I Hate Dialysis Message Board

Dialysis Discussion => Advocacy => Topic started by: JW77 on November 25, 2014, 11:05:19 AM

Title: Call to Action via NKF re proposed Commisioning. Act Now
Post by: JW77 on November 25, 2014, 11:05:19 AM

Please take a look at the update from the NKF:

http://www.kidney.org.uk/home/news-2/dialysis-commissioning-full-briefing-and-urgent-call-to-action/



Do.. Fill in the NKF questionnaire.

DO write to, contact or email your MP, ASAP.

http://www.parliament.uk/get-involved/contact-your-mp/contacting-your-mp/






EDITED: Moved to advocacy area threads- kitkatz,Admin

Title: Re: Call to Action via NKF re proposed Commisioning. Act Now
Post by: iolaire on November 25, 2014, 11:35:04 AM

Quote from: JW77 on November 25, 2014, 11:05:19 AM

Please take a look at the update from the NKF:

http://www.kidney.org.uk/home/news-2/dialysis-commissioning-full-briefing-and-urgent-call-to-action/



Do.. Fill in the NKF questionnaire.

DO write to, contact or email your MP, ASAP.

http://www.parliament.uk/get-involved/contact-your-mp/contacting-your-mp/

Assuming MPs have offices in their home districts I suggest that for something that you seriously care about (like dialysis) you visit your MP's office personally.  In person you have the opportunity to make sure someone in the MP's office understands how serious change is for you and your fears.  Its easy to just send and email or a letter but at that point your activity is a minor statistic.

Title: Re: Call to Action via NKF re proposed Commisioning. Act Now
Post by: kristina on November 25, 2014, 01:56:40 PM

Quote from: JW77 on November 25, 2014, 11:05:19 AM

Please take a look at the update from the NKF:

http://www.kidney.org.uk/home/news-2/dialysis-commissioning-full-briefing-and-urgent-call-to-action/



Do.. Fill in the NKF questionnaire.

DO write to, contact or email your MP, ASAP.

http://www.parliament.uk/get-involved/contact-your-mp/contacting-your-mp/

Would it not be more efficient, if a group of ESRF-patients would meet outside Parliament,
voice their concerns and hand out prepared leaflets to MP's ?

Title: Re: Call to Action via NKF re proposed Commisioning. Act Now
Post by: JW77 on November 26, 2014, 06:25:34 AM

YES..  people are working on a peaceful protest as well:)  Personally I'm all for that. Its the only way to get a message out via the media...

Title: Re: Call to Action via NKF re proposed Commisioning. Act Now
Post by: kristina on November 26, 2014, 12:38:50 PM

When and where ?

Title: Re: Call to Action via NKF re proposed Commisioning. Act Now
Post by: JW77 on December 07, 2014, 05:45:12 PM

I'll keep you posted..

https://www.facebook.com/groups/DXCampaigners/

Is probably the place to keep up to date.

J

Title: Re: Call to Action via NKF re proposed Commisioning. Act Now
Post by: cassandra on December 13, 2014, 09:04:30 AM

Please could you update here too? For those who don't do FB?

Thanx already, Cas

Title: Re: Call to Action via NKF re proposed Commisioning. Act Now
Post by: JW77 on January 29, 2015, 02:21:08 AM

Up date from the NKF Press release.

Apart from the rather unfortunate wording in the title, its a temporary success for all those involved.

http://kidney.org.uk/assets/Uploads/PRESS-RELEASE-Commissioning-Victory.pdf

I would not say I was 'Frighted and sick and distressed' by the whole thing, 'rather angry, furious and ready to fight' :)

It's a bad move for the NKF to play the pity theme in the press release, but hopefully they won't do it again.

So, we've won, for now...:)

Title: Re: Call to Action via NKF re proposed Commisioning. Act Now
Post by: kristina on January 29, 2015, 07:28:31 AM

Thank you JW77 for informing us about the very good news.
I am so glad that we have won ... for now...
Let's hope "they" won't include us in future-NHS-upheavals ...
Thanks again from Kristina.

Title: Re: Call to Action via NKF re proposed Commisioning. Act Now
Post by: okarol on January 29, 2015, 02:30:51 PM

Mods: This is kidney related and should not be in off-topic.   :thx;