I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: davidokc on March 25, 2014, 03:00:18 PM

Title: hello,again
Post by: davidokc on March 25, 2014, 03:00:18 PM
well looks like the neph was wrong since aug of last year by GFR has dropped from a 45 to a 17 by BUN is 61 ...  creatinine 3.87 so my question is whats next  I had a long summer trip planned with my daughter now I'm unsure if I will be able too go. I would appreciate any opinions

I have scheduled an appt. with My Neph but would like to hear when other people started dialysis also I am a type 1 diabetic



EDITED:  Moved to Correct Topic - Rerun, Admin

Title: Re: hello,again
Post by: Rerun on March 26, 2014, 11:41:26 AM
Well, next would be and access.  Either a fistula for hemodialysis or a abdominal catheter for PD (Peritoneal Dialysis).  Once you get your access it is a waiting game.  My experience is that they start dialysis when GFR gets to 10.  But everyone is different.  Ask his/her advice on the summer trip.  I would like to see you go, but if you are going to be sick the whole time it would be no fun for your or your daughter.

Let us know how this goes.

               :cuddle; 
Title: Re: hello,again
Post by: Simon Dog on March 26, 2014, 01:50:18 PM
My experience is that they start dialysis when GFR gets to 10.
The general rule of thumb is start at gfr of 10, unless diabetic, then start at 15.  If starting PD, do it sooner to preserve residual.

The actual decision is a complex medical judgement and varies with the individual, which is why nephs get to charge what they do.
Title: Re: hello,again
Post by: davidokc on March 26, 2014, 02:50:23 PM
If I did PD I could still travel couldn't I ? I'm looking to try and do home treatments this trip is very important to me As I don't see my health getting any better.
Title: Re: hello,again
Post by: jeannea on March 27, 2014, 12:02:44 AM
You can travel on PD. You can also travel on hemo. Both take some planning ahead. If it's a really popular place, you have to schedule hemo on vacation far in advance. Either way, I wouldn't recommend traveling if you've only been on dialysis a few weeks. Your body needs some time to adjust to dialysis. You need time to feel familiar with your treatment so you know if something is wrong. Definitely ask your doc what he sees as the timeline and treatment for you.