I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Pre-Dialysis => Topic started by: KidneySinger on July 31, 2012, 07:55:02 PM
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I have a failed fistula but let me tell you the story....
I go to Mayo, thinking I have great docs and they will do everything right.
My GFR is 18 and my Neph wanted me to get a fistula to prepare and have it ready for the future.
I did all the pre op, mapping and so forth and they were putting it in my upper arm.
I went in for the surgery and all seemed to go well.
I never saw my doctor after the surgery and they sent me home after several hours of recovery.
After a couple of days, I read that I should feel a buzz....and I didn't. I called the doctors office and they told me not to worry, it takes weeks before you feel it.
My post-op appointment was 2 weeks after the surgery. I went in and sure enough, nothing.
They sent me for a sonogram and verified a blockage.
They then scheduled a 2nd surgery to try and unblock with a cathetar - it was scheduled for a week later.
I got a call that they had to re-schedule and now it was 2 weeks later...a total of one month had passed.
I went in and got all pre-opted with IV and ready to go...the doctor (different doc) came in and looked concerned and told me he was going to call my other doctors because he didn't want to do the procedure. He said it had been to long and it wouldn't work. They sent me home.
I now have a failed place in my arm that can no longer be used.
I went in today, 2 months after my surgery and saw my doctor for the first time...he wants to do a graph in the forarm.
Maybe these things happen but it does not seem normal to me.
I know fistulas fail, but it seems they should have tried something earlier...this was major surgery for me and I ahve a 6 inch Z in my arm, all for nothing, and can never be used again. And to make matters worse, my hand is STILL swollen. I can't wear a watch, a ring and can't put on a extra large gardening glove...2 month later.
What do you think?
Thanks!
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Edited: Duplicate topic - go to http://ihatedialysis.com/forum/index.php?topic=27185.0
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