I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: boswife on June 19, 2013, 12:32:57 PM
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I am so stressed and about to crumble... bo had 'something' last week , a possible seizure due to low blood pressure, and i honestly thought i was holding him for the last time. I wont go into what all happened, but breefly, he was spitting up flem a bunch the other night, sitting up and down (his norm bp is 80's-90's/38-45) I kept checking bp, temp, and blood sugars. All were ok then he started shaking violently, stiffened up, and went down.. 911 came and bp was 50/10 (thats what they said) Anyway, they took him,(i followed) and the next day we were out. bp once again ok and la te da. NOw, i have been checking it 18x a day and all has been ok until today. He acted fine, but machine went to 55/24/51.. I checked again and was only slightly higher...Gave salene, and still for the next 10 min, it was still 60/36 and then finally back up. He didnt feel bad or anything, but what in heavens name am i suppose to do when he faces me and tells me NO 911. He doesnt want to go to hosp. It's killing me and i know others have gone quite low like this so thats really why im here. Do you just 'go with it' and hope it comes up. Is it fairly normal HA to go that low occasionally?? He was actually feeling better today, and then that. Any input appreciated...... and Oh please pray for me for if this is his wishes, im not doing good with it yet.... :'(
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Oh! I'm so sorry bosswife. I wish I had some words of wisdom or even comfort for you, but I find I'm quite speechless. I hope bo's BP normalizes and stays in normal range. Perhaps he was speaking from the stress and fears that any hospitalization brings and from just being tired of all the pain and worry that he faces daily. I can't imagine hearing those words from my husband. I don't know how I would cope, but I'm sure it would take some strong prayer to come to grips with the idea of letting him go. I will of course be praying for both of you. Dang, I feel so inadequate right now!
:cuddle; :pray;
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Sorry that you are going through this; however, when that happens to me, I usually drink the olive juice from a bottle of olives. I keep a bottle of olives in my refrigerator. It will add a little more water back on and help the low bp. When your bp goes that low, it is usually because you have taken off too much water. Also, you can use broth from the soup as well.
Hope this helps. 8)
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I too have the same issue as you: "What am I supposed to do when he say NO do not call 911? I struggled with that too and on more than one occasion I have not called 911 or taken him to the hospital when I thought he should go. Fortunately, everything turned out OK. And then one time I just waited and waited and waited, and finally he said "Call 911" I have decided that he will have to be the one to say call 911 or he passes out and then I will call 911. I have been thru this so many times, I am tired of it. Now I let him make the decision. It is his life, his body, and I will honor his wishes (unless he passes out).
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Oh Boswife, I'm so sorry. I think it must be harder to be the support person that the actual renal patient..... especially at times like this. Yes BP down usually means too much fluid off. I wish I had something useful to say..... praying for you sweetheart...... Muppy
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My BP is in the dirt most of the time day or night. They put me on Midodrine. It raises your BP and I take a 5mg pill one hour before dialysis. It seems to help. Now they put me on 2 a day. One in the morning and one before dialysis and on off days one about the same time that I would usually. Then since I'm on 8 hours and night she said to take one with me just in case.
She is a new Nephrologist as my old one retired. It may be a good thing. I like her so far. :waving;
She said people stroke in the 60's. I don't want to live like that. :pray;
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So sorry you are going through this! Hope the BP comes up without any further problems. I am not sure what I would do if my hubby didn't want me to call 911. My gut tells me I would call anyway, and deal with his wrath after the fact. So much depends on his quality of life. It sounds to me like he has a lot to live for, despite the health issues. You are a wonderful caregiver! I would hate for you to live with the "did I do the right thing?" question. When my dad was very sick, we met as a family and decided to honor his wishes and stop dialysis. That is a decision I still struggle with. What if we had given him more time and he recovered? What if he changed his mind and couldn't tell us? He would not have wanted us to question our decision, but that is what we were left with. It made losing him so much harder! Hopefully you don't ever have to be in that situation! Hang in there! Sending prayers and hugs!
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Thank you dear people. We all know this is hard, and at times nearly unbearable :'( "we" are a bit better each day and with your help, and prayers, all will be 'right'. One day at a time :) :flower;
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Boswife, I hope things are going a bit better for you to-day. I agree with WifeofDiaylsisPatient . Some times we as carers have that inner panick switch that tells us " yes he needs a paramedic now" but like you , my husband will say "I'm alright let me rest" men. I send for the paramedics and hubby is sitting up in bed saying he feels Ok, I could murder him. He will then argue that he does not want to go to the hospital. I get so stressed out the same as you. The edge of the knife is getting sharper, its nicking my bum.
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Boswife, God bless you. :grouphug; :pray;
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Thank you friends. I dont know, honestly, how i/we could do this without each other. Have had some laughs with hubby today which is a huge improvement just at that :) And pray for more. thanks again, prayers and hopes for all :grouphug;
special thanks for offered prayers :cuddle;