I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: Bajanne on March 22, 2006, 05:13:27 PM
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I was just wondering how you guys found this board. I was trying to find all I could about dialysis, and went on a board at nephron.com. Some guy with a weird name Epoman had a post about a board named 'ihatedialysis.com', where he said you would get straight up answers and be able to vent without being censored.
I have not regretted one moment finding this website, as I see it as one of my major tools in dealing with this 'challenge'.
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I think I typed in "dialysis support" in Google, but I can't remember for sure.
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I was floating through the internet and ended up finding the site accidently.
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My favorate search engine is Dogpile.com and I typed in "People who hate dialysis" and I found my home! 8)
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I just typed into google -hate dialysis- and here I am ;D Liz
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I was pointed to the KPG Bulletin Board by the senior nurse at the Home Haemo unit.
Then saw a refernce to this one. So use both about =ly.
Went out down to "Sufferers' Parasites" to meet some Welsh friends up from Sydney
for a conference @ Holiday Inn. Looking around for them in the foyer & got a call
from the bar up on the balcony....2 good flights of stairs to get to it & I bounded
up em 2 @ a time!!! My God, I thought, you wouldn't be able to pick me from a
'normal human' ! :o ;D ....I couldn't have done it a year ago! :)
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I was pointed to the KPG Bulletin Board by the senior nurse at the Home Haemo unit.
Then saw a refernce to this one. So use both about =ly.
Went out down to "Sufferers' Parasites" to meet some Welsh friends up from Sydney
for a conference @ Holiday Inn. Looking around for them in the foyer & got a call
from the bar up on the balcony....2 good flights of stairs to get to it & I bounded
up em 2 @ a time!!! My God, I thought, you wouldn't be able to pick me from a
'normal human' ! :o ;D ....I couldn't have done it a year ago! :)
Bear I noticed you have not replied to this thread: http://ihatedialysis.com/forum/index.php?topic=411.0 which is evident by your post here. Please read and reply now to that thread and start having more pride in your posts. I hope you understand why I am doing this.
- Epoman
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I did...but I just got timed out &
( O.K. _and_ )
lost it.
Maybe l8r...oops make that later
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Searched in Yahoo for "dailysis support" - thought it was a joke because of the name so didn't look at the site for awhile. Got curious.
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A very dear friend who lives in Arizona called one night all excited about a article she found in, are you ready for this? The National Enquirer!! It was about someone who got a kidney transplant on a site called www.matchingdonor.com. From there i was hooked up to this wonderful site!
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Through search engine of google about dialysis and kidney transplant.
But I believe the Force of all the members here guide me here.
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i was reading posts on another board (don't ask which one couldn't remember if my life depended on it) anyway one of the posts was from someone who posts here and the web site was listed in their signature line. being the very nosy person that i am i came looking. haven't been back to that other site since.
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I was googling Dialysis, stumbled accross the T-shirts, LOVED THEM! (miss you EPOMAN) and then found the boards....
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can't recall for sure,loving the ARCADE, so aint goin anywhere into much of a hurry :clap; :2thumbsup; :yahoo; :bandance;
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:bump;
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I think Sluff and Okarol referenced it on a NKF message board. I wanted to talk to people and couldn't get on that board so here I am. :yahoo;
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I was trying to find a local face-to-face group, so googled for dialysis support in Atlanta. I never did find a local group...oh well, you guys are better!
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Actually Okarol posted the link on another kidney site. Thanks, dear.
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I was serching for more info on NxStage, found Epo's site about his and followed the link from there to here. That was almost two years ago - now I'm home with my own NxStage, and here all the time!
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I think I did a google search too and found it.
A few years back I did a search for dialsyis and came across a few yahoo groups. One you had to send in personal information to join (no offense - but no thanks) and another I actually did join, but was highly criticized for still having a permacath so I was completely turned off from any online discussion groups about dialysis.
Something told me a few months later to try one more time and I did another search and came across this site..... and wasnt judged!! :) :cuddle; So glad I found this place and I have learned sooo much! :clap;
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I believe I typed in "living with dialysis" on Yahoo search. And since I'm not looking forward to dialysis and I just hate the thought of it, I just had to check it out. What a pleasant surprise it was! :2thumbsup;
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I found this board whilst looking for all the information I could get on ESRF. And from what I have read, THIS is the best place to come.
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When I was told that my long lived transplant was now failing, I came home upset and did a Google search of...."i hate dialysis" since that was how I felt. Lo and behold, so did all these fine people here. There was no internet the first time around for me and this is a great spot to retreat to.
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When my doctor told me I would be looking at dialysis within 6-8 months, and having to be off work because of those nasty symptoms we are so familiar with I started surfing and using every search engines I could looking for answers to my questions and I found IHD.
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I've genuinely no recollection - just a random search for something about dialysis for Dad I suppose - and serendipity took over :2thumbsup;
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I'm with Rose. I don't remember either.
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no recollection really, but am i glad i found it. :yahoo; :yahoo; :yahoo;
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Googled 'Dialysis', looked around a bit. I bet this site is nearer the top of the results than it was then...
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Googled 'Dialysis', looked around a bit. I bet this site is nearer the top of the results than it was then...
#19 of the main listings. I didn't include the sub-listings. Wo-hoo! :yahoo; :yahoo; :yahoo;
If you set your preferences to view 100 listings per page, it's on the very first page! :2thumbsup;
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On a myspace group. I like this way better!
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Epoman had the same post a long time ago now. same answer ;D
issed(P) off one day with dialysis, had a bad day crashed my BP, sick. So just typed in google IHATEDIALYSIS and the site pop UP! :bandance;
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I was looking for a message board right after I started dialysis so Googled "dialysis message boards" and this was the first site Google brought up. :2thumbsup;
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No search engines here.. Keith told me about the site.
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I googled dialysis support groups.
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I joined a listserv for live donors to get info about me donating to my husband. okarol is on that listserv and she directed me here. THANK YOU, okarol!!!
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I was having a hard time with new symptoms and getting fed up with the saccharine-sweet Kidney Foundation site, googled kidney support and knew when I saw the title that I had found The Place.
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I was trying to find 'real' information on what to expect with dialysis. Found this site through google searches.
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Thanks ODAT! Now I remember why I found this site. I too was trying to find some real experiences of dialysis patients.
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Just random searching to try to learn as much about dialysis as possible. Believe I was looking for "dialysis forums". Thank goodness I found IHD.
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I did a Google search on kidney-related sites and found this message board. I was immediately impressed by the "staight talk" by people actually experiencing these issues and their willingness to share with others.
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Someone commented on my blog that I should really check out this site. I've been member and a fan ever since.
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I found it while searching for info on dialysis cruises and have been hooked since I read the name and seen the t-shirts