I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: kai0206 on February 09, 2014, 08:18:38 AM

Title: Hey all
Post by: kai0206 on February 09, 2014, 08:18:38 AM

Hey everyone. My name is Kathy and I am a 30 year old from New York.  I was diagnosed with Secondary FSGS with nephrotic syndome about 4 years ago, but my doctors believe I might have had it longer than that.  Last week I went into ESRD and will be starting dialysis in 3 weeks.  It was somewhat unexpected. I went from Stage 3 to Stage 5 in about 6 months. The doctors were stumped.  My GFR is currently at 5. We knew I would eventually get to this point, but we thought I still had a year before it would happen.  I am being treated at the Columbia Dialysis center in New York and am applying to the Columbia Transplant Center.  I've decided to do PD Dialysis at home and will getting my catheter on Thursday and hopefully starting dialysis on March 1st.

Title: Re: Hey all
Post by: Darthvadar on February 09, 2014, 09:38:14 AM

Hi Kathy....

Welcome to IHD....

Don't be a stranger... Post often....

God bless...

Darth...

Title: Re: Hey all
Post by: Ninanna on February 09, 2014, 10:26:28 AM

I had a very positive experience with NY Columbia when I did my initial work up there. Ultimately I ended up moving several states away, so I never had it done there. Good luck and welcome!

Title: Re: Hey all
Post by: Jean on February 09, 2014, 12:02:13 PM

Welcome Kathy. Amazing how fast you shot from one stage to the last, isn't it? Hope it all goes well for you and   :welcomesign; to IHD

Title: Re: Hey all
Post by: Poppylicious on February 09, 2014, 12:20:08 PM

Hello Kathy, and  :welcomesign;!

Wishing you all the best for your impending adventure with dialysis.  We have lots of experience here so feel free to ask questions!

 ;D

Poppylicious, Moderator

Title: Re: Hey all
Post by: kai0206 on February 09, 2014, 01:11:46 PM

Thanks all!! Jean, yeah it is pretty scary. My doctors have been asking me if I took any supplements (like vitamins or herbs) but I haven't. 

Title: Re: Hey all
Post by: MooseMom on February 09, 2014, 02:13:33 PM

Hiya!  Welcome to our community.

I have not heard of fsgs causing that swift of a decline, but that doesn't mean it has never happened.  Lots of people here on IHD do PD, so there is a wealth of information and support available to you.  Keep us posted on how things are going for you, OK?  Please do not hesitate to ask any questions or to request a shoulder to cry on.

Title: Re: Hey all
Post by: ToddB0130 on February 10, 2014, 03:14:12 PM

Welcome to the board ..................lots to learn

Title: Re: Hey all
Post by: SooMK on February 10, 2014, 04:41:12 PM

Welcome Kathy. I'm at Colombia too. Hope it all goes smoothly for you.

Title: Re: Hey all
Post by: Bambino_Bear on February 10, 2014, 11:25:16 PM

 :welcomesign;

Title: Re: Hey all
Post by: kristina on March 22, 2014, 03:34:37 PM

Hello and welcome to IHD...

... good luck with the catheter next Thursday and best wishes form Kristina