I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: Seaweed on November 12, 2013, 10:15:42 PM
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:bandance;
When you read these post , you don't see a lot of success stories , and for me ,I'm a what IF guy , and I will what IF it to death.
I been on pd night machine for about two weeks now.
It's took me a long time just to get to this point, before I finally went on pd , i was taking all kinds of meds to prolong my kidney.
I don't miss steroid injections , and keno which agitated me.
I don't miss , cell crept , cozar , which may me cough all day long
I don't miss BP meds which made me feel weak
I don't miss taking water pills , which made me thirsty
I don't miss being fatigue all the time
I don't miss being depress because I couldn't get up and go
I don't miss having gout in my ankle
I don't miss getting up 5 times a night to the bathroom
Over the years it's been a slow ongoing death
I've been off work for 1 1/2 months and in two week I'm going to back full time
Ready to kick tail and take names
The worst is behind me , yep I'm Happy
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I am happy that you are happy!!
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I am happy that Jean is happy that you are are happy. Happy is good.
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Hi Seaweed. You are right. Those of us doing well don't offer enough encourgement/success stories to the new guys. My life is sooo much better than it was the 2 years prior to starting dialysis. The dread of dialysis iwas much worse than the process.
I just observed, decided celebrated was a little to strong a description, my 5th year of in-center hemo. I still work full time in my 8 -5 job of 28 years, I use FMLA hours to go to dialysis on Tues and Thurs afternoons. Saturday's treatment is on my time.
I still have my farm, 100 acre cattle and tree farm. 30 momma cows depending on me for food and care. Got interested in Hanging Tree cowdogs about 2 years ago and have 4 now. That's Jill and Sting in my avitar. I stay busy and there is always something I need to do. No time for thoughts of why me.
I'm lucky in that I'm only dealing with kidney failure, weird saying lucky with kidney failure but it's true, no additional health issues. Only meds I take now are low dose aspirin and binders. Like you I'm glad all the other meds are gone. I have a good nephrologist who told me the day we met in the ER to play the game and live or don't play and die. He said the goal was my having a quality of life that is as good as possible. When I play by the rules and follow the diet all is good. If I take in too much salt or fluid dialysis sometimes bites me in the butt.
I have a good and necessay support team, interventional nephrologist to keep my fistula tuned up(angioplasty last Friday), good nurses and techs at the center.
I to am happy, thank you for your post reminding me!!!!!!
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I'm happy you're all happy. Can I join the "I'm happy" club? I've been on PD for about 2.5 months. I work full-time and only stopped for a couple days here & there for catheter surgery, transplant testing, and PD training. So far, it's only a minor inconvience and I only need to even think about it in the evenings when it's time to set up and connect. I don't feel sick, and I tend to feel shocked when the dialysis center says something about emergency preparedness steps because that's the only time it occurs to me that this is necessary for life. It's more like brushing your teeth - something you just do because it's routine. It doesn't feel necessary for life because I feel so normal. When other people learn I'm on dialysis and seem shocked/horrified, I have to remind myself again that it's supposed to be a big deal.
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:welcomesign; Seaweed
I would like to join the happy club as well, thanks seaweed for bringing this up. I’ve been on NxStage for 3 years now. Wow, it went so fast. I like the fact that I can do my treatments at home when it’s convenince for me. I have the whole day to myself as I do my treatment anytime after 10pm. I’m glad I don’t have to take any BP meds as it was not working after a couples of months. I’m glad that I can drink as much fluid as I want and take it off the same day. I can do my treatment any day of the week and take off any day as well. My seat is always available for me and I love my chair as it’s a comfortable electric lazyboy chair. I’m glad that I don’t have to be in the clinic three time a week. I only go once a month. My life is now a life of my choice and I can plan trips, go to gatherings, visit family, and much more. All I have to do is carry my machine and supplies. No looking for a clinic to go to. I am happy that I am still functioning and looking good. My health is much better and I am much happier. I’m glad that I am in control of what my body needs and what I want my body to have. I can go on and on but will stop here.
:yahoo; :2thumbsup; :clap;
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It is refreshing to read all this !!! If you read my post about aspergilliosis, you will understand why. Also, I must add, my hubby is looking and doing way better than when he was trying to live with a poorly functioning transplant, creatinine of 5, grf at 11, and hgbm of 8-9. He spent so much time sleeping, now he goes to in clinic dialysis x3 a week and is very active inbetween. He was on a bushel basket full of meds, now just the Binders. It is still a big disapointment to have the possibility of transplant snatched away because of the aspergilliosis, especially with 2 willing donors. It's all so sad.
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Thanks people! The new ones to dialysis need to hear this.
:cheer:
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Three cheers for Seaweed!!!! :clap; :clap; :clap;
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:2thumbsup;
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Thanks for posting something positive here on Dialysis. I'm facing that in the near future and its good to see something that's not so negative on a web site that's for venting and ranting. After reading some of the posts, I feel like when I go on Dialysis soon my life isn't over cause theres people out there that do decent and live somewhat of a normal life out there with dialysis, and I'll be one of them I hope.
Gotmoose
GFR 20
PKD
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Just want to thank you again for your post !! I did relay some of your positives to my Hubby,[ he was to get a living related donor transplant in Jan,2014, now is in jeopardy due to a serious lung infection,aspergillosis he got last summer] It's looking like Dialysis will be the only treatment he can have. He is so busy now, no longer spending all day in bed, he is a part time bus driver, did all our lawn care this fall, took his pickup completely apart ,fixed, painted, put it together, goes bike riding, and never sleeps during the day now since on dialysis . He seems better than ever physically. Thanks again for your positive remarks .I second them !!!
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Thanks Nursey66, it goes to show us that transplant is not for everyone. I am one that will received dialysis for the rest of my life as of now unless God says otherwise. Hopefully, something better will come out in the near further. Your hubby will be fine. I’m so gald he did not give up as it really hurts me when people give up. Although, I want to give up sometime but always remind myself of the people who love me and will truly be hurt if I did. It’s hard sometimes but it not impossible. You can live a normal life on dialysis no matter if you are doing it at home or in-center.
BigUp for your hubby. :2thumbsup;
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:bandance;
When you read these post , you don't see a lot of success stories , and for me ,I'm a what IF guy , and I will what IF it to death.
I been on pd night machine for about two weeks now.
It's took me a long time just to get to this point, before I finally went on pd , i was taking all kinds of meds to prolong my kidney.
I don't miss steroid injections , and keno which agitated me.
I don't miss , cell crept , cozar , which may me cough all day long
I don't miss BP meds which made me feel weak
I don't miss taking water pills , which made me thirsty
I don't miss being fatigue all the time
I don't miss being depress because I couldn't get up and go
I don't miss having gout in my ankle
I don't miss getting up 5 times a night to the bathroom
Over the years it's been a slow ongoing death
I've been off work for 1 1/2 months and in two week I'm going to back full time
Ready to kick tail and take names
The worst is behind me , yep I'm Happy
Hello Seaweed,
I have just read about your pre-dialysis symptoms
and I wonder what your Creatinine- and your Urea- (Bun?) levels were
when you presented all these symptoms ... before you started with dialysis?
Thanks from Kristina.
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I would join the 'Happy Club' but I'm a miserable sod!
;D
But I'm happy that everyone is happy that you're happy. And I am happy that you're happy. Aww, shucks ... I'm not feeling so miserable now ...