I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: edger1 on October 04, 2017, 12:45:52 PM

Title: Stopped Taking binders; Pee again
Post by: edger1 on October 04, 2017, 12:45:52 PM

Anyone here ever stop taking their binders and start to urinate again? I am taking Velphoro. I ran out over the weekend and I urinate again. I think I'm being lied to, Velphoro was also causing me small rashes on my skin and now they are fading away as I stopped taking them. hmmm

Title: Re: Stopped Taking binders; Pee again
Post by: kristina on October 04, 2017, 01:25:28 PM

Hello edger1,
I have been on (hemo) dialysis for a while (~34 months) & I have never been told by any medic to take binders & have never taken any.
My diet is very simple & I only eat my vegetarian food in small portions & adhere strictly to liquid-restrictions.
My kidneys still "produce" a little & I am very glad about it.
Best wishes & good luck from Kristina. :grouphug;

Title: Re: Stopped Taking binders; Pee again
Post by: Charlie B53 on October 04, 2017, 04:18:56 PM

3 1/2 years on PD with residual function making less than a liter a day.

Almost 11 months on Hemo still have my residual function at about a liter a day.

Since starting hemo I've had to also start taking massive amounts of binders plus severely restrict  potassium and phosphorus and most importantly, fluids, from my diet.   I am rarely much more than a liter over my dry weight.  I suspect keeping my fluids well controlled may help retain this residual function much much longer.  I also suspect this residual function is making my labs stay within reasonable measures.

Title: Re: Stopped Taking binders; Pee again
Post by: smartcookie on October 05, 2017, 07:35:21 AM

I have never heard of that, edger!  How odd!  Sounds like you might have an allergy to the medicine with the skin rash... I would definitely ask about switching binders!

Title: Re: Stopped Taking binders; Pee again
Post by: cassandra on October 05, 2017, 01:47:42 PM

Hi edger1 I found this info on www.medicins.org.uk[/font]
subject to additional monitoring. This will allow quick identification of new safety information. Healthcare professionals are asked to report any suspected adverse reactions. See section 4.8 for how to report adverse reactions.[/font]
1. Name of the medicinal product
Velphoro 500 mg chewable tablets


I gather your Dr has to report your side effects, and you could very well be allergic to Velphoro. Ask for an other.


Love, luck and strength, Cas