I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: Hemodoc on April 04, 2014, 11:24:52 AM

Title: How did you hear of IHD?
Post by: Hemodoc on April 04, 2014, 11:24:52 AM
On another thread, several people have voiced that we should change the name of IHD to one that is less negative. I believe that IHD is actually a marketing stroke of genius since many find this site by putting a simple Google search of "I hate dialysis" and come directly to this link.

I believe it would be quite interesting to see how people found this site. For me, I found it by another Google search looking into daily dialysis. How did you find this wonderful site created by Epoman?
Title: Re: How did you hear of IHD?
Post by: iolaire on April 04, 2014, 11:28:39 AM
Travel dialysis searches.
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 04, 2014, 11:33:06 AM
Travel dialysis searches.

Interesting, did you see Bill Peckham's travel articles in that search?
Title: Re: How did you hear of IHD?
Post by: MooseMom on April 04, 2014, 12:17:15 PM
I found IHD while googling dialysis.  I learned about all modalities from this site before my neph even mentioned the word "dialysis".
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 04, 2014, 12:19:37 PM
I found IHD while googling dialysis.  I learned about all modalities from this site before my neph even mentioned the word "dialysis".

Did you vote above?
Title: Re: How did you hear of IHD?
Post by: MooseMom on April 04, 2014, 12:25:02 PM
I have now!
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 04, 2014, 12:31:30 PM
I have now!

Thanks Moosemom, remember, this is not a presidential election so you are only allowed to vote once here on IHD.  ;D
Title: Re: How did you hear of IHD?
Post by: cdwbrooklyn on April 04, 2014, 12:35:46 PM
I found this site by searching for more information on dialysis.  I was very curious what people were saying as I like to hear other people comments on different topic.  However, I’ve shared this site with many patients not sure if they logged on.  Also, I shared this site with my GYN as he has a friend in India that needs dialysis but too poor to pay for the machine.  So my GYN wants to purchase the machine for his friend.  Also, not sure if he logged on as well.
Title: Re: How did you hear of IHD?
Post by: MooseMom on April 04, 2014, 12:45:32 PM
I have now!

Thanks Moosemom, remember, this is not a presidential election so you are only allowed to vote once here on IHD.  ;D

Are you sure I'm really MooseMom?  Shouldn't you be asking for ID? :P
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 04, 2014, 12:58:00 PM
Sure, ask for ID. They did at the DNC convention:

http://www.theblaze.com/stories/2012/09/03/dems-dont-seem-to-oppose-id-requirements-when-it-comes-to-their-convention/

 :Kit n Stik;  Too funny, you stole my thread Moosemom. Wait, I stole own thread.  :oops;

Question, can Epoman vote as well? Is he still a member or has he been purged?
Title: Re: How did you hear of IHD?
Post by: MooseMom on April 04, 2014, 01:01:35 PM
:Kit n Stik;  Too funny, you stole my thread Moosemom. Wait, I stole own thread.  :oops;

I think this is where I start asking you, "How are things in Idaho these days?" and "Are you doing lots of fun things with your adorable grandPrincess?"  LOL!

This is a good thread, hemodoc, and I am really interested in everyone's answers!
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 04, 2014, 01:05:06 PM
:Kit n Stik;  Too funny, you stole my thread Moosemom. Wait, I stole own thread.  :oops;

I think this is where I start asking you, "How are things in Idaho these days?" and "Are you doing lots of fun things with your adorable grandPrincess?"  LOL!

This is a good thread, hemodoc, and I am really interested in everyone's answers!

Come on Moosemom. stop sending me personal posts in an open thread. My goodness, the post police will surely sanction us for sure. :sir ken;

But to answer your question, a bit of a cloudy day with rain in the forecast for the next three days. I have about 40 more minutes on my "torment machine" and then off for the rest of the day. We switched to early morning sessions and get done between 1-2 pm which gives us the rest of the day and I get the energy boost from dialysis during the day instead of just before going to bed. How is your winter wonderland in the midwest?
Title: Re: How did you hear of IHD?
Post by: iolaire on April 04, 2014, 01:13:28 PM
Travel dialysis searches.

Interesting, did you see Bill Peckham's travel articles in that search?
Yes but the recent articles are re next stage which is not relavent.  I did read about his Singapore trip and it seemed like he had access to facilities that I do not, I.e. SQ NKF said their centers where for low income only and sent a list of private centers.

But I could have learned of of his site here b/c the rafting  post was at the top of the section.
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 04, 2014, 01:16:59 PM
Travel dialysis searches.

Interesting, did you see Bill Peckham's travel articles in that search?
Yes but the recent articles are re next stage which is not relavent.  I did read about his Singapore trip and it seemed like he had access to facilities that I do not, I.e. SQ NKF said their centers where for low income only and sent a list of private centers.

Bill has South America and the Antarctic to complete dialysis on all seven continents. Quite remarkable really.
Title: Re: How did you hear of IHD?
Post by: MooseMom on April 04, 2014, 01:26:58 PM

Come on Moosemom. stop sending me personal posts in an open thread. My goodness, the post police will surely sanction us for sure. :sir ken;

But to answer your question, a bit of a cloudy day with rain in the forecast for the next three days. I have about 40 more minutes on my "torment machine" and then off for the rest of the day. We switched to early morning sessions and get done between 1-2 pm which gives us the rest of the day and I get the energy boost from dialysis during the day instead of just before going to bed. How is your winter wonderland in the midwest?

Oooooh, sanctions!  Sounds like more fun than the vacuuming I need to get done once I finish derailing your thread.

Spring is definitely here, but it's chilly and incredibly windy at the moment.  Good day to be indoors stealing threads.  LOL!

Hemodoc, do you travel much with your machine?  I know you go back and forth from CA to ID, but do you do much travelling elsewhere?

How did YOU find IHD?
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 04, 2014, 01:36:27 PM
Just house to house, but we don't have the house in CA any longer. The machine does weight 75 pounds so it is not all that easy to travel for many people. I must confess that I am quite content right here in Idaho, so we do day trips and some overnights without the machine after dialysis is done. It is certainly doable, but quite a bit of work from what Bill and RIch, God rest his soul, talked about on more than one occasion.

I must admit to not having a lot of wanderlust any longer.   Hats off to Harvey and all those that have made travel a huge aspect of NxStage. Some are quite adept at getting to some remote places. In my younger days I was blessed to see this country up close and personal. I am quite content to stay and play with the grandkids right now.

Who knows, maybe someday in the future.

Better be quite, I think I hear the post police coming. :cheer:
Title: Re: How did you hear of IHD?
Post by: MooseMom on April 04, 2014, 01:44:29 PM
Satisfying one's wanderlust can be fun, but there's something comforting in growing older and being happy in your dream home in Idaho.  I don't blame you one bit!

I wonder how many people find IHD like iolaire did, ie, searching for information on how to travel while on dialysis. 

Title: Re: How did you hear of IHD?
Post by: kristina on April 04, 2014, 02:28:20 PM
.
Title: Re: How did you hear of IHD?
Post by: kristina on April 04, 2014, 02:29:28 PM
After being told in August 2006 that I would be on dialysis within six months, I was completely frightened and panicked.
When my mind was reasonably straight again, I frantically researched on the Internet
for a kidney friendly diet through which I could avoid dialysis for as long as possible and I found IHD.
Before finding IHD I had tried a few other sites but there was no real inspiration...
When I came to IHD I asked other members about kidney friendly diets and found great help...
... many IHD members were assisting me and I remember Chris searching through all this papers
until he found more details on low potassium vegetarian food and then he sent it to me...
... that was a very decisive moment for me because it started my very refined diet going...
I am very glad I came across this information because it gave me much more time...
... A few weeks ago it looked as if I really had reached the point of needing dialysis now,
but with the new developed treatment of "Mircera" my Urea (bun) and Creatinine levels have improved ...
... if I would have not searched for a kidney friendly diet all those years ago,
I would have been long on dialysis and with my current "Mircera-treatment" I could win a little bit more time  ...
...but in August 2006 when I was diagnosed with ESRF and only six months until dialysis,
 "Mircera was not even on the market yet...  my hope is that in the future many more medicines will be developed to assist us ...
Title: Re: How did you hear of IHD?
Post by: Charlie B53 on April 04, 2014, 05:08:24 PM

I just looked to remind me when I started here, Jan this year.  I started PD end of May last year.  It has been going well other than my site kept getting 'oblonged'.  That area is numb from nerve damage done years ago with my triple by-pass.  I never noticed if my hose was pulling during draining and re-filling.  A little adjustment of where my pole is during exchanges and no more problem.

So 6 months in I Googled Dialysis forums, and started reading.  Davita site didn't have any current traffic, IHD had lots of traffic, making it a no brainer which site to join.

I've learned a lot here, and am the first to admit that I don't really know anything, which makes this a great place to learn from each other.

As been said before, Experieince is often the best teacher.

Wishing it wasn't so, and all of us could be 'normal' and healthy again.

Charlie B
Title: Re: How did you hear of IHD?
Post by: noahvale on April 05, 2014, 11:40:57 AM
^
Title: Re: How did you hear of IHD?
Post by: Michael Murphy on April 05, 2014, 01:20:36 PM
when looking for info on dialysis IHD turned up and for some reason I was drawn to it.  I find Dialysis very restrictive.   I have to be there 3 times a week for 4 Hour and 15 minute treatment.  Now I make a point about not being late or missing appointments and The critical thing on my schedule is dialysis every thing else is scheduled around it.  I have to watch what I eat, spend a long time stuck in a amazingly uncomfortable recliner and I do these thing because they benefit me.  The only rebellion I am allowed is announcing that as I leave Fridays that I am not coming back this week.  Then I found IHD and my feeling about dialysis found a channel.  I wasn't alone in this love hate affair.  I even found my new favorite tee shirt, DIALYSIS: DAMNED IF YOU DO,  DEAD IF YOU DON'T
I have learned more on this site then from all the time spent with the Doctor,  For god sakes I would never know there was a fruit that could kill me(Starfruit) without this site.
Title: Re: How did you hear of IHD?
Post by: kitkatz on April 05, 2014, 05:35:09 PM
I was nine years on dialysis and was searching for information or a group to join and ran across the name on the bottom of a site.  I went onward with my search then a few days later went back because of the name.
Here I am six years later.
Title: Re: How did you hear of IHD?
Post by: grannyM on April 05, 2014, 06:49:12 PM
I seldom comment but read  IHD often.  I seldom login because I am not to login at work but can read the site.  So I have login at home and answering the question. How I fond HID.  I just typed a search, kidney forum, and IHD was in the list.  I went to the other forums first and they had little current comments. I was not crazy for the name IHD and thought it might be just a group to be negative and complain.  A few years later and I actually started dialysis I went back to IHD because I really, really, hate it, feel negative, and would like to complain about this barbaric treatment. My first week, I was freezing cold, sitting in the chair, and the only thing to warm me was my own blood lines...I almost had a screaming attack....   I asked the staff for information for group support,, NONE.... I asked for internet support... and only given Divita  and national kidney groups.  I asked questions and was told, you just come sit here and we will do the thinking.  I took a note book and wrote down everything.  wt, dry wt, b/p, who my tech for the day was, machine settings, start time and ending time, any injection what it was, who gave it, what ever I was asked to swallow,  ect.  And they had to wait while I wrote it all down before I would let them do anything.  Some reason they were NOT happy with me.  Since I was not to think for my self...  after one month they highly suggested I do dialysis at home.  I do not have a care partner so I was very happy to move to PD.  Guess what, I get to think for myself now.  LOL....  I have had several unpleasant times with the PD nurse.  I saying one thing and she writing and reporting to the neph. something else.  Now, I get out my note book and write down what ever she says, or does... and I NO LONGER tell her anything except I am doing fine, even if I have to paste a smile on my face.  She told me so much WRONG information, and I found what I need on IHD.  I asked her about IHD and she said never go there as it is unreliable information. Only ask her.  HA!!!!!  She has so proved her self wrong.  She told me drain pain was in my head, and I was just a complainer.  I said the fluid made me feel so full I thought I would vomit and she said people don't feel the fluid...  On and on... GGGgggrrrrrrrrr!!!!!  But regardless of the name I continue to read IHD and how others deal with the difficult times and the good times.  I have mentioned IHD to people who will actually talk to me about doing dialysis, I tell them if they read some of the posts they will better understand me. They asked why I would want to read about hating dialysis since I have to do it...  I tell them it is just a name, and some time it is a hate dialysis but mostly it is just people who really understand.   IHD was easy to find, I stay current reading all the posts, I have cried, and laughed, and felt relief I was not alone in my feelings.  I don't post often so bye IHD community.  The name is fine with me.
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 05, 2014, 11:00:35 PM
I seldom comment but read  IHD often.  I seldom login because I am not to login at work but can read the site.  So I have login at home and answering the question. How I fond HID.  I just typed a search, kidney forum, and IHD was in the list.  I went to the other forums first and they had little current comments. I was not crazy for the name IHD and thought it might be just a group to be negative and complain.  A few years later and I actually started dialysis I went back to IHD because I really, really, hate it, feel negative, and would like to complain about this barbaric treatment. My first week, I was freezing cold, sitting in the chair, and the only thing to warm me was my own blood lines...I almost had a screaming attack....   I asked the staff for information for group support,, NONE.... I asked for internet support... and only given Divita  and national kidney groups.  I asked questions and was told, you just come sit here and we will do the thinking.  I took a note book and wrote down everything.  wt, dry wt, b/p, who my tech for the day was, machine settings, start time and ending time, any injection what it was, who gave it, what ever I was asked to swallow,  ect.  And they had to wait while I wrote it all down before I would let them do anything.  Some reason they were NOT happy with me.  Since I was not to think for my self...  after one month they highly suggested I do dialysis at home.  I do not have a care partner so I was very happy to move to PD.  Guess what, I get to think for myself now.  LOL....  I have had several unpleasant times with the PD nurse.  I saying one thing and she writing and reporting to the neph. something else.  Now, I get out my note book and write down what ever she says, or does... and I NO LONGER tell her anything except I am doing fine, even if I have to paste a smile on my face.  She told me so much WRONG information, and I found what I need on IHD.  I asked her about IHD and she said never go there as it is unreliable information. Only ask her.  HA!!!!!  She has so proved her self wrong.  She told me drain pain was in my head, and I was just a complainer.  I said the fluid made me feel so full I thought I would vomit and she said people don't feel the fluid...  On and on... GGGgggrrrrrrrrr!!!!!  But regardless of the name I continue to read IHD and how others deal with the difficult times and the good times.  I have mentioned IHD to people who will actually talk to me about doing dialysis, I tell them if they read some of the posts they will better understand me. They asked why I would want to read about hating dialysis since I have to do it...  I tell them it is just a name, and some time it is a hate dialysis but mostly it is just people who really understand.   IHD was easy to find, I stay current reading all the posts, I have cried, and laughed, and felt relief I was not alone in my feelings.  I don't post often so bye IHD community.  The name is fine with me.

Thanks grannyM, sorry to hear of your complaints, but unfortunately, it is a universal issue here in the states. Yes, as with all internet sites, you must be very careful with anything your read on the internet, but IHD is a much better source of information to take back to your medical team and discuss the issues in a clear manner with them. Most dialysis staff including nephrologists have a very limited understanding of optimal dialysis issues. Quite sad, but I would venture you are better informed at this point than some of your techs and nurses any of these issues. In the end, it is your disease and you have every right to know and understand every single thing that is occurring. It is for your survival and the dialysis unit does not always have your best interest at heart. In fact, profit is their motivating factor much more so and everything is for reducing their costs even at our expense.

There are many excellent dialysis sites, but IHD is a unique member of that club. I hope you continue to do well "thinking for yourself."
Title: Re: How did you hear of IHD?
Post by: cariad on April 06, 2014, 04:24:06 AM

Come on Moosemom. stop sending me personal posts in an open thread. My goodness, the post police will surely sanction us for sure. :sir ken;

Oooooh, sanctions!  Sounds like more fun than the vacuuming I need to get done once I finish derailing your thread.
Ah, this is clearly aimed at me when I so rudely asked you to *please* take your conversation anywhere but the thread I had started. Anyone who cares to read exactly what I requested can do so here: http://ihatedialysis.com/forum/index.php?topic=30890.msg478497#msg478497 See how militant I was? I don't know where I get the nerve.

This post, complete with classy smiley, is a big relief, because when I received a surprising response to my request, it wasn't from the person I would have expected. So, in talking it over with Gwyn, I found I had to start sentences with "To Hemodoc's credit...." Next time don't wait so long to come back at me with the snotty remarks! I wasted loads of time watching out my window for horsemen galloping down the road. I can now confidently state that the world makes sense to me again and the earth will survive to live another day. I look forward to your denials and/or insulting reply....

As for how I found this site, like most everyone else, it was an internet search. If you're looking for the exact keywords, sorry, mate, no recollection.
Title: Re: How did you hear of IHD?
Post by: Rerun on April 06, 2014, 09:02:42 AM
Thanks for the help Hemodoc!

              :thumbup; 
Title: Re: How did you hear of IHD?
Post by: talker on April 06, 2014, 11:25:37 AM
On another thread, several people have voiced that we should change the name of IHD to one that is less negative. I believe that IHD is actually a marketing stroke of genius since many find this site by putting a simple Google search of "I hate dialysis" and come directly to this link.

I believe it would be quite interesting to see how people found this site. For me, I found it by another Google search looking into daily dialysis. How did you find this wonderful site created by Epoman?
Purely by accident, while doing kidney/dialysis research on-line.  :waving;

Some what like hitting the lottery jackpot once a person has found it.  :thumbup;

Also enables me to reapply my  :rant; post, and typing skills.  :bow;

talker
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 06, 2014, 03:24:51 PM

Come on Moosemom. stop sending me personal posts in an open thread. My goodness, the post police will surely sanction us for sure. :sir ken;

Oooooh, sanctions!  Sounds like more fun than the vacuuming I need to get done once I finish derailing your thread.
Ah, this is clearly aimed at me when I so rudely asked you to *please* take your conversation anywhere but the thread I had started. Anyone who cares to read exactly what I requested can do so here: http://ihatedialysis.com/forum/index.php?topic=30890.msg478497#msg478497 See how militant I was? I don't know where I get the nerve.

This post, complete with classy smiley, is a big relief, because when I received a surprising response to my request, it wasn't from the person I would have expected. So, in talking it over with Gwyn, I found I had to start sentences with "To Hemodoc's credit...." Next time don't wait so long to come back at me with the snotty remarks! I wasted loads of time watching out my window for horsemen galloping down the road. I can now confidently state that the world makes sense to me again and the earth will survive to live another day. I look forward to your denials and/or insulting reply....

As for how I found this site, like most everyone else, it was an internet search. If you're looking for the exact keywords, sorry, mate, no recollection.

No insults Cariad. Just a bit of fun that is all between me and Moosemom. The horsemen shall come at their own time. I had a whole thread dedicated to mocking me and my beliefs a while back:

http://ihatedialysis.com/forum/index.php?topic=17495.0

No big deal Cariad. Have a great day and I pray you are not here to see the horsemen. That won't be a fun day at all.
Title: Re: How did you hear of IHD?
Post by: willowtreewren on April 06, 2014, 06:40:43 PM
http://ihatedialysis.com/forum/index.php?topic=17495.0
 (http://ihatedialysis.com/forum/index.php?topic=17495.0)

Oh, my! I had forgotten that thread! I laughed again when I read through it. It is a tad arrogant to think it was a thread to mock one person, though.

I also cried when I read it. Two of the folks who participated are no longer with us. I miss their wit.

Cariad, if you want a chuckle, do go peruse the aforementioned thread.

I must add that I'm REALLY glad that I did find IHD. I have met some wonderful people here, including Bill who got the call yesterday.

Aleta
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 07, 2014, 11:26:44 AM
Quite interesting results to date. About 1/4 found IHD by a search for "I hate dialysis." The fact that several have noted IHD as the most active forum  that they looked at speaks well of the diverse group found on IHD. Yes, diverse is a truth given the last couple of comments.  We are not united in political ideology, religious ideology or even nationality. Instead we are all united by the common shared burden of renal disease for ourselves or for those we know.

IHD is an open forum, loosely moderated to say the least that accomplishes Epoman's' goal of an open forum uncensored by authoritarian moderators projecting an agenda as in his case from DaVita with their censored furums.

Interestingly, some on this thread have noted that the DaVita forums are quiet. I have a feeling that accomplishment would make Epoman quite happy.

Thanks for all of the replies, I find  the responses very interesting.
Title: Re: How did you hear of IHD?
Post by: MooseMom on April 07, 2014, 12:07:00 PM
I told my husband about IHD and requested that he at least lurk if not join.  In the end, he did join.  He didn't know anything about CKD or ESRD or anything renal, and while I could tell him all about it and about how terrified I was, I thought it was really important that he learn from the experiences of other people in the same boat.  And I wanted him to be able to ask questions that a spouse or family member may have.

(I have already voted in the poll so am not allowed to vote on my husband's behalf, so do with this as you please, hemodoc!  I guess it's now 35 members who have voted.)

BTW, I had joined various kidney groups on Facebook but have found an inordinate amount of pettiness in them, so I have left them all.  I don't know what it is about Facebook that makes people so mean.  I was rather astonished by it!  Snarky and snide.  If you think IHD ever gets bad, FB is a gazillion times worse.  My only real online presence is here on IHD.
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 07, 2014, 12:33:12 PM
I told my husband about IHD and requested that he at least lurk if not join.  In the end, he did join.  He didn't know anything about CKD or ESRD or anything renal, and while I could tell him all about it and about how terrified I was, I thought it was really important that he learn from the experiences of other people in the same boat.  And I wanted him to be able to ask questions that a spouse or family member may have.

(I have already voted in the poll so am not allowed to vote on my husband's behalf, so do with this as you please, hemodoc!  I guess it's now 35 members who have voted.)

BTW, I had joined various kidney groups on Facebook but have found an inordinate amount of pettiness in them, so I have left them all.  I don't know what it is about Facebook that makes people so mean.  I was rather astonished by it!  Snarky and snide.  If you think IHD ever gets bad, FB is a gazillion times worse.  My only real online presence is here on IHD.

Snarky and snide? FB doesn't make them mean Moosemom, it simply gives them a forum to do what comes naturally to many. Decorum isn't what our current generation is known for. My grandmother live next to the same woman for decades.  She addressed her as Mrs. xxxxxx during their entire relationship. The societal values at that time generated respect and cordiality. Society today has dismissed these basic formalities. The outcome of rejecting these basic norms is quite predictable.

How is the weather in your neck of the woods today Moosemom. We are hitting 68 today and 70 tomorrow with no rain. Another beautiful Idaho day in a place where people still call it "God's country."  Cheers, have a great day. BTW, you can change your vote, but you can only vote once.
Title: Re: How did you hear of IHD?
Post by: Zach on April 07, 2014, 12:45:21 PM
I first learned about this site from an article that featured Bill Halcomb (Epoman) in a spring August 2006 edition of Nephrology News and Issues.
NNI is a major publication of the dialysis and transplantation field and the publisher thought that the IHD Web site was an important addition to areas of patient education and empowerment.

I joined on August 11, 2006.

http://ihatedialysis.com/forum/index.php?topic=1043.msg11528#msg11528

 :beer1;

According to the vote tabulation, nobody came to this Web site from reading my Chili Recipe.  :(
Title: Re: How did you hear of IHD?
Post by: MooseMom on April 07, 2014, 01:44:03 PM
Wow, Zach, it was really cool to read your intro and to see posts from our revered "old timers" who are no longer with us.  Is there any way you can find a link to the spring 2006 edition of NNI?  A lot of us would love to read that.

Your chili recipe is famous on IHD.  I'd bet a lot of lurkers who need help with dietary tricks are cooking some up right now.  Ya never know!

Hemodoc, I'll keep my vote unchanged, but I did want to mention why my husband joined (I'd have pouted if he had not!  LOL).  He learned a lot about the emotional and psychological toll ESRD can have on a person and became aware that I was not the only one who was very anxious about the whole thing. 

It is chilly, breezy and overcast here today.  We might hit 70 this week.  As long as there are no shoveling days ahead of me, I'm happy!  But man, this winter took its toll on my house; it needs repainting.  Ugh.

Veering back on topic, I'd be interested to know how many IHD members have had friends or family check out IHD to learn more about dialysis and what it means.  I would be so thoroughly thrilled if I'd found out that one of my friends or family members had gone online specifically to find out more about what was ailing me.  So, do any of you have friends who have made it a point to find out about dialysis, maybe even joined IHD?  (Sorry, hemodoc...should that be a separate thread?)
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 07, 2014, 01:48:15 PM
Wow, Zach, it was really cool to read your intro and to see posts from our revered "old timers" who are no longer with us.  Is there any way you can find a link to the spring 2006 edition of NNI?  A lot of us would love to read that.

Your chili recipe is famous on IHD.  I'd bet a lot of lurkers who need help with dietary tricks are cooking some up right now.  Ya never know!

Hemodoc, I'll keep my vote unchanged, but I did want to mention why my husband joined (I'd have pouted if he had not!  LOL).  He learned a lot about the emotional and psychological toll ESRD can have on a person and became aware that I was not the only one who was very anxious about the whole thing. 

It is chilly, breezy and overcast here today.  We might hit 70 this week.  As long as there are no shoveling days ahead of me, I'm happy!  But man, this winter took its toll on my house; it needs repainting.  Ugh.

Veering back on topic, I'd be interested to know how many IHD members have had friends or family check out IHD to learn more about dialysis and what it means.  I would be so thoroughly thrilled if I'd found out that one of my friends or family members had gone online specifically to find out more about what was ailing me.  So, do any of you have friends who have made it a point to find out about dialysis, maybe even joined IHD?  (Sorry, hemodoc...should that be a separate thread?)

No post police here Moosemom. That is a great question. BTW, Zach is not the only spelling challenged person I know. Put me on that list for sure. And yes, it was a great intro to read. I had not seen that before.  I joined in 2008 as well. And yes, if Zach still has a link to that article it would be a great read.
Title: Re: How did you hear of IHD?
Post by: Zach on April 07, 2014, 05:48:38 PM

Is there any way you can find a link to the spring 2006 edition of NNI?  A lot of us would love to read that.


Unfortunately, NNI's online archive does not go that far back.
But IHD's does:

http://ihatedialysis.com/forum/index.php?topic=922.msg9301#msg9301

For those who don't understand why Epoman named this site, I Hate Dialysis, please read the article.

 8)

PS: Does anyone remember Epoman's other Web site, RenalRomance.com and Kidneyoogle.com ??
Title: Re: How did you hear of IHD?
Post by: cariad on April 11, 2014, 02:02:37 PM
No insults Cariad. Just a bit of fun that is all between me and Moosemom.
Mocking me for asking you to display basic human courtesy *could* have been all a bit of fun between you and Moosemom until you both decided to discuss it in an open forum. Then it became.... let's see, how to describe it?.... 'Snarky and snide' comes to mind. Also petty. Oh well, I guess I just don't share your definition of fun.
I had a whole thread dedicated to mocking me and my beliefs a while back:

http://ihatedialysis.com/forum/index.php?topic=17495.0
This is a puzzler. That thread is over four years old and you're still stewing about it? How on earth does that justify your decision to mock me? Though I remember reading the discussion and finding it a brilliant satire on how people in forums argue about religion and/or politics, you will not find a single post from me in that whole exchange, though I see three of this site's four admins did participate. Why not have a go at one of them? I agree with Aleta's assessment about anyone who would believe that that thread was all about them.
No big deal Cariad.
There is zero point in you telling me what is and is not a big deal. I'll decide that for myself, thanks. Rest assured I'll no longer consider it a 'big deal' to go off on any tangent I like in discussions that you start.
Title: Re: How did you hear of IHD?
Post by: cariad on April 11, 2014, 02:14:51 PM
http://ihatedialysis.com/forum/index.php?topic=17495.0
 (http://ihatedialysis.com/forum/index.php?topic=17495.0)

Oh, my! I had forgotten that thread! I laughed again when I read through it. It is a tad arrogant to think it was a thread to mock one person, though.

I also cried when I read it. Two of the folks who participated are no longer with us. I miss their wit.

Cariad, if you want a chuckle, do go peruse the aforementioned thread.

I must add that I'm REALLY glad that I did find IHD. I have met some wonderful people here, including Bill who got the call yesterday.

Aleta
Thanks, Aleta, I did go back and read it all through. There was a lovely spontaneous quality to it all, and I remember how ridiculous some of the debates had got back then, so it was wonderful to see everyone blowing off a bit steam without tearing into each other as tended to happen in 'real' debates. I was chortling at some of the things you wrote. I'm sorry it had to be so bittersweet for you to reread that. I know Hanify and Dan would be very proud that their words could still elicit a laugh. I suspect it's one of the highest compliments you could pay them.  :cuddle;
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 11, 2014, 03:06:05 PM
Yup, righteous indignation at a little bit of bantering between me and Mooosemom, but praise for an entire thread mocking me, my beliefs and God. Go figure Cariad.
Title: Re: How did you hear of IHD?
Post by: cariad on April 15, 2014, 10:58:57 AM
Yup, righteous indignation at a little bit of bantering between me and Mooosemom, but praise for an entire thread mocking me, my beliefs and God. Go figure Cariad.
I have to say your ability to gauge emotional tone is not very impressive. If that was righteous indignation, then your response was uncontrolled rage. My reaction was closer to curiosity at how people's life can get to the point where their definition of fun is mocking someone for asking them for a basic courtesy. I think it's remarkably tacky of you to claim to be victimized by a thread that is over four years old, and started by a man who is no longer alive to defend himself.

I'm sure you'll be extremely interested to know that it is sunny and about 16C in the UK. My kids are on their term break and enjoying having time to hang out with their friends.
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 15, 2014, 11:20:39 AM
Yup, righteous indignation at a little bit of bantering between me and Mooosemom, but praise for an entire thread mocking me, my beliefs and God. Go figure Cariad.
I have to say your ability to gauge emotional tone is not very impressive. If that was righteous indignation, then your response was uncontrolled rage. My reaction was closer to curiosity at how people's life can get to the point where their definition of fun is mocking someone for asking them for a basic courtesy. I think it's remarkably tacky of you to claim to be victimized by a thread that is over four years old, and started by a man who is no longer alive to defend himself.

I'm sure you'll be extremely interested to know that it is sunny and about 16C in the UK. My kids are on their term break and enjoying having time to hang out with their friends.

Thanks for the weather report Cariad. have a great day.
Title: Re: How did you hear of IHD?
Post by: MooseMom on April 15, 2014, 12:53:23 PM
I'm actually VERY interested in weather reports from the UK!  I have Croydon as a saved location on weather.com.  Did you all get to see the lunar eclipse last night?  Did you see the moon go all orange?  We actually had SNOW for most of the day yesterday, so I was really disappointed in the probability that clouds would block my view, but by the late evening, the skies cleared and we had a perfect view of the entire spectacle.  It was so cool!

Maybe we should start a "What's the weather like today where you live?" thread!

Zach, thanks for that link!  Epoman had such passion for the truth, didn't he.

I guess each of us who love this site can do our bit to spread the word about IHD.  I never had much occasion to speak about my slow descent toward D.  You know how when you learn a new word, you suddenly see/hear it everywhere?  It's like that with "transplant".  Any time I say that word, I am besieged by stories from other people about either their own or their acquaintance's own transplant or dialysis, so from now on I pledge to mention IHD anytime I hear that someone is either on or headed to dialysis.
Title: Re: How did you hear of IHD?
Post by: cassandra on April 15, 2014, 01:11:49 PM
I was a bit down, and googled: 'I hate dialysis '
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 15, 2014, 01:24:06 PM
I was a bit down, and googled: 'I hate dialysis '

The genius of the name lives on Cassandra. You are not alone in finding IHD by just that same manner.  I hope things have looked up since.

God bless,  Peter
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 15, 2014, 02:05:15 PM
I'm actually VERY interested in weather reports from the UK!  I have Croydon as a saved location on weather.com.  Did you all get to see the lunar eclipse last night?  Did you see the moon go all orange?  We actually had SNOW for most of the day yesterday, so I was really disappointed in the probability that clouds would block my view, but by the late evening, the skies cleared and we had a perfect view of the entire spectacle.  It was so cool!

Maybe we should start a "What's the weather like today where you live?" thread!

Zach, thanks for that link!  Epoman had such passion for the truth, didn't he.

I guess each of us who love this site can do our bit to spread the word about IHD.  I never had much occasion to speak about my slow descent toward D.  You know how when you learn a new word, you suddenly see/hear it everywhere?  It's like that with "transplant".  Any time I say that word, I am besieged by stories from other people about either their own or their acquaintance's own transplant or dialysis, so from now on I pledge to mention IHD anytime I hear that someone is either on or headed to dialysis.

The beauty of IHD in large part is that it is an open and minimally regulated site that pretty much follows the stream of consciousness. That is one reason why just about every thread on IHD strays from the topic at hand. Instead of weakness, that in many ways may be it's most endearing attribute.  It is filled with personal comments just as ordinary conversations between folks gathered together.

That may be the real secret of what Epoman created in addition to the genius of a name used by many on dialysis looking for relief from the burdens of renal disease. After all, Epoman was tired of posts deleted and edited by over zealous moderators. He wanted a place where folks could "rumble" and relished those threads the most according to man of his comments on these threads. In fact, Epoman stirred things up all the time and let it go. That may be the secret of why it is such a popular forum above and beyond sharing the information of renal disease and treatment options.
Title: Re: How did you hear of IHD?
Post by: MooseMom on April 15, 2014, 02:33:45 PM
Hemodoc, I am the first to recognize that I often veer off-topic, and several members have teased me about this.   ;D  But I like talking to people!

If I start a discussion, I don't find it insulting if it shifts into a talk about, say, Pravda.  Weirder things have happened.

I don't consider my threads to be exclusively MY threads, if you see what I mean.

Epoman knew what he was doing in creating a place like IHD.  It's like having everyone gather around the Thanksgiving table.  We all share the same food, but we talk about a lot more than just turkey and dressing.
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 16, 2014, 07:02:09 PM
Hemodoc, I am the first to recognize that I often veer off-topic, and several members have teased me about this.   ;D  But I like talking to people!

If I start a discussion, I don't find it insulting if it shifts into a talk about, say, Pravda.  Weirder things have happened.

I don't consider my threads to be exclusively MY threads, if you see what I mean.

Epoman knew what he was doing in creating a place like IHD.  It's like having everyone gather around the Thanksgiving table.  We all share the same food, but we talk about a lot more than just turkey and dressing.

Yes, IHD is indeed a conversation in it's essence which Epoman left quite unrestricted. I guess some folks are just too hooked on their own outlook to accept this type of openness but it is what gives IHD it's greatest strength and is a place of great interest and at times a place of great debate as well, just as Epoman enjoyed himself.

Yes, the name gets attention, but it is the conversation and openness that keeps the people here.  I believe imposing rules on IHD is a bit like trying to herd cats. Neither can be accomplished nor should folks want to either.
Title: Re: How did you hear of IHD?
Post by: cariad on April 18, 2014, 02:13:38 AM
Hemodoc, I am the first to recognize that I often veer off-topic, and several members have teased me about this.   ;D  But I like talking to people!

If I start a discussion, I don't find it insulting if it shifts into a talk about, say, Pravda.  Weirder things have happened.

I don't consider my threads to be exclusively MY threads, if you see what I mean.

Epoman knew what he was doing in creating a place like IHD.  It's like having everyone gather around the Thanksgiving table.  We all share the same food, but we talk about a lot more than just turkey and dressing.

Yes, IHD is indeed a conversation in it's essence which Epoman left quite unrestricted. I guess some folks are just too hooked on their own outlook to accept this type of openness but it is what gives IHD it's greatest strength and is a place of great interest and at times a place of great debate as well, just as Epoman enjoyed himself.

Yes, the name gets attention, but it is the conversation and openness that keeps the people here.  I believe imposing rules on IHD is a bit like trying to herd cats. Neither can be accomplished nor should folks want to either.
Oh, please! Both of you have called people out for going off topic when it suits you. I made a simple request for a courtesy that is in fact one of the rules that Epoman created for his site - please stay on topic. The response I received was extremely rude, but I left it up to you and MM to continue if you really wanted to as I prefer to hash things out with the parties involved rather than asking volunteer moderators to solve my problems. Mocking me and claiming that I am behaving like some type of 'post police' is uncalled for *and* decidedly hypocritical. I find it fascinating that you don't like the behaviour you encounter on places like FB, but you don't think people should want rules here. Cannot find the sense in that so I won't bother trying.

Believe it or not, Peter, I try to avoid reading any of your posts because I decided quite some time ago that it was better for all involved if we stayed away from each other. I do appreciate that you replied initially to my question in that other thread with a completely on-topic answer, and then proceeded to go off-topic only when you were asked direct questions. I had no problem whatsoever with your behaviour in that thread. But you just couldn't let it go, so you insult me and dredge up a four year old thread (for what reason I have not been able to suss out). What on earth? Surely you have better things to do with your time than picking fights with me? Go ahead and mock me and everything I hold dear via PM with MooseMom. I truly couldn't care less. Just don't make cutesy allusions to it in a public forum and expect me to ignore it. Neither one of you would ignore it, either.
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 18, 2014, 08:20:35 AM
Too funny Cariad. Have a great day. I suppose that is an insult as well. Too funny.
Title: Re: How did you hear of IHD?
Post by: cariad on April 18, 2014, 08:41:43 AM
Too funny Cariad. Have a great day. I suppose that is an insult as well. Too funny.

This from the person who believes, without a single shred of evidence, that an entire thread was created just to mock him.

No one does hypocrisy quite like you, Hemodoc!
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 18, 2014, 08:54:29 AM
Well good day to you as well Cariad.

1) I participate on FB all the time. Most are moderated and closed groups so none of the posts that are inappropriate are tolerated and that is the best. I never said I don't like rules, I just said for anyone to try and impose them here on IHD is like herding cats. Would it be better if the moderators actively prevented insults and such, yes. But they choose not to do that. For an individual here to impose those rules is like herding cats. It doesn't happen and I gave up quite a while ago trying to impose that type of order myself. Once again, that is a strength due to the way it engenders open and at times frank discussions. despite being a bit aggravating at times. Nothing hypocritical about my remark at all my dear. I am afraid you simply didn't understand the statement.

2) If this is such a waste of time, why do you always itemize your points? It seems you quite enjoy this banter. You certainly don't stay away from it at all no matter how many times I try and deflect your direct insults against me. This thread is a fine example of that. You just can't let it go which is fine, it gets boring sitting on dialysis for several hours and I find your posts quite amusing at times.

3) Since IHD chooses to leave the forum open and quite unregulated, who assigned you as the post police? If MM and I wish to exchange a bit of friendly banter on I believe 2 threads, why Cariad is that such an affront to you. IHD is a conversation and a place of staying in touch with folks. I don't see the moderators imposing what you try to do on your own. Cariad, save yourself some aggravation and just accept that is the way IHD operates. I did that a long time ago and don't fret over violations of Epoman's rules at all. Just chill out a bit Cariad and enjoy the conversation. That is what everyone else on IHD does so please join the crowd.

Have a great day Cariad. Looking forward to the itemized list.

Cheers.
Title: Re: How did you hear of IHD?
Post by: kitkatz on April 18, 2014, 12:34:44 PM
Please stay on topic.
If you want to discuss how IHD is run begin a new topic. 

kitkatz-Admin
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 18, 2014, 12:45:44 PM
Please stay on topic.
If you want to discuss how IHD is run begin a new topic. 

kitkatz-Admin

No problem, but just what is the topic of this thread any longer? Just wondering.
Title: Re: How did you hear of IHD?
Post by: obsidianom on April 18, 2014, 12:52:07 PM
On my return from Gulag in Siberia I find there is a need for a referee. I am like old East German Judge in Olympics . I give 10 points for Pravda and 6.5 for everyone else. Let the war of words continue. We all know Pravda NEVER censors any written material or conversations.  Go for it comrades!
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 18, 2014, 01:01:52 PM
On my return from Gulag in Siberia I find there is a need for a referee. I am like old East German Judge in Olympics . I give 10 points for Pravda and 6.5 for everyone else. Let the war of words continue. We all know Pravda NEVER censors any written material or conversations.  Go for it comrades!

It has continued for years. It must be entertaining in some manner. I wouldn't take it very seriously though. Two more hours of dialysis to go and it goes on Judah. It goes on.  Glad to see you around again obsidianom. Hope all is well.
Title: Re: How did you hear of IHD?
Post by: MooseMom on April 18, 2014, 02:04:42 PM
IHD is being run very well indeed!  Thanks to all of the mods.

The topic at hand is "how did you find IHD".   :P  Hemodoc, I took the liberty of looking at a few of your very first posts and saw that you found IHD via a link on Bill Peckham's site.  I sometimes have a look at sites like Renal Fellow Network which lists both your and Bill's sites as relevant nephrology based blogs.  Have you ever seen IHD listed as a link on any other neph/dialysis sites that aren't patient run?  I'd love to see IHD listed on RNF! 

Obsidianom, how did you find IHD?
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 18, 2014, 02:51:46 PM
IHD is being run very well indeed!  Thanks to all of the mods.

The topic at hand is "how did you find IHD".   :P  Hemodoc, I took the liberty of looking at a few of your very first posts and saw that you found IHD via a link on Bill Peckham's site.  I sometimes have a look at sites like Renal Fellow Network which lists both your and Bill's sites as relevant nephrology based blogs.  Have you ever seen IHD listed as a link on any other neph/dialysis sites that aren't patient run?  I'd love to see IHD listed on RNF! 

Obsidianom, how did you find IHD?

Interesting. I had forgotten I guess how I found the site. I guess I have to change my vote after all.  Were you a private detective in a prior life?
Title: Re: How did you hear of IHD?
Post by: MooseMom on April 18, 2014, 03:44:42 PM
Hemodoc, I hope I wasn't a private detective in a prior life!  I would have been really dismal at it because I had forgotten that you had posted this:

For me, I found it by another Google search looking into daily dialysis. How did you find this wonderful site created by Epoman?

It was really interesting to read your first posts.  Does it seem like just yesterday?  It does for me!

(BTW, the weather here is absolutely glorious today!  We're going to grill some burgers and eat outside this evening, although it IS started to get a little chilly, so we might do our eating indoors.)

Have a great weekend! 

Title: Re: How did you hear of IHD?
Post by: obsidianom on April 19, 2014, 05:29:03 AM
I dont remember exactly how I found this site. I beleive i was just looking for anything on dialysis I could find . I just used the search term "dialysis" (very imaginative) . I looked at various sites and this one was the busiest in terms of activity. I also found kidneyspace.com where I also spend time.
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 19, 2014, 12:37:25 PM
Hemodoc, I hope I wasn't a private detective in a prior life!  I would have been really dismal at it because I had forgotten that you had posted this:

For me, I found it by another Google search looking into daily dialysis. How did you find this wonderful site created by Epoman?

It was really interesting to read your first posts.  Does it seem like just yesterday?  It does for me!

(BTW, the weather here is absolutely glorious today!  We're going to grill some burgers and eat outside this evening, although it IS started to get a little chilly, so we might do our eating indoors.)

Have a great weekend!

Sounds like a great time Moosemom. Still a bit chilly here for the grill outdoors yet.   Sadly, quite a few folks are no longer with us since I started IHD in 2008. It doesn't seem possible that that was 6 years ago.
Title: Re: How did you hear of IHD?
Post by: CalamityEC on April 20, 2014, 07:50:19 AM
My mom was looking up renal friendly recipes and came across this site :)
Title: Re: How did you hear of IHD?
Post by: Razman on April 20, 2014, 05:37:44 PM
 I was searching for info back in 2006 and found the best site to get direct answers.  I met Monrein on  IHD and we get together to share info.  Would never have happened without IHD.  I find no problem with I HATE DIALYSIS.  It is not negative. It's just the truth.
Title: Re: How did you hear of IHD?
Post by: okarol on April 20, 2014, 10:01:46 PM
I was desperately looking for help. Jenna was on hemodialysis for 2 1/2 years, she started as a senior in high school.
She never felt good. I was worried about her all the time, and I think I read the entire internet over a year.
I thought the site was a joke, because of the name, so I didn't look at first. Glad I came back and gave it a try.
Some of the people here truly saved us.  :cuddle; :cuddle; :cuddle; Love you guys!!  :-*
Title: Re: How did you hear of IHD?
Post by: cariad on April 23, 2014, 12:32:53 AM
Well good day to you as well Cariad.

1) I participate on FB all the time. Most are moderated and closed groups so none of the posts that are inappropriate are tolerated and that is the best. I never said I don't like rules, I just said for anyone to try and impose them here on IHD is like herding cats. Would it be better if the moderators actively prevented insults and such, yes. But they choose not to do that. For an individual here to impose those rules is like herding cats. It doesn't happen and I gave up quite a while ago trying to impose that type of order myself. Once again, that is a strength due to the way it engenders open and at times frank discussions. despite being a bit aggravating at times. Nothing hypocritical about my remark at all my dear. I am afraid you simply didn't understand the statement.
You stated that we shouldn't want to 'impose rules' on IHD. It is written in black and white. If that is not what you meant, that is hardly my fault that you did not make yourself clear. You have a history of being unwilling to take responsibility for your writing and actions on this site.
2) If this is such a waste of time, why do you always itemize your points?
Huh?
It seems you quite enjoy this banter. You certainly don't stay away from it at all no matter how many times I try and deflect your direct insults against me. This thread is a fine example of that. You just can't let it go which is fine, it gets boring sitting on dialysis for several hours and I find your posts quite amusing at times.
This is a wonderful example of hypocrisy. Is this performance art or something? If so, you're doing an excellent job. You bait me because you seem to crave my attention (quite unsettling, to be honest), then you claim it is I insulting you. You harbor a huge grudge over my simple polite request that you and MooseMom take your irrelevant chit chat elsewhere, and you dredge up a four-year-old imagined insult, but I'm the one who cannot let it go? You hover over these threads day and night.... it all becomes quite sad in the end.
3) Since IHD chooses to leave the forum open and quite unregulated, who assigned you as the post police?
I asked for a courtesy. Would you get over it? Try going back through your own writings and count the number of times shriek the phrase 'off topic' at people. I have probably asked 3 times in 5 years on IHD that people please not discuss something in a specific thread, but you and MooseMom are the only two who have decided that I should be mocked and insulted over it. You went through a phase where you threatened me by reporting EVERY post I made. Quite control-freakish of you. 
If MM and I wish to exchange a bit of friendly banter on I believe 2 threads, why Cariad is that such an affront to you. IHD is a conversation and a place of staying in touch with folks. I don't see the moderators imposing what you try to do on your own. Cariad, save yourself some aggravation and just accept that is the way IHD operates. I did that a long time ago and don't fret over violations of Epoman's rules at all. Just chill out a bit Cariad and enjoy the conversation. That is what everyone else on IHD does so please join the crowd.
I wanted to actually read replies to my question. I try to read as few of your replies as possible, but you seem to want my attention constantly. Thus the problem. I made a request, I felt it was granted, then I see this nonsense brewing. I don't appreciate you and MooseMom baiting me, but again, different definitions of fun and all that.
Have a great day Cariad. Looking forward to the itemized list.
Um, OK.
1. I'm sure there will be about a dozen replies to this from you by the time I make it back to IHD.
2. You really need to find a way to stop obsessing, both about me and about things that happened over four years ago.
3. $5000 in childcare expenses
4. $350 in non-reimbursed work expenses
5. Oh, hang on, I'm getting this confused with my taxes
6. Although my taxes are slightly more interesting than conversations with you.
7. Stop insulting/mocking/baiting me and you will find that I will avoid any and all interactions with you.
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 23, 2014, 12:13:51 PM
Cariad, you are just too much. No response my dear at all. Have a great day. Too funny and I am obsessed with you??? Sorry, not all all. Once again have a great day.

Oh heck, why not.

1) I do not wish to impose rules on IHD since I am not a moderator or an administrator. That is still a true statement you still fail to understand by your reply.  Too funny.

2) Cariad, just as I don't impose rules on others here at IHD,  I don't recognize your appointment as post police either. If that is upsetting to you, don't read my posts. Just put me on ignore which I believe is part of IHD now if I remember correctly.

3) Your other responses are just too bizarre to respond.

Dear Moosemom, raining in Idaho today and still a bit cold out there. I hope it is a bit better weather where you are at.
Title: Re: How did you hear of IHD?
Post by: MooseMom on April 23, 2014, 01:34:05 PM
Cariad, if you want to be mad at anyone, choose ME!  I was the one who first inquired about the weather in hemodoc's part of the world on your thread.

My question to hemodoc was just a friendly query.  I do not see him much on IHD outside of the political threads, and while I very rarely agree with his political views, I do sometimes feel that other IHDers sorta gang up on him, and I have seen some really harsh words aimed at him, and that has made me feel uncomfortable in the past.  So when I "saw" him on your thread, I wanted to just have a short, friendly exchange.  While I do recognize that I was off topic, I had no idea you would react in the way you did.  I figured you'd just ignore it.

Frankly, I felt that your response was rather precious.  You did not issue a "polite request", rather, it was dripping in sarcasm and rudeness.  I particularly was peeved at this whole idea of yours that this was YOUR thread.  So yes, you bet I ignored you and went on my merry way.  Was it childish?  You bet it was!!   ;D  And you have not been able to let it go since.  You seem to be compelled to present all of this as some great insult to yourself when, really, all you need to do is ignore it.

So I apologize to you and to everyone on this whole damn board for daring to ask hemodoc about the weather.  I promise I will NEVER post on any thread started by you nor reply to ANY post of yours on any thread on IHD ever again.  This is the best I can do, and I hope it is enough.  Truly, I wish you well, and I hope you and Gwyn and your boys live a charmed life in your corner of the UK filled with joy and love.  I hope that your kidney continues to function well and that you never have another bout of meningitis.  I hope you and hemodoc can find some way to coexist with some modicum of peace on IHD because you have both contributed a lot to this site and have helped many people in many ways. :thumbup;

Take care.  Be happy.  Be well.

Title: Re: How did you hear of IHD?
Post by: MooseMom on April 23, 2014, 01:37:42 PM
Dear Moosemom, raining in Idaho today and still a bit cold out there. I hope it is a bit better weather where you are at.

It has been really lovely here over the past few days!  The temperature has been fluctuating quite a bit, though, but that's normal for us at this time of year.  We are supposed to get some rain tomorrow which is fine by me. 
Title: Re: How did you hear of IHD?
Post by: cariad on April 23, 2014, 01:47:00 PM
Cariad, you are just too much. No response my dear at all.
Calling me ‘dear’ is just icky, Peter. Truly. If you don’t wish to appear obsessed with me, perhaps dropping the terms of endearment would be a good start. The new fixation with ‘itemization’ is weird, too, especially as you seem to have me confused with someone else. I have certainly numbered my points in the past, as has MooseMom and quite a few others. Not sure why you think this says something profound about the author.
1) I do not wish to impose rules on IHD since I am not a moderator or an administrator. That is still a true statement you still fail to understand by your reply.  Too funny.
I don’t impose rules either, but I do appreciate those mods and admins who do. Do show me where I have tried to impose rules upon you. You can’t, because I haven’t.
2) Cariad, just as I don't impose rules on others here at IHD,  I don't recognize your appointment as post police either. If that is upsetting to you, don't read my posts. Just put me on ignore which I believe is part of IHD now if I remember correctly.
If only the system worked that way. I blocked you ages ago, it doesn’t actually hide your messages, sadly. I would welcome an upgrade to that system but these things cost time and money so I completely understand if that just isn’t upon the cards.

I appreciate that you took the time to publicly let me know that you and MooseMom have been mocking me via PM. Always great to have that information. Honestly, I thank you for that. I have enough friends that I don’t need to waste time on people who are not being genuine with me. 
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 23, 2014, 01:54:25 PM
What the ????.

Cariad, I nave NEVER ONCE sent Moosemom a PM mocking you. Sorry, but you are over the top. If I have something to say, I do so right here and now. Cariad, you are really losing it.

Title: Re: How did you hear of IHD?
Post by: MooseMom on April 23, 2014, 01:57:28 PM
The last PM I received from Hemodoc was 8 May 2013, 05:00:15 PM (not sure which time zone, though.  I think PST.)
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 23, 2014, 02:01:06 PM
Cariad, if you want to be mad at anyone, choose ME!  I was the one who first inquired about the weather in hemodoc's part of the world on your thread.

My question to hemodoc was just a friendly query.  I do not see him much on IHD outside of the political threads, and while I very rarely agree with his political views, I do sometimes feel that other IHDers sorta gang up on him, and I have seen some really harsh words aimed at him, and that has made me feel uncomfortable in the past.  So when I "saw" him on your thread, I wanted to just have a short, friendly exchange.  While I do recognize that I was off topic, I had no idea you would react in the way you did.  I figured you'd just ignore it.

Frankly, I felt that your response was rather precious.  You did not issue a "polite request", rather, it was dripping in sarcasm and rudeness.  I particularly was peeved at this whole idea of yours that this was YOUR thread.  So yes, you bet I ignored you and went on my merry way.  Was it childish?  You bet it was!!   ;D  And you have not been able to let it go since.  You seem to be compelled to present all of this as some great insult to yourself when, really, all you need to do is ignore it.

So I apologize to you and to everyone on this whole damn board for daring to ask hemodoc about the weather.  I promise I will NEVER post on any thread started by you nor reply to ANY post of yours on any thread on IHD ever again.  This is the best I can do, and I hope it is enough.  Truly, I wish you well, and I hope you and Gwyn and your boys live a charmed life in your corner of the UK filled with joy and love.  I hope that your kidney continues to function well and that you never have another bout of meningitis.  I hope you and hemodoc can find some way to coexist with some modicum of peace on IHD because you have both contributed a lot to this site and have helped many people in many ways. :thumbup;

Take care.  Be happy.  Be well.

Dear Moosemom, when you realize that Cariad has continuously carried on about you asking me how the weather was and how I was doing, it brings to home how absurd this entire episode really is. Two to three weeks obsessing over a kind word from you and me. Go figure. Not much room to make peace over something as absurd as all of this. But, dialysis get's a bit boring so it is a bit interesting to see how far she will carry this great clash. But I agree, there was nothing nice in her "request" at all.

And no, I don't mind a bit of rain myself. In fact, after 20 years in the CA desert, rain is actually nice. Feel free to PM me if you wish, but it seems the open forum is just fine as far as I am concerned. In fact, I don't believe we have had a PM in over a year or more at least.  Quite silly this whole contention but oh well, so be it.

Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 23, 2014, 02:02:26 PM
The last PM I received from Hemodoc was 8 May 2013, 05:00:15 PM (not sure which time zone, though.  I think PST.)

Well, you really have not been keeping in touch with me have you Moosemom. Shame on you girl.
Title: Re: How did you hear of IHD?
Post by: cariad on April 23, 2014, 02:22:40 PM
Frankly, I felt that your response was rather precious.  You did not issue a "polite request", rather, it was dripping in sarcasm and rudeness.  I particularly was peeved at this whole idea of yours that this was YOUR thread. 
I never once referred to it as 'my thread' and I have read that original request and my subsequent reply to Gwyn and he certainly could not find anything wrong with it. However, you have made all sorts of (strange) assumptions about tone and intent. You are just plain wrong about that. I was consciously trying *not* to kick anything off because I just wanted to discuss the actual topic, and I know when it comes to me and Hemodoc, things can turn ugly and TEDIOUS quickly. I thought it was inconsiderate of you to respond in that sarcastic, condescending way, telling me (not asking, ordering me) to just skip over the posts. Bit tricky to do as I wanted to see what people were saying about the topic, but I frankly do not care to be a witness to your exchanges with Peter. It made the whole discussion too much like hard work. As I've told Peter, I was amazed that I could not fault him in the slightest for his behaviour on that thread.
You seem to be compelled to present all of this as some great insult to yourself when, really, all you need to do is ignore it.
Uh, not sure how you failed to understand that it wasn't the going off-topic that was an insult, it was the baiting me with the 'post police' comment. That is pure hypocrisy. Everything was humming along peacefully until Peter posted that comment calling me names and, childishly, using that eff-you smiley. I chose to defend myself. Still don't get why hemodoc brought up that four-year-old thread started by Dan, who passed away over a year ago....
So I apologize to you and to everyone on this whole damn board for daring to ask hemodoc about the weather.  I promise I will NEVER post on any thread started by you nor reply to ANY post of yours on any thread on IHD ever again.  This is the best I can do, and I hope it is enough.  Truly, I wish you well, and I hope you and Gwyn and your boys live a charmed life in your corner of the UK filled with joy and love.  I hope that your kidney continues to function well and that you never have another bout of meningitis.  I hope you and hemodoc can find some way to coexist with some modicum of peace on IHD because you have both contributed a lot to this site and have helped many people in many ways. :thumbup;

Take care.  Be happy.  Be well.
You've seemed really, really angry toward me for a long time on this board, so if you choose not to interact with me here, I'm having a hard time seeing that as any great loss. I do, of course, wish for good health and happiness to you and yours as well, and I have no difficulty believing that you wish me the same.
Title: Re: How did you hear of IHD?
Post by: Hemodoc on April 23, 2014, 02:33:43 PM
Frankly, I felt that your response was rather precious.  You did not issue a "polite request", rather, it was dripping in sarcasm and rudeness.  I particularly was peeved at this whole idea of yours that this was YOUR thread. 
I never once referred to it as 'my thread' and I have read that original request and my subsequent reply to Gwyn and he certainly could not find anything wrong with it. However, you have made all sorts of (strange) assumptions about tone and intent. You are just plain wrong about that. I was consciously trying *not* to kick anything off because I just wanted to discuss the actual topic, and I know when it comes to me and Hemodoc, things can turn ugly and TEDIOUS quickly. I thought it was inconsiderate of you to respond in that sarcastic, condescending way, telling me (not asking, ordering me) to just skip over the posts. Bit tricky to do as I wanted to see what people were saying about the topic, but I frankly do not care to be a witness to your exchanges with Peter. It made the whole discussion too much like hard work. As I've told Peter, I was amazed that I could not fault him in the slightest for his behaviour on that thread.
You seem to be compelled to present all of this as some great insult to yourself when, really, all you need to do is ignore it.
Uh, not sure how you failed to understand that it wasn't the going off-topic that was an insult, it was the baiting me with the 'post police' comment. That is pure hypocrisy. Everything was humming along peacefully until Peter posted that comment calling me names and, childishly, using that eff-you smiley. I chose to defend myself. Still don't get why hemodoc brought up that four-year-old thread started by Dan, who passed away over a year ago....
So I apologize to you and to everyone on this whole damn board for daring to ask hemodoc about the weather.  I promise I will NEVER post on any thread started by you nor reply to ANY post of yours on any thread on IHD ever again.  This is the best I can do, and I hope it is enough.  Truly, I wish you well, and I hope you and Gwyn and your boys live a charmed life in your corner of the UK filled with joy and love.  I hope that your kidney continues to function well and that you never have another bout of meningitis.  I hope you and hemodoc can find some way to coexist with some modicum of peace on IHD because you have both contributed a lot to this site and have helped many people in many ways. :thumbup;

Take care.  Be happy.  Be well.
You've seemed really, really angry toward me for a long time on this board, so if you choose not to interact with me here, I'm having a hard time seeing that as any great loss. I do, of course, wish for good health and happiness to you and yours as well, and I have no difficulty believing that you wish me the same.

Wow, what is the "eff you smiley" anyway? I missed that one. In any case, the smiley was for Moosemom, not you Cariad.

Secondly, are you for real?

Third of all, what NAMES did I call you?????

Wow, what is wrong with you Cariad? All this because Moosemom asked me how the weather was in Idaho. Go figure.
Title: Re: How did you hear of IHD?
Post by: kitkatz on April 23, 2014, 02:40:50 PM
2nd Warning

Please get back on topic.

The topic is: How did you hear of IHD.com?


If there is anymore personal sniping at each other on this thread it will be locked.


kitkatz- Admin
Title: Re: How did you hear of IHD?
Post by: MooseMom on April 23, 2014, 02:51:50 PM
I have a story to tell!  I can't believe I didn't post about this earlier; I thought I had, but maybe I was dreaming.

Anyway, last month around St. Patrick's Day, we went into a coffee shop, and along the bar was a chalkboard all equipped with different colored chalk.  Everyone was invited to write what their good luck charm was.  I thought this might be a good opportunity for a little bit of renal advocacy, so I wrote "my new kidney".  The place was pretty full with lots of kids running around, so I didn't think anyone would notice who wrote what, but several people did, and one customer stopped me, congratulate me and then told me about how his next door neighbor was on dialysis and was also on the list.  So I told him about this site and suggested he might want to mention it to his neighbor.  So who knows?  Maybe that person is lurking right now and will come tell us how he found IHD.   :thumbup;