I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: KidneySinger on July 22, 2014, 09:15:08 PM
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I have been gradually losing my feelings in my feet. Sometimes there is a burning sensation and I take a lot of Neurotin to help with the nerve pain. Interestingly enough, I do not have diabetes as this is common the get Nuropathy. It seems to be more than that. I can't feel my toes anymore and it seems to be gradually effecting my feet up to my shins. Any suggestions?
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Neuropathy is not confined to those with neuropathy. Nonetheless, I would definitely get it checked out to make sure that there is nothing else that could be responsible fir your symptoms.
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I think you really need to see a neurologist. This isn't normal.
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That's what happened to me, but fortunately it stopped with my feet. Neph told me it was Renal Neuropathy. Still there after my transplant and the team is telling me it will likely be there for the rest of my life.
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Do you have any circulation problems in your feet and legs?
Swelling/edema?
I've had both. Reduction in circulation caused by plaque in the iliac arteries, greatly improved with placement of stents on both sides.
I have some minor nerve damage, some tingling, small numbness. Generally not much damage for what I've put my feet through.
Used to have terrible swelling in both legs. From the toes all the way up into the lower thighs. The lack of blood pressure from the restricted arteries prevented blood from pushing back up and out of the legs. Without the very tight compression hose both legs would swell so big and tight that the skin would look clear and glassy. The clear sera would leak thru the skin and run down my shins, often leaving a sore about 1 1/2 inches wide and up to 5 inches down the shin. Scabs would form, taking off the socks the scabs woiuld be more or less glued inside and peel off, making the whole area bleed. Occasionally one would get poussy (Sp?) infected, and I'd spend a few days in the hospital.
Since I started PD little over a year ago there has been NO swelling. Other than a tiny amount if I've eaten a salty meal.
Dr's blame my smoking. I blame mostly poor diet and almost total lack of any aerobic exercise. I was strong, almost a monster. Lot of heavy lifting, but very slow paced, careful exertion so as not to tear muscles. Outside sex, never raised my heartbeat. That's not a good thing.
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My husband does not have diabetes either but does have peripheal neuropathy (sensory nerves) which was confirmed via a sural nerve biopsy (taken from ankle)...the nerve appeared like a sausage does where the end is clamped...the messages take a long time then to get to the brain so delayed messages and heightened sensitivity until losing feeling...and yes, burning, tingling etc
not reversible and now has lost feeling to above the knee...1999-2014 he is now at 7% kidney funtion and not yet on dialysis (BUT) has finally said he may be by next month!!
He still has plenty of blood circulation which is a good thing,( and no real swelling,)hopefully yours is good too. My husband has learned to live with it, but please keep an eye on your feet for any damage.
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Lipoic acid is a supplement that may be helpful for neuropathies....in that it helps protect the myelin sheath around the nerves. I don't think it can reverse it, but I think it can help protect what is left.
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Like everyone here mentioned keep an eye on your feet. I have diabetics and right after coming back from vacation in Hawaii, I noticed my right foots big toe starting to turn a darker color. So I'm sitting in my hemo chair, watching as my toe got blacker and blacker, finally the doctors referred me to a cardio doctor who did an angioplasty procedure on my right leg, prior to that I had a CT scan and it showed heavy calcification build up in both legs. Well after 2 attempts the doctor said out of the 3 main arteries down my leg the one on top was completely blocked, the middle one was okay but very small veins, the bottom of my foot they were able to put some stints but after an hour it collapsed. So they said so sorry but there was nothing that they could do, and now 3 of my toes were starting to turn black and eventually became mummified. It was at this point that my Kidney doctor suggested a hospital up in Chiba prefecture in Japan and to see a Dr. Misume who is one of 3 surgeons in the world who does angioplasty using a rotor blade drill, kinda looks like a tiny dremel bit he told me he might be able to help me and admitted me to his hospital which was a year old. I arrived on Saturday and on Monday he did the procedure, after the procedure he said he cleared as much as he could, but looking at my feet he said I would have to lose something. He also noticed some blockage on my left side of the heart so he scheduled me for another one on Friday, I asked him to also run down my left leg to clear it up. No problem, he's very quick as he bounces between 6 operating rooms to do the angioplasty. The second surgery took about a hour. He then said we were free to go back to Okinawa, to do my right foot, but he said if only I had come in a few months earlier he could have saved everything. Got back to Okinawa and discussed with the surgeons where to cut they wanted above the ankle but I said whoa, look at the back half of my feet they look like there's circulation going on there, well he said it's a 50/50 shot, I said lets go for it, but I told him while I was knocked out if it looked real bad to go ahead and do the above ankle amputation. Woke up with half a foot and I am now back at work, still have to use a wheelchair and crutches and because my circulation is poor it's taking a while to heal. On a good note the wife and I are pushing ahead with our in center training to do home hemo. Target date is Oct. and I can't wait. Sorry for the long story, but being in the hospital from April through August is not fun and yes Japanese hospital food sucks.
So yes, take care of your feet. :thumbup;
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So yes, take care of your feet. :thumbup;
Sorry to hear your story, but glad to hear that you found some options to improve things in the leg.
A gentleman across from me in the center seems to be going through something similar, but I think he might have gangrene in the foot, but its been months now and nothing really has happened other than at this point he now needs a wheelchair - it looks very rough.
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I lost all feeling in my feet and my hands (with painful tingling and numbness) after A MSSA infection (caught in hospital) after a femoral line replacement.
This kind of infection can do a severe amount of nerve damage, including to the heart.
After two years it is a lot better but not 100%. It affected my ability to balance and to walk, and my fine motor skills in my hands.
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Do you take a good multivitamin? Often magnesium or the B vitamin deficiencies can cause similar symptoms. The multi I got from the nephro isn't nearly enough to cover what I lose in dialysis.
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Do you take a good multivitamin? Often magnesium or the B vitamin deficiencies can cause similar symptoms. The multi I got from the nephro isn't nearly enough to cover what I lose in dialysis.
Do you take your multivitamin afterdialysis rather than before?