I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: kitkatz on July 25, 2017, 11:36:53 AM

Title: Telling your story survey
Post by: kitkatz on July 25, 2017, 11:36:53 AM

Hi there,

Ivy, lead anthropologist at Muse Storytelling, wants to hear your CKD story! Whether you’ve just been diagnosed, or you’ve long been on dialysis, she wants to hear from you! She’s looking to speak with as many people as possible to better understand the CKD experience, and it’s easy to get involved. 

You can follow this link to fill out a quick survey, then sign up to be contacted for an interview. Participation is voluntary, and those chosen for an interview will be compensated for their time.

https://musestorytelling.typeform.com/to/OgVaYu

Title: Re: Telling your story survey
Post by: smartcookie on July 25, 2017, 12:58:42 PM

Just curious, what is she going to do with the information? 

Title: Re: Telling your story survey
Post by: iolaire on July 25, 2017, 08:00:07 PM

Quote from: smartcookie on July 25, 2017, 12:58:42 PM

Just curious, what is she going to do with the information?

If you start the survey it says it's funded by a large insurance company who wants to develop free programs to help patients. Sounds like duplication of the education provided in center but might be helpful if you were in a smaller center not associated with the major chains.  I personally don't like my insurance co calling me to as basic questions that I covered years ago with my nephrologist.

I did survey but it feels like market research not content that would be a documentary or short like it appears they also make. If you plan to do the survey I recommend doing it on a computer and saving your answers since it does walk you through your personal story. I did it on phone and would have liked to keep my responses.

Title: Re: Telling your story survey
Post by: iolaire on July 25, 2017, 09:09:11 PM

Also if they call you back or talk to you in Portland they will pay you $20. I offered to be contacted but would feel better if this didn't just seem like a corporate research gig.  Obviously being part of some sort of podcast or documentary to help outs would be much more rewarding. 

Title: Re: Telling your story survey
Post by: Tora66 on September 20, 2017, 10:59:28 AM

Well, it'll be four years of dialysis for me come October 13, 2017.Hanging in there. Came close to getting a kidney last October. Prepped and everything then sent home. Gotta call this morning while at dialysis. Fourth in line. Not getting my hopes up.






Sp mod Cas

Title: Re: Telling your story survey
Post by: iolaire on September 20, 2017, 11:08:23 AM

FYI someone called from this survey about three weeks ago and left a message.  I keep meaning to call back and setup a time to talk after work, they should be in a West Coast time zone so that should work.

Title: Re: Telling your story survey
Post by: cassandra on September 20, 2017, 11:29:50 AM

Quote from: Tora66 on September 20, 2017, 10:59:28 AM

Gotta call this morning while at dialysis. Fourth in line. Not getting my hopes up.

You mean a call for a kidney?

Title: Re: Telling your story survey
Post by: Charlie B53 on September 20, 2017, 06:27:55 PM

I got a call, arranged for her to call me during treatment, I have lots of time then.

She did.  We spent a while, covered most everything.

Seems like a nice enough Lady.