I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: Annig83 on June 13, 2012, 06:41:43 PM

Title: Sjogren's Syndrome
Post by: Annig83 on June 13, 2012, 06:41:43 PM

I have a question... today my Rheumatologist told me that I may have Sjogren's Syndrome- (Commonly diagnosed with RA, and Lupus, or can be diagnosed by itself).  My doctor said that currently my blood work shows an autoimmune disease in my system that is mimicking Lupus and the Sjogren's, but hasn't actually appeared and given all the symptoms.... I know confusing!  My question is... because I have an "abnormal immuniology", will this affect me getting a kidney?  If I can get one... will I have a higher chance of rejecting it?  I know I asked before if Lupus would affect getting a kidney and some of you said no, but if I have an antibody in my blood... will that make it harder to find a match?   ???

Title: Re: Sjogren's Syndrome
Post by: amanda100wilson on June 14, 2012, 07:36:44 AM

This I s only my won't thought and I suggest that you ask your doctor but I do not see why it would.  Thisis not the same antibody as the antibodies that make it more difficult to match for transplant.

Title: Re: Sjogren's Syndrome
Post by: jeannea on June 14, 2012, 10:18:11 AM

The only thing I know is that many people with lupus are able to get a transplant. I hope this doesn't make things worse for you.

Title: Re: Sjogren's Syndrome
Post by: tiredandthirsty on June 14, 2012, 06:27:40 PM

i know a person who had/has lupus and received a kidney from her brother. don't know much details but she received her transplant i think in 2005.  she also made it through an antibody rejection after the transplant.  chin up mate.  chin up. 

Title: Re: Sjogren's Syndrome
Post by: Annig83 on June 15, 2012, 06:21:42 PM

Thanks all. I saw the doctor today and he is unconcerned about the Sjogren's :)  Good news!! YAY!

Title: Re: Sjogren's Syndrome
Post by: MooseMom on June 16, 2012, 12:40:03 AM

Wasn't Venus Williams recently diagnosed with this syndrome?

Title: Re: Sjogren's Syndrome
Post by: Annig83 on June 16, 2012, 06:05:30 PM

MooseMom- Yes, she was.  Hers is much worse than mine. I haven't had the joint pain at all (thank goodness), but hers seems to be debilitating! I'm lucky!