I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Pre-Dialysis => Topic started by: lrgh on January 23, 2016, 06:40:00 PM
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The only real symptoms/noticable health issues I have so far are extreme tiredness and dull nausea. I used to get 7-8 hours sleep now I'm trying more for 8-9. But by the end of the work week I am really dragging, and Wednesday I was so tired I went to bed right after I got home from work.....so about 11 hours sleep. I also sleep a lot--and nap--on the weekend.
When I do get a lot of sleep, the nausea improves...the less sleep, the worse the nausea. Coincidence? My imagination? Or does this make sense?
Keep in mind that I wake up every couple of hours due to a high dosage of lasix. I recently went from stage 4 to stage 5 but am atill pre dialysis.
To what extent should I push myself to sleep less--is it "normal" to want to sleep a lot? I'm not depressed, I just physically crave/need a LOT of sleep. If pushing myself will make me "stronger" I'm willing to try, but I tend to think if I feel better with so much sleep I should do it. Unfortunately with work and general adult responsibilities, 11 hours of sleep a day isn't feasible:)
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The secret is to listen to your body, I went two years past the point my nephrologist wanted me to start dialysis I was not showing any symptoms that were negatively affecting my life. When I had my first symptom I started. My advise is to let the nephrologist know what's going on and if your body is saying sleep then sleep. Waiting to long to start and ending up in the hospital is bad, getting ready and preparing is good. As long as you are feeling good enjoy life with out dialysis. When you feel bad start dialysis.
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The only real symptoms/noticable health issues I have so far are extreme tiredness and dull nausea. I used to get 7-8 hours sleep now I'm trying more for 8-9. But by the end of the work week I am really dragging, and Wednesday I was so tired I went to bed right after I got home from work.....so about 11 hours sleep. I also sleep a lot--and nap--on the weekend.
When I do get a lot of sleep, the nausea improves...the less sleep, the worse the nausea. Coincidence? My imagination? Or does this make sense?
Keep in mind that I wake up every couple of hours due to a high dosage of lasix. I recently went from stage 4 to stage 5 but am atill pre dialysis.
To what extent should I push myself to sleep less--is it "normal" to want to sleep a lot? I'm not depressed, I just physically crave/need a LOT of sleep. If pushing myself will make me "stronger" I'm willing to try, but I tend to think if I feel better with so much sleep I should do it. Unfortunately with work and general adult responsibilities, 11 hours of sleep a day isn't feasible:)
lrgh - The extreme tiredness and needing to sleep are most likely related to the inherent anemia and uremic toxicity associated with kidney failure. The nausea is also related to uremic toxicity. Does it usually come on a couple of hours after eating? The remaining kidney function you have still allows for fluid removal with the help of diuretics. Unfortunately, your renal function is drastically compromised and your kidneys no longer have the ability to fully rid your body of the toxins.
To help with the anemia, have you been getting Procrit (or some other form of synthetic erythropoietin) injections to increase your body's production of red blood cells?
Have you been consulting with a renal dietitian? In what ways have you modified your diet? Have you eliminated high acidic protein - like red meats - from your diet in addition to cutting back on high sodium foods? Also, how is your calcium/phosphorous levels? It might be time to start taking phosphorous binders. Here are some good links on CKD diets:
http://www.renalandurologynews.com/nutrition/keto-acid-supplements-may-help-ckd-patients/article/174428/
http://download.springer.com/static/pdf/910/art%253A10.1186%252F1471-2369-15-137.pdf?originUrl=http%3A%2F%2Fbmcnephrol.biomedcentral.com%2Farticle%2F10.1186%2F1471-2369-15-137&token2=exp=1453612996~acl=%2Fstatic%2Fpdf%2F910%2Fart%25253A10.1186%25252F1471-2369-15-137.pdf*~hmac=1d68355cec4bebeac4029d73bf10188c32504b7d10ddd7241efcfdddb5da41d0
http://ihatedialysis.com/forum/index.php?topic=32256.msg494662#msg494662
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my neph put me on otc iron when i first started seeing him three years ago with stage 3. I was at stage 4 for most of the time in between and two weeks ago he told me my kidney function had fallen below 15%, i was stage 5 and that I needed to start thinking about what kind of dialysis I wanted so that I could prepare. He has not prescribed any more medication and has not recommended any dietary changes--I'm diabetic which already limits some things and after being hospitalized with congestive heart failure last month i'm super paranoid about salt and try to make everything from scratch to avoid it. Awhile back I asked him about some posters he has about avoiding phosphorous and he said that was for people on dialysis. I go back next month so maybe dietary restrictions is something I need to discuss?
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I go back next month so maybe dietary restrictions is something I need to discuss?
Yes!!! And have him refer you to a renal dietitian. Also, ask him what your hemoglobin is. If lower than 10.5 ask about getting Procrit injections to help with your anemia. Please read the links I proved above.
Wishing you well - PatDowns
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Thank you! I have a list of all my labs from last time, and my hgb is 11.8.
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my hgb is 11.8.
Then you are definitely not anemic at this point. Stimulating the production of red blood cells is one of the important functions of the kidneys buy producing erythropoeitin. 11.8 is normal. Your extreme sleepliness is probably not, and is the result of uremic poisoning from toxins your failing kidneys can no longer clear. Assuming your phosphorus levels are still within range, then you don't need to add binders/ But binders are not just for people on dialysis. Before dialysis, we are asked to reduce protein intake, whereas after dialysis we need to step it up and use binders to control the phosphorus payload that is part of nearly all protein foods.
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I might suggest one other thing. It may have been the excess fluid but before I started I was sleepy all the time. Turns out I also have sleep apnea. CPAP machine did wonders.
Another 6 or 7 hours on a "machine".
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i'm already on a cpap machine. They discovered i had apnea when I was hospitalized for pneumonia a year ago.