I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: Mr Ken on November 10, 2018, 03:11:06 AM
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Anyone have issues with their social worker at dialysis centers??? I have one that is a worthless piece of💩. I have had it with him and with my last meeting with him this past week I recorded the interaction to be talked about and played on Youtube soon. Before I start my discussion on my experience with him I am curious if there were other common occurrences.
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What was it your social worker was not assisting you with and why did they not assist?
Best wishes from Kristina. :grouphug;
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Check you state laws regarding concent to record others.
Also I’d expect your center will ask you to find another should they find out about the recording - I’d assume that will be viewed as against a few of the numerous rules in the treatment agreements you signed at your center.
My social workers were fine but changed about yearly.
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In 6 years I have had 4 social workers 2 were next to useless and 2 did their jobs well.
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I've twice had to deal with social workers. One was just useless, the other needed to improve considerably before they were good enough to be called useless. No exaggeration to say their attempt to help me, when I was in hospital, ruined my life.
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Check you state laws regarding concent to record others.
The state I am in is a one party consent. I had that covered a long time ago. also at the Federal level
Federal law permits recording telephone calls and in-person conversations with the consent of at least one of the parties. See 18 U.S.C. 2511(2)(d). This is called a "one-party consent" law. Under a one-party consent law, you can record a phone call or conversation so long as you are a party to the conversation.
Also I’d expect your center will ask you to find another should they find out about the recording - I’d assume that will be viewed as against a few of the numerous rules in the treatment agreements you signed at your center.
That would only cause more trouble for them. Do your job and you have nothing to worry about. Me nor anyone else should not be treated like crap. Rudely telling someone to do it yourself storming out. Cutting you off mid sentence in a telephone conversation and hanging up. NOT WILLING TO HELP WITH ANYTHING. This is not the first time he demonstrated lack of professionalism and willingness to help. Magic eightball for answers.....
They know about the recording I pulled out the recorder in front of them. Talk normal it will pick up the voice....
They take detail notes on you as a patient. Everything you say everyone knows about it. The recorder is for my personal protection if they do not like it shut up and don't talk to me. Just do your job which by the way has not been that great. I cannot tell you how many times I made special trips to get supplies to accommodate the prescription changes. You are hard stick I cannot get the blood draw you have to come back to have somebody else do it. We have to redo a several hour test because we cannot get the blood draw.... I did not have to do that and should not have too. I even returned unused supplies that were not going to be used. No regard to patient's time. Just this past week something happened which did not get done because of technical problem on their end. What no backup?????? See you at the clinic visit and not before. I am done trying to be accommodating at their pleasure.
My social workers were fine but changed about yearly.
Glad to hear you had no issues with the social worker or perhaps you did not need the person for anything...
Ken
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........ the other needed to improve considerably before they were good enough to be called useless.
:rofl; :rofl; :clap; :clap; :clap; That is a good one... This is a keeper...
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I have seen good and bad social workers. In some cases, they have them covering multiple clinics, so they are simply overworked for what they are trying to do. Others it was obvious were not as well trained. Our current social worker passes thorugh about once a month, but she is trying to cover four different clinics tha tI know of.
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I have seen good and bad social workers. In some cases, they have them covering multiple clinics, so they are simply overworked for what they are trying to do. Others it was obvious were not as well trained. Our current social worker passes thorugh about once a month, but she is trying to cover four different clinics tha tI know of.
Tom only works part time and has he put it has about 24 patient's. He works a couple of clinics but as a patient I do not care. He should be a decent social worker to all patients. That is his job. That is what he is getting paid form. I am not asking him to have all the answers that would be unreasonable of me. Once a month in dealing with a patient issue is a long stretch. Here are my two words oh I will see you next month to finish the sentence. Come on....... Don't forget dealing with this dialysis in itself is no walk in the park.
Ken
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a long time ago. also at the Federal level
Federal law permits recording telephone calls and in-person conversations with the consent of at least one of the parties. See 18 U.S.C. 2511(2)(d). This is called a "one-party consent" law. Under a one-party consent law, you can record a phone call or conversation so long as you are a party to the conversation.
Just because federal law allows it, does not prevent a state from making it a crime. Justs look at all the states that have banned certain guns that are legal under federal law.
Here in the DPRM (Democratic People's Republik of Massachusetts), surreptitious recording that is not either so obvious all parties can reasonably be expected to know it is being done, or all parties are notified (not consent to, but notified of), is considered "wiretapping" - a felony under state law. There was one hapless in-duh-vidual (courtesy to DNRC - google dogbert dnrc) who recorded a police officer at a traffic stop and filed a complaint with the PD using the recording to show he was rudely treated. The police responded by charging him with felony wiretapping and got a conviction. Upon appeal, the MA SJC (state supreme court) upheld the conviction saying among other things that allowing such recording would permit criminals to document police misconduct. (WTF????). See Commonwealth v. Hyde, MA SJC.
Glick v. Boston et. al. upheld the right to video police in the performance of their duties, but does not appear to have struck down the "no surreptitious" requirement.
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My social workers did nothing for me, both while I was in-center and while I was at home (two different social workers). I did not need their financial assistance with figuring out how I was going to pay for dialysis or medications. So there really wasn't going to be anything they could do for me, unless they wanted to come to my house to cook, clean and do laundry. Basically, they were glorified paper pushers worried about how the centers were going to get their payments.
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a long time ago. also at the Federal level
Federal law permits recording telephone calls and in-person conversations with the consent of at least one of the parties. See 18 U.S.C. 2511(2)(d). This is called a "one-party consent" law. Under a one-party consent law, you can record a phone call or conversation so long as you are a party to the conversation.
Just because federal law allows it, does not prevent a state from making it a crime. Justs look at all the states that have banned certain guns that are legal under federal law.
Here in the DPRM (Democratic People's Republik of Massachusetts), surreptitious recording that is not either so obvious all parties can reasonably be expected to know it is being done, or all parties are notified (not consent to, but notified of), is considered "wiretapping" - a felony under state law. There was one hapless in-duh-vidual (courtesy to DNRC - google dogbert dnrc) who recorded a police officer at a traffic stop and filed a complaint with the PD using the recording to show he was rudely treated. The police responded by charging him with felony wiretapping and got a conviction. Upon appeal, the MA SJC (state supreme court) upheld the conviction saying among other things that allowing such recording would permit criminals to document police misconduct. (WTF????). See Commonwealth v. Hyde, MA SJC.
Glick v. Boston et. al. upheld the right to video police in the performance of their duties, but does not appear to have struck down the "no surreptitious" requirement.
In the state I am in there is no issue. Like I said before do your job there is no issue. I am going to a dialysis center to be treated not be treated like you know what. I am not going to put up with that. Put it this way if he was working under me he would be let go. Not even a second chance. The PD center lost my trust. No more. The game has changed and I am not leaving. It would cost me more money and inconvenience.
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My social workers did nothing for me, both while I was in-center and while I was at home (two different social workers). I did not need their financial assistance with figuring out how I was going to pay for dialysis or medications. So there really wasn't going to be anything they could do for me, unless they wanted to come to my house to cook, clean and do laundry. Basically, they were glorified paper pushers worried about how the centers were going to get their payments.
You are mostly correct.
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You are correct that the majority of what I see them doing is trying to help with financing dialysis, which is actully making the dialysis company money by ensuring they get paid, though it does ease the patients mind, and arranging transportation to and from the clinic. apart from that, there is the yearly survey. As you say, ther eis the occassional, "anything I can do for you" in passing, but that's about it. There also seems to be a good amount of turnover in the position.
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You are correct that the majority of what I see them doing is trying to help with financing dialysis, which is actully making the dialysis company money by ensuring they get paid, though it does ease the patients mind, and arranging transportation to and from the clinic. apart from that, there is the yearly survey. As you say, ther eis the occassional, "anything I can do for you" in passing, but that's about it. There also seems to be a good amount of turnover in the position.
Most people are on medicare or if not the social workers pushes to put you into medicare. As far as transportation any staff nurse could arrange that. Simply calling a transportation service which they should know who is in that area and checking insurance and be done with it. Tom's response was "I am not your personal secretary" so I doubt he would do it.
My clinic visits he will not be allowed in the same room while I visit with the doctor. I will say either he leaves or I am done with the monthly clinic visit.
Tom is a worthless piece of 💩. Putting it nicely.....
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IIRC even in those States that claim audio recording Police to be a form of 'wiretapping', the Courts have yet held vidoe WITHOUT audio, to be legal. B.S. as the Police can say anything and still get away with it.
Recording, either audio or video, within Dialoysis clinics is frowned upon. While the Law may allow 'Public' recording, a Dialysis is NOT considered a Public place. Publishing any recording made within a Private Business very well be suitable grounds for termination of services to you.
Tread lightly.
Everyone has a Boss. Go over his head. If you do not get satisfaction from the Boss, then go over THAT Boss's head, and so on.
Document every step/level, in writing. Once it is spelled out and no one makes improvements then you can go outside the business to your State Agency that oversees Dialysis or to CMS.
Documentation and learning the Chain of Command works in more places than just in the Military. Been there, Done that. I could write a book but I doubt it would sell many copies.
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Be careful the federal law whil one party in Nauru requires either prior consent or a regular beeping sound to inform the other party .the taping. State law in some cases requires 2 party consent. I have gotten around the requirment by the use of a speaker phone in a conference room with witnesses present.
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Not only did I not need financial assistance, I did not need transportation assistance (drove myself to and from dialysis while I was in center as it was a less than 10 minute drive to my center).
What really chapped my hide was when I was on home hemo and my social worker couldn't be arsed to come to my monthly clinic visits even though I scheduled them SIX MONTHS in advance. Her excuse was that my clinic visits were later in the afternoon and it interfered with her childcare arrangements. So not my problem!!
I finally threw a hissy fit right before a state audit and refused to sign my monthly care plan until I had a face to face with the social worker, dietitian (another one who couldn't be arsed to see me in person) and the nurse. Of course, I got a transplant the next month so my big "last stand" was for naught.
You are correct that the majority of what I see them doing is trying to help with financing dialysis, which is actully making the dialysis company money by ensuring they get paid, though it does ease the patients mind, and arranging transportation to and from the clinic. apart from that, there is the yearly survey. As you say, ther eis the occassional, "anything I can do for you" in passing, but that's about it. There also seems to be a good amount of turnover in the position.
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I've twice had to deal with social workers. One was just useless, the other needed to improve considerably before they were good enough to be called useless. No exaggeration to say their attempt to help me, when I was in hospital, ruined my life.
Gosh, that sounds pretty terrible and I feel so sorry for what you had to go through ... and it sounds very evil !
What did they do to you to ruin your life when you were in hospital ? How could they get the power to do anything bad to you when you were in hospital ? Did it involve for you to get the wrong medical treatment ? Did they influence the doctors in a bad way ?
I don't quite understand because, after all, they are "only" employed as a social worker ... or are they ?
Sorry again for what you had to go through and I send you my best wishes from Kristina. :grouphug;
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Recording, either audio or video, within Dialoysis clinics is frowned upon.
Not getting decent service is frowned upon. They are not getting paid to provide crappy service. A person should not have to be forced and or inconvenienced to go somewhere else because of it.
While the Law may allow 'Public' recording, a Dialysis is NOT considered a Public place. Publishing any recording made within a Private Business very well be suitable grounds for termination of services to you.
Tread lightly.
Unfortunately it is my business. If they do their job then there is nothing to worry about. Plain and simple I do not care. The recording is my documentation. One step above it has his voice! He documented himself. When you call into a business today your interaction is logged in a computer and or recorded.
Everyone has a Boss. Go over his head. If you do not get satisfaction from the Boss, then go over THAT Boss's head, and so on.
Document every step/level, in writing. Once it is spelled out and no one makes improvements then you can go outside the business to your State Agency that oversees Dialysis or to CMS.
Documentation and learning the Chain of Command works in more places than just in the Military. Been there, Done that. I could write a book but I doubt it would sell many copies.
I have also tried the fill out the complaint form route... Rarely does it go anywhere. Lets not talk about CMS and IPRO... That is another volume in the encyclopedia.
My life is not public domain of someone else. It is private property. No one is going to change my mind on the recordings. A service is being paid for. They are not doing it for free. The least they could do is do a good service.
There are a lot of issues that go on in dialysis centers that should be brought to light. They are far from perfect and sometimes patients do suffer because of it. This is not a volunteer endeavor. It is long term. I am not saying patients are the best to deal with. I could be quite the challenge at times but I also realize that some things need to be done and try to accommodate.
I am livid about this and I am not holding back on this one..... The dialysis center lost my trust and the relationship going forward is changed. As they say I gotta do it but I don't gotta dig it.
In the beginning of this journey, doing PD, the Dialysis Nurse Dave ordered over 20 boxes of 1.5% dialysate solution. It came but the problem is he knew that I do not use 1.5 % solution. During training I did not use the 1.5 because it is not adequate enough. I lugged all that crap into the car and brought it back to him.
My next clinic visit I am bring back two more boxes of the 1.5% and two boxes of the 4.25%. Using 4.25% is not good over a long period of time and could result in damage to the peritoneal cavity. The house is not a damn warehouse if not used for this stuff.
I am being nice in bringing it back to them and not just dumping it in their parking lot!
Ken
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I am not trying to create a problem here. Had the social worker been decent I would not even keep the recording. Would have been forgotten about. This is not the first time this piece of work has been unreasonable... First couple of times I rolled with the punches but this last time NO!
Never told which dialysis center this happened at. Sorry. Freedom Center on 52 S Union Rd, Buffalo, NY 14221. Hi Dave, Angela, Barbray - the newbie, Tom who claims to have a title of social worker.....
FYI You could freeze apple cider. The taste is slightly different from fresh but it is still very good. When it was on sale for $2.99 a gallon you cannot go wrong. Freeze three gallons and have it all of November December.
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What did they do to you to ruin your life when you were in hospital ?.......
It is a long story. I have posted about it on this board before and I doubt if anyone wants to read through it again, so I'll give you the "Cliff Notes" version here:
While in hospital, social services needed access to my home. I gave them my door keys and expected them to return them. Instead they put them in a key safe on the front door. A neighbour smashed it open and robbed me, taking anything of value, lots of things with sentimental value, and wrecking the place. When I came out of hospital and saw this I went into depression, mostly from the loss of sentimental stuff, and sat in the mess for months, doing nothing but spending my savings. During that time I pulled myself together enough to contact social services about it. Fearing a lawsuit they simply cut me off and left me contemplating killing myself. I have always wanted to produce a movie, and before going into hospital had at last got the money together to do so (very low budget, very very low budget). In my depression I just sat, spending money on food, and got through that money. As I am now on disability benefit I'll never save that much again. That life long dream has gone too. I have still not fully cleared up from the robbery. Fire officer visited a while back and decided that due to the state of it, my apartment is not fit for human habitation. The only reason he did not order my eviction was that he realised I am still going in and out of a depressive state, and eviction would probably tip me over the edge into suicide.
More recently I have tried to get social services to help undo the damage they caused, they still blank me. And although I now don't get up every morning and consider stepping in front of a tram, there are days when I consider it. I still live in a mess, stuff thrown all over the place. And the social services still afraid to even discuss the problem that they caused.
One day I may stop posting here. And it may be because I finally lost my battle with the urge to step in front of a tram. If that happens, and anyone posts an eulogy, you can say that I was effectively killed by social workers.
Now somebody please post something cheary to counterbalance this post.
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That was pretty bad Paul. But you did get through it...... Think Turkey sandwiches with cranberries.
Ken
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During my initial transplant evaluation, the social worker was the biggest obstacle, less of a help than a hindrance. I don't know if she has final say, but she insisted that I needed a live-in caregiver for two weeks after the transplant. Transplant recipients on this site have assured me otherwise. It's a little odd that social workers, who probably think of themselves as caring and compassionate, should be acquiring such negative reputations.
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During my initial transplant evaluation, the social worker was the biggest obstacle, less of a help than a hindrance. I don't know if she has final say, but she insisted that I needed a live-in caregiver for two weeks after the transplant.
I too have been denied transplant evaluation because I do not have a social support network in place. What make this hard for me is I no longer have a family they are all gone and dealing with this issue rubs it in my face to the fact that I no longer have a family. I do not feel good about it. Sadness and anger rolled into one. They do not give a crap. You cannot make a stranger or anyone be a caregiver. There are agencies that do caregiver services. I personally believe they use this gotcha as a weeding out the herd tactic because they know many people do not have the caregiver assistance.... This is 2018 people are different now.
This is one one the main issues I asked the worthless social support person for help with coming up with a way. Tom's response was WRONG! "I am not your personal secretary" "You have to do it yourself - I could advise" Idiot if you could advise then you must know the answer so why not just help. Talking to me like a magic eight ball is not doing me any good. The fact that he then got up and stormed out cutting me off makes me very angry. This is far from over with me and the Dialysis center. This is life sustaining treatment they cannot just get rid of you without having a transitional alternative plan. I has a patient spend a lot of time dealing with this and I am not getting paid. I expect top notch service AND UNDERSTAND THAT THIS IS NOT EASY FOR ANYONE. IT SUCKS! I do not need people to amplify this process.....
Transplant recipients on this site have assured me otherwise. It's a little odd that social workers, who probably think of themselves as caring and compassionate, should be acquiring such negative reputations.
Social workers should have a bountiful amount of resources just by the fact that they do or suppose to do the job as a social worker. Many of them are plain lazy. Like Tom put it I have around 24 patients part time.... That is not my fault. Obviously Fresenius feels for the clinics being served that is what they want to pay for. Social work is not ongoing with many people. Working with 24 people is nothing. If was helpful instead of being useless he would bang out the solutions bang bang bang.... If I knew I would not be asking for assistance. DUH!!!!
Oh man this up coming clinic visit is going to be full of sparks.......
Gotta go - have a Dr. Appointment...... Blood pressure reading out the window.........
Ken
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What did they do to you to ruin your life when you were in hospital ?.......
It is a long story. I have posted about it on this board before and I doubt if anyone wants to read through it again, so I'll give you the "Cliff Notes" version here:
While in hospital, social services needed access to my home. I gave them my door keys and expected them to return them. Instead they put them in a key safe on the front door. A neighbour smashed it open and robbed me, taking anything of value, lots of things with sentimental value, and wrecking the place. When I came out of hospital and saw this I went into depression, mostly from the loss of sentimental stuff, and sat in the mess for months, doing nothing but spending my savings. During that time I pulled myself together enough to contact social services about it. Fearing a lawsuit they simply cut me off and left me contemplating killing myself. I have always wanted to produce a movie, and before going into hospital had at last got the money together to do so (very low budget, very very low budget). In my depression I just sat, spending money on food, and got through that money. As I am now on disability benefit I'll never save that much again. That life long dream has gone too. I have still not fully cleared up from the robbery. Fire officer visited a while back and decided that due to the state of it, my apartment is not fit for human habitation. The only reason he did not order my eviction was that he realised I am still going in and out of a depressive state, and eviction would probably tip me over the edge into suicide.
More recently I have tried to get social services to help undo the damage they caused, they still blank me. And although I now don't get up every morning and consider stepping in front of a tram, there are days when I consider it. I still live in a mess, stuff thrown all over the place. And the social services still afraid to even discuss the problem that they caused.
One day I may stop posting here. And it may be because I finally lost my battle with the urge to step in front of a tram. If that happens, and anyone posts an eulogy, you can say that I was effectively killed by social workers.
Now somebody please post something cheary to counterbalance this post.
Hello Paul,
I am so sorry about your bad luck to go through such a horrific experience with social workers, especially since they all seen to "gang up on you" and refuse to "own up" to the mistake of their colleague, if it was a mistake, because it looks odd. Why would a social worker - without your consent - put a key safe on the entrance of your door with your key inside? What a convenience to anyone (i.e. the social worker and/or a neighbour etc.) to smash it open and take out your key to open your door and take whatever they fancy to take from your place? I honestly have never heard anything as heart-breaking as that to be done to the property of a vulnerable person who happens to be hospitalized at that very time. I do hope there is soon a chance for you to find a practical way forward and get some of the money back, which you can use to buy equipment etc. you need to have a chance and get on with the idea of a low budget film. Please keep this idea very much alive ! You never know what the future brings and I do wish you good luck with it all. Don't forget, you are also on the transplant waiting list right now and your luck hopefully might change very soon. I certainly wish it for you!
You know, many years ago I used the London Underground to travel to the city because I wanted to buy some birthday-presents and someone got their hands into my handbag (without me noticing anything) and they took my purse with all my money and unfortunately my purse also included my student-pass with my photo. Of course I was very upset about the loss of the money, but it disturbed me even more, that they had my student-pass with my photo in it and my name etc. and that really hit me most of all and it took quite a while until I had reasonably recovered from it.
I do hope you also find your way and recover from this shock and I can well imagine that it may take a while. Could you try to get some help from the Council i.e. victim-support etc. because the shock, combined with your health-situation plus the loss of money etc., there surely is an organisation/victim-charity to help?
I certainly wish you all the best of luck and thanks for telling your story and I shall try to avoid social workers as best as I can. Some social workers surely have lots to answer for !
Good luck and best wishes from Kristina. :grouphug;
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:thumbup; Got back from the Dr. appointment he identified the issue prescribed a medication asked if I would like a follow up appointment All done within 15 minutes. See HELPFUL. Badabing Badaboom!
Glad he was not Tommy the social worker....
Next Clinic visit :boxing; :boxing; :boxing;
I will post an update.
Ken
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You need to have a delivery support system to bring you food, take the garbage to the curb, etc. since you will be on "no drive, no heavy lifting" status for a while. This can be a friend who stops by occasionally, or you can use one of the new services like Shipt and UberEats to get provisions, plus some grocery stores offer home delivery.
My wife left town for 4 days a week after I was home from xplant (conference attendance scheduled months b4 I got the call), and I had a dog to take care of. No other household members, but I was offered fish heads and rice by the Chinese family across the street (I accepted the rice which was good), and my brother stopped by and did a grocery run for me. Walking the dog was good therapy, but bending over with the bags was uncomfortable at the incision site.
All in all, everything worked out and I would not hesitate to get a transplant if my home support consisted of people who did not live with me helping with errands.
FYI You could freeze apple cider. The taste is slightly different from fresh but it is still very good. When it was on sale for $2.99 a gallon you cannot go wrong. Freeze three gallons and have it all of November December.
Huh? One gallon lasts me 2 days, 3 tops. That stuff is delicious.
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You need to have a delivery support system to bring you food, take the garbage to the curb, etc. since you will be on "no drive, no heavy lifting" status for a while. This can be a friend who stops by occasionally, or you can use one of the new services like Shipt and UberEats to get provisions, plus some grocery stores offer home delivery.
My wife left town for 4 days a week after I was home from xplant (conference attendance scheduled months b4 I got the call), and I had a dog to take care of. No other household members, but I was offered fish heads and rice by the Chinese family across the street (I accepted the rice which was good), and my brother stopped by and did a grocery run for me. Walking the dog was good therapy, but bending over with the bags was uncomfortable at the incision site.
All in all, everything worked out and I would not hesitate to get a transplant if my home support consisted of people who did not live with me helping with errands.
FYI You could freeze apple cider. The taste is slightly different from fresh but it is still very good. When it was on sale for $2.99 a gallon you cannot go wrong. Freeze three gallons and have it all of November December.
Huh? One gallon lasts me 2 days, 3 tops. That stuff is delicious.
I understand that. That is all in place. That is not an issue. Never was.
Ken
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My brother is retiring in four months. Maybe he could visit every other day.
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Could you try to get some help from the Council i.e. victim-support etc. because the shock, combined with your health-situation plus the loss of money etc., there surely is an organisation/victim-charity to help?
I have tried several organisations, no luck. Although I was given six weeks free psychiatric help after I admitted that while depressed I had sat down and worked out a way to murder the neighbour and dispose of the body.
Don't forget, you are also on the transplant waiting list right now
Actually I'm not. I'm still on the tests to see if I can go on the list. Every time they finish a test I get told "Hmm, there is a problem there, we need to do another test to see if it is too serious to allow a transplant."
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I have tried several organisations, no luck. Although I was given six weeks free psychiatric help after I admitted that while depressed
Oh boy with this one....... I think these people are related to social workers.................. They have the weekly Sunday dinner at the table and talk about how not to help the patients..
I had sat down and worked out a way to murder the neighbour and dispose of the body.
LOL that is funny......... Now may be your neighbor just wanted to borrow some things.. You have to share. Bring the neighbor a piece of apple pie next time you get one.
Actually I'm not. I'm still on the tests to see if I can go on the list. Every time they finish a test I get told "Hmm, there is a problem there, we need to do another test to see if it is too serious to allow a transplant."
There are so many variables that any one could cause a red flag to go up and the process comes to a halt. They want a successful outcome but they also know that damn bugger is in demand and there is a shortage so the less perfect people tend to swirl around the bottom of the barrel a bit......
Ken
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This site is better than any Social Worker. I've tired to pass it on to my Social Worker and she just stared at me.
Social Workers have never been on dialysis. It is like having a skinny aerobics teacher.
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Social Workers have never been on dialysis. It is like having a skinny aerobics teacher.
Part of the training for any REMF in a dialysis clinic should be "During your first week, you will sit in a D chair for 4 hours on M, W and F. You can watch TV, read, and do pretty much anything except get out of the chair for those 4 hours. If you get out of the chair, you lose credit for that session and have to do it again".
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Come on! At least tape one arm down!
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And without telling them when, why or how many times it may happen, they will be made to puke, pee or poop in front of everyone and STILL not allowed to leave the chair.
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And without telling them when, why or how many times it may happen, they will be made to puke, pee or poop in front of everyone and STILL not allowed to leave the chair.
Hehehehe :rofl; :clap; I forgot about that one!!!! The occasional urge to go a bit but the technician takes their sweet time in bringing the catch vessel.... Come on I am gonna go and I am tethered to the dang machine here... Hahahaha
Look at all the fun people who are not on dialysis are missing. :2thumbsup;
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Could you try to get some help from the Council i.e. victim-support etc. because the shock, combined with your health-situation plus the loss of money etc., there surely is an organisation/victim-charity to help?
I have tried several organisations, no luck. Although I was given six weeks free psychiatric help after I admitted that while depressed I had sat down and worked out a way to murder the neighbour and dispose of the body.
Don't forget, you are also on the transplant waiting list right now
Actually I'm not. I'm still on the tests to see if I can go on the list. Every time they finish a test I get told "Hmm, there is a problem there, we need to do another test to see if it is too serious to allow a transplant."
Hello Paul,
I am so sorry that you have already tried several organisations without any luck. Sometimes I wonder why we have so many "charities" and organisations to help people in need and what they are actually doing no one knows, because whenever one needs some help from any of them, there is no chance, because one won't fit into their - whatever it is one should fit into - and as a result there is no help whatsoever ...
Now since we have "sorted" the unwillingness of "our" charities and organisations, would it be perhaps a good idea to write about this to your MP ? Or is there perhaps a chance to ask someone else at the Council ? These Council-buildings are so huge and have so many rooms and surely there is one room where your problem could fit in and be sorted out by a kind Council worker ?
Sorry about your transplant-work-up and I do hope they sort out those "hiccups" as soon as possible. Is there any idea why it has not been sorted yet? Please don't let them get away with not giving you any results. It is so important for you to know that "things" are under way and to know that you are on the waiting list. Please make sure that they understand how much you need to know about your position.
I wish you good luck and keep my fingers crossed.
All the best from Kristina. :grouphug;
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My clinic visit was kind of quiet. Not a peep was said to me about the recording so I take it has they are sweeping it under the rug. As long as I do not see that useless social worker everything should be fine as far as that goes..... :shy; They were still having technical issues - unbelievable. ::) A lot of other patients were in and about for their clinic day too..... I did get some bad news about my treatment though and I will start another message topic on that... I do not want to high jack my message topic here into something else as we are varying off topic a bit...
Ken
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Social Workers have never been on dialysis. It is like having a skinny aerobics teacher.
Part of the training for any REMF in a dialysis clinic should be "During your first week, you will sit in a D chair for 4 hours on M, W and F. You can watch TV, read, and do pretty much anything except get out of the chair for those 4 hours. If you get out of the chair, you lose credit for that session and have to do it again".
I read an article a while back about a social worker who did just that, well, just the one 4 hour session. She had an arm taped down, and 4 one litre bags of saline, 2 on her lap, and one taped to each leg. Every hour, one of the bags was removed. She said that it was quite an eye opener for her. One of my nurses actually did something similar. She tried sitting in one of our chairs. She was killing time, and decided to try out the chair. She only lasted about 20 minutes. She told me that from then on, she had sympathy for any of us who couldn't wait to get out of the chair after 4-5 hours.
When it comes to useless social workers, I have one of those too. You know they are useless when the nurses in the unit agree with you about their uselessness. The Summer of 2017, I was planning a trip to Atlanta, Georgia. The Davita unit in Atlanta needed a bunch of tests done before they could make the appointments for me. I tried to get the social worker to help, since that is part of her job, but I ended up scheduling most of the tests myself. I'm planning a trip to Philidelphia this summer, and I don't expect any help from her then either.
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Would have had to ask the SW exactly what he thought the difference between "helpiing" and "advising" is. Guess maybe it actually amounts to DOING something.
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Recording, either audio or video, within Dialoysis clinics is frowned upon.
Record audio in MA without it either being obvious, or all parties notified, will bring a felony charge in MA. One guy who filed a complaint about a rude police officer and supplied a recording as proof was so convicted (see Commonwealth v. Hyde, MA SJC).
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Would have had to ask the SW exactly what he thought the difference between "helpiing" and "advising" is. Guess maybe it actually amounts to DOING something.
Tom was obstinate not willing to help...... With that attitude I would not take his advise because he probably does not know. I do not need to be talking to a magic eight ball. You could get all kinds through mail order....
"I got to take care of around 24 patients and I only work part time..." Well Fresenious must feel you are not too useful or you would be full time tommy.....
The only accomplishment he did was change my views towards the facility. Things are not going to be the same.....
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Recording, either audio or video, within Dialoysis clinics is frowned upon.
Record audio in MA without it either being obvious, or all parties notified, will bring a felony charge in MA. One guy who filed a complaint about a rude police officer and supplied a recording as proof was so convicted (see Commonwealth v. Hyde, MA SJC).
Then he should have announced that he was recording and that probably would have shut the cop up because then it would have been "legal" but I would have challenged that based on Federal statutes. Take ownership of what you say and be proper there is nothing to worry about.
He is a waste of time and a wast of space.
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If a state has a two party consent law that is not a federal matter most of the federal law is aimed at recording phone calls not at recording conversations. The way around is to call a friend and have them listen the call without recording, that way you have a witness.
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If a state has a two party consent law that is not a federal matter most of the federal law is aimed at recording phone calls not at recording conversations. The way around is to call a friend and have them listen the call without recording, that way you have a witness.
There is also "nonsurreptitious" states like MA. A recording of "don't record me" is a defense to a wirtapping charge, as it proves the other party knew about the recording.
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The Renal Social Worker involved in my late mum's case was worse than useless.... In fact she was a dreadful influence on, and totally destroyed my last few hours with Mum....
Lots of people on the forum know the story, others don't... I'll tell it if people want me to....
Suffice to say, she is NOT on my Christmas Card List....
Sadly though, it appears to be the 'weapons' in the healthcare field who seem to progress fast and far!!!...
Love to all...
Darth....
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I can't believe people bellyache about spending four hours in a chair. I am on my PD machine 12 hours a day -- 7 days a week. It isn't as painful as hemodialysis but it lasts a long time.
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I can't believe people bellyache about spending four hours in a chair. I am on my PD machine 12 hours a day -- 7 days a week. It isn't as painful as hemodialysis but it lasts a long time.
I've done both, and believe me, the difference is night and day. Even back in the early 1990s when PD was primitive, and run totally on gravity, and once you were connected, you were on for the whole 12 hours because to come off, you actually have to clamp the line and cut it, it was more comfortable than 4-5 hours in that chair, and I'll tell you why.
1. On PD you are in your own home, in your own bed. It is much more comfortable.
2. You don't have to deal with the idiot patients who NEED to have their tvs at full blast, or talk on their phones, and because they are deaf, are yelling into them, while you are trying to nap.
3. If you want, you can be in total darkness
4. On PD, if you are on a dwell, you can cap and disconnect, then do whatever you want. I actually remember once, capping and disconnecting, then going to a movie with friends. I was late coming back for the drain, but I could still do it.
5. Hemo machines lower your blood temperature, so you are cold for the entire time. PD machines don't do that. It's incredibly uncomfortable. In my case, when I leave, my body is sore from the shivering. I think I've described it before as a full body quake
There are probably more, but I can't think of any offhand. Unless you've done both, it's really hard to say what the other goes through. It's more than just sitting in a chair, there are so many other factors involved.
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I agree with the above... But with PD it is a 7 day thing......... Sometimes you just don't want to do it....... But you do it......... In fact today I am doing a double treatment... Just disconnected with a total ultra filtration of just over 1900ml I want to take another 1500ml off.....
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I did PD for 4 and a half years before I started hemo, plus I did it for a year and a half while I was a child, so I do understand how it works. It is a different thing. PD is not as hard on the body as hemo is. It's much gentler if done right, and Mr. Ken, I'm not sure if it's being done right with you. I can't imagine doing more than 2000mls in a fill, unless you were an incredibly huge person, like Shaq, maybe. I think that would be incredibly uncomfortable
Sp mod Cas
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Also, you can hold meetings in your office while PD drains - just pull up close to the desk and nobody will even notice. BTDT.
If you have any residual renal function, PD preserves it longer whereas HD accelerates the decline.
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Also, you can hold meetings in your office while PD drains - just pull up close to the desk and nobody will even notice. BTDT.
:laugh: Just discretely connect the hose..... Excuse me folks while I drain.......
If you have any residual renal function, PD preserves it longer whereas HD accelerates the decline.
Yep PD has a lot of advantages but it is so LONG time wise...........
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Riki, the one thing I can fully agree about, though I have never done PD, is not having to deal with the idiot patients who have to have their TVs turned loud or looudly talk on the phoe. I would add one other, popping chewing gum. I simply do no understand what makes some think they have the right to intrude on everyone else's personal space. I fully understand why teachers forbid gum in classes. There are times I would love to ask to be disconnected just long enough to slap the gum from their mouths.
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Can't say any of the four social workers I've had did anything for me.
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Can't say any of the four social workers I've had did anything for me.
This particular case I explained to Tom in detail what my issues were and how the dialysis treatments are affecting those issues. Asking for help and having hi response with I am not your personal secretary and abruptly leave is unacceptable. He is a worthless piece if crap. He better not come pouncing around with something for me to sign because I will give him a ten minute lecture before I kick him out.
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I've found dialysis social workers to be useful for basic insurance questions.
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I've found dialysis social workers to be useful for basic insurance questions.
In their best interest yes to make sure the facility gets paid...... Other than that it is best to call medicare or the insurance company directly. Because Dialysis impacts many things a social worker is someone you should be able to lean on for help with issues that are impacted by being on dialysis.
A social worker has a job to serve the patients... I am not done with this piece of crap. I just placed a call into the manager of the facility... I could roll with a lot of punches with high tolerance but in this case Tommy would be FIRED! Sorry you do not fit in with our values here..... Not only is he part time he would be no time.
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Mr. Ken, I'm not sure if it's being done right with you. I can't imagine doing more than 2000mls in a fill, unless you were an incredibly huge person, like Shaq, maybe. I think that would be incredibly uncomfortable
Oh know it is very uncomfortable. I am a little big but enough is enough....... The Kt/V number is around 1.2 they need to see 1.7 so they say....... Longer dwell time, more solution, and extra exchange...... I told them this is it.... I do not give a crap what the Kt/V is. I am not going higher than 2800ml or am I doing more than 5 exchanges..... I gave into this not anymore though. Already at the impractical border..
Then of course you are told if you go for transplant evaluation they are going to ask why you have not been compliant... That is when you get legal representation to have them answer the question as to reasonable and impractical. It is all a numbers game..... I am going through hell because of it...
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Now since we have "sorted" the unwillingness of "our" charities and organisations, would it be perhaps a good idea to write about this to your MP ? Or is there perhaps a chance to ask someone else at the Council ?
Council would be useless, am considering writing to my MP, in the new year.