I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: jambo101 on October 28, 2018, 12:32:42 AM

Title: When starting dialysis
Post by: jambo101 on October 28, 2018, 12:32:42 AM
How many treatments before one feels an improvement in health?
Title: Re: When starting dialysis
Post by: Michael Murphy on October 28, 2018, 12:43:52 AM
In my experience it could take several weeks.  First they don’t start you at the time you end up at, in my case they started me at 3 hours and gradually increased it to 4.5 hours.   Second they may also start you at a lower pump speed.  Finally if you started before you felt bad there may not be a major difference after treatment.
Title: Re: When starting dialysis
Post by: rcjordan on October 28, 2018, 06:18:34 AM
And how is your hemoglobin?  If it is low, it takes some meds/time to get it back in range.  Though I was in generally good health other than ESRD, I felt very weak for a couple of months.
Title: Re: When starting dialysis
Post by: Charlie B53 on October 28, 2018, 08:27:58 AM

How you feel depends on a lot of things besides just getting your treatment time in.

How well you control your diet, fluid intake, and how well your Labs come back all play a huge part in how well you will feel.

It takes serious attention to diet, meds, maybe even physical activity to regain health and feel better.

That is going to take some effort on your part as well as some education.

If you haven't already start reading up on Renal Diets.  Lots of good advise there so you can make better decisions on what to eat and what to avoid that you may still be eating and drinking.
Title: Re: When starting dialysis
Post by: GA_DAWG on October 28, 2018, 09:51:07 AM
Something I was told would happen, and it did, was after they were able to begin using a graft, or fistula, it became easier than when they were using the catheter. As noted by others also, it becomes easier if you are able to make the transition to the renal diet and the accompanying fluid restrictions. If you are able to accept them and adapt to them rather than fighting against them, it becomes easier. It is much easier to have 2 kilos removes than to have 4.
Title: Re: When starting dialysis
Post by: kristina on October 28, 2018, 01:11:23 PM
How many treatments before one feels an improvement in health?

I instantly felt much better, mainly because I was totally relieved that dialysis-treatments are not as bad as I had feared and my body felt much better shortly after starting dialysis as well and I also realized that I was able to concentrate much better again and became my own self again. I also realized pretty quickly one of the most important survival-tools of dialysis for me i.e. the more rigid I adhere to my fluid-restrictions and my diet etc., the better is my quality of life.
Good luck wishes from Kristina. :grouphug;
Title: Re: When starting dialysis
Post by: kitkatz on October 28, 2018, 01:41:52 PM
As others have already said, it is up to you and your involvement in your care and treatment.
Go to dialysis regularly. Do not skip.
Watch your fluid intake if needed.
Watch your diet.  Read about it.
See your renal team regularly.  Ask questions. Get answers.
Title: Re: When starting dialysis
Post by: Mr Ken on October 28, 2018, 05:39:58 PM
Believe it or not I felt better before HemoDialysis even with ESRD. Sound crazy but true for me..... Hemo takes a lot out of you. The process hammers your electrolytes. The hardest part for me is the beverage restrictions. Big person big thirst. Problem is it goes in but foes not come out and Hemo and PD could only take so much out per session. PD is more difficult with fluid extraction than is with Hemo having a machine filter it out.   

Ken
Title: Re: When starting dialysis
Post by: Michael Murphy on October 28, 2018, 07:26:48 PM
The reality is dialysis is a commitment to a restrictive diet,a. never ending series of medical treatments and doctor appointments.  These doctors include more than nephrologists dialysis put a strain on the heart and a yearly visit to a cardiologist is probably a good idea for most patients.  I became lost in the number of doctor visits and did not see my cardiologist for 2 years.  Result 2 years ago a major heart attack with the end result of a added benefit of vtach which caused implantation of a defibrillator and twice a year visits for checks.   ESRD is a tough task master, however the future should not look all gloomy work is being done on a Implantable Artificial Kidney which may eliminate most of the BS.
Title: Re: When starting dialysis
Post by: kristina on October 29, 2018, 06:56:32 AM
ESRD is a tough task master, however the future should not look all gloomy work is being done on a Implantable Artificial Kidney which may eliminate most of the BS.

Hello Michael, do you think an implantable artificial kidney might be under way i.e. during our life-time?
I do hope so very much, but I have not heard anything definite about it yet.
Best wishes from Kristina and thanks for answering. :grouphug;
Title: Re: When starting dialysis
Post by: cassandra on October 29, 2018, 11:14:27 AM
Hi Kristina, I found this article the most uplifting yet.
And depending on life-span, could be .......


  https://www.kidneybuzz.com/artificial-implantable-kidney-is-beginning-to-transition-and-gear-up-for-human-testing/2018/1/29/artificial-implantable-kidney-is-beginning-to-transition-and-gearing-up-for-human-testing
Title: Re: When starting dialysis
Post by: kristina on October 29, 2018, 11:44:32 AM
Hi Kristina, I found this article the most uplifting yet.
And depending on life-span, could be .......


  https://www.kidneybuzz.com/artificial-implantable-kidney-is-beginning-to-transition-and-gear-up-for-human-testing/2018/1/29/artificial-implantable-kidney-is-beginning-to-transition-and-gearing-up-for-human-testing

Many thanks Cassandra, this link certainly gives lots of hope to many and I thank you so much to give me a much needed uplift ! And it was ever so sweet of you and is very much appreciated ! ! :cheer:
Title: Re: When starting dialysis
Post by: coldhoist on October 30, 2018, 08:18:24 PM
To be honest, I felt better after two or three treatment. Before I started dialysis, I felt like crap. Afterwards, I felt like I had been given my life back. But, now after two year of treatment, I feel like crap again.