I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: SweetyPie on December 02, 2017, 10:34:57 PM
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Hi all,
So its been a while now where I have very low blood pressure before during and after treatment like 80/60 near that range. Today I went to treatment today and my starting blood pressure meaning when I just got there not even connected yet it was 78/49. I eat well I feel bit my parents never think so lol. My doctor doesnt really say anything about it really but what could be the cause of it? Also I was clotting alot today because of the poor blood flow due to my blood pressure
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Not sure if you mean HD or PD. However if you mean HD:
80/60 is very low but not unusual for after dialysis (undesirable, but not unusual). However it is exceptionally low for before HD. My dialysis center would refuse to remove liquid if it were that low, just remove toxins. May even refuse that.
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Sorry I didnt clarify! I am currently on Hemodialysis :)
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What Paul says is correct, when your BP is that low, don't let them remove any fluid, till your BP is at least 100/60 before D.
Good luck Aaisha
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I want them to remove fluid because i hate going home swollen and not being able to drink much though
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Hi Aaisha I found this mail from November 2015. The post was from Noah Vale.
A few years back IHDer desertdancer and I were both experiencing low BP, but for different reasons. This is what we did to get answers...
I suggest you go to the Homedialysiscentral.com website, click on "GET ANSWER", then DR. AGAR, NEPHROLOGIST under the GET ANSWERS forum and post your story. Include everything - your D prescription (days per week/your run time/dialyzer/sodium modeling settin/machine temperature), meds you're on, blood work, operations/procedures you've had and whatever you think that could help dr Agar come up with suggestions for you to take to your med team.
Dr John Agar is a world renown nephrologist who is willing to share his knowledge with patients through that forumhttp://forums.homedialysis.org/forums/16-Dr-John-Agar-Nephrologist (http://forums.homedialysis.org/forums/16-Dr-John-Agar-Nephrologist)
Good luck my darling, Cas
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I want them to remove fluid because i hate going home swollen and not being able to drink much though
I know how you feel. Only yesterday I was aware my blood pressure was getting stupidly low (from the way I was feeling) and that I should call the nurse to check it. But I also knew he would reduce the amount of liquid being taken and I did not want that, so I kept quiet. As a result I passed out! And it could have been worse.
In short, what you and I are doing is perfectly understandable, but be aware that we are gambling with our lives. In my case, I have a lot of problems (not just kidneys) and have considered suicide several times, so gambling with my life does not seem that big a deal, but are you sure it is what you want to do?
Sp mod Cas
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Sorry, I should also add to my last post: Going home swollen is also a risk. You need to discuss the risks of dialysis under too low a blood pressure Vs the risk of liquid overload with a doctor you trust. He/she will be able to tell you where the best boundaries lie for you. This will depend on how low your BP goes, how overloaded you are, and what your body mass index is, and possibly some other factors too. A good doctor will not only be able to tell you the safest solution, they will also be able to advise you if you are not personally able to live with this solution, and between you, you should be able to work out a compromise position between "what is safest" and "what you want to do".
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Aaisha.Dar - Earlier today I answered an old post that was unanswered. I just realized that it was from you and may include some information useful to this question of yours. So unless you have already seen it take a look at : http://ihatedialysis.com/forum/index.php?topic=34015.msg519336#msg519336
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The thing with these adult doctors is they really dont care one bit. My doctor is aware of my blood pressure and my nurses always bring it ro his attention that im still have fluid that i need to remove and he doesnt seem to care. I straight up told the nurses you guys know more than the doctors I trust you on making these decsions. They are super caring and right away can tell when the fluid needs to stop being pulled. After all they are moms... moms know everything lol