I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: swoytasik on September 23, 2013, 08:22:45 AM

Title: I'am scared
Post by: swoytasik on September 23, 2013, 08:22:45 AM
My daughter has been in and out of the hospital for several months.  She started with an infection in her lining of her stomach. She was on PD. They thought it was cured, then went back in for a blood infection, the also thought that was cured. Then went back to the hospital because of a fungal infection. They finally took out the PD line. Now, she was in a rehab hospital and had to go back to the regular hospital to have surgery on her intestines area stating that there are pockets of infection. She has a drainage tube in her. They are saying she has Sepics and she is now in a coma and they don't know why. I haven't got any answers, they just don't know why she is in this. They have her hooked up to several medication and are doing Hemo 24 hours a day to flush out her system.  I'am so scared for her.  It has been 4 days now and on the 5th they want to talk to the family if she is not doing any better.  Can you give any suggestion on what to ask the Doctors or has anyone been though this?

Title: Re: I'am scared
Post by: Grumpy-1 on September 23, 2013, 09:03:51 AM
Wow !!!   Sorry to hear all this.  I really don't know what to say or to ask the doctors in this situation.  But I wanted to reply so you knew you were not being ignored. Grumpy
Title: Re: I'am scared
Post by: Shaks24 on September 23, 2013, 09:40:41 AM
I am also so sorry to hear this. I will say a prayer for your daughter. I hope you can get to the bottom of this situation soon and I hope she recovers quickly.
Title: Re: I'am scared
Post by: Joe on September 23, 2013, 09:54:48 AM
I don't know what to tell you, but will add a prayer for guidance and strength as you go through this.
Title: Re: I'm scared
Post by: renalwife on September 23, 2013, 02:08:28 PM
  How old is your daughter?  What is her first name, or her "handle"?  Decisions must be made but what decision? 

What to ask the doctor:  Will she recover this setback?  What other options are available for her?  Should she have another consultant, or even two consultants? 

Is  there family available to give you strength?  And perhaps a spiritual adviser would be a comfort.

Our hearts go out to you.
Title: Re: I'am scared
Post by: Jean on September 23, 2013, 02:48:17 PM
I would be scared too. Don't know what to tell you about the Dr. But, I do understand Sepsis is not a good place to be. Do you have some one who can be with you when you talk to the Dr? I would not want to be alone if the news they give you is not good. My heart goes out to you, this is a horrible thing to have to go thru. I will say a prayer for your daughter and for you.
Title: Re: I'am scared
Post by: swoytasik on September 25, 2013, 09:40:32 AM
Thank you so much for all your prayers, it means so much to me at this time.

Her name is Jodi. The intensive Dr wants us the family to end her life.  I just can't at this time do that, hoping that she will wake up. She is so sick. the PD line that was in her just tore he stomach up and now they are doing a EEG on her brain to see if there is damage.  They say septic also goes to the brain.  I hope this is not what happened. Im so confused now. I cry all the time. She is only 43 yrs old. My poor baby...

Thanks again.
Title: Re: I'am scared
Post by: UkrainianTracksuit on September 25, 2013, 10:20:17 AM
So sorry and sad to read this.   :grouphug;  I'm sure more prayers will be coming your way.
Title: Re: I'am scared
Post by: billybags on September 25, 2013, 10:38:49 AM
swoytasik , My heart goes out to you and your family. my prayers will be with you all.
Title: Re: I'am scared
Post by: swoytasik on September 25, 2013, 08:40:26 PM
Thanks again for all you prayers.  But today she is not doing any better and there is really nothing anyone can do. Our family will be taking her off life support Friday. Please keep her prayers coming so she can have a wonderful journey home.

Thank you and God Bless you all.
Title: Re: I'am scared
Post by: MaryD on September 25, 2013, 10:16:27 PM
 :grouphug;
Title: Re: I'am scared
Post by: amanda100wilson on September 26, 2013, 05:08:45 AM
I am so very sorry to hear about your beautiful daughter. :grouphug;
Title: Re: I'am scared
Post by: Grumpy-1 on September 26, 2013, 10:51:01 AM
swoytasik    SO SORRY for your loss.  I pray the Lord will be with your family during this hard time.  Grumpy
Title: Re: I'am scared
Post by: okarol on September 26, 2013, 11:55:36 AM
 :( I am so sorry about Jodi. This is a heartbreaking story. As a mother I can only imagine the pain you are experiencing. Sending you warm hugs.  :cuddle; :cuddle; :cuddle;
Title: Re: I'am scared
Post by: Shaks24 on September 26, 2013, 01:12:14 PM
Praying for the strength and peace of the Lord to be with you and your family during these difficult times. I am so sorry you are going through this.
Title: Re: I'am scared
Post by: Angiepkd on September 26, 2013, 07:35:40 PM
 :grouphug;  :grouphug;  :grouphug;
Title: Re: I'am scared
Post by: Desert Dancer on September 26, 2013, 08:50:56 PM
I am so sorry you're losing your beautiful Jodi. What a terrible decision to have to make. I wish we could all be there to hold onto you in person.  :grouphug;
Title: Re: I'am scared
Post by: galvo on September 26, 2013, 09:21:51 PM
My sincere condolences!
Title: Re: I'am scared
Post by: Jean on September 29, 2013, 01:28:59 AM
I lost my first born child when he was 14, so, I know the pain you are going thru. So very very sorry this has happened to you. Believe me when I tell you, you did nothing to deserve this and it is not your fault.
Title: Re: I'am scared
Post by: cdwbrooklyn on September 29, 2013, 07:42:28 AM
So sorry to hear about Jodi. I will prayer for you and your family.  :grouphug;
Title: Re: I'am scared
Post by: lunadatura on October 11, 2013, 09:03:03 PM
hello

i am VERY SORRY to hear of your loss. i had speticemia from a dialysis access that got infected - i spent a week in ICU and it was the single worst experience of my life - they give you 50 percent chance of living when with sepcis. my heart goes out to you in your grief