I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Pre-Dialysis => Topic started by: gotmoose on October 08, 2013, 07:52:04 AM
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I have PKD. currently have a GFR of 20. I've noticed recently in last few months I'm always so cold, even when its warm out. Any ideas as to why?
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I'm reading that you are not currently on dialysis. Correct? Not sure how to answer your question then. I know that when I started in-center hemo, that I'm always cold. But I speculating that is because the dialysate they are using it at a lower temp than my blood. So as the two pass by each other, the temp of my blood is lowered just a bit and that makes me cold. AGAIN can't prove any of that, but that is my take. Grumpy
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I asked my dialysis nurse about this. I've been cold for several years before starting diaysis. At work, I wear fingerless gloves and keep a blanket wrapped around my legs. I can only wear shorts when the temperature is over 75 and I wear a sweatshirt all the time in the house and keep the temperature at 70 degrees night and day with an extra blanket on the bed. My nurse said it's because our body temperature is lower than most peoples', probably because of anemia, but I think there's more to it than just anemia. Now that I'm on dialysis, my body temperature is up to 97.x (it fluxuates). Before, starting dialysis, it was 96.x.
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I've been cold for years even before being diagnosed with kidney disease. I'd wear sweatshirts and long pants in the summer to stay warm. Once I received a transplant, my body temperature self-regulated. Sometimes I was even hot when the rest of my family was cold! Now that I'm back on dialysis, I'm cold again. My hemoglobin is almost normal (11.5), so I'm not sure it is because of anemia.
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Even with a gfr of 14, I never felt cold, so while I guess it is easy to assume that feel cold all the time is due to CKD, it might not always be true. But then again, I was never anemic, oddly enough. So, I dunno! LOL!
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Part of normal kidney function that docs don't seem to mention is controlling body temp. As your kidneys get worse, many CKD patients have problems with with their kidneys losing the ability. The anemia, of course, adds to the fun. I've had a transplant and I'm still perpetually cold. I guess the docs figure with all the symptoms that can do real harm, there's not much point in talking about one that doesn't do more than make you irritated.
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Hi gotmoose! I have PKD and am on home hemo. I have been cold for years lol! Even menopause hasn't helped me warm up, and I can't buy a hot flash when I need it! When I am on my machine, I am even more cold. My husband bought me a heated blanket and it really helps. Keep that in mind if you ever have to start D (hopefully you don't)! Praying you have many more D free years!
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I'm usually feel cold even when the ambient temp is around 68-70 degrees F,
Many times, during in-center dialysis, I shiver from being cold, but my temp is normal.
I've heard lots of theories, but none with scientific basis.
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I don't think I have more then a year before dialysis. Hope to get on transplant list soon. Think they are gona make me lose 15# before they do that. Another thing I've noticed is my memory is going to hell all sudden. Heard that's part of this disease. Angiepkd I have a question for you. How do you feel on Dialysis. My biggest fear is having cramps or lots of nausea. When the time comes for a transplant I hope I do as well as my mother. she is going on 25 yrs with her transplant.
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I don't think I have more then a year before dialysis. Hope to get on transplant list soon. Think they are gona make me lose 15# before they do that. Another thing I've noticed is my memory is going to hell all sudden. Heard that's part of this disease. Angiepkd I have a question for you. How do you feel on Dialysis. My biggest fear is having cramps or lots of nausea. When the time comes for a transplant I hope I do as well as my mother. she is going on 25 yrs with her transplant.
I feel pretty good on D most of the time. I have gotten sick twice during treatment, but I think it was due to eating too much. I get some light cramping at the end of treatment when I take off a lot of fluid. Nothing terrible. Good luck getting on that transplant list. Maybe you can have a pre-emptive transplant and never need D. The memory problems come with the kidney failure. I call it "kidney brain". It gets better when you start D. Talk to your nephrologist about losing weight. Mine has a dietician you can consult with for free. Maybe yours does too. Praying everything goes smoothly for you!
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I'm currently seeing a nutrionist my nephrologist recommended. I've lost 10# so far but still have a ways to go. currently waiting for transplant team to call me and discuss all the questions I have and what needs to happen in order for me to get on the list. My blood type is AB so I'm hoping that will increase my odds as to more donor options and matches. Don't have anyone lined up for live donor so I'm going with cadaver kidney like my mother.
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I'm at GFR 27 with anemia and I'm constantly freezing to death. I take afternoon naps because I'm COLD, and I warm up under the blankets. Then I take early, super hot showers so that I can feel normal after in the evening.
I also wear gloves around the house. I drag a blanket with me all the time.
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Au sual, I am quite later getting here, because I have been slowing down for years as my kidey function has declined. I also have had circulation problems in my legs so I don't walk around near as much as I should.
I am not a couch potato, I sit in my recliner.
With this combination my metabolic rate has slowed a lot, not burning sufficient calories to stay warm.
Even keeping the house at 74 (that costs!) I am chilled most of the time and stay well dressed.
Since I started PD last May and constantly have all this fluid in me pressing on my stomach, I don't eat near as much. Which is a good thing, I actually lost a couple of pound so far. But not feeding the body causes another metabolic slow down to conserve what fuel is already on board. So the body temp slowly lowers another 1/2 degree.
Talk to your Dr's to see if there is any possibility of speeding up.
Ask the Nutritionist if you need to eat more calories.
And lastly, can you get up and move, walk, anything to make your body burn a few calories.
I fully understand your frustration. I have young Grandsons and they are used to me getting outside, playing around on the sleds in the snow. I usually drive the 4 wheeler and drag them around the propert. This year is the first time I stayed inside, I was just too cold. I haven't been much fun.
Take Care,
Charlie B
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I was cold when my eGFR was down to 15 and it was a symptom of failing kidneys. Now back to 25 eGFR I am still chilled even when it is warm, something to do anemia I was told. Hope you warm up!
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I am wondering whether feeing so cold in ESRF is connected with very low haemoglobin levels ?
I felt extremely cold and freezing and just have been diagnosed with a very low blood level and I needed very urgent treatment...
After the first treatment I already felt much warmer... Just a thought...
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I've been taking Proferrin and my hemoglobin is back into the higher half of the normal range and I'm nowhere near as cold as I used to be!
Take that as you may... everyone is different, of course.
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Ha. feeling cold was an event going back many decades for me.
Now do keep in mind I'm not a doctor, a chemist or nor a pharmacist.
I don't pretend to be anyone other, then one, that also looks for answers, to life's rough spots.
My notes saved over the years (ah computers) are still a goldmine for me.
Mind you it is still all experimental for me. What seems to work and help, I expand slowly upon.
Of course we are all unique souls. Of course what works for me may not work for you.
Yup, that is why even doctors change prescriptions, when undesired effects take place.
That is why I say' it is still all experimental', even for many in the medical field.
Be Well
talker
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From my saved notes:
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It Could be Your Gender
Women are more likely to feel a wee bit colder than men. It is because of the
presence of high levels of the hormone estrogen in them and also because they
have more fatty deposits and lesser muscular tissues in their bodies, as compared to men.
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Diet Could be the Culprit?
The diet of a person has a lot to do with the way he feels. So, if you are
taking an unhealthy diet, i.e. you eat junk food most of the time or your diet
lacks in the required nutrients and vitamins, or worse, you starve yourself and
have lost tremendous amount of weight recently, it could make you weak, cold and
tired. A poor diet, accompanied by rapid weight loss, is the perfect recipe for
an abnormal body temperature.
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Hormonal Imbalance could be the Culprit?
When a woman enters menopause or is pregnant, lots of hormonal imbalances take
place inside her body. When the estrogen levels rise in a woman, they can
produce lots of symptoms in her including constantly feeling cold. So the change
in the levels of estrogen hormone is the prime culprit behind this feeling.
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Do You Maintain A Healthy Weight?
When a person eats food, the body, in order to help in digestion, sends blood
towards the stomach. This leaves the other parts of the body with lesser amount
of blood, thus making the body cold. In addition to this, if a person is
underweight, he is bound to feel these changes in the temperature of the body
even more severely than others.
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Is Your Blood Pressure Normal?
People suffering from both these conditions i.e. high and low blood pressure,
often find their feet and hands cold. If a person has low blood pressure, his
blood flows very easily and thus, only a small amount is able to reach his hands
and feet. On the other hand, in case of high blood pressure, the blood flows
with a lot of difficulty and again, only a small amount reaches the extremities.
Thus, both these conditions make a person feel colder than others.
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Check Your Medication!
If a person is taking some drugs or medicines, then they can produce side
effects such as chills in that person, especially if the medicine is not suiting
the person.
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Any Thyroid Problems?
If the feeling of coldness is accompanied by rapid weight gain, which even
exercise and proper diet can not control, then probably the person is suffering
from a thyroid problem. Thyroid problems slow down the metabolism process and
thus, lower the body temperature in a person.
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Weakened Immunity
Feeling cold can be experienced in two ways, i.e. either the entire body is cold
or only the hand and the feet are cold. If you are experiencing the latter, the
reason could be a weak immune system. A weak immune system could be due to the
presence of parasites in the body, which make infections such as Candida, to
affect the body easily, thus, weakening the immune system even more in the
process.
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Raynaud's Phenomenon
People with this condition tend to have very cold hands and feet. When a normal
person is subjected to an extremely cool temperature, the blood in his body
moves towards the internal organs to keep them warm. However, in people with
Raynaud's phenomenon, this same response takes place in an extreme. The blood
flow to the skin is reduced to a very large extent, making the person feel cold.
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For people who are constantly feeling cold, the first thing to do is to start
taking a healthy, balanced diet. A diet which has the right amount of proteins,
vitamins, fats and minerals. A balanced diet ensures that the body weight is
appropriate and thus, it will help in maintaining the right body temperature.
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Skipping meals is something that should be completely avoided. It is a
well-known fact that if a person is on fast or has skipped a meal, the body
would not have enough energy and thus, would produce very less heat.
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Exercise, especially cardiovascular training, benefits the capillaries and
improves circulation in general.
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Feeling cold can be both normal as well as abnormal.
However, chills caused due to a thyroid problem or any other medical
condition, should be referred to a doctor, without fail.
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Low thyroid will cause cold hands and feet.
A simple blood test will reveal your thyroid function.
A thyroid supplement may solve the problem.
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Many people have low thyroid hormone levels, which leads to a sluggish metabolism.
Common symptoms are sleepiness, sluggishness, cold hands and feet, and hair loss.
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A mixture of uncooked, fresh minced cayenne pepper and ginger.
Crushed ginger in green tea.
Cayenne pepper: 1/2 tsp. with water
A cayenne filled capsule.
ACV (apple cider vinegar) with water :shy;
Blackstrap molasses. straight or in water
Coconut Oil. straight
Lugol's Iodine
Garlic
Butcher's Broom capsule.
Collinsonia Root capsule.
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