I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: AndreBR on November 15, 2018, 10:59:49 AM

Title: Dialysis & CKD Questionnaire
Post by: AndreBR on November 15, 2018, 10:59:49 AM
A couple of weeks ago I started a topic called "Researcher seeking interviewees", in which I tried to invite members of the forum for a Skype/Phone interview. Some members kindly recommended I prepare a questionnaire they could fill online.

The questionnaire is finally ready: https://goo.gl/forms/vDRjpO12FmbGXsD13
Please let me know if you have any issues while accessing and filling it.

For those who haven't read my previous topic, I'm a first year PhD student at UC-Santa Barbara and I'm interested in the experiences and challenges of dialysis patients. This questionnaire will help me elaborate a research proposal for my dissertation and fulfill the requirements of one of my courses.

Many thanks to Rerun who suggested I create another topic for the questionnaire. And many thanks to those willing to contribute!
Title: Re: Dialysis & CKD Questionnaire
Post by: Simon Dog on November 15, 2018, 11:28:01 AM
I am post dialysis transplant recipient.   Do you want me to fill out the survey, as many of the questions imply currently on D?
Title: Re: Dialysis & CKD Questionnaire
Post by: AndreBR on November 15, 2018, 12:24:18 PM
I am post dialysis transplant recipient.   Do you want me to fill out the survey, as many of the questions imply currently on D?

Hi Simon, sure, you can refer to your previous experience as a dialysis patient. Perhaps, I'll change the phrasing of the questions so post transplant recipients can also answer it.
Title: Re: Dialysis & CKD Questionnaire
Post by: Simon Dog on November 15, 2018, 02:22:35 PM
I answered it as if I were still on D.   I'm the one who answered 98% Male 2% Female due to transplanted kidney.
Title: Re: Dialysis & CKD Questionnaire
Post by: kitkatz on November 15, 2018, 10:32:21 PM
Some of your questions could use some work. 
Title: Re: Dialysis & CKD Questionnaire
Post by: AndreBR on November 16, 2018, 05:20:45 PM
Some of your questions could use some work.

Hi kitkatz, which questions do you think I should improve? Perhaps we could discuss about it via PM?
Title: Re: Dialysis & CKD Questionnaire
Post by: GA_DAWG on November 17, 2018, 08:20:03 PM
There are nuances to some of the questions. For example, CKD may not limit us from all social activities, but at the same time limit us from some we would defnitely prefer to be able to attend. The diet may not be a great problem most of the time, or fluid restrictions, but if you attend a Christmas party, suddenly they can present a problem. Eating out, and not only at fast food joints, can present problems due to salt, but there may be times it is required.