo! I was miserable on hemo, skipped alot, nearly killed myself. Things are alot better on pd, but i still don't know why i have fsgs.... I don't think anyone in my family has it, I'm not African American, and i don't use herion, and never had the illnesses that cause it, which are the only reasons they could give me for it.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: RichardMEL on July 18, 2010, 07:43:10 AM

gee glm that's absolutely horrible to be treated like that - just told this and that and NOT given information to help you understand things. That's a disgrace in my view. I was always given lots of information, invited to seminars by the renal unit to understand the dialysis modes, transplant options and so on.

As for FSGS I have that too, but they could not tell me what caused it, but figure it was perhaps a UTI when I was a infant that was not caught. Seems like total guesswork to me. Maybe there just isn't a reason and it's one of those things(sadly!) - sounds like you're in a similar boat.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: gothiclovemonkey on July 18, 2010, 07:53:12 AM

I have very little trust in drs, and ive had one heck of a medical journey all my life. I feel i could be a dr with my knowledge lol
My doctor also told me i do not qualify for a transplant because i am too fat. He said, and i kid u not, If u want to have a transplant u will have to starve yourself. Now that ive lost 60 some odd lbs, im not even sure that i want one, it seems risky, and possible that the fsgs will effect the new kidney....
the only answer reguarding fsgs was after id been on dialysis about 2 years, my dr gained an assistant dr, and He told me that its possible i got fsgs because im too fat. "there ae new studies to suggest weight may be a big factor"
I love when doctors blame everthing on weight and smoking :)

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: M3Riddler on July 18, 2010, 08:12:32 AM

The reason I lost my kidneys were due to Cyctinosis.  Cystinosis is a lysosomal storage disease characterized by the abnormal accumulation of the amino acid cystine in the cells.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: okarol on August 06, 2010, 12:37:17 AM

Quote from: M3Riddler on July 18, 2010, 08:12:32 AM

The reason I lost my kidneys were due to Cyctinosis.  Cystinosis is a lysosomal storage disease characterized by the abnormal accumulation of the amino acid cystine in the cells.

How rare is that? I have never heard of it before.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: MooseMom on August 06, 2010, 12:54:01 AM

I don't know why I have fsgs, either.  The prevailing theory is that my pregancy in 1991 was the catalyst.  My son feels bad because he thinks he caused it. :'(

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: ulrika on August 13, 2010, 05:21:11 PM

Reflux....My daughter was diagnosed with reflux when she was six, after numerous hospital visits with high fevers and urinary infections. We were told that she had some scarring on her kidneys from all the infections, but that her kidneys would rejuvenate as she was so young. We know now that it was more serious than that. She lost two babies without anyone connecting the cause. It was not until she was going to have a ct scan, through a blood test that they require prior to the scan that she was finally diagnosed. It was by a pure fluke, as the scan was to investigate her migranes.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: LT514 on September 08, 2010, 07:46:28 PM

ANCA positive vasculitis. Not many around...most are already gone. I was lucky.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: gothiclovemonkey on September 10, 2010, 04:49:53 AM

Quote from: MooseMom on August 06, 2010, 12:54:01 AM

I don't know why I have fsgs, either.  The prevailing theory is that my pregancy in 1991 was the catalyst.  My son feels bad because he thinks he caused it. :'(

Strange, because had i not had my son, i wouldnt know i had kidney failure.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: casper2636 on September 13, 2010, 07:18:00 PM

Mine was hypertension. When I was in my twenties, my blood pressure was very high due to experimental chemical exposure (thanks uncle DuPont). I didn't have medical insurance and could not afford the medication. Little did I know this would eventually kill my kidneys'. Thats why they call it "the silent killer". Boy, am  sorry now! :'(

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: needlephobic on September 14, 2010, 03:26:23 PM

not sure what it is called mine was caused by a saggy bladder could not empty it all the way and the urin didn't have no place to go and backed up in my kidneys and my kidneys totally cloesed up  they had to go in and put stints in my kidneys to open them up for about 3 days I had a bag and a tube comming out of my back bu5t the stupid neph wanted to wait untill i was on my death bed before he put me on dialysis

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Genlando on September 15, 2010, 02:26:45 AM

Hypertension got my kidneys. I thought the BP meds would make me too drowsy to be able to work, so I refused to take any.  Nobody told me that kidney failure would make you too ILL to work.  Hindsight's 20-20!

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: Constantcrave40 on October 19, 2010, 01:11:11 AM

I started to GAIN weight when I turned 26. Around that time. And didnt feel well alot. And doc said I needed to have a biopsy of my kidneys. My levels were up and down. Well then after the test I was told I had/have scar tissue on my kidneys and could end up m dialysis in a couple yrs! I think I didnt totally understand and got scared,i pushed it asif and just dealt with the throwin up and weiit gain on my own. Then I ended up m life support for 4 days and 9 days cardiology unit, because a doc gave me to much morphine iv. Knowing I was on pain meds. Said id be ok. It raised my creatine to 10! I had my 1st and 2nd dialysis on a resperator. 3 months later I started dialysis for good. The main cause? It is reflux disease. When I was young up until this every time I would urinate,some urine would b2k up into my kidneys and kept scarring them. Come to find out if the docs did riit tests when I was young a simple surgery wouldve prevented the kidney failure! Lookin back I had ak the symptoms to. Frexuent uti's protien in my urine. And blood. And I wet the bed until age 14. And my doa said at my younger yrs I wet the bed cuz I was lazy. No! I didnt know when or why.id sl3p through it. Then my parents got mad at me. Then when I was 17-19 my doc found all the uti's and protien and sent me home m antibiotics.ak of these symptoms that warranted to check my kidneys! But they didnt and now ive been m dialysis 9 yrs.my advice to parents: if your child has any symptoms MAKE your doc check kidneys. Also I drank excessively ak through my teen yrs and on. I get tired of the treatments,but because I have developed bone disease and severe neuropathy in feet im in pain alot and exercise is limited. Cant get on list until I get my weight down now. I feel stuck!

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: PVUgrad on October 20, 2010, 06:53:25 PM

My husband's was brought on by Novantrone IVs, which he was doing for his Multiple Sclerosis. I didn't help either.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: bearman on October 21, 2010, 01:09:58 PM

My kidneys were in too poor of shape to do a biopsy, but I believe that there were 4 contributing factors to my renal failure.  1- Diabetes type 2.   2- High blood pressure.  3- Working conditions (I worked at a chemical company for 22 years and had frequent, direct contact with many solvents. The Material Safety Data Sheets state that many of them can cause kidney disease by inhalation, especially if you are predisposed to it already).   4- NSAID drugs. I had something called Cluster headaches for about 3 months several years ago and I was taking NSAIDS (Motrin, Advil, Aleve, Excedrin, etc...) like candy day and night trying to relieve the pain (which was excruciating! The worst pain I ever had in my life. They can be 100 times worse than a migraine). 

     These were all before I knew the side effects or that I had any kidney problems. I was only diagnosed about 1 1/2 years ago.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: ACRViper on November 05, 2010, 06:15:21 AM

Mine was caused Hydronephrosis. Which caused by my enlarged prostate blocking flow and having it back up into the bladder, then into the kidneys. (I guess)  It was a very slow process. I never had the sensation of having to urinate but not being able to etc.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: khaliq282 on November 09, 2010, 12:49:29 AM

I have ESRD ,nd it coz of hypertension.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: flipperfun on November 09, 2010, 08:23:57 AM

Hi, my kidneys failed due to Amyloidosis.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: -Lady Noir- on November 14, 2010, 04:54:19 PM

Quote from: gothiclovemonkey on September 10, 2010, 04:49:53 AM

Quote from: MooseMom on August 06, 2010, 12:54:01 AM

I don't know why I have fsgs, either.  The prevailing theory is that my pregancy in 1991 was the catalyst.  My son feels bad because he thinks he caused it. :'(

Strange, because had i not had my son, i wouldnt know i had kidney failure.

Amazing huh!

Mike wouldn't have known he had kidney failure too, he had an alcohol related seizure when he was 19 or 20, and then when he was in hospital they scanned his liver passed the kidneys and woah, they originally thought he had PKD cause the dark spots looked like cysts. The dark spots were actually holes!!
But the cause of the kidney failure was strep throat when he was 3 or 4 years old.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: statesidela on November 19, 2010, 07:13:16 PM

Hay guys....apparently mine was caused by allergic reaction to an antibiotic (amoxicilin) not sure on the spelling on that....neph said it's a one in several million chance....sigh....oO(should have put a lottery ticket on that day)

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: ulrika on November 20, 2010, 08:42:30 PM

Reflux. Diagnosed and corrected when Sandra was six, but the scarring on her kidneys from repeated infections eventually caused her kidneys to fail...

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Trena on December 20, 2010, 10:32:28 AM

For 13 years the diagnosis was glomerluonephritis of unknown origin but a lot of research on my part turned up something interesting, lithium causes kidney failue an I took lithum for about 4 years. Now I know exactly my kidneys failed.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: chatrbee2 on January 06, 2011, 08:13:45 PM

Dyes they used to look to see if my father had ulcers is what caused his kidney failure.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: debby on January 08, 2011, 09:32:59 PM

My husbands was a kinked ureter since birth which caused the kidney to not drain and become a cyst (from what they say) that then caused high blood pressure and killed his other kidney.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: lillinny on January 18, 2011, 04:32:40 PM

My husband was originally told FSGS and then later Bergers.  I'm wondering if this was in anyway related to the time he spent in Vietnam and may have been subjected to Agent Orange. . . .   

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: TexanSummer on March 21, 2011, 11:36:31 AM

Hubby's Neph's at the hospital were "puzzled & fasinated" by his ability to have walked through the ER door due to his cret. level being at almost 20! They finally figured (after a dye test) that he was "most likely born" with a defect in one (or both??) kidney valves (he's 33 & it's just now being noticed)....I'm still trying to decifer all the medical terms, so I'm not sure what it's called exactly. I do know that he has high blood pressure & has been taking meds for that along with shots to control his psoriasis....not sure if docs are right....they just didn't seem that convincing! lol

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: BillSharp on March 21, 2011, 09:04:06 PM

Cystinuria, a very rare disease. It hit me when I was 14 years old, and I'm now 72.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Willis on April 15, 2011, 03:10:17 PM

I have IgA Nephropathy so I checked IgA glomerulonephritis which I think is the same thing even though I can't pronounce it.  ;)

BTW, if I'm not mistaken Berger's Disease is also the same thing.

 

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: phyl1215 on April 21, 2011, 07:32:28 AM

High blood pressure and dye used during 2 heart procedures.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: johnsonbene on April 22, 2011, 07:05:30 PM

Hello
I don't know if I am doing this right but I am new to this site and I am trying to figure out how I post my opinions and views about my hating dialysis.  Can someone help me please!

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: okarol on April 23, 2011, 07:49:47 PM

Quote from: johnsonbene on April 22, 2011, 07:05:30 PM

Hello
I don't know if I am doing this right but I am new to this site and I am trying to figure out how I post my opinions and views about my hating dialysis.  Can someone help me please!

I will send you a PM - private message - okarol/admin

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: shepres on April 25, 2011, 08:00:26 PM

I'm diagnosed with Membrano Proliferative Glomureli Nephritis (MPGN) Type III.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: HouseOfDialysis on May 12, 2011, 07:09:57 PM

Alport Syndrome, confirmed by kidney biopsy in 2004. Hot nurses in Nephrology. Overnight stay was worth it.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: bluesgirl on May 21, 2011, 06:37:39 AM

mesangiocapillary glomerolunephritis, I think it's what they call typ 1, but not sure as no one has told me there were several kinds and I have reseacched it myself. :shy;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here
Post by: Darth Mike on June 07, 2011, 10:38:03 AM

I might get banned for this, so if you are intrested copy quickly.

26 year old Honduran male healthy never had a drink in my life non smoker O+ blood type and willing to barter away one of my kidnies for a bargain price.

Very serious about this, dont spend more time and $ on dialysis living donor RIHGHT HERE!

Name deleted
Edited: It is illegal in the United States to buy or sell organs - BANNED - okarol/admin

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: pagandialysis on July 12, 2011, 09:19:45 AM

I am a little confused. My doctor tells me that IgA Nephropathy is not the same as Bergers Disease but when I look it up all the medical websites say they are the same thing. I think I am going to ask a different doctor. I voted Bergers Disease just encase he is wrong.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: pagandialysis on July 14, 2011, 07:57:29 AM

I just talked to my doctor and he cleared up the confusion. I was confusing Berger's Disease with Buerger's Disease. I was just mispronouncing the disease the whole time. So yes, Berger's disease is IgA Nephropathy.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: malaka on July 14, 2011, 11:19:16 AM

idiopathic membranous nephritis causing nephrotic syndrome.  Ruled out were secondary to tumor and  diabetic causes.A second opinion doc, Dr. Sherlock Holmes, did even more detective work and ruled out tropical diseases and TB infection.  Idiopathic = that old bumper sticker:  "S*** HAPPENS"

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: CebuShan on September 07, 2011, 07:41:43 AM

The drs. have never come to a firm conclusion why my kidneys are failing. ( One does not work at all and has shrivelled up, the other works at 15-20%) I may have been something I was born with; an injury as a child (both undiagnosed until now); it could be because of the high blood pressure that developed out of the blue. They aren't even sure if the BP caused the kidney failure or the kidney failure caused the high BP!
I have my own suspicion that the drs. say is also a possibility:  I think it was caused by taking Bextra. I had a torn rotator cuff in my right shoulder and was taking Bextra for several months by the time they pulled it off of the shelves.
If you want a really good site for medication info:

http://www.mediguard.org

It's a free medication monitoring system. Every month they will send a report about the meds you are taking and any interactions plus any recent news about all medications. That's how I found out about the Bextra. I had just refilled my prescription, came home & got on the computer and there was an email about it. I printed it out and took it back to the pharmacy. They hadn't even been notified yet!

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: redrider on September 08, 2011, 03:05:15 PM

about 5 years ago the VA found that my right kidney did not developed some they say that my left on is wearing out

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Mr. B 123 on September 17, 2011, 07:17:27 PM

Enlarged prostate blocked urine from passing which backed up damageing my kidneys.  3 TURP operations in one year to finally get things flowing good again.  No cancer or anything else, just enlarged prostate.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: SooMK on October 06, 2011, 07:39:23 AM

Just read through every one of these posts. So many people have been through so much. Sure puts things in perspective for me.

I have been diagnosed with uromodulin-associated kidney disease which is a subgroup of familial juvenile hyperuricaemic nephropathy (FJHN). My mother had kidney failure of unknown origin and died after 5 years on dialysis (oh how she hated dialysis). But since she was the only one in the family with it I was shocked when I was diagnosed. They did a genetic test to confirm that I have a mutation on the umod gene. My neph says he thinks it's way underdiagnosed. Usually it begins in childhood and usually people have gout. Neither of these have happened to me (or my Mom) and I am thankful that I was blessed with ignorance until my 60s. I'm in Stage 4 CKD now.

Very interesting how many people have rare causes of their kidney disease.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Ginzo on October 30, 2011, 08:26:18 PM

In August (2 and a half months ago) I was in South East Asia and was diagnosed with  Henoch-Schoenlein Purpura. It worked fast and has so far destroyed 80% of my kiddney functioning.
 :'(
Before that I was fit/active/and healthy.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: shorty590000 on November 13, 2011, 12:25:16 PM

septic shock... from a fungus that entered my blood stream from a dirty needle...

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Riverwhispering on January 11, 2012, 12:44:46 PM

Maybe I missed it.   I have Secondary FSGS which is not the same as Primary

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: JeanieSpokane on February 02, 2012, 09:21:19 PM

I have PKD - it is amazing to me that it is #1, because the majority of the patients in my Center have Diabetes. 

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Wildrose on February 02, 2012, 10:06:11 PM

IGA Nephropathy.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: CatonTheRoof on February 29, 2012, 09:13:34 PM

In my case everything inmune or other kind of disease has been discarded, I don't know if this qualifies as idiopathic?

IF SOMEONE HAD SOMETHING SIMILAR, I WOULD LIKE TO KNOW YOUR CASE!

So well, I'm a 22 year old Colombian  man.  Never had any health problem, slim, into sports, semi vegetarian,  perfect blood pressure until last time I checked before getting the failure (checked it on September 2010 and got the failure at late february 2011)   no diabetes, no nothing. 

I was studying in Prague, Czech Republic, having a perfect life and feeling fine.   Near the end of February of last year I got a cold, which ended up in an intense sore throat.  Two weeks later after losing appetite I went to the medical center, there they made me some tests during two days.  In the first day they concluded I had a bacteria and told me to return on the next one,   that's when they discovered that creatinine was 5,8   and I had some conditions such as hiponatremia so they sent me for hospitalization.  While hospitalized they discarded all diseases, and found small kidneys by ultra sound.  Biopsy wasnt made.      I was treated with prednisone, to which creatinine went down.    When I returned to my country, here they suspended the prednisolone and the creatinine started to go higher once again, plus I got proteinuria.  Eventually leading to dialysis..

A year later while waiting for miraculous recovery or transplant, I can only say that no one knows the cause.  At least I keep urinating normally, so I dont have fluid restrictions, nor need blood pressure medications.

My theory is, that a month and a half before I got that flu,  something happened to my kidneys since I had to wait outside in the street for about 3 hours at night at -8 degrees.   Somehow I think that such cold could have caused a circulation problem which eventually led to many nephrones diying.      That would also explain in part why during late January and February I was feeling so "lazy"   when it was probable that it wasnt lazyness, but simply hemoglobin going down :/   

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: okarol on March 03, 2012, 10:39:10 AM

CatonTheRoof - Is it possible you had strep throat? Sometimes it is not diagnosed, but I have read where it can lead to CKD.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: big777bill on March 03, 2012, 01:42:55 PM

After having a liver transplant the Dr gave me Prograf as one of my immunnos. I stayed on it for 5 years when they switched me to Rapamune. They said the Prograf was causing kidney damage. I have been a diabetic since 2000 but didn't start insulin until 2 1/2 years back. Most likely a combination of both. I don't think that I would have gotten CKD if I only had the diabetes.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: CatonTheRoof on March 04, 2012, 05:57:16 PM

perhaps I got step throat, as during most of the time I associated it with the sore throat infection I had during two weeks prior to being hospitalized.

But if so, how did the steptrococus left by himself?

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: deniferfer on March 16, 2012, 10:55:59 AM

My kidneys are just too small for me. Its petty bad when I had a ultra sound done and they nurse was like where the heck are your kidneys? Then she finally found them and was like DANG THEY ARE SMALL!! lol

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: CatonTheRoof on March 25, 2012, 05:04:35 PM

In my case when they did the first ultrasound I was amazed to find out that the kidneys were small already. Like, how come? always a healthy person and then boom!  that just happened.

Lesson for life:  Whenever I get a sore throat, or someone like my gf or children in the future, I'll tell them to go to a doctor asap lol.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: wackywixo on March 26, 2012, 11:01:32 PM

For my husband it was to much ibuprofen---we couldnt believe when it happened.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: MomoMcSleepy on March 30, 2012, 08:50:58 AM

I put obstruction, ans was surprised at how few picked that.  Is it that rare?  I was only partially obstructed from scar tissue that slowed flow down, so no telltale pain...also my nephrologist said people like me often develop chronic pyelonephritis, which I have, which has hastened my decline, for sure.  He assumed that was the problem until the CT Scan (? I think) showed the poor flow.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: lainiepop on March 31, 2012, 10:34:48 AM

Hi, well i don't think my cause is there, ive never been given a term for it. I guess congenital disorder. I was born with one imperfect kinda scarred and shrivelled kidney, also without a bladder but they built me one of those. Told my parents i'd die when born tho, that scarred shrivelled kidney has given me 30yrs and a beautiful boy and gorgeous baby girl, so there doctors  ;D In 8 weeks i'll be getting my dad's kidney, and if things go well should have more function than i've ever had in my life  :bandance; Will prob be bouncing off wallls after living all this time on 40%, then 30, then 28, then 23, then 17, then 10, now 8.8% (The kids did it lol )

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: sbmyluv on April 27, 2012, 01:09:56 PM

In my case I suffer from 2 different diseases:

1. IGA Nephropathy a.k.a. Bergers Disease
2. F.S.G.S.

These 2 diseases work against each other...... :Kit n Stik;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: wilmainga on May 22, 2012, 06:50:20 PM

I have idiopathic retro perritoneal fibrosis a mass of tumors that forms around organs, tumors encased my ureters and caused right kidney to fail in 2009, left kidney has very small amount of function , I have stents in my ureters to keep them open i have the stents changed every 3 months.I have had the stents changed 18 times so far. I have been on dialysis since April 2, 2012.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: shutterbug05 on June 22, 2012, 01:54:25 AM

I was told that I had FSGS and that it was caused by a combination of issues.  I had an allergic reaction to morphine and also type 2 diabetes which contributed.  Who knows.  All I really know is I woke up one day and was unable to control my limbs, went to the hospital and was sedated to do tests and woke up 4 days later on dialysis.  I had been told 3 years earlier that my kidneys were failing but that it was not really that bad and could be controlled with dietary changes.  I guess it was worse than originally thought.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: billybags on June 22, 2012, 11:51:25 AM

Dont know how I missed this. Husband has IGA Nephropathy

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: chiromac on July 02, 2012, 08:03:35 PM

My kidneys shut down because of a Diabetes drug I was put on.  All blood work showed good kidney function and with in a few month on Byetta my kidney stopped.   :oops;   My best advice is if anyone knows of someone being given this drug tell them that insulin and diet are the safest options.  The funniest part is I now control the blood sugar levels with just diet and my blood sugars have been perfect.  :banghead;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: smcd23 on July 02, 2012, 08:12:07 PM

Tony's failed due to reflux which was undiagnosed for a long time, but the chronic kidney infections caused by the reflux were diagnosed and treated. How someone somewhere didn't question why he was getting kidney infection after kidney infection, I just don't know. But 11 years of back to back infections took his toll. His native kidneys are 5.2cm and 5cm because they could never develop as he grew due to all the infections and obviously don't work.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: bleija on July 02, 2012, 08:51:33 PM

when i first found out i had kidney failure, there was too much damage for them to determine a cause from the biopsy. but the transplant center decided they think i have FSGS, but they cant say for sure. but i have never been told anythign except they dnt know.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Melissa19564 on August 02, 2012, 08:33:04 AM

mine was hypoplastic dysplastic

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: AnnieB on August 02, 2012, 06:57:33 PM

Lithium.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: mamagemini on August 24, 2012, 07:31:44 PM

Fsgs/nephrotic syndrome
Since 2005

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: billyM on September 03, 2012, 02:21:15 PM

nail patella syndrome . i am amazed its even mentioned on here to be honest . I wasnt diagnosed until until i was 27 despite having correctional surgery all my life since birth . such a rare condition .

To whoever else on this site has nps , please , contact . Ive only ever met 1 person , and spoke to approx 6 , who have this condition . none of whom had attained the joy of end stage renal failure.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Ricksters on October 08, 2012, 05:37:13 PM

Lupus!

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: M3Riddler on October 08, 2012, 06:36:18 PM

My kidney failure was from a genetic condition called   cystinosis

Cystinosis is a condition in which the body accumulates the amino acid cystine (a building block of proteins) within cells. Excess cystine forms crystals that can build up and damage cells. These crystals negatively affect many systems in the body, especially the kidneys and eyes.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: treesx4 on December 01, 2012, 10:35:44 PM

Focal segmental glomerulosclerosis (FSGS)

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Lexxtech18 on December 27, 2012, 06:23:16 PM

Bilateral Hypoplastic Kidney Disease (congenital). My kidneys were just too small and deformed for my body.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: okarol on February 17, 2013, 02:26:32 AM

 :bump; For those who haven't voted

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: geoffcamp on February 19, 2013, 02:53:35 PM

WOW. I had no idea how many people get ESRD from high blood pressure (like me). I warn all my friends and family take high BP very seriously!  G.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: jjneyjr on March 05, 2013, 02:03:26 PM

HBP 230/160 didn't see a doctor for 10 years and diabetes.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Rader on April 21, 2013, 03:15:57 PM

I chose type 2 diabetes. but it was a combo of the diabetes and high b.p. that caused it. I also have chf  and all the meds I'm on for everything kinda kicked my kidneys in the rear... :sir ken;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: LabRat on June 13, 2013, 03:48:02 PM

Mine is definetly not listed here... Adrenal Hyperplasia so far is the main culprit.. how many of you have heard of this disorder?  :secret; With my adrenals running amok and my blood pressure going through the roof, it was bound to happen.. :thumbdown;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: cmcordo on June 15, 2013, 02:08:50 PM

I picked "other" because I didn't see my diagnosis. It is called Membranoproliferative Glomerulonephritis or MPGN for short.  I was diagnosed in 2005 and started dialysis this year (2013) about four months ago.  It is apparently a rare disease, and it is usually diagnosed in very young children or people in their teens.  I've been told that my cells think that my kidneys are foreign objects in my body and are working to destroy them. 

I am on the transplant list and hope that if I do get a new kidney that my cells won't try to destroy it right away.  My doctors tell me that the disease will never go away and that the cells will eventually destroy the new one.  Maybe by then, I will have had some wonderful years without dialysis before I die.   :2thumbsup;
 

   

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: eyecreate on July 14, 2013, 03:09:05 PM

I picked ``other`` because I too didnt see my disease...Fibrillary Glomerulonephritis...different from MPGN....mine is called FGN. I know this is very very rare, and a name was only put to it in 1977.... :sir ken;  I too am opting for getting on the transplant list, just waiting due to blood transfusion. My disease came in like a tornado and lterally destroyed my kidneys  overnight..and left unwanted proteins for bad diseases, that eventually disapeared, such as multiple myeloma ...i show no sign of fbn in my body anymore it came and went really fast, but destoryed them completely...i had no chronic symptoms. I am totally disease free now, and hopefully successfully get a live donor, but who? I am as i see below with Cmcordo..below, ,im waiting for some fun years, im only 53 the mean age for developing this disease, it largely hits white women age of 53...okay that was me...by the way, mcordo..my last name was  mccord...funny... :clap;..
Just diagnosed in Dec 2012, began PD April 2013...and hopefully transplant list in November 2013

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: seadialysis on August 03, 2013, 09:39:22 AM

I wrote a short article on kidney failure here: http://seadialysis.com/diabetes-kidney-failure/

Basically sugar is the cause.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: ianch on August 08, 2013, 11:55:09 PM

Aged 3 complicated surgery went wrong leaving an infection.  Believed to have stopped growth and killed 50% function (they are coin sized even now).  The rest I think dropped off at age 37 in the Philippines when I got Phenomia 4 days before my wedding.  Its not proven but all the symptoms that carried on for 15 months indicate my kidneys died or were pretty dead during that period. 

Went to see doc about a sore led (boil) 15 months later and ended up in emergency as soon as the bloods hit the lab.  Apparently I was off the charts and no one could understand why i was still breathing.  I think it was because the drainage still worked back then.
 
Lucky it was caught as we had planned to spend Xmas in the Philippines, Singapore and Malaysia.  I was told I had 30 days to live at the stats they saw - a  bit of a surprise as my body was coping at the time.   
 

 

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: obsidianom on August 09, 2013, 09:14:40 AM

My wife has many medical issues, but no one that explains her kidney problems leading to dialysis. Her nephrologist could never explain it. I am a physician and cant really explain it either. She may have some type weird autoimmune syndrome , or chronic infections or hypertension, but nothing definitive that killed her kidneys. They are a bit small but worked well for 63 years. She still  urinates but cant eliminate toxins/urea. Modernmedicine is very weak in explaining and treating kidney disease. Its usually wait and watch while the kidneys slowely die . That is what happened to her. She is not diabetic either or heavy . She barely weighs 110 pounds. We never saw this coming. She has genetic medicalproblems but no one in family had kidney disease.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Krisna on August 24, 2013, 06:23:27 AM

A while back I was attempting to get another transplant.  And while describing my symptoms to the transplant Nephrologist she said it sounded like Reflux.  After reading up on it, I agree.  I sounds like I had Reflux that was un-diagnosed due to the negligence of my Pediatrician! 

Previously, I had stated that I thought it was a staph infection.

However, officially it says Glomerulonephritis of unknown origin.  (I learned how to spell that word when I was 8 yrs old.  lol)

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Gerald Lively on August 24, 2013, 12:08:48 PM

I voted Cancer as the cause but that is much too simplistic to be true.

It began in January 2011 when I went to my GP to inquire about my abdomen which was protruding and had been since the previous Thanksgiving. The GP sent me to X-ray and decided that I was constipated.  He prescribed a laxative.  The beer belly was still there and it did not react to diet or exercise. By late June I was frustrated enough to search out my own treatment and demanded a colonoscopy.  The Specialist sent me out for a CT scan which he explained as a preliminary procedure.  The scan showed three large tumors diagnosed as Lymphoma.

I contacted my Oncologist (I have known him for years) and he sent me to the hospital - - by the time I reached the hospital a few days later, I was hallucinating.  It was a weird world I was in.  I was wheeled into the hospital, lost consciousness for the next six days.  During that time Renal Failure was diagnosed.  I woke up to the noise of a dialysis machine.

It was explained to me that the cancer blocked something causing my kidneys to stop working.  While I did have cancer, it was of a type that could be “knocked down” rather quickly; meaning, had my GP not misdiagnosed my cancer by calling it constipation, my kidneys would not have failed.

Eight months later I had a 33% kidney function and I escaped from the dialysis center.

So, I voted “cancer” instead of doctor error. 

gl

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: LEDZEP on September 05, 2013, 07:56:01 PM

I voted other my stage 5 CKD was caused by HIV antiviral drugs :thx;

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Sten on November 06, 2013, 12:24:33 PM

p-Anca vasculitis, a rare auto-immune affecting small blood vessels of lungs and kidneys. 1 in 50k. It was a miracle I survived; my chances were very slim.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Dverdugo on January 24, 2014, 12:33:38 PM

Other. My mother after giving birth to my sister 1996 began having protein in her urine. Her doctors never raised a concern about this until the spring of 2012. I 2012 her primary doctor told her that she needs to see a neurologist, through out the 2 months she was going to this doctor he put her on meds that made her gain a lot of weight (steroids) then told us she needed to have a biopsy done. Summer 2012 we had biopsy done, doctor told us it was an infection to continue taking meds, didn't tell us if this was life threading or anything. 6 months later this doctor resigns( what the???)  my mom was feeling fine so we didn't even really think to find a new doctor .. But I said she needed to go so I scheduled an appt summer 13. Went to the new neph. And when I showed him the biopsy report he said OMG!  Her kidney function was 15% at this point. He scheduled a new biopsy and later explained to us, that my moms own body was attacking the kidney. He never gave us a name but said she would need to start dialysis really soon. In the months leading to sept. Everything declined , my mom went from 15% kidney function to 2% over 2 days. Now she's on dialysis, she is still peeing.  I don't really know what to call what she has, dies anyone know??

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: obsidianom on January 24, 2014, 12:50:26 PM

Quote from: Dverdugo on January 24, 2014, 12:33:38 PM

Other. My mother after giving birth to my sister 1996 began having protein in her urine. Her doctors never raised a concern about this until the spring of 2012. I 2012 her primary doctor told her that she needs to see a neurologist, through out the 2 months she was going to this doctor he put her on meds that made her gain a lot of weight (steroids) then told us she needed to have a biopsy done. Summer 2012 we had biopsy done, doctor told us it was an infection to continue taking meds, didn't tell us if this was life threading or anything. 6 months later this doctor resigns( what the???)  my mom was feeling fine so we didn't even really think to find a new doctor .. But I said she needed to go so I scheduled an appt summer 13. Went to the new neph. And when I showed him the biopsy report he said OMG!  Her kidney function was 15% at this point. He scheduled a new biopsy and later explained to us, that my moms own body was attacking the kidney. He never gave us a name but said she would need to start dialysis really soon. In the months leading to sept. Everything declined , my mom went from 15% kidney function to 2% over 2 days. Now she's on dialysis, she is still peeing.  I don't really know what to call what she has, dies anyone know??

This sounds like an auto immune disease, which means the body's immune system is attacking the persons own body . Many times the kidneys are the target. It may be IgA nephropathy which is one type and there are others it also could be. That is probably why she was put on prednisone(steroids) as it reduces the immune system actions. Many people still urinate while on dialysis but the kidneys arent functioning correctly or enough.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Dverdugo on January 25, 2014, 08:37:14 PM

Thank you !!

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: JaeCie on January 26, 2014, 10:42:50 AM

I found these results very interesting as the official #1 cause of kidney failure resulting in dialysis in America is diabetes followed closely by high blood pressure. There are also some interesting age correlations of these factors. That's always the interesting thing about internet polls. Only certain people are on the Internet; only a certain kind of person would look for a site called I hate dialysis; and only a certain number of those would join and even a fewer number (683 of the 8789 members) would respond. Gives you true insight into statistics. :)

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: kristina on March 12, 2014, 11:12:28 AM

... it is my experience that very often ESRF is due to several different components:
in my case it is chronic proliferative glomerulonephritis with Systemic Lupus flare-ups
plus Mixed Connective Tissue disease... and regular flare-ups of MCTD....
...whenever I suffer from a flare-up... my kidneys have suffered as a result...
and now I am in ESRF in a very serious way and perhaps it would be better for me
to admit to dialysis... and get on with it... as well as I can manage....

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: LisaBart on July 04, 2014, 10:55:38 PM

Pauci Immune Crescentic Glomerulonephritis anca positive -- it took me a long time to learn to say all that.
Or - ? cause being chemical poisoning - anyone else?

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Jean on August 13, 2014, 01:51:46 AM

 A new neighbor of mine was put in the hospital last week due to extremely high potassium. I knew he had kidney disease and when I saw him this evening I asked how he felt and what he thought he might have been doing to get the potassium that high, or was it just one of those things. He replied that he has a very rare type of kidney disease, the name of which he could not pronounce. Later some one mentioned that since he was on his 4th diet coke, maybe that had something to do with it. He said no, in fact, his neph told him that he should not drink water anyways. Whaaaaaaat???? Do any of you folks know what type he may have or does any one think my leg is being pulled?????

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: kristina on August 13, 2014, 02:12:58 AM

Jean, I believe that is a very new one to me as well and I have never ever heard a neph mentioning to drink Coke instead of water...
... it does not sound believable to me...
LisaBart, could you please tell us what sort of chemical poisoning took place in your case?
Do you live an an industrial area and a leak took place and "invested" the area?
Thanks from Kristina.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: LisaBart on August 13, 2014, 02:33:55 AM

Kristina,
Alan is/was a plumber.  Here we still use solvents and glues to clean and glue pvc pipes for drainage..apparently USA & UK they no longer use these solvents.
When he was an apprentice as an initiation he was actually painted over his torso with these poisons...this was of course many years ago...but did this start his psoriais, neuropathy & kidney failure?
I would say there is a fair chance it did, plus using them over the next 15-20 years.
He's been plodding along putting his dialysis off....been at 7% the past month.....he has a neph appointment tomorrow so I rang today to get his blood results and he has dropped to 5%, creatinine 863 which is up from 690 4 weeks ago.  So I sat down and told him, tomorrow you must make the decision..they have a chair for you, (clinic is 8 minutes away by car) they are about to have staff cuts and if we lose the chair, then we may need to travel 1.5 hr to another clinic.  I need to go away in 5 weeks for a week, and i'd feel better knowing he has settled into dialysis.
So, it will be a life changing appointment for him tomorrow !!

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: kristina on August 13, 2014, 04:15:23 AM

Thanks, LisaBart for your kind explanation,
 
I am very sorry that Alan had to risk his health because of his work
and I shall keep my fingers crossed for you both tomorrow !
I do hope Alan makes the right decision for you both at the appointment tomorrow...
and I do wish you both good luck and all the best from Kristina.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: ProStreetCamaro on October 16, 2014, 01:34:08 PM

My wifes was due to Sarcoidosis. Very rare for it to attack the kidneys.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: malibu1 on October 19, 2014, 06:40:24 AM

Other: Membranous glomeruloniphritus

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: PaulBC on January 13, 2015, 01:00:46 PM

I don't think that C3 glomerulonephritis was covered in the survey, though there may be some similar illnesses. I realize it is very rare.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: pianoflute2 on March 24, 2015, 01:25:38 PM

My brother has Wegeners Granulomatosis

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: kasey on November 19, 2015, 07:57:44 AM

Age!

Shouldn't this be a potential cause?

I suspect this is the cause of my grand uncle's kidney failure.  He turns 95 in January and he is now doing outpatient dialysis 3x a week after an emergency room visit to diagnose renal failure.  I'm honestly not sure how long he will be able to keep this up.  Yesterday was his 3rd day of outpatient D and it was really hard for him.  He can hardly stand and getting him there is a monumental task.  All in all he was relatively healthy and I have to wonder if the natural dying process started with kidney failure for him.  The good news, he is not afraid.  He has had a wonderful life and he has a wonderful view of hospice, in case he chooses to stop dialysis and stay home. 

On a side note, been reading a lot of posts on a lot of different topics.  I take my hat off to all of you.  Patients, caregivers, family.  I have learned a lot in the past two weeks.  And mostly what I will take away from this board is how caring, supportive, optimistic and honest people are.  These are difficult cards to be dealt and I have huge respect that everyone really tries to maintain a positive attitude and those who struggle find such strong, nonjudgmental support from the rest of you.   

I wish all of you the best!!! You all deserve it.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Blake nighsonger on November 21, 2015, 06:05:57 AM

Lithium toxicity

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: bjp81757 on December 17, 2015, 08:54:46 AM

Twenty years of NSAIDS for arthritis. Not one single doctor told me what I was doing to myself. Labs every month for years and it wasn't until I started seeing my present Rhuematologist that the subject cam up, by then damage done. Isn't there something about first do no harm.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Dualref on May 25, 2016, 08:55:25 PM

The cause of my kidney failure wasn't listed. It should be RPF (Retroperitonital Fibrosis). It's pretty rare.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Bluebutterfly on August 01, 2016, 04:52:54 PM

Reflux caused my kidneys to fail. Should have been fixed
When I was a kid... No one did anything including parents, doctors and
A children's home.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Mindy on September 02, 2016, 12:02:33 PM

I did not look thru all of the pages sorry. But I am wondering if anyone has  https://en.wikipedia.org/wiki/Branchio-oto-renal_syndrome  If so what are your signs of the disease. Thank you

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: thegringo44 on March 22, 2017, 06:55:02 AM

Anca Negative Pauci-Immune Crescentic Glomerulonephritis. Eventually inflammation led to scarring and my diagnosis changed to FSGS.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: ClarkWard on April 16, 2017, 06:02:30 AM

Anorexia and just an eating disorder in general. This was my friend.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: SKS on August 09, 2017, 08:41:04 AM

Agent orange which led to Diabetes and High Blood Pressure

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: mholiver on August 15, 2017, 04:54:52 PM

bipolar which led to unhealthy eating which led to type 2 diabetes and hypertension

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Mr.T on September 14, 2017, 12:45:53 PM

Re: poll
dealt with nasty solvents  for to many years. Mr.T

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: karlen on October 06, 2017, 10:44:58 AM

Polycystic Kidney Disease

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: IOnlyGet5 on November 02, 2017, 10:21:53 PM

I was diagnosed with stage 3 ckd 2 years ago. Now in in end stage renal failure & about to start peritoneal dialysis.  Ten years ago my son unexpectedly died & I stopped caring about everything, including my Type II diabetes.

After a few years of uncontrolled diabetes I started losing weight for no reason & my legs started swelling, my urine turned frothy & my frequent headaches increased.  I told my doctor all this - plus that urologist said i had too much protein in my urine - but nothing was done. Apparently my b.p. was going up but my doctor attributed it to "white coat syndrome" for over a year. It wasn't until I was diagnosed with pulmonary hypertension that they found I had ckd.  I had severe proteinuria & was sent to a nephrologist.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Old Fool on November 06, 2017, 09:13:12 AM

BPH can initiate a chain reaction that leads to kidney disease.  The enlarged prostate causes a bladder infection, which in turn causes a kidney infection, which can advance rapidly and easily be misdiagnosed.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Paul on November 14, 2017, 08:22:10 AM

You really need a checkbox not a radio button for the poll, as some of us have more than one cause. In my case: main cause: high blood pressure. Made worse by: diabetes, Last straw that finally killed the kidneys: other (bone virus).

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: deckerj on December 08, 2017, 09:01:22 PM

Two of these poll options are the same thing:

Bergers Disease
IgA glomerulonephritis

The most commonly used term is IgA Nephropathy, which is what I have, so I'm not sure which one to pick.

Also, nephrotic syndrome isn't a cause of kidney disease, rather its a syndrome in that it encompases all of the symptoms, including high creatinine, edema, uremia, etc.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: PattyTricia on February 17, 2018, 08:56:44 PM

Good Pastures is what got me. Never heard of it until it ha[[ened to me. No warning

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: RuaBeanCheile on February 18, 2018, 07:14:37 AM

My husband was born with Posterior Urethral Valves, a sort of blockage that causes urine to back up back into the bladder and kidneys, causing inflammation and a lot of UTIs. He had the equivalent of 1 kidney (function between the 2) by 13 y/o but they stopped failing and balanced out around 18 y/o....When he was 23 he worked 3rd shift and developed high blood pressure from poor diet and weight gain and 3 years later we discovered he had slowly been losing all function thought to be due to the stress of the high BP.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Katie07 on February 22, 2018, 02:26:09 PM

I am 53 years old now. I was anorexic on and off for 25 years. My CKD was discovered in 2008. There was discussion about doing a biopsy, but the nephrologists feel, that it was my anorexia, that caused my kidney disease, and now failure.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: KevinWilson on March 10, 2018, 10:39:12 PM

Wegener's Granulomatosis and Wegener's athrogramatosis Thats both vein and organ.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: Geiser100 on March 11, 2018, 03:12:31 AM

Cystinosis. A rare genetic lysosomal storage disease. About 2,000 people worldwide have it. It causes other problems but affects the kidneys within the first decade of life.

Title: Re: POLL: Causes of kidney failure / disease - Please see if yours is shown here.
Post by: fightingPKD on June 05, 2019, 09:04:58 AM

110 other people with PKD like me.  Fascinating.  If anyone is still active here with it, feel free to message me if you want to talk about it. I'm at stage 4 now.