I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: Whamo on February 06, 2018, 08:06:13 AM
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What do you eat/drink when you feel wiped out by dialysis treatements?
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Whamo....Hello.
Maybe I can be of a little assistance. Firstly, I am the girlfriend of a guy on dialysis. We have been together for almost 5 years so the suggestions I am offering are based on how he eats.
When we first moved in together I thought I was going to make these, "Big Meals" and he was just going to eat whatever I wanted to make and eat. No...no no...My first lesson was his eating habits and my eating habits were very different.
For the most part...I tried to adopt his way of eating....and I was starving....When I joined w.w. To lose weight I actually felt like I just received the Golden Ticket. I wasn't losing weight because from what I have gathered....I wasn't eating enough and my body was holding on to every ounce I gave it. As soon as I introduced more food to my diet....the weight started disappearing....
Anyway.....I hope I haven't bored you with my backstory.
So....He will text me and ask me to make him a sandwich usually. I will make him roasted turkey or ham. He also likes grill cheese. He enjoys soups....sometimes with a sandwich. Also, I have been buying a whole chicken and pulling the meat off and having chicken salad on hand and if it's there he will eat that.
Most recently he brought home the Spice it up Renal Diet Cookbook (pamphlet). I have been making the, "No Bake Energy Bites"
1/2 cup natural peanut butter
1/2 cup liquid honey
1 tsp vanilla
1/4 cup ground flax
2 cups of rice cereal
* you can use regular peanut butter
Add peanut butter, honey and vanilla. microwave for 30 sec.
To the same mixing bowl add ground flax and rice cereal
Mix well to combine
Chill rice crisp mixture for 10 minutes in the freezer
Roll into 16 balls
Place in a container and cover. Refrigerate
Per two balls
Renal exchange 2 starch
Calories 213 Kcal
Protein 5g
Carb. 29g
Fibre 2.5g
Total fat 10g
Sat fat 1.3g
Cholesterol 0mg
Sodium 41 mg
Potassium 157mg
Phosphorus 90mg
I double or triple the recipe when I make them.
He also will grab a granola bar with a side of nuts.
My observation is...if food is there and prepared he is more likely to eat. If for some reason he comes home and has to make it himself....it will be something that requires the least amount of energy...This is when he'll grab a granola bar and some nuts.
Also likes Tuna Salad and Egg Salad
Cheese sliced up with grapes
An apple sliced up
A lot of time what he eats is what I would consider appetizers....:)
I bought turkey patties. For awhile he was asking for, "A Turkey Wrap" all that was was the patty wrapped in a tortilla.
I hope this helps...
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Usually either a honey smoked turkey or roast beef sandwich with a few chips of some kind. Every now and then, usually a Friday, a Sonci cheeseburger and small chocolate shake. Sometimes a cupcake or slice of cake if the kids have somehow managed not to eat them all. Then it is time for a good nap.
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Most times I have a "clinic-approved" protein-rich nutrition bar and a small bowl of a fruit salad from a Davita recipe. Dinner later.
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I need to eat after dialysis. Used to tear up and cry. Nothing to eat in house unless I prepped it.
Hubby and I are getting dinner meals from Mom's Nourish care online delivered to us. Makes dinner prep so easy after dialysis.
They make diabetic and renal friendly meal plans, so we are both covered.
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I'm on the evening shift at dialysis, so don't normally get home till around 10:30pm or so. On Monday nights, I have a treat. I get bacon garlic fingers from Domino's because if you order online on Mondays, they are half price. On other nights, I just have an iced cappuccino from Tim Horton's and sometimes my mom will have a pizza ready to go in the over when I get home, or she's picked up subs. I'm usually as hungry after dialysis as I am thirsty, and that iced cappuccino really hits the spot, and because it's partially frozen, I can usually make it last an hour and a half or so
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I too am often ravenoously hungry after treatment. I told my doc I suspect there is THC in the dialysate.
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I take a zip lock kbag of cereal, either frosted mini-wheats or honey oat Cheerios (or generics) and an apple with me to treatments, snack on one, or three pieces at a time taking most of my treatment time to finish my cereal. Then scarf the apple so I can be done before they are ready to pull needles.
I get home and make sandwich for Wife and I both. She's half blind and would be sure to make a mess if allowed much in the kitchen.
Cigarette in the garage then a nice long nap. Now that my nap is over I need to start thinking what I am going to fix us for dinner. Polish,, kraut, small potatoes. I nuke a bag of cole slaw mix to add in, it really helps to tame the kraut more than the potatoes can.
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I always take a couple of pears or apples, pre cut and cored in a Tupperware box, and an hour or so into the session a domestic brings a couple of cheese sandwiches, even so, when I get home around 9:30 pm I'm ravenous, and need a mug of tea, and two or three slices of toast then ciggie and bed. Sleep like a baby then.
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Watch the peanut butter. Very high in potassium.
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Cappuccino? Tea? Lord I barely allow myself a mouthful of water a few times a day, and some of you actuall have a CUP!!!
I allow my ONE cup of coffee every morning. If we go out to eat I get a glass of ice only and allow myself that one mouthful that melts while we are there to take my binders.
I did splurge the other day and had one of those SMALL Free Frosties at Wendy's. I felt like I was in Heaven for a little bit. I should have taken another binder cause it was chocolate.
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Cappuccino? Tea? Lord I barely allow myself a mouthful of water a few times a day, and some of you actuall have a CUP!!!
I use Coffee or beer as a reward for good behaviour. If I kept my water intake down during the day I can have either a 200 ml cup of coffee or a 250 ml bottle of beer in the evening. As to tea, the clinic give us a 200 ml cup of tea during dialysis, with cookies, then add an extra 200 ml on to whatever quantity they are dialysing out of us.
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Lord I barely allow myself a mouthful of water a few times a day, and some of you actuall have a CUP!!!
I allow my ONE cup of coffee every morning.
This may sound stupid but I do not understand why you are so hard on yourself about fluid intake.
I have a spreadsheet; one sheet for dialysis days; one sheet for non-dialysis days and one sheet for my two day "weekend". I have discovered that I can consume about 30 fl oz on any combination of days and only have to take off 1.5L (plus .5 for rinse back) and be perfectly fine. Today was 1.4 plus .5 which brought it t 1.9 to take off. My pressure is monitored automatically every 30 minutes. If it starts to slide up or down alarmingly, I raise or lower my feet appropriately and problem solved. My sessions are 3h 15min. It took me quite a while to come up with my method but it has been working like a charm for 6 months. On off-days I drink 6oz of coffee. On dialysis days I drink 3 oz of coffee. The 7oz "mini-cans" of ginger ale, Sprite and water are just right for me.
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This may sound stupid but I do not understand why you are so hard on yourself about fluid intake.
It may be a food thing for him. My eating pattern varies, and I know that the less I eat the more I can drink and vice versa. Possibly Charlie eats more food than you, so has to be stricter with liquids.
Incidentally I don't know why you do so much work with spreadsheets and things. I simply know how much I can drink (in litres), Then as I drink stuff I deduct that mentally from my daily maximum. Come evening time, if I have kept under my daytime limit I get my beer or coffee reward, if not - I sulk until bedtime.
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I like food. This may be the reason I am not losing the extra weight as fast as I could. Example, Friday was the first of this seasons Fish Fry at the Church. Of course we went to St Pat's as they are about the only place that is still 'All You Can Eat', and I really miss living in Puget Sound and having Cod more often. Here in the Heart of the U.S. it is rare to find decent cod in the stores. So when St Pat's has cod I am there! 5 big pieces, along with tarter sauce, green beans, I've no doubt the water content is going to show on the scale Monday. But I will do it again this next Friday. It's only a few weeks and I've the whole rest of the year to stay better.
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Incidentally I don't know why you do so much work with spreadsheets and things. I simply know how much I can drink (in litres), Then as I drink stuff I deduct that mentally from my daily maximum. Come evening time, if I have kept under my daytime limit I get my beer or coffee reward, if not - I sulk until bedtime.
I do that because it gives me a trail of where I went wrong so I don't do it again. LOL Seriously, I have a bad habit of just opening the fridge and getting a sip of something or a handful of Sonic ice pellets sometimes too many times. If I'm committed to keeping a paper trail then I don't cheat quite as much and don't have too many surprises when I weigh in. I call them IBDB (Ice Box Drive Bys)
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People's fluid intake varies. Some people still make urine, and of those, some make more than others. Each person has to determine what their limit is. Some HAVE to be very strict about their intake, wile others can be a bit more loose.
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I call them IBDB (Ice Box Drive Bys)
I like the term!
And I used to be very Guilty of the offense. I used to keep a half gallon jug of water in the door and far too many times I would take a mouthful as I passed by.
It may be fortunate that I've replaced that jug with other drinks for my Wife that I rarely ever touch so now I have to run the sink until cold then take my mouthful and pour out whatever is left in the cup.
Still, I gotta stay out of that Chinese Buffet!
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:beer1;