I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: F.A.Q. (Frequently Asked Questions) => Topic started by: donnia on September 19, 2007, 05:57:38 PM
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We have been talking lately about dialysis centers giving benadryl to help you sleep while there. Is this a good idea??? I thought I had read here a while back that it was not safe to sleep while at dialysis? Maybe I am just confused. I do want to get this straight tho. I get my cath on Friday and I start dialysis on Tuesday. Shoooot, if it is safe for me to sleep, then I wanna sleep!!! :bandance;
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i get there at 5:15am so yes most mornings i do sleep, i couldn't stay awake if i had to. quite of few of us do sleep.
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Wishing you the best Donnia.
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You should see the mouths hangng open in my center as people sleep. And the snoring!
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I am under the impression that you get better dialysis while sleeping.
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Donnia, if you can sleep thru all that noise, go for it! I never could manage it.
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I do nocturnal on sleeping tablets, no probs, have an alarm if there is blood leaking and wake up if there is an alarm on the machine and fix it
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We have been talking lately about dialysis centers giving benadryl to help you sleep while there. Is this a good idea??? I thought I had read here a while back that it was not safe to sleep while at dialysis? Maybe I am just confused. I do want to get this straight tho. I get my cath on Friday and I start dialysis on Tuesday. Shoooot, if it is safe for me to sleep, then I wanna sleep!!! :bandance;
When centers give patients Benadryl to help them sleep, is that for their convenience or for yours?
I would avoid taking anything that changers your natural sleeping pattern, before you know it, you will be reliant on pills to help you sleep.
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I recently started early morning dialysis. I get there at 6:30am after about an hour i fall asleep. I don't usually sleep long. There is a man who is elderly that likes to shout out every so often. He can keep me awake. I would like to sleep and wake up with only a hour to go. Our center doesn't give out any thing. So i would have to bring my own.
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sitting in the chair for 3-1/2 hours is very boring. If you can sleep with the lights on, with the BP cup squeezing your arm every 15 min. the techs talking and joking, other people's TV's blasting, the Nepth coming by to collect his fee, the social worker wanting to discuss labs, the machines beeping constantly, and so on, good luck and do it..Boxman
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I can't sleep at my Dialysis center because of the arm pain, but mostly because we have a lot of rude patients who blast their TV's and have no regard for anyone else. Maybe it's a California thing, but I always wear headphones for the benefit of my fellow patient.
In our old unit I couldn't sleep because they sat me in the corner with this middle aged fat guy who would instantly fall asleep once he was put on. His mouth would be gaping open and the snoring was deafening. What was entertaining though was he would loudly fart and wake himself up every twenty minutes or so.
"Huh? Whuh?" Clunk. Ssssnnnnoooorrrrreeeee.
Sleeping at Dialysis is kinda like the Bionic Kidney. It would be cool, but will never happen.
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OMG Stacy that is soooo funny.... now I know for sure that they are gonna put me next to a snoring, farting middle aged fat guy! LOL :popcorn;
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Then there was the lady who screamed every five minutes from 5:30 to 7:30, Get Me Outa Here! I wanted out after months with her screaming!
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Then there was the lady who screamed every five minutes from 5:30 to 7:30, Get Me Outa Here! I wanted out after months with her screaming!
LOL... reminds me of Happy Gilmore... When Happy goes to visit his grandma in the home LOL :rofl;
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When I first started dialysis I could not believe all the people sleeping. I just thought they were comatose! Now I'm one of them. It took months before I felt comfortable to sleep but now I do. It is so nice to wake up and only have 20 minutes left.
You won't sleep at first. Too much going on.
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man i get 30mins at the most sleeping.. and I have a 5 hour shift *sigh*
i am too long(tall) for the chair so I really can't get comfy and it bugs me.. plus I see a girl who just snuggles in and SLEEPS for 3 hours and I so hate her!!! Well no I don't.. just envious! he he...
I would love to be able to sleep so the hours would go by.. instead I listen to my ipod or radio (with headphones I add).... I wouldn't inflict everyone else with my choice of listening pleasure lol
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Dang, hon! you'd think they would get you a chair that would accomodate your height!!
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Yeah, you would think they would get a better chair for you :thumbdown;
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My favourite dialysis sessions are when I sleep from start to finish. I have a reputation as a sleeper with my nurses. They usually warn me "At least let me get your needles in before you drop of!" Just hoping that I don't fart :o
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My favourite dialysis sessions are when I sleep from start to finish. I have a reputation as a sleeper with my nurses. They usually warn me "At least let me get your needles in before you drop of!" Just hoping that I don't fart :o
:rofl;
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The few months in my life when I did hemo I was usually known as the one who would fall asleep as soon as I hooked up. I would take a pillow and blanket and be out! Problem was, I had a permcath, and after awhile, it started failing, and they'd have to wake me up and reposition me every so often >:(. Like others, have said, if you can sleep through the noise, the visitors, and the lights, have at it!
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Well.... I can already tell I'm gonna be a sleeper! I just hope I don't get any gas goin either!
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damnit! I fell asleep yesterday (hooray!) then woke up after 30-45 mins and had drooled all over the place. oh yay.. what a look!
d'oh!
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OMG Stacy that is soooo funny.... now I know for sure that they are gonna put me next to a snoring, farting middle aged fat guy! LOL :popcorn;
Hey, quit talking about me! :)
Actually, quite a few people sleep at my Center too (and we only have our BP checked every 30 minutes). :)
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I start at 5:30 am. once I fell asleep and jerked my arm because I was dreaming. I infiltrated myself. Yowch!
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Can you have visitors/guests at dialysis?
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I think that depends on your clinics rules and regulations, i have been to 3 clinics and i have been able to have visitors in all 3 but it seems there are some clinics that do not allow visitors at all, so i would think that would be a question that has to be answered by them. And might i add, having a visitor helps the time pass so much more quickly, so hopefully they will allow you to have them :2thumbsup;
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Can you have visitors/guests at dialysis?
Most clinics allow visitors but while you are being hooked up and also while you are coming off the visitors have to exit the area...Boxman
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i wouldn't dare try and sleep at my center, i have no confidence in the nurses to save you if thinks go south bound. i'll wait till i get home and go to bed,my center doesn't allow visitors while your coming on & off.
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My husband would never sleep when he was in center. He didn't trust them. When we started home hemo, for the longest time he wouldn't nap but it finally got comfortable enough to take short naps since I was sitting 2 feet away.
willieandwinnie
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My unit allows visitors when going on or coming off.. though lots of visitors freak out and can't handle seeing the needles go in etc lol.
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One center I was in allowed short visits of 20 minutes or less, and not while hooking up or disconnecting (I had a permcath at the time); one didn't allow visitors at all, not even my (now ex) husband my first time...wouldn't they prefer family members/caregivers really understand what's going on??
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We are allowed visitors. However, it not very comfortable since there are only one or two stools in the area with the machines, so very few people actually come and stay with the patients while they are on dialysis.
Did I tell you guys that there is a prisoner on dialysis from this year? He was extradited from the States. He comes with two prison guards and two policemen. He gets visitors all the time. I get to chat with him sometimes. He told me that he was in a prison in the US that was a medical facility.
I wondered why he had both prison guards and policemen, but I deduced that it is because he has not yet gone to court, so he is still in police custody.
One problem is that the guards hog the televisions!
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Saturday Ii slept nearly the whole time. Friday night I had stayed up til 2 am, so as soon as I got hooked up I just nodded off. The time went peacefully. Berfore I knew it I was out for the day. And my "weekend" is here. No dialysis Saturday ,Sunday,Monday. I don't need to go back until Tiesday morning. I love weekends.
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I have to get up so early 4 am for 5:15 start time, I watch TV for awhile. At first I was too nervous to sleep, but now I close my eyes and nod off for an hour or so. It really helps pass the time.
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i refuse point blank to sleep while having treatment,basically don't trust the nurses to save me if something bad was to occur,seen a few close calls,didn't like what i saw.
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Many of my fellow patients could sleep during their runs but for me it was pretty impossible. I just didn't find being on treatment conducive to resting at all. While I was there I kept busy reading, with my laptop, and occasionally with stuff from work that I could bring in. I was worn out alot of the time but not to the point of being sleepy. Too much was happening in the unit not only with me but with other patients, machine alarms, patient emergencies etc.
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Actually, I forgot to tell you guys that the nurses don't really like us to sleep the whole time. One of the nurses wakes you anytime she adds medication etc. I wish she wouldn't, but she feels she has to. Another nurse who is no longer in this country used to warn me not to sleep, that I need to be aware of what is going on. But I can't help. I love to sleep. To me, an excellent session is when I go straight to sleep when I am hooked up, and wake 10 minutes before I am taken off!
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When I first went on hemodialysis I did sleep. On two occasions the wrong medications were brought to my station and I never slept again. Call me a cynic, but I don't want anyone administering anything to me that I am unaware of.
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Okay, I have tried and tried...... I have not been able to fall asleep >:(
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Ah, well, think of all the reading you'll get done! I averaged about a novel and a half a session when I was in-clinic.
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This is kind of a :bump; But also a relevant (and scary) post
At dialysis on Tuesday where me and one other patient are the only ones on the shift. The other patient was sleeping his bp dropped and his heart stopped. The nurses all went scrambling and they broke out the talking defibrillator - it was pandemonium! :o. All I could think was I hope he is alright because I know all of the employees are not the brightest.
So scary story over I sleep all the time it takes awhile but I usually get to sleep about an hour in; but what I hate the most is when I am sleep for 15 minutes and I think I was asleep an hour and a half >:(. I am a terrible drooler and I hope I am not a SLEEPFARTER (that is the technical term I believe ;)) I will say this to all those who are worried about it - you will never know - who would have the nerve to tell you? I lived with a woman for years and she was a SLEEPFARTER but I could never bring myself to tell her until years after I broke up with her :rofl;.
CW
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OK have had a bloke in my unit... a big boy (over 100kgs) and he sleeps all the time on the machine.. and snores loudly! LOL... but this got kind of serious the other day when he could NOT be woken!!! Normally he wakes up before his time is done and it's all good.. but this time he was in a deep sleep nothing could rouse him... in the end they had to call the med emergency team (aka cast of thousands) to wake him up.. I'm not sure what they did but they eventually woke him up. Pretty scary. Of course this is a guy who chain smokes, overloads on fluid and don't appear to follow any kind of renal diet.. I am not sure if that is related or not but potentially a reminder that bad things can happen if you don't try to do the right thing by yourself.
Of course I try to do that and I crashed today - first time in AGES!! d'oh!! So who knows!
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So scary story over I sleep all the time it takes awhile but I usually get to sleep about an hour in; but what I hate the most is when I am sleep for 15 minutes and I think I was asleep an hour and a half >:(. I am a terrible drooler and I hope I am not a SLEEPFARTER (that is the technical term I believe ;)) I will say this to all those who are worried about it - you will never know - who would have the nerve to tell you? I lived with a woman for years and she was a SLEEPFARTER but I could never bring myself to tell her until years after I broke up with her :rofl;.
CW
:rofl; :rofl; :rofl; :rofl; :rofl; That's a new one on me. Never heard of a sleepfarter.
Mimi
EDITED - Quote error corrected - Bajanne, Moderator
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:oops; ...Sleepfarter... is that a medical term? :lol;
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Okay, I have found the power of Benedryl !!!! NOw I get Benedryl and sleep 2 1/2 hours out of my treatment! Treatment is much easier to get through now!
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You mean those soft leather recliners are suppose to keep us awake? Sleeeeep..... goooooood
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Phenergan works good if you want to sleep. I'm usually too busy hitting on the nurses to want to sleep.
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When I went to dialysis I would sleep the whole treatment because I was there five in the morning. I'm a snorer and a drooler :( but I don't think the attention was on me, there were louder snores out there, but as for the drooling, I hid under my blanket ;D
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So I get benadryl at dialysis and I cannot fall asleep still! I desperately want to try and sleep there because work tires me out, and well when I go home and try to sleep, I just end up waking up off and on because I have to be up early the next morning early for work! Any good tips or tricks???
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If I cannot get to sleep sometimes I use the breathing technique. Concentrate on your breathing and count one on the breath in and two on the breath out. Do this until everything is just concentrating on your breathing. This often puts me to sleep.
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I bring pillows to put in the chair so it is more like a bed. Then I lay on my side and sleep like I am in bed. I have a cathiter not a fistula. They tried a fistula operation on my arm and the vein went flat the next day. My arm hurts so bad I have to use vicodine all dasy to stop the pain. The doc cut my nerves and fused them into a mass that is always pain full. During the dialysis their machine sucks all the pain killer from my system and by the end of treatment I am is screeming pain. Some time I have to take an oxy and vicodine to stop the nerve pain. also to eliminate the noise I use industrial ear plugs.
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reading or drawing a picture makes the time fly!!!
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I can't sleep on the machine. For one our chairs are leather and very unconforting. I am one that sleeps better on my side and not my back but when I try it the techs always yell at me for putting too much strain on the lines and my access.
Now what I think they should do is just give us regular hospital beds and maybe we could all sleep well.
Troy
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After eleven years in dialysis centers I find I can sleep almost anywhere. I fell asleep in Union Station in the food court in Chicago with my daughter watching me. I put my head on my coat on the table and out I went for a few minutes. A dialysis center is a lot like a train station. Noisy!
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Now that I've been on Dialysis for a few months, I am starting to catch a few zzzzzs while on the dreaded machine.
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I never sleep on dialysis...... I am busy doing this stuff....computer stuff.....
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I never could sleep when I was in center, since I have been home doing Nxstage I sleep, I am comfy in my own bed.
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I understand that for a while after going on D you still have to P. For me, that is urgent and I do mean right now. So, if you wake up half an hour before your time is up, what do you do?