I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: micron on April 03, 2015, 06:14:48 AM

Title: Hello
Post by: micron on April 03, 2015, 06:14:48 AM

Hi,

I'm my husband's care partner and have lurked on this site since he was diagnosed with ERSD.  He's been in clinic dialysis for 2 years and we're almost through NXstage training.  I wanted to make an account in case we have questions (this is easily the most knowledgeable resource I've found on the internet).  I've enjoyed reading the threads and have found some great information here. 

A little about him: Diagnosed with T1 (adult late onset) diabetes in 2007 (late diagnosis so came with complications including Stage 4 kidney disease).  Lost most his remaining kidney function in 2013 after a cold turned into DKA and a trip to ICU.  Started dialysis afterwards.  Other complications include some GI issues like Gastroparesis and Exocrine Pancreatic Insufficiency. We're still sorting out the GI problems, which is the main challenge right now.  It's incredibly hard to keep doctors focused on the problem. 

Title: Re: Hello
Post by: Michael Murphy on April 03, 2015, 12:25:07 PM

Welcome to what I believe is the worlds best dialysis site!

Title: Re: Hello
Post by: Bambino_Bear on April 03, 2015, 07:08:45 PM

 :welcomesign;

Title: Re: Hello
Post by: micron on April 04, 2015, 08:54:16 AM

Thanks for the welcome!

Title: Re: Hello
Post by: Hootie on April 04, 2015, 12:00:12 PM

Welcome! NxStage has been a great machine for us and the NxStage technical support has been outstanding! They are very helpful.

Title: Re: Hello
Post by: cchalk11 on April 04, 2015, 11:26:36 PM

Welcome, you can get a boat load of useful info on here.

Title: Re: Hello
Post by: cassandra on April 05, 2015, 05:08:09 AM

Welcome to the site micron

     :welcomesign;


Take care, Cas

Title: Re: Hello
Post by: Athena on April 05, 2015, 05:40:17 AM

Quote from: micron on April 03, 2015, 06:14:48 AM

Hi,

I'm my husband's care partner and have lurked on this site since he was diagnosed with ERSD.  He's been in clinic dialysis for 2 years and we're almost through NXstage training.  I wanted to make an account in case we have questions (this is easily the most knowledgeable resource I've found on the internet).  I've enjoyed reading the threads and have found some great information here. 

A little about him: Diagnosed with T1 (adult late onset) diabetes in 2007 (late diagnosis so came with complications including Stage 4 kidney disease).  Lost most his remaining kidney function in 2013 after a cold turned into DKA and a trip to ICU.  Started dialysis afterwards.  Other complications include some GI issues like Gastroparesis and Exocrine Pancreatic Insufficiency. We're still sorting out the GI problems, which is the main challenge right now.  It's incredibly hard to keep doctors focused on the problem.

Welcome to this site Micron. There are always lots of questions to ask, so please feel free to ask.

From what I understand, your husband already had Stage 4 CKD when he was diagnosed with T1? Was it DKA when diagnosed with T1 that had damaged his kidneys?

Title: Re: Hello
Post by: micron on April 05, 2015, 06:17:10 AM

Quote from: Athena on April 05, 2015, 05:40:17 AM

Welcome to this site Micron. There are always lots of questions to ask, so please feel free to ask.

From what I understand, your husband already had Stage 4 CKD when he was diagnosed with T1? Was it DKA when diagnosed with T1 that had damaged his kidneys?

He was stage 3? before the DKA, and it sent him below the functioning threshold and into dialysis.  So the DKA did damage them the last few percentage points to qualify for dialysis. 

Title: Re: Hello
Post by: Darthvadar on May 26, 2015, 12:16:39 PM

Hello Micron...  :welcomesign; to IHD...

Visit and post often... We're always here for each other...

Darth... Moderator...