I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: talker on June 19, 2015, 08:46:19 AM
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How to write this up in a meaningful manner, without sounding crass!
While I'm both pleased, and yet sorrowful, regards the many posts stating ones health conditions here in the forum,
my actual good health condition, at this point, disallows, posting more about kidney events.
So yes, I'm on dialysis, yes, I do experience minor this or that.
So yes, I give thanks to a Higher Source, for those little miracles in my life.
Even responding to certain posts though, is very problematic for me.
How to share or sympathize, without causing an inner new hurt deep within me.
Am pleased with those that are able too, and do respond to posts reflecting serious difficulties.
Along with the sharing of similar problems, and on what had worked for one, and might help in the other posters difficulty.
Well, even if I'm unable to contribute info on serious kidney matters,
I try for what I hope is, contributing 'a worthwhile' something, to readers here on IHD, in some way, shape or form.
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Yes Talker you are a valued member of IHD. I personally cannot wait until your next post. Please be aware that your contribution is so, so, so important.
:flower;
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Please correct me if I don't understand your message correctly. I think you're saying that things are going well for you, so you have trouble sometimes relating to the problems that others experience. That's ok! I think you should still post, and your posts are very important. They're giving the message that dialysis doesn't always take away the ability to live a good life. Many people come here fearful that kidney failure means they have to entirely give up "living" and happiness. By telling them that it doesn't always have to be awful, you can give hope to someone.
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I second @Deanne's comment, its good to add positive views along side the more difficult discussion points.
I myself feel a bit odd asking and writing about trips around the world. But on the flip side I hope that those stories can be an inspiration to some to do their best to become healthy and compliant.
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Please correct me if I don't understand your message correctly. I think you're saying that things are going well for you, so you have trouble sometimes relating to the problems that others experience.
That's ok! I think you should still post, and your posts are very important. They're giving the message that dialysis doesn't always take away the ability to live a good life. Many people come here fearful that kidney failure means they have to entirely give up "living" and happiness. By telling them that it doesn't always have to be awful, you can give hope to someone.
Nope, actually just the opposite.
Am much too empathic when reading some posts.
(Have mentioned things related to this on my blog, if I recall correctly.)
It actually becomes painful to such a degree, that at times I must stop the further reading.
As for your "I think you're saying that things are going well for you", it is not by default, I work hard at doing things for desired results.
Do I always get my 'way' , nah, but get my way often enough 'to keep at it.'
While what things I actually do, are not for everyone, I do things, that folks at the dialysis center, say' you shouldn't be doing that'.
Shucks, for my age, and having gone 31 years with never a doctor visit, have to have been doing 'some thing right listening to that Higher Source'.
Bottom line is 'even with calamity and kidney events in your life, ya gotta 'not give up hope ever'.
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Hi talker i hope you are keeping well you say 31 years without a doctors visit wow that is great , for me like it was 46 years but sure nothing lasts and sure we are getting all the help we can till the transplant you can and will enjoy life to, it just takes some time but it is ok so keep up the good work and good luck . :bandance; :thumbup;
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On a similar note to iolaire's and others, I sometimes feel odd about posting, because my health is fine as far as I know. My daughter is the one on dialysis, and to be honest she feels very well too, sleeps through PD, and does the same things as her friends the rest of the day.
When I read some postings, I do see that others are having a much harder time of things. I think there is room to post an entire range of experience. People who are successful for a long period of time on dialysis have a lot to contribute.
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Hello talker,
please stay as you are and please don't ever change...
... I always read your thoughts and there is always much to learn from ...
... Of course, being diagnosed with ESRf is very stressful and can be traumatizing
and that is when IHD comes in "handy" to read how other ESRF-people
deal with their ESRF and their dialysis-sessions and how they go about it...
Best wishes from Kristina. :grouphug;