I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: Michael Murphy on September 26, 2020, 09:06:45 PM
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Two weeks ago blood began pouring out of my butt, went to urgent care and was sent to a hospital. Imeadiately no food just broth for the first 3 days. Followed by 4 liters of water based laxitive. Day 2-4 large amounts of saline were introduced. I went to dialysis on Wednesday and Friday.
On Thursday I was scoped from top to bottom. Nothing was found. But it was concluded a diverticulum was responsible. At that point my hemo went from a 11.8 to a 6.5. So on Friday and Saturday I was given 4 blood transfusions and some more saline. Late Saturday I was released. Went home and by 11:00 PM I was unable to breath. Sunday was moved to CCU Monday morning a code blue was called for me since I passed out. I was in a-fib and my ICD internal cardiac defibrillator fired 3 times. My wife was called and informed and it was serious. The ICD returned me to normal sinus rhythm. Then from Tuesday thru Thursday I was given amiadarone and heparin both constantly and in a saline bag. I was then more than with it to discover after my Wednesday dialysis I was over 8.5 kilos over my dry weight which considering the lack of food the previous week could have been over 10 kilos over. The only mistake made was they needed to check my dry weight during this whole process. The doctors said the scale in the hospital bed was inaccurate however Thursday I had a scale brought in to check my weight and the bed scale and the hospital scale were the same weight. If your bed has a scale have it zeroed out each day and have the weight recorded so your weight can be checked daily. So that you won’t have enough fluids pumped in and have your heart damaged like mine was.(my ejection fraction dropped 10 points).
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Jeeez Michael, awful to be in this position. Sending lots of healing vibes to you, and common sense vibes to your drs et al.
Lots of love, and get better soon, Cas
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Holy Cow! you sure have been through the ringer. Once again a dialysis patient knows more about fluid/electrolyte balance than most doctors. I hope you are not considering a transplant-those necessary transfusions will unfortunately increase your risk of antibody formation. Best of luck to you as you recover.
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Oh, my God! Are you OK now?
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Better, I had 2 extra kilos taken off on Saturday and my breathing is easier, Monday I am planning to pull 4 Kilos which should get me below my old dry weight. The reason for the post is that if a hospital is pouring fluids in you that you demand they track your weight. At a minimum zero your bed scale when you are out of your bed and check the accuracy of the bed scale by bringing in a rolling certified hospital scale and seeing if both results are the same. The fact that this is not a standard practice for dialysis patients is a disgrace,
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Better, I had 2 extra kilos taken off on Saturday and my breathing is easier, Monday I am planning to pull 4 Kilos which should get me below my old dry weight. The reason for the post is that if a hospital is pouring fluids in you that you demand they track your weight. At a minimum zero your bed scale when you are out of your bed and check the accuracy of the bed scale by bringing in a rolling certified hospital scale and seeing if both results are the same. The fact that this is not a standard practice for dialysis patients is a disgrace,
Oh sure, I get your point. This shouldn't even be an issue. I'm all for being the captain of your own ship and being your own best advocate, but sometimes you have to trust the crew, and when you can't trust the crew, you can get into a world of trouble, as you've seen.
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Hello Michael, I am very sorry and send you lots of get-well-soon-wishes.
Take great care and all the best from Kristina. :grouphug;
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It is infuriating that you had to endure this. Hope you are doing better right now and we appreciate your warning.