I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Trudy on August 30, 2007, 04:13:23 PM
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My name is Trudy and I have been on dialysis for 1 1/2years. (pd) I have polycystic kidney disease. Both of my parents had it and died at an early age. I have two children, a son and daughter, so far my daughter has the disease and also one of my 3 grandchildren has it. My son would like to give me a kidney but I am having problems about it because I think my daughter or granddaughter will need it some day. I am 55 and my daughter is only 35 and my granddaughter is just 11. We do not have many family members to choose from. I found out today that they are going to remove at least one of my kidneys because they are getting too big. I really glad I heard about this site. It will be nice to talk to others who are going thru similar things.
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:welcomesign;
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:welcomesign; Trudy. Glad you found this site.
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hey Trudy :welcomesign; i have pkd also and have been on dialysis for 5 months and are also getting a kidney removed later this year. this a great site glad you found it.
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Welcome aboard ! Please take some time to look around and I think that you will find answers to a lot your questions. :canadaflag;
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Hi Trudy. :welcomesign;
You'll love it here.
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:welcomesign;
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Welcome Trudy,
I think along the same lines as you. Thanks for taking an interest in Ihatedialysis.com. You will definitely find like minded people here.
There is lots to read and absorb. Take your time and feel free to ask questions.
Sluff/ Admin
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Welcome abaord. Join right in on the discussions. There is a home diaiysis section and even an arcade, as well as all kinds of thoughts and discussions on dialysis.
kitkatz,moderator
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Welcome Trudy, good to have you aboard.
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:welcomesign;
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Hello and :welcomesign;
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:waving; Hi Trudy,
I think it's a good idea to explore donor options - there's a chance you will meet a donor if you tell enough people your story. My 2 sisters and my brother all have PKD, so none of their children offered to get tested when my daughter needed a kidney (I didn't inherit PKD, she has a faulty bladder) as they are apparently "saving" themselves to donate to their parents. I am assuming that because we never had a discussion until after Jenna got a transplant from an altruistic donor. Anyway, my point is that if your son is willing, you can have him tested. He might not be a match, but at least you'll know, and in the meantime you can keep an open mind to finding another donor. I hope the nephrectomy goes well and that you are feeling more comfortable afterwards. Best of luck to you!
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Hi Trudy, Welcome to ihatedialysis.com. Please feel free to read into the posts and do not hesitate to add any questions, comments and/or concerns of your own. If there is something in particular you are looking for and cannot find, just ask, we are here to help you any way we can. We would love it if your daughter joined as well. :2thumbsup; Looking forward to hearing more from you :cuddle;
Goofynina/Admin.
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Welcome to our community, Trudy. I am so glad that you found us. You are going to find that this site is one of the tools you can use to help you in this challenge. There is lots and lots to read here, so get going! But don't just read. You must also post and let us know what you are going through. Feel free to vent and rage when you need to. Here there are people who understand exactly what you are going through.
Please take advantage of all this site has to offer. This is not just a message board; we have become a real family. Welcome again. Here is a hug from all of us. :grouphug;
Bajanne, Moderator
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Welcome Trudy. Glad you found us. This is a great site with lots of caring people in all different stages of kidney disease. As Bajanne said, we have become a family and gather together for support, information and humor----sometimes you just have to laugh! :welcomesign; Looking forward to hearing more from you.
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lovely to meet you...i just joined this site and already the members have been caring and considerate...you will find inspiration, education and hope :canadaflag;
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:waving; Hi Trudy,
You have found a wonderful site and people with lots of knowledge.
Lori Indiana/ son Dustin now "22" FSGS and on dialysis
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:welcomesign; Trudy.