I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: Grandylori on November 27, 2012, 08:34:48 PM
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I recently happened upon this board when I found out I am in the beginning stages of Lupus Nephritis and wanted to understand more about the disease. Because I have no insurance, I have tried my best to treat my Lupus naturally, with a lot of success...but, with Lupus you never know what's next! My heart hurts for John and his wife, and it makes me sick how they were treated by the doctors when John chose to do things differently. I must say that their story, as well as other's I have read, has heightened my resolve to find an alternative answer to this most frustrating issue. I say frustrating because all this time I've been eating a diet conducive to healing the Lupus as well as my Lupus induced heart disease, and the kidney disease diet is the exact opposite of what I've been doing these last nearly four years. Basically, one causes harm to the other and vice versa...and I can't just ignore one to care for the other, since they are the two most important organs in the body.
Well, I have found an answer and for the last three weeks I've been taking a product called Ubiquinol, which is the bio-available form of CoQ10. I am just recently noticing significantly less pain in both of my kidneys, though I still have a lot of water retention.
There has been a double blind study done that shows CoQ10 can reverse Kidney disease, even in the end stages. I am posting the better of the sites that talk about CoQ10/Ubiquinol so that you may read them for yourselves, in order of their significance. These are available to the public and are not copyrighted.
I wish the best to all of you and hope this helps at least some of you. :pray;
http://www.rejuvenation-science.com/n_coq10-kidney_failure.html
http://www.annieappleseedproject.org/coqbenforenr.html
http://digitalnaturopath.com/treat/T89577.html
http://www.livestrong.com/article/499771-ubiquinol-dosage/
http://vitamins-minerals.knoji.com/the-health-benefits-of-coenzyme-q10/
Edited: Moved to General Discussion - okarol/admin
Grandylori,
Please make a post in the "introduce yourself" section.
Thank you.
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Nothing can reverse end stage renal disease. Some people are able to stop dialysis because the disease they had was able to be treated. Don't tell us that taking some nutritional supplement will keep us off dialysis. It's not kind.
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I agree. I have heard stories though about lupus patients going through a few sessions and their kidneys kicked back in. That has not happened to me and it will not. i think your lupus has to be active to the point of it attacking your kidneys to the point of you needing dialysis and after a few treatments you no longer need dialysis. I believe if that happens that is considered as acute renal failure, not chronic. There is nothing we can do to reverse. If there was, we would of all done it by now. Nothing is going to replace an organ without a actual organ.
Sorry,
Lisa