I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: Patrick518 on February 09, 2014, 03:17:32 PM

Title: Hello
Post by: Patrick518 on February 09, 2014, 03:17:32 PM
My name is Patrick. I first learned of my kidney failure in 1997 in Tampa my diagnosis was due to hypertension they thought . I avoided dialysis for two years and started dialysis in 1999. I had a AVF placed In my left forearm and started 3x week treatments. The fistula failed soon  after and the surgeon couldn't fix it so he placed a graft in my upper arm in hindsight I never should have allowed him to do this but I didn't know any better at that time. At this time my Neph told me about nocturnal dialysis and I was hooked. In 2001 I returned to NY for my 30th HS reunion and decided to relocate back. I started in center treatments and actively started looking into nocturnal treatments at home. The first clinic I found never worked out but I soon hit pay dirt with the Rogosin Institute in NYC this was the best thing that happened to me CKD wise NYC was light years ahead of Tampa. I started  Home hemo in 2003 using a Fresenius 2008 h. The graft gave me a lot of trouble but at least they had Doctors who could take care of this very easily I might add Dialysis access was their speciality not an extra source of income . The graft finally failed in 2005 and was removed and my original AVF was revised by a very talented young surgeon who really took dialysis access seriously and it has been working very well ever since . I moved upstate in 2007 but kept my docs and clinic in NYC. I started having problems with my well producing enough water for the RO and I switched to the Nxstage System One . I dialyze 5 x a week for 5 hrs each . My diagnosis was recently  changed to polycystic kidney disease. That's it for now .
 
Title: Re: Hello
Post by: Angiepkd on February 09, 2014, 07:35:24 PM
 :welcomesign; Patrick!  I have Polycystic kidney disease, too.  I also do home hemo with NxStage.  You will find this site so helpful.  Lots of knowledgeable people with good advice.  Hope things go well for you and looking forward to learning more about you!
Title: Re: Hello
Post by: Darthvadar on February 10, 2014, 12:56:33 AM
Hi Patrick...

Welcome to IHD....

Visit often, and get posting.... We'd love to get to know you better....

Darth....
Title: Re: Hello
Post by: cassandra on February 10, 2014, 09:16:55 AM
Welcome to the site Patrick

      :welcomesign;


Take care, Cas
Title: Re: Hello
Post by: MooseMom on February 10, 2014, 12:28:57 PM
Welcome to IHD!
Title: Re: Hello
Post by: ToddB0130 on February 10, 2014, 03:09:26 PM
Welcome aboard, Patrick