I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: rohith315 on February 20, 2013, 06:17:37 AM
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Oh dear. Welcome to the forum. I'm afraid I don't have good news to share.
There really is nothing to be done at this stage other than start dialysis. A creat at 7 is very high, and with his numbers rising so quickly I would not hesitate. What is his potassium level? High potassium could kill him very, very quickly. No one wants to be on dialysis, but if there were another way besides that or transplant, we would all have tried it by now.
Has your grandfather said he refuses to go on dialysis? Is he aware of his access and modality options? (I assume India offers both hemo and peritoneal dialysis?) If he insists on delaying dialysis, keep his protein, potassium and phosphorous under strict control. Is he vegetarian? I am and that supposedly helps a bit. I believe sodium bicarbonate is a recommended supplement but I cannot remember why, but it's inexpensive and readily available. Check with a doctor first though, please.
Sorry to not have more to offer. Stick around, keep reading and writing, and we'll help however we can.
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I think it's time to have an honest conversation with him. Does he want dialysis? Does he want to refuse dialysis knowing that this is fatal? After you talk with him you'll know what to do. I'm sorry he is ill.
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There is a supplement called chitosan a fiber made from the shells of shellfish. It will lower the blood creatinine and urea the serum cholesterol and improve your serum haemoglobin levels. You can take up to 4 grams a day but the caveat is you must get at least 7 full glasses of water daily while using this or you will be passing a brick. If you are on fluid restrictions you must ask your doctor. I know this works because I use it every day and have the blood work to prove it. No fluid restrictions for me. Read about it at NIH pubmed http://www.ncbi.nlm.nih.gov/pubmed/9255718 (http://www.ncbi.nlm.nih.gov/pubmed/9255718). This will not remove the potassium or phosphate.
Cheers,
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The quickest way to reduce creatine levels is to reduce protein intake. However, there is a limit as to how low your protein intake can go. If you go below 40g/day, you absolutely need to take amino acid supplements. Even then, I've seen diets with as little as 20g/day protein intake, but those are rather severe. I doubt you could go lower than that without starving.
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I wouldn't think that supplements would work to lower creatnine unless you have some function left, since, without function, it just stays in your blood.. if you have some function left, then the creatnine will clear out, but if you don't, there's no magic pill anywhere that's going to help
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it is the not,the high creatinine that is the problem. , Creatinne is simply a metabolite that is easy to measuremto,determine how well,the kidneys are working. High potassium is a problem as Cariad has already stated, and his is already above the normal rrange. if your grandfather wishes to stay alive this is not the time to be seeking alternative remedies. If you,look at this objectively, do you think that insurance companies (or other payees) would pay for expensive dialysis if cheap alternative remedies would work?
Depending on your grandfather's overall health status, dialysis can be an option, but. your family need to have a frank discussion with him, preferably with the support of a nephrologist, or other medical professional, about what he he wishes to do.
I wish you and your family all the best in this process. I know that it is hard to,have to deal with this. :cuddle; :grouphug;